Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Test I Had A Few Years Ago....maybe A Clue?

dellatigre

Recommended Posts

dellatigre Newbie
dellatigre
Posted

Hi everyone. I am wondering of anyone can help me with this. I just found an older test I had....it is when I was trying to figure out what was wrong with me...why was I getting weaker and weaker and having more stomach problems? I had a Comprehensive Digestive Stool Analysis done through a chiropractor/natural doctor. The test is from Great Smokies Diagnostic Laboratory. My results were significant yet no one at that time knew what to make of them. The Immunology part of the test showed fecal sIgA. Normal ranges are from 44-183. Mine were 1, 130! REALLY high. I have no idea if this just means I have an autoimmune disease....or if it is specific for Celiac or another food allergy? I know it must be a clue but when I try to show my rheumatologist they say...I didnt do that test....and dont bother to look at it. BTW...Ihave been disgnosed with dermatomyositis but it has been difficult to treat...and I have a "GUT" feeling that I may have Celiac causing the immune problems.

Any help or info. would be great.

I am so grateful I found this board....

Rachael

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
Hi everyone. I am wondering of anyone can help me with this. I just found an older test I had....it is when I was trying to figure out what was wrong with me...why was I getting weaker and weaker and having more stomach problems? I had a Comprehensive Digestive Stool Analysis done through a chiropractor/natural doctor. The test is from Great Smokies Diagnostic Laboratory. My results were significant yet no one at that time knew what to make of them. The Immunology part of the test showed fecal sIgA. Normal ranges are from 44-183. Mine were 1, 130! REALLY high. I have no idea if this just means I have an autoimmune disease....or if it is specific for Celiac or another food allergy? I know it must be a clue but when I try to show my rheumatologist they say...I didnt do that test....and dont bother to look at it. BTW...Ihave been disgnosed with dermatomyositis but it has been difficult to treat...and I have a "GUT" feeling that I may have Celiac causing the immune problems.

Any help or info. would be great.

I am so grateful I found this board....

Rachael

I think what you may want to do is to contact Great Smokies themselves. They should be able to tell you what the test is specific for. Are you gluten free yet?

dellatigre Newbie
dellatigre
Posted
  • Author

Thank you, thats a good idea. It says on the form that increased sigA means active infection or increased antigenic load....but that isnt telling me much. I will call Monday and see what I can figure out. I haven't started the gluten free diet yet. I am going in for some blood tests on Mon or Tues. I will wait and then start it. I actually WANT to start it. Even if the tests are negative I am going to do it. I just know it will be better to have an official diagnosis. Especially in my case. My docs want to start a very toxic chemo drug called Cytoxan or IVIG treatments. I am getting weaker and weaker. My diagnosis is dermatomyositis. Inflammed muscles....with a rash.....little blisters....sounds like the celiac rash.....

I just want to feel better....

Thank you again!

Rachael

I think what you may want to do is to contact Great Smokies themselves. They should be able to tell you what the test is specific for. Are you gluten free yet?
nettiebeads Apprentice
nettiebeads
Posted
Thank you, thats a good idea. It says on the form that increased sigA means active infection or increased antigenic load....but that isnt telling me much. I will call Monday and see what I can figure out. I haven't started the gluten free diet yet. I am going in for some blood tests on Mon or Tues. I will wait and then start it. I actually WANT to start it. Even if the tests are negative I am going to do it. I just know it will be better to have an official diagnosis. Especially in my case. My docs want to start a very toxic chemo drug called Cytoxan or IVIG treatments. I am getting weaker and weaker. My diagnosis is dermatomyositis. Inflammed muscles....with a rash.....little blisters....sounds like the celiac rash.....

I just want to feel better....

Thank you again!

Rachael

OOH, sounds like celiac disease to me. Why don't you go gluten-free the day of the tests? As soon as you get home even. There are lots of people on this board who haven't had the "official dx" but know that their body is better without the gluten. And by trying the gluten-free diet for three weeks, then reintroducing gluten to your system and monitoring all physical/mental reactions you are performing another test. It's the diet challenge and a valid dx tool. And some in the medical community think that it is the most reliable test there is! Try it, you might like the results! And it couldn't hurt! Please keep us posted - and don't do the chemo until after you try the gluten-free diet. If you're already weak, the chemo could seriously undermine what reserves you have left.

