Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Have Gone Gluten Free

susiek

By susiek
in Coping with Celiac Disease

Recommended Posts

susiek Apprentice
susiek
Posted

I've been gluten free since Friday. Oh, there have been some gluten-ings! But mostly doing ok and feeling fine. Still exhausted. Mostly I am worried about the ever-present heartburn and the feeling that I have something stuck in my throat. One day I thought it was the fairly awful dry cluten-free cookie I tried. But it seems to happen a lot.

I am not eating bland. I am eating "regular" along with my family but doing so gluten free.

Can anyone give me a hint about the stuck in my throat feeling? Or am I way off course with this thought that gluten intolerance has been causing my problems! I just had blood drawn last Friday and have heard nothing about results.

Thanks so much!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jenvan Collaborator
jenvan
Posted

One possibility could be reflux. Chronic heartburn can cause inflammation in the esophagus, which can constrict it...and cause the feeling or reality or food getting stuck in the throat. Complications of untreated Celiac can include reflux...but your doc would have to do a scope to really confirm esophageal inflammation.

Nancym Enthusiast
Nancym
Posted

Sometimes people with thyroid issues have a funny feeling in their throat or difficulty swallowing. Get your thyroid checked!

gfp Enthusiast
gfp
Posted
One possibility could be reflux. Chronic heartburn can cause inflammation in the esophagus, which can constrict it...and cause the feeling or reality or food getting stuck in the throat. Complications of untreated Celiac can include reflux...but your doc would have to do a scope to really confirm esophageal inflammation.

This would be the first suspect but it begs the question if you are really 100% gluten-free.

Are you possibly being contaminated if eating regular food with the family.

Its practically impossible to avoid this in a mixed kitchen and a spoon used to stir or a breadcrumb on butter are more than enough to make you ill.

However some foods tend to cause some people heartburn....

If I eat a lot of buckwheat I get heartburn... independant of gluten.

Others have problems with soya... (my mom)

You could also have introduced a new food item you don't usually eat in the gluten-free stuff you are eating.

Cazzy Newbie
Cazzy
Posted

Only gluten free since Friday? It's very early days, and even if you were clever enough to avoid all mistakes immediately, it takes some time for the damaged villi to repair themselves.

Don't ask too much of yourself, it takes time to come to terms with Celiac Disease, and stress is a major cause of indigestion and heartburn.

It also takes time to adjust to your new lifestyle, just learn what you can, be consciensious about avoiding gluten, but don't expect instant good health. It's good that you finally know what is wrong with you, and the good news is that you can be well again. Slow and steady does it. Good luck Susie!

happygirl Collaborator
happygirl
Posted

Susie-

Welcome to the world of gluten free :)

I had heartburn as one of my symptoms before being diagnosed. After going COMPLETELY gluten free (no glutenings....multiple glutenings means you are not gluten free), my heartburn and other symptoms went away. It took months for me to feel even remotely normal. Until you are consistently gluten free AND your body has had time to heal, your symptoms may/probably will still be present (if they are gluten related).

Hope you continue to feel better each day!

mn farm gal Apprentice
mn farm gal
Posted

The other thing that come to mind because I have been hospitalized for it is dehydration. If your body reacts to dehydration the way mine does it will feel tight in the chest like heartburn. I would done about 3 large glasses of water an see if that make a difference. Now I just know to do my daily water intake and I try to do it all before noon so I don't have a heartburn feeling in the afternoon. So then anything I drink in the afternoon if a bonus. And the headaches are way less often also because of the water. Just something to think about.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


susiek Apprentice
susiek
Posted
  • Author

Thanks everyone for being so supportive! Could I get glutened from either Dr. Pepper (in a bottle) or I Can Believe It's Not Butter Light? I've eaten at home today and these are the only two things I can think of that could have done it! I thought I was being so careful! But I got the D immediately after drinking the Dr. P--which, has always seemed to have a laxative type effect on me.

Also, the thing in my throat seems bigger and won't go away! GRRRRRRR It's like something rpessing down on the top of the back of my throat. I can breath and swallow...it just feels dry or something. I kept thinking it was pet hair or something! But I couldn't hack up a hairball! lol

jerseyangel Proficient
jerseyangel
Posted
Thanks everyone for being so supportive! Could I get glutened from either Dr. Pepper (in a bottle) or I Can Believe It's Not Butter Light? I've eaten at home today and these are the only two things I can think of that could have done it! I thought I was being so careful! But I got the D immediately after drinking the Dr. P--which, has always seemed to have a laxative type effect on me.

Also, the thing in my throat seems bigger and won't go away! GRRRRRRR It's like something rpessing down on the top of the back of my throat. I can breath and swallow...it just feels dry or something. I kept thinking it was pet hair or something! But I couldn't hack up a hairball! lol

Hi Susie,

The Dr. Pepper is gluten-free. I don't know about the Light Butter product.

I had that exact feeling in my throat before I was diagnosed. It was awful--I got to the point where I hated to eat all alone in the house because I was afraid I'd choke.

After being on the diet for several months, it gradually went away. Every once in a while, I get it--but not as bad. And it never lasts more than the one time anymore.

Hopefully, with some more time, yours will go away, too :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to KathyR37's topic in Coping with Celiac Disease
      3

      New here

      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    2. Theresa2407
      - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

      thank you for your advice. I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated. I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    3. KathyR37
      - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      3

      New here

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and gloves when cooking for them. One huge problem...
    4. Scott Adams
      - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      3

      New here

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are fee...
    5. KathyR37
      - KathyR37 posted a topic in Coping with Celiac Disease
      3

      New here

      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,814
    • Most Online (within 30 mins)
      7,748
    ColbyBowlin
    Newest Member
    ColbyBowlin
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      New here

      By trents · Posted

      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      Probiotics

      By Theresa2407 · Posted

      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      New here

      By KathyR37 · Posted

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      New here

      By Scott Adams · Posted

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • KathyR37
      New here

      By KathyR37 · Posted

      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels and vomiting. All that just made me sicker. Eventually I chucked it all and went back to eating like I had all my life. Now I am from the south and biscuits and gravy are a big part of our food, as are breaded foods, pasta, and sandwich bread. Through the years I would try to do the gluten free thing again and am doing it now. It has not helped any. Within and hour of eating I have to run to the bathroom. I am now 75 and am wondering if I should just forget it and eat what I like, take Immodium and live the best I can. I cannot eat before going anywhere for fear of embarrassing myself. Family and church dinners are out of the question unless I eat and run straight home. I am so frustrated I just want to sit down and cry or throw something. Does everyone go through all this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.