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Another Dr. Frustration

cmom

By cmom
in Doctors

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cmom Contributor
cmom
Posted

I also continue to pay for a misdiagnosis. About this time last year, I broke my foot. I was fairly certain it was broken due to pain and swelling and I have had other broken bones (possibly due to my osteopenia). Anyway, my dr. xrayed my foot and told me it wasn't broken and gave me a shot through the top of it saying i probably had a neuroma.. I made 3 visits to him before he sent me to an orthopedist. They took x-rays and voila --- broken foot. So I wore the attractive "shoe" for several weeks. When returning for follow up, my foot still had not healed. Overall, I limped around for 3 1/2 months before i was released. However, my foot still causes me pain on a daily basis. I can't help but believe if it had been diagnosed properly to begin with (especially knowing about the osteopenia), :ph34r: it would be much better now. And heaven forbid that a dr apologize for a misdiagnosis b/c that would set them up for a lawsuit.

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Ursa Major Collaborator
Ursa Major
Posted

Robin, I know how frustrating this is. I broke my right ankle four years ago in April. I got one of the worst, most ignorant (not to mention abusive) doctors in town when I went to the ER. He did EVERYTHING wrong, and as a result my ankle will still swell every day, and often throb with pain day and night. It will never be the same. I sure hope that your foot will end up being better than mine.

What I found is very helpful, is chiropractic adjustments (yes, chiropractors will adjust feet). Without twice weekly adjustments for the past three years, I would likely not be able to walk at all by now. Not all chiropractors adjust more than your spine, so you'll have to check before going to one.

plantime Contributor
plantime
Posted

Since you spent several weeks with a shoe-thingy on your foot, chances are the muscles have yanked up. Try doing hurdlers stretches, 3-4 times a day, holding each stretch for 15-20 seconds.

cmom Contributor
cmom
Posted
  • Author
Since you spent several weeks with a shoe-thingy on your foot, chances are the muscles have yanked up. Try doing hurdlers stretches, 3-4 times a day, holding each stretch for 15-20 seconds.

I'm pretty sure it's not the muscles. I exercise 4-5 times a week and go to a personal trainer once a week. My foot still feels similiar to when it was broken, only not as severe. Still hurts quite a bit when I step on an uneven surface and then just walking sometimes.

This same doctor's office (not the same dr., but a nurse practioner) also misdiagnosed my dad's heart attack as acid reflux and now he only has 50% of his heart left due to the massive heart attack which could have been prevented or lessened.

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      Hi knitty kitty, Scott and all, Thanks for kind words and asking!I will def. talk about histamine intolerance  on my next visit to gastro doc. My doc.gastro says that lactose or casein is very unlikely to create marsh 3b histology like gluten in adults in intestines. (that was previous question for Scott) Regarding my last EGD the villy was OK so refractory is out of the question based on my talk with dr. If Scott is right and there are so many intolerance in food for celiac what is left to eat?? And now histamine? I mean what should i eat? Maybe gastritis is doing all this trouble? Thanks Kind regard    
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      @Richardo, I'm in the same boat as you! I can't handle certified gluten free oats at all. Quinoa is the worst, even when I soak it in water and then wash under the tap for 10 minutes ... I have a reaction. It must be an immune system reaction to the proteins in these gluten-free grains. 
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      dermatitis herpetiformis with all grains

      By trents · Posted

      We are all different and our immune systems are unique. I will say, however, that I have not gotten the impression as a moderator and reading hundreds and hundreds of posts on this forum over the years that a dermatitis herpetiformis outbreak caused by grains other than wheat, barley and rye is common. But perhaps it is more common than we have realized and it could be why it it is seems to be common that those who suffer from dermatitis herpetiformis struggle to keep it under control. Perhaps there are qualities found in all cereal grains besides gluten that are contributing factors. Also, have you tried a low iodine diet to see if it helps with your dermatitis herpetiformis? Reportedly, reducing iodine helps some folks afflicted with dermatitis herpetiformis.
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      Ok thanks Trents. I had the lesions biopsied and confirmed dermatitis herpetiformis, so I guess dermatitis herpetiformis can be associated with other grains not typically gluten. I appreciate your comment and I'll give Dr Osborne the benefit of the doubt because without him I would never have known of my grain intolerance and would still be suffering today. I simply never read anyone explain how grains could worsen dermatitis herpetiformis and I feel that information should be made much more readily available. Hey if someone tries going grain free and there's no improvement, no loss, however it drastically changed my life for the better and could at least be offered as a suggestion to sufferers from dermatitis herpetiformis. The other option is Dapsome and I wouldn't want anyone taking that chemical if there was a more natural solution. thanks again 
    • trents
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      By trents · Posted

      Welcome to the forum, @Richardo! We sometimes run across terms like "rice gluten", "corn gluten", and "oat gluten" but they are used informally and, technically, it is incorrect to speak of grains other than wheat, barley and rye as having gluten. Gluten is a protein with a specific structure found only in wheat, barley and rye. Other cereal grains contain proteins that are more or less similar in structure to gluten in some ways but are not actually gluten. Having said that, the proteins found in these other cereal grains are similar enough to gluten to possibly cause cross reactivity in some celiacs. Cross reactivity also happens with non cereal grain foods as well that have a protein structure similar to gluten. A prime example is dairy (the protein "casein"). Another example may be soy. Other foods can also cause cross reactivity for different reasons, such as microbial transglutaminase (aka, "meat glue") used commonly in pressed meat products. Just so you'll know, Dr. Osborne's claims have not received wide acceptance in the celiac community and are looked upon with skepticism by the medical and scientific community. Although he is a board certified nutritionist, his doctorates are actually in chiropractic medicine and pastoral science: https://www.drpeterosborne.com/about/dr-peter-osborne/ I am not sure Osborne has the training and background to address the chemical structure that defines gluten. I would encourage you to do some research on what gluten actually is. I have done this for myself and came away convinced that only wheat, barely and rye actually contain the protein gluten. I do not doubt your claims that you have breakouts of dermatitis herpetiformis from consuming these other grains. I am just contending it is not actually from gluten.
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