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Have Gone Gluten Free

susiek

By susiek
in Coping with Celiac Disease

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susiek Apprentice
susiek
Posted

I've been gluten free since Friday. Oh, there have been some gluten-ings! But mostly doing ok and feeling fine. Still exhausted. Mostly I am worried about the ever-present heartburn and the feeling that I have something stuck in my throat. One day I thought it was the fairly awful dry cluten-free cookie I tried. But it seems to happen a lot.

I am not eating bland. I am eating "regular" along with my family but doing so gluten free.

Can anyone give me a hint about the stuck in my throat feeling? Or am I way off course with this thought that gluten intolerance has been causing my problems! I just had blood drawn last Friday and have heard nothing about results.

Thanks so much!

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jenvan Collaborator
jenvan
Posted

One possibility could be reflux. Chronic heartburn can cause inflammation in the esophagus, which can constrict it...and cause the feeling or reality or food getting stuck in the throat. Complications of untreated Celiac can include reflux...but your doc would have to do a scope to really confirm esophageal inflammation.

Nancym Enthusiast
Nancym
Posted

Sometimes people with thyroid issues have a funny feeling in their throat or difficulty swallowing. Get your thyroid checked!

gfp Enthusiast
gfp
Posted
One possibility could be reflux. Chronic heartburn can cause inflammation in the esophagus, which can constrict it...and cause the feeling or reality or food getting stuck in the throat. Complications of untreated Celiac can include reflux...but your doc would have to do a scope to really confirm esophageal inflammation.

This would be the first suspect but it begs the question if you are really 100% gluten-free.

Are you possibly being contaminated if eating regular food with the family.

Its practically impossible to avoid this in a mixed kitchen and a spoon used to stir or a breadcrumb on butter are more than enough to make you ill.

However some foods tend to cause some people heartburn....

If I eat a lot of buckwheat I get heartburn... independant of gluten.

Others have problems with soya... (my mom)

You could also have introduced a new food item you don't usually eat in the gluten-free stuff you are eating.

Cazzy Newbie
Cazzy
Posted

Only gluten free since Friday? It's very early days, and even if you were clever enough to avoid all mistakes immediately, it takes some time for the damaged villi to repair themselves.

Don't ask too much of yourself, it takes time to come to terms with Celiac Disease, and stress is a major cause of indigestion and heartburn.

It also takes time to adjust to your new lifestyle, just learn what you can, be consciensious about avoiding gluten, but don't expect instant good health. It's good that you finally know what is wrong with you, and the good news is that you can be well again. Slow and steady does it. Good luck Susie!

happygirl Collaborator
happygirl
Posted

Susie-

Welcome to the world of gluten free :)

I had heartburn as one of my symptoms before being diagnosed. After going COMPLETELY gluten free (no glutenings....multiple glutenings means you are not gluten free), my heartburn and other symptoms went away. It took months for me to feel even remotely normal. Until you are consistently gluten free AND your body has had time to heal, your symptoms may/probably will still be present (if they are gluten related).

Hope you continue to feel better each day!

mn farm gal Apprentice
mn farm gal
Posted

The other thing that come to mind because I have been hospitalized for it is dehydration. If your body reacts to dehydration the way mine does it will feel tight in the chest like heartburn. I would done about 3 large glasses of water an see if that make a difference. Now I just know to do my daily water intake and I try to do it all before noon so I don't have a heartburn feeling in the afternoon. So then anything I drink in the afternoon if a bonus. And the headaches are way less often also because of the water. Just something to think about.

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susiek Apprentice
susiek
Posted
  • Author

Thanks everyone for being so supportive! Could I get glutened from either Dr. Pepper (in a bottle) or I Can Believe It's Not Butter Light? I've eaten at home today and these are the only two things I can think of that could have done it! I thought I was being so careful! But I got the D immediately after drinking the Dr. P--which, has always seemed to have a laxative type effect on me.

Also, the thing in my throat seems bigger and won't go away! GRRRRRRR It's like something rpessing down on the top of the back of my throat. I can breath and swallow...it just feels dry or something. I kept thinking it was pet hair or something! But I couldn't hack up a hairball! lol

jerseyangel Proficient
jerseyangel
Posted
Thanks everyone for being so supportive! Could I get glutened from either Dr. Pepper (in a bottle) or I Can Believe It's Not Butter Light? I've eaten at home today and these are the only two things I can think of that could have done it! I thought I was being so careful! But I got the D immediately after drinking the Dr. P--which, has always seemed to have a laxative type effect on me.

Also, the thing in my throat seems bigger and won't go away! GRRRRRRR It's like something rpessing down on the top of the back of my throat. I can breath and swallow...it just feels dry or something. I kept thinking it was pet hair or something! But I couldn't hack up a hairball! lol

Hi Susie,

The Dr. Pepper is gluten-free. I don't know about the Light Butter product.

I had that exact feeling in my throat before I was diagnosed. It was awful--I got to the point where I hated to eat all alone in the house because I was afraid I'd choke.

After being on the diet for several months, it gradually went away. Every once in a while, I get it--but not as bad. And it never lasts more than the one time anymore.

Hopefully, with some more time, yours will go away, too :)

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      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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