Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Preschool


Nantzie

Recommended Posts

Nantzie Collaborator

I'm pretty much just worrying and obsessing here, because I'm still waiting for my DD's enterolab results. My husband and I have decided to fly below the radar and not talk to her pediatrician about it to get an official diagnosis if her results come back positive. We'd be a little worried about insurance. My husband's in the mortgage industry and who knows how that's going to turn out in the next few years... If he gets laid off or the company closes its doors, getting insurance may become a problem. There are some other concerns I have too, but that's a top one right now.

I was just wondering if anyone has had problems with preschools, or any schools for that matter, requiring a doctor's note? Or do they tend to just take the parent's word for it?

Thanks,

Nancy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiacgirls Apprentice

One of my daughters was gluten-free off and on during preschool. We were just experimenting and didn't have an official dx. None of her preschools or Kindergarten ever gave us any trouble. On the other hand, I never asked them to do anything special like change the play dough, etc. I just told them she couldn't eat gluten and I would send all of her food.

If anyone ever required a dr's note, I would give them a copy of Dr. Fine's letter.

Guest nini

my daughter's pediatrician was more than happy to compose a "blanket" letter for me to take to school... initially in preschool when we were trying the diet, it was helpful to have a letter on file, but they also took my word for it because they could see how sick my daughter was and the difference once she was gluten-free.

wonkabar Contributor

My son's preschool has been absolutely wonderful about following the gluten-free diet; we've never submitted anything from the doctor. He had neg. labs and we wouldn't put him through biopsy due to his age. BUT, he had an amazing dietary response so the proof was in the gluten-free pudding! :P My pediatrician agreed to call Zachary's obvious issue with gluten a "gluten sensitivity".

His teacher is very mindful of his dietary needs (foods, arts/crafts materials, etc.) and will not give him anything that we haven't sent in or given permission for. His teacher wouldn't let him have an ice pop last week b/c she wasn't sure if it were safe...this certainly makes preschool much less stressful. I've given her lots of information about gluten-sensitivity and Celiac which definately helps.

Enterolab does not Dx Celiac. It indicates gluten sensitivity, auto-immune response and fecal fat absorption. I did share my son's labs with the ped. In fact, we have a sick appt. this morning so I'll talk to him about the lab results then. I understand your concern about a Dx and insurance. I don't think you'd have to worry about that with Enterolab though b/c it doesn't Dx Celiac, but I can't say for sure. Someone else may know that answer.

--Kristy

mcsteffi Rookie
I was just wondering if anyone has had problems with preschools, or any schools for that matter, requiring a doctor's note? Or do they tend to just take the parent's word for it?

I would not think any school would need a note. My sons school had seen how sick he was though and was thrilled the first time they saw him run! When they saw what a difference a diet could make they did not question me. But also I take most of his food. I take his rice and chicken or pasta and he eats the side dishes there. He also has a bin in the class room that has his cracker and cookie snacks... he eats their fruit. There has been a few goofs here and there but I still goof too so I cant place blame. But even at 2 1/2 he is learning that if a food looks different from what mommy usually gives him he wont eat it most of the time. His teachers are amazed by this....lol. If they say they need a dr's note to feed a child correctly I would think twice about that school.

Stephanie

Guest nini

I forgot to mention the reason why my daughter's preschool felt it was helpful to have a note on file, they recieve state funding for "no child left behind" and all kids are supposed to eat the same thing, (specifically they had special funding for menus and had a cook on staff preparing breakfast lunch and snacks) so in case they got inspected and had to explain why she was eating something different from the other kids there was documentation on file. Turns out though that when they got inspected, no one even questioned it. The staff at the preschool made a point of showing the inspector that they had a separate area in the kitchen for kids with food allergies and that they also had a list of kids and their specific allergies in the kitchen and in the office so that the staff could be extra careful. The state didn't seem to be bothered at all by that. No reason they should have been. Recognizing that food allergies and intolerances are a very real concern is something that all preschools and schools should be aware of, and should be willing to accomodate. If they aren't willing to accomodate then find another preschool. And I would think that a note on file from the PARENT should be sufficient enough if it were to become an issue. But since I had a Dr.s note provided for me, we used that.

Nantzie Collaborator

Yea, I was thinking that if her test results come back positive I might pull her out of preschool for a few weeks or a month anyway just to get her eating under control. She's a very picky eater anyway, and the change to gluten-free might be a struggle. There are already things that are gluten-free that she loves, so I'm halfway there. But it might be easier if she stayed home for a couple weeks at first. That way I can make sure she's not getting any gluten too. If she went to preschool, they would be more likely to make a mistake than I would.

Since gluten-reactions tend to be pretty dramatic, anyone who accidentally gives her gluten will understand pretty immediately that it's serious.

As far as classroom supplies, I think I'd see if we could offer to buy gluten-free supplies for her classroom. I saw in the archives, Nini, that you made a bunch of gluten-free playdough for your child's class. I think I could do that. And then I could make a bunch of additional colors (or how 'bout some sparkles in some of it?) so their playdough was better than the rest of the school's. :P:lol:

I was looking through the archives and someone posted that their child's preschool had a no food sharing policy, and everyone had to provide all the food for their child. I'll have to call around and check the schools and see what the different policies are.

I feel silly worrying about this when her results aren't in, but I'm pretty sure she's got something going on. Things have changed with her in the last couple months. She's more tired, dark circles under her eyes, says her tummy hurts and isn't eating as much. She had a couple of rounds of antibiotics pretty close together this spring, and that's when things started being not so good for her. So I'm expecting a positive test. But antibiotics can also cause candida overgrowth, so it might be that too.

I just ordered the gluten sensitivity stool test kit for my son too. I have been spacing out the tests so we could afford it easier, but it's better to know for both of them ASAP.

Nancy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

you mention that your daughter is a picky eater? mine was too UNTIL she went gluten-free! It was only because her tummy hurt everytime she ate that she had become picky. It wasn't until after the fact that I realized the things she preferred to eat were naturally gluten-free.

Nantzie Collaborator

You know, I saw someone else mention that too!! I wasn't getting my hopes up, but I've got my fingers crossed that she ends up doing that too. It really makes sense.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    2. - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    3. - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

    4. - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

    5. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Blood Test for Celiac wheat type matters?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,136
    • Most Online (within 30 mins)
      7,748

    GFTom
    Newest Member
    GFTom
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
    • Jmartes71
      I also noticed I get debilitating migraines when I smell gluten, wheat and its not taken seriously when it affects one in every way.Im still begging to properly be heard.I also noticed tolerance level is down the drain with age and life changes. I have been told by incompetent medical that im not celiac or that sensitive. Diagnosed in 1994 by gi biopsy gluten-free ever since along with other lovely food allergies. Prayers
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.