Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Have Gone Gluten Free

susiek

By susiek
in Coping with Celiac Disease

Recommended Posts

susiek Apprentice
susiek
Posted

I've been gluten free since Friday. Oh, there have been some gluten-ings! But mostly doing ok and feeling fine. Still exhausted. Mostly I am worried about the ever-present heartburn and the feeling that I have something stuck in my throat. One day I thought it was the fairly awful dry cluten-free cookie I tried. But it seems to happen a lot.

I am not eating bland. I am eating "regular" along with my family but doing so gluten free.

Can anyone give me a hint about the stuck in my throat feeling? Or am I way off course with this thought that gluten intolerance has been causing my problems! I just had blood drawn last Friday and have heard nothing about results.

Thanks so much!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jenvan Collaborator
jenvan
Posted

One possibility could be reflux. Chronic heartburn can cause inflammation in the esophagus, which can constrict it...and cause the feeling or reality or food getting stuck in the throat. Complications of untreated Celiac can include reflux...but your doc would have to do a scope to really confirm esophageal inflammation.

Nancym Enthusiast
Nancym
Posted

Sometimes people with thyroid issues have a funny feeling in their throat or difficulty swallowing. Get your thyroid checked!

gfp Enthusiast
gfp
Posted
One possibility could be reflux. Chronic heartburn can cause inflammation in the esophagus, which can constrict it...and cause the feeling or reality or food getting stuck in the throat. Complications of untreated Celiac can include reflux...but your doc would have to do a scope to really confirm esophageal inflammation.

This would be the first suspect but it begs the question if you are really 100% gluten-free.

Are you possibly being contaminated if eating regular food with the family.

Its practically impossible to avoid this in a mixed kitchen and a spoon used to stir or a breadcrumb on butter are more than enough to make you ill.

However some foods tend to cause some people heartburn....

If I eat a lot of buckwheat I get heartburn... independant of gluten.

Others have problems with soya... (my mom)

You could also have introduced a new food item you don't usually eat in the gluten-free stuff you are eating.

Cazzy Newbie
Cazzy
Posted

Only gluten free since Friday? It's very early days, and even if you were clever enough to avoid all mistakes immediately, it takes some time for the damaged villi to repair themselves.

Don't ask too much of yourself, it takes time to come to terms with Celiac Disease, and stress is a major cause of indigestion and heartburn.

It also takes time to adjust to your new lifestyle, just learn what you can, be consciensious about avoiding gluten, but don't expect instant good health. It's good that you finally know what is wrong with you, and the good news is that you can be well again. Slow and steady does it. Good luck Susie!

happygirl Collaborator
happygirl
Posted

Susie-

Welcome to the world of gluten free :)

I had heartburn as one of my symptoms before being diagnosed. After going COMPLETELY gluten free (no glutenings....multiple glutenings means you are not gluten free), my heartburn and other symptoms went away. It took months for me to feel even remotely normal. Until you are consistently gluten free AND your body has had time to heal, your symptoms may/probably will still be present (if they are gluten related).

Hope you continue to feel better each day!

mn farm gal Apprentice
mn farm gal
Posted

The other thing that come to mind because I have been hospitalized for it is dehydration. If your body reacts to dehydration the way mine does it will feel tight in the chest like heartburn. I would done about 3 large glasses of water an see if that make a difference. Now I just know to do my daily water intake and I try to do it all before noon so I don't have a heartburn feeling in the afternoon. So then anything I drink in the afternoon if a bonus. And the headaches are way less often also because of the water. Just something to think about.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


susiek Apprentice
susiek
Posted
  • Author

Thanks everyone for being so supportive! Could I get glutened from either Dr. Pepper (in a bottle) or I Can Believe It's Not Butter Light? I've eaten at home today and these are the only two things I can think of that could have done it! I thought I was being so careful! But I got the D immediately after drinking the Dr. P--which, has always seemed to have a laxative type effect on me.

