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How Did You Cope Going Gluten Free?


susiek

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susiek Apprentice

Today I almost went ballistic on my very precious cat when he went after my turkey! lol I was preparing to eat it on a corn tortilla for breakfast and he was getting a little close. I was picturing myself almost as a werewolf...sporting pointy teeth and growling menacing.

Then I went to lunch, choosing Chili's because I read they had a gluten-free menu. Well, no one had heard of such a thing...and I almost broke down in tears! Seriously...and I called my pasta-eating friend a gluten jerk. Sure, she knows I was joking! I'm not so sure...

Before dinner tonight my 7yo was debating what he would and wouldn't eat. "I'll eat rice and that's it." Me: "You'll eat everything." Him: "OK, some rice and vegetables. No meat." Finally I shrieked, "I am having enough trouble with my own food issues, deal with yours on your own."

If the look on his face (and his brothers') was any indication, I sprouted the pointy teeth and grew fur everywhere.

Seriously...just some reassurances here that this WILL be worth it. I'm starting to pray that the blood tests come back "normal" so I can get on to something else. Who cares if I feel better?! lol


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gfp Enthusiast

You sound like you are going through a rough patch, am I correct in thinking you have just started the gluten-free diet?

If so I would think you are suffering withdrawal .. the thing to beware about is each time you get a small contamination you have to withdraw again! It gets easier !

My honest heartfelt advice is read up everything on CC and hidden gluten... just search this board

Then set out for the next 3 months to eliminate all RISK of gluten... no eating out and no suspect items.

Once you go through this phase then it gets easier in a BIG STEP.... you will be clearer minded and find it much much easier.

taz sharratt Enthusiast
Today I almost went ballistic on my very precious cat when he went after my turkey! lol I was preparing to eat it on a corn tortilla for breakfast and he was getting a little close. I was picturing myself almost as a werewolf...sporting pointy teeth and growling menacing.

Then I went to lunch, choosing Chili's because I read they had a gluten-free menu. Well, no one had heard of such a thing...and I almost broke down in tears! Seriously...and I called my pasta-eating friend a gluten jerk. Sure, she knows I was joking! I'm not so sure...

Before dinner tonight my 7yo was debating what he would and wouldn't eat. "I'll eat rice and that's it." Me: "You'll eat everything." Him: "OK, some rice and vegetables. No meat." Finally I shrieked, "I am having enough trouble with my own food issues, deal with yours on your own."

If the look on his face (and his brothers') was any indication, I sprouted the pointy teeth and grew fur everywhere.

Seriously...just some reassurances here that this WILL be worth it. I'm starting to pray that the blood tests come back "normal" so I can get on to something else. Who cares if I feel better?! lol

its hard to cope in the begining cos you seriously get frustrated with food you want and food you cant have, its esay to get caught up in the angry faze ( not sure im out of that one just yet), you get upset with peoples comments and the fact they are eating the things you want <_< wont be too long before you get in to the swing of things. its ll worth it, dont worry about the kids mine know by now that if they go near my stash of after eight mints i will go balastic :lol::angry:;)

marciab Enthusiast

I can totally relate to your werewolf analogy. I saw myself as a vulture swooping down on my poor daughter when she would try to eat her "normal" food. :lol: In my defense, she was working at Carraba's and bringing it home after work. What was I supposed to do :ph34r:

It does get better. I found it easier to stay gluten free after I did a gluten challenge. My stomach quickly reminded me of why I shouldn't eat wheat anymore. :blink:

Hang in there. ;)

tarnalberry Community Regular

For me, it's mostly just thinking about all the myriads of foods you can have. there are oodles and oodles and oodles of things you can have. yeah, it requires more cooking, but you can have almost anything. it takes time to adapt, and it's a stressor to have to be different, but it is what it is... eh, not very helpful. sorry.

floridanative Community Regular

I agree with everything above but when I first went gluten free my DH had done all cooking except for weekend pancakes and holiday fare for 17 years. Needless to say when we didn't go out to eat twice a week anymore I had to step up and help with the cooking. When people said the gluten-free best bread had to be baked I thought then I'll never have good bread again since I'm not a baker. Now I not only cook, but I love baking. It's true I'm using mixes that a 5yo could follow but the end result is that I have too many gluten free goodies to choose from now, much more so than when I was eating gluten. I try and limit my intake of empty calories but it's so nice to have a warm cin. apple muffin every once in a while or a cranberry orange scone or a choc. chunk brownie. I'm with Tarnalberry that there is so much I can eat than I would have ever dreamed of before going gluten free. I'm learning about all kinds of foods I've never heard of and it's fun, not to mention delicious. Good luck and believe us all when we say it does get easier in time. You learn to read labels in your sleep practically and you just have a new normal way of life.

queenofhearts Explorer

Yeah, I've had my wacked-out moments too. One night I made "assemble-your-own" tacos for supper & set out flour shells along with corn. I had about a dozen carefully-prepared fillings in bowls arranged around the table. My husband took his flour tortilla in hand &, ignoring the spoons, proceeded to stick his gluteny fingers into all the bowls. You may have heard my scream across the pond! It traumatized my kids & they're 19!

