Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Have Gone Gluten Free

susiek

By susiek
in Coping with Celiac Disease

Recommended Posts

susiek Apprentice
susiek
Posted

I've been gluten free since Friday. Oh, there have been some gluten-ings! But mostly doing ok and feeling fine. Still exhausted. Mostly I am worried about the ever-present heartburn and the feeling that I have something stuck in my throat. One day I thought it was the fairly awful dry cluten-free cookie I tried. But it seems to happen a lot.

I am not eating bland. I am eating "regular" along with my family but doing so gluten free.

Can anyone give me a hint about the stuck in my throat feeling? Or am I way off course with this thought that gluten intolerance has been causing my problems! I just had blood drawn last Friday and have heard nothing about results.

Thanks so much!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jenvan Collaborator
jenvan
Posted

One possibility could be reflux. Chronic heartburn can cause inflammation in the esophagus, which can constrict it...and cause the feeling or reality or food getting stuck in the throat. Complications of untreated Celiac can include reflux...but your doc would have to do a scope to really confirm esophageal inflammation.

Nancym Enthusiast
Nancym
Posted

Sometimes people with thyroid issues have a funny feeling in their throat or difficulty swallowing. Get your thyroid checked!

gfp Enthusiast
gfp
Posted
One possibility could be reflux. Chronic heartburn can cause inflammation in the esophagus, which can constrict it...and cause the feeling or reality or food getting stuck in the throat. Complications of untreated Celiac can include reflux...but your doc would have to do a scope to really confirm esophageal inflammation.

This would be the first suspect but it begs the question if you are really 100% gluten-free.

Are you possibly being contaminated if eating regular food with the family.

Its practically impossible to avoid this in a mixed kitchen and a spoon used to stir or a breadcrumb on butter are more than enough to make you ill.

However some foods tend to cause some people heartburn....

If I eat a lot of buckwheat I get heartburn... independant of gluten.

Others have problems with soya... (my mom)

You could also have introduced a new food item you don't usually eat in the gluten-free stuff you are eating.

Cazzy Newbie
Cazzy
Posted

Only gluten free since Friday? It's very early days, and even if you were clever enough to avoid all mistakes immediately, it takes some time for the damaged villi to repair themselves.

Don't ask too much of yourself, it takes time to come to terms with Celiac Disease, and stress is a major cause of indigestion and heartburn.

It also takes time to adjust to your new lifestyle, just learn what you can, be consciensious about avoiding gluten, but don't expect instant good health. It's good that you finally know what is wrong with you, and the good news is that you can be well again. Slow and steady does it. Good luck Susie!

happygirl Collaborator
happygirl
Posted

Susie-

Welcome to the world of gluten free :)

I had heartburn as one of my symptoms before being diagnosed. After going COMPLETELY gluten free (no glutenings....multiple glutenings means you are not gluten free), my heartburn and other symptoms went away. It took months for me to feel even remotely normal. Until you are consistently gluten free AND your body has had time to heal, your symptoms may/probably will still be present (if they are gluten related).

Hope you continue to feel better each day!

mn farm gal Apprentice
mn farm gal
Posted

The other thing that come to mind because I have been hospitalized for it is dehydration. If your body reacts to dehydration the way mine does it will feel tight in the chest like heartburn. I would done about 3 large glasses of water an see if that make a difference. Now I just know to do my daily water intake and I try to do it all before noon so I don't have a heartburn feeling in the afternoon. So then anything I drink in the afternoon if a bonus. And the headaches are way less often also because of the water. Just something to think about.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


susiek Apprentice
susiek
Posted
  • Author

Thanks everyone for being so supportive! Could I get glutened from either Dr. Pepper (in a bottle) or I Can Believe It's Not Butter Light? I've eaten at home today and these are the only two things I can think of that could have done it! I thought I was being so careful! But I got the D immediately after drinking the Dr. P--which, has always seemed to have a laxative type effect on me.

Also, the thing in my throat seems bigger and won't go away! GRRRRRRR It's like something rpessing down on the top of the back of my throat. I can breath and swallow...it just feels dry or something. I kept thinking it was pet hair or something! But I couldn't hack up a hairball! lol

jerseyangel Proficient
jerseyangel
Posted
Thanks everyone for being so supportive! Could I get glutened from either Dr. Pepper (in a bottle) or I Can Believe It's Not Butter Light? I've eaten at home today and these are the only two things I can think of that could have done it! I thought I was being so careful! But I got the D immediately after drinking the Dr. P--which, has always seemed to have a laxative type effect on me.

Also, the thing in my throat seems bigger and won't go away! GRRRRRRR It's like something rpessing down on the top of the back of my throat. I can breath and swallow...it just feels dry or something. I kept thinking it was pet hair or something! But I couldn't hack up a hairball! lol

Hi Susie,

The Dr. Pepper is gluten-free. I don't know about the Light Butter product.

I had that exact feeling in my throat before I was diagnosed. It was awful--I got to the point where I hated to eat all alone in the house because I was afraid I'd choke.

After being on the diet for several months, it gradually went away. Every once in a while, I get it--but not as bad. And it never lasts more than the one time anymore.

Hopefully, with some more time, yours will go away, too :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Son's legs shaking

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin. He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her...
    2. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    3. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
    4. Paulaannefthimiou
      - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    5. jenniber
      - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks! i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me b...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,856
    • Most Online (within 30 mins)
      7,748
    lyndats
    Newest Member
    lyndats
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.