Also, the thing in my throat seems bigger and won't go away! GRRRRRRR It's like something rpessing down on the top of the back of my throat. I can breath and swallow...it just feels dry or something. I kept thinking it was pet hair or something! But I couldn't hack up a hairball! lol

jerseyangel Proficient
jerseyangel
Posted
Thanks everyone for being so supportive! Could I get glutened from either Dr. Pepper (in a bottle) or I Can Believe It's Not Butter Light? I've eaten at home today and these are the only two things I can think of that could have done it! I thought I was being so careful! But I got the D immediately after drinking the Dr. P--which, has always seemed to have a laxative type effect on me.

Also, the thing in my throat seems bigger and won't go away! GRRRRRRR It's like something rpessing down on the top of the back of my throat. I can breath and swallow...it just feels dry or something. I kept thinking it was pet hair or something! But I couldn't hack up a hairball! lol

Hi Susie,

The Dr. Pepper is gluten-free. I don't know about the Light Butter product.

I had that exact feeling in my throat before I was diagnosed. It was awful--I got to the point where I hated to eat all alone in the house because I was afraid I'd choke.

After being on the diet for several months, it gradually went away. Every once in a while, I get it--but not as bad. And it never lasts more than the one time anymore.

Hopefully, with some more time, yours will go away, too :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,972
    • Most Online (within 30 mins)
      7,748
    Isabela24
    Newest Member
    Isabela24
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Worsening oral health with celiac

      By trents · Posted

      The form of the magnesium is important. Go for one that has high absorbability. Most of us opt for magnesium glycinate. Mag citrate is also good. Don't settle for the oxide forms. They aren't absorbed well and tend to have a laxative effect 'cause they just draw water into the colon a' la Milk of Magnesia. Costco is a good place to shop for things like that. Also, good bone and dental health involves vitamin D. Are you taking a dedicated D3 supplement? Have you had your D levels checked? In many ways, vitamin D is turning out to be a master vitamin of human metabolism and celiacs are often low on this one. What was the numerical score on your IGA along with the reference range? I can probably tell you whether it was TTG-IGA by the magnitude of the score. The only other likely option besides TTG-IGA would be Total IGA which usually has scores that range in the hundreds.  I do think it important for you to get a follow-up endoscopy/biopsy to check for healing of the villi. If that isn't happening like it should, you still are not absorbing nutrients well and that could easily explain your dental issues.
    • Jodi Lee K
      Worsening oral health with celiac

      By Jodi Lee K · Posted

      It doesn’t specify if it’s TTG I’m not sure how to tell for that. That would be so sad. We never eat out I try to be so strict. Yes many dental products have gluten! I only use ones that don’t on myself.    No follow up procedure has been done for healing. That is something I will ask about. Thank you for the suggestion.    I don’t take any Magnesium. What would be a good supplement? 
    • trents
      Worsening oral health with celiac

      By trents · Posted

      Is that TTG-IGA that is slightly elevated? That could indicate you are still getting some gluten in your diet. That should be within normal range I would think if you were truly gluten free. As a dental professional have you looked into the issue of gluten in the products they use in your profession? There are threads on this forum and also articles I think dealing with that issue. Have you had a follow-up endoscopy to check for healing of the small bowel villi? Also, are you taking any magnesium supplements for bone and dental health? Very important. It works together with calcium.    
    • Jodi Lee K
      Worsening oral health with celiac

      By Jodi Lee K · Posted

      I’ve had GI issues since I was a baby! They never did any testing and always said diet issues and constipation. Things got a lot worse when I hit 25, eventually got a diagnosis and I am currently 29. Yes, just recently saw my GI doctor in January and things looked pretty good. Very slightly elevated IgA but IgG was good. My ionized calcium is elevated too. I also have hashimotos but my TSH was good. 
    • trents
      Worsening oral health with celiac

      By trents · Posted

      Do you have any sense of how long before your diagnosis the onset of your celiac disease may have been? For most of us, there are years that pass between the onset and finally getting a diagnosis and by that time damage has already been done to body systems. May we ask your age? Also, have you had any follow-up testing since diagnosis to check for celiac antibody levels or healing of the villi?
×
×
  • Create New...