Leah


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jenvan Collaborator

Helped me-- Branching out to new foods and tastes I hadn't eaten previously, adding new things into my diet and finding good substitutes for a few of the breads, desserts etc. so that I don't feel like I'm really "missing out."

munchkinette Collaborator

I go out to eat a lot. I love sushi. There are tons of things I can eat at sushi restaurants, but SOY SAUCE can ruin it all.

SO... I got a case of the Kari-Out gluten-free soy sauce packets. I keep them in one of those plastic soap cases (for traveling) so they don't break in my purse. I eat sushi about once a week, so it's worth it. It also helps if I order something like plain white rice that needs flavor.

eleep Enthusiast

The very first night I went gluten-free, my boyfriend had promised to make dinner, but I was trying to lie down because I'd come off a week of eating a lot of bread and felt miserable -- not to mention the fact that I'd returned that day from the GI doctor with totally inconclusive test results and no support or advice other than "see if it makes you feel better -- I don't need to see you again!".

Well, my partner was a little scared because I'd been pretty irritable and monstery lately with all the health stuff and interpreted "leave me alone for now, I just want to lie down" as "don't make dinner". What ensued was a totally hysterical outburst on my part and a stubborn refusal to make dinner on his as I quickly moved into hypoglycemic hungry rage. I ended up reheating some (not very good) leftover stew and sat grumbling while I ate it. What I got back was: "So -- tastes bitter, huh? Wonder why that might be......."

It was not one of my finer moments.

Werewolf might be a really good analogy. I'll have to remember that one.

samara Newbie
Yeah, I've had my wacked-out moments too. One night I made "assemble-your-own" tacos for supper & set out flour shells along with corn. I had about a dozen carefully-prepared fillings in bowls arranged around the table. My husband took his flour tortilla in hand &, ignoring the spoons, proceeded to stick his gluteny fingers into all the bowls. You may have heard my scream across the pond! It traumatized my kids & they're 19!

Leah

You too !! I kid you not, the same thing happened to me a week ago... I just want to scream sometimes. My family knows the deal and they really really are wonderful and supportive. But I think I'm going to snap. How do you handle the cans and the many many can'ts I'm so overwhelmed I'm not sure I can take this sometimes, any suggestions? There is so-oo-oo much to re-learn.... I get to the point some days where I just don't eat. I know thats bad but it seems almost impossible to find time to cook for me never mind find decent recipes. My best friend and older sister made me corn bread recently and I cried. Can you believe it I cried about corn bread. It was like someone had given me gold.

Any ideas you'd be willing to share would be a blessing..

CarlaB Enthusiast
I go out to eat a lot. I love sushi. There are tons of things I can eat at sushi restaurants, but SOY SAUCE can ruin it all.

SO... I got a case of the Kari-Out gluten-free soy sauce packets. I keep them in one of those plastic soap cases (for traveling) so they don't break in my purse. I eat sushi about once a week, so it's worth it. It also helps if I order something like plain white rice that needs flavor.

Is there anything to worry about with sushi, or is it competely safe as far as gluten-free? I used to love it, but have been afraid to try it again.

jerseyangel Proficient
Is there anything to worry about with sushi, or is it competely safe as far as gluten-free? I used to love it, but have been afraid to try it again.

Carla,

Here is a thread with a lot of sushi info--

Open Original Shared Link

:)

susiek Apprentice

Thanks for all the support, guys! Today has been better since I stayed home and prepared my own lunch and dinner. However, dtill ended up with D and this non-stop feeling that something is stuck in my throat. This has been happening on and off for awhile, but today it's really annoying! It's like something on the top of my throat on the back is in there! I thought it was pet hair...

I did tell my kids that they "suck" today. In one of my parent-of-year-moment! I'm not proud. But they did all "sample" the nut crackers I got. Which are sitting right next to the corn chips.

Can I get glutened from Dr Pepper (in the bottle) or I Can't Believe It's Not Butter Light? Because something gave me D...

I'm still wondering about the gluten diagnosis. Only had the blood drawn last Friday, so I guess I'm still waiting. I'm scared it's something else and scared it's celiac. Scared the tests will be inconclusive. Maybe the stress of everything will take care of me before anything else! lol

queenofhearts Explorer
You too !! I kid you not, the same thing happened to me a week ago... I just want to scream sometimes. My family knows the deal and they really really are wonderful and supportive. But I think I'm going to snap. How do you handle the cans and the many many can'ts I'm so overwhelmed I'm not sure I can take this sometimes, any suggestions? There is so-oo-oo much to re-learn.... I get to the point some days where I just don't eat. I know thats bad but it seems almost impossible to find time to cook for me never mind find decent recipes. My best friend and older sister made me corn bread recently and I cried. Can you believe it I cried about corn bread. It was like someone had given me gold.

Any ideas you'd be willing to share would be a blessing..

Here's one of my in-the-middle-of-a-deadline emergency quickies: Nuke a potato. Serve with salsa & some grated cheese. Or with cottage cheese & chives. (I grow chives in my garden. They're very easy to grow.) Super-speedy & sorta healthy... better than not eating anyway!

Leah

You do have to be careful with cottage cheese though-- some contain gluten. I like Breakstone, myself.

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    • trents
      I'm a little confused. In your second post you said, "but these symptoms have been ongoing for a long time before the pregnancy" while in your most recent post you say, "I was doing a lot better on the AIP diet. However, I was unable to do the full reintroduction process because I went off the AIP diet when I got pregnant and was experiences chronic nausea." CBC = Complete Blood Count. This is the typical bloodwork most people would have done routinely with an annual wellness checkup. I would include things like iron levels, various blood cell counts including reds and whites and other infection fighters. CMP = Complete Metabolic Panel. This would measure things like blood sugar, kidney and liver function, plasma proteins and various enzymes. Non cellular things that the body produces. Also typical of an annual wellness check. Have you tried cutting out dairy and oats? These two are the most common cross reactors in the celiac community. I know it must be tough trying to get adequate calories and nutrition when you are pregnant while at the same time eliminating foods that are good sources of those things.
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      They did. I was doing a lot better on the AIP diet. However, I was unable to do the full reintroduction process because I went off the AIP diet when I got pregnant and was experiences chronic nausea. This is what makes me believe it's food related.  I do check all of my food products and supplements and I am very careful about them being gluten free and trying to stay away from corn starch etc. However, I am eating gluten free breads that sometimes have rice flour, yeast, etc. - I seem to do fine with these breads/bread products some days, but then am sick other days.  I have never really had any GI symptoms outside of bloating. My symptoms are dizziness, brain fog, and a general feeling of unwellness or malaise, sort of like when you're going to get the flu.  I have had a lot of bloodwork done over the last three years, but I don't recall doing the CBC, CMP, or a celiac-specific test recently. That's helpful so that could at least provide some insight to see if I'm still being exposed.  Do you see most individual with celiacs having to take a period of time away from even gluten free breads and other cross-reactive foods to let their guts heal? I'm not sure how restrictive to get with my diet again since it's so challenging. 
    • trents
      Did the symptoms commence after you discontinued the AIP diet? Have you checked all nutritional supplements and oral hygiene products for possible gluten content? Have you recently checked all the labels of purchased processed foods in your pantry to check for formulation changes that might have introduced gluten? Historically, when "glutened" did you have GI symptoms or were you a "silent" celiac whose symptoms were non GI. Is what you are experiencing now like what you were experiencing at the time of diagnosis? Have you had recent blood work done (CBC and CMP) and if so, were there any parameters out of norm? I know you have Hashimoto's but you say that is well controlled now? It certainly wouldn't hurt to get celiac antibodies rechecked. Because you are essentially gluten free I would not expect to see any big departures from normal levels but if there are even weak positives it could indicate you are getting glutened from some unexpected source.
    • Maura Gissen
      Hi Trent! Thanks so much for your warm welcome and questions! They do, but these symptoms have been ongoing for a long time before the pregnancy. However, it's hard for me to know what's a celiac response vs. a Hashimotos one. I haven't, maybe it's worth getting those checked again? 
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      Welcome to the forum, @Maura Gissen! Don't those same symptoms often come along with the territory when pregnant? And then throw in Hashimoto's.  Have you had your celiac antibody levels checked recently?
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