Hope you get the correct answers soon!

Annette

dellatigre Newbie
dellatigre
Posted
  • Author

Hi Anette,

Thank you for the reply. I am getting the tests on wed. and i am already preparing to start the diet. i am ready and willing for sure! i am thinking i may have other sensitivities too.....i eat a lot of soy. i am not sure yet what to avoid. probly corn too. i need to find a good list of the least allergenic foods and stick to those for a trial. than add one back in at a time. i am willing to try anything. one to get rid of the constant stomach/IBS problems and also to see if it effects my weakness....the "autoimmune inflammatory" disease i have been diagnosed with. i will wait to try the chemo like drug.....maybe i will otice improvement ina few weeks...at least a little. i hope!

thanks again!

BTW...it seems as though breakfast foods are the hardest to find gluten free.....any ideas. cream of rice seems to be one thing....

hope you are feeling well!

Rachael

OOH, sounds like celiac disease to me. Why don't you go gluten-free the day of the tests? As soon as you get home even. There are lots of people on this board who haven't had the "official dx" but know that their body is better without the gluten. And by trying the gluten-free diet for three weeks, then reintroducing gluten to your system and monitoring all physical/mental reactions you are performing another test. It's the diet challenge and a valid dx tool. And some in the medical community think that it is the most reliable test there is! Try it, you might like the results! And it couldn't hurt! Please keep us posted - and don't do the chemo until after you try the gluten-free diet. If you're already weak, the chemo could seriously undermine what reserves you have left.

Hope you get the correct answers soon!

Annette

nettiebeads Apprentice
nettiebeads
Posted

Breakfast- I usually have cereal - malt-o-meal fruity crispy whatever. It's gluten-free (for now at least. I always check bags to make the ingredients haven't changed). Coca pebbles is safe too. Grits are okay. There's eggs and fruit. Some people have reported great success with the specific carbohydrate diet. You might do a search on that in this forum. I'm glad you're trying the gluten-free diet and I hope it works for you. I know of two people who are having digestive problems and I wish that they would try the diet for just three days even!

Best of luck!

Annette

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,830
    • Most Online (within 30 mins)
      7,748
    Mary Katherine
    Newest Member
    Mary Katherine
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cameo674
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By cameo674 · Posted

      Does it taste like black licorice?  It said it was chewable.  I do not like that flavor.     Since the burn at the back of my throat is there everyday, I usually only take something when it is unbearable and keeping me from ADL especially sleep.  
    • Scott Adams
      Nandos improper preparion celiac childrens food

      By Scott Adams · Posted

      Your concerns about Nando's cross-contamination practices are valid and important for the celiac community. It's disappointing that Nando's does not have stricter protocols for children's portions, especially given the risk of cross-contact with gluten-containing items like garlic bread. Cooking gluten-free items on shared surfaces, even if cleaned, is not safe for individuals with celiac disease, as even trace amounts of gluten can cause harm. While the adult butterfly chicken may be a safer option, the inconsistency in practices for children's meals is concerning. It's frustrating that Nando's headquarters did not take responsibility, but sharing your experience raises awareness and may encourage them to improve their protocols. Consider reaching out to celiac advocacy organizations to amplify your concerns and push for better standards. Always double-check with staff and emphasize the importance of avoiding cross-contamination when dining out.
    • Scott Adams
      Mucus discharge

      By Scott Adams · Posted

      I had this symptom when I was diagnosed. Are you sure that your diet is 100% gluten-free?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):      
    • Scott Adams
      Confused with test results

      By Scott Adams · Posted

      Based on your results, it seems unlikely that you have celiac disease. A negative endoscopy and the absence of HLA-DQ2/DQ8 genes (the primary genetic markers for celiac) strongly suggest you do not have the condition. However, the elevated TTG-IgA (22) could indicate a temporary immune response or another issue, such as a different autoimmune disorder, intestinal infection, or even a lab anomaly. The presence of DQA1*05 alone is not diagnostic for celiac. Meeting with an allergist and GI specialist is a good next step to explore other potential causes for the high antibodies, such as non-celiac gluten sensitivity or other immune-related conditions. Keep a detailed food and symptom diary to help guide further testing and discussions with your doctors. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Captain173
      Confused with test results

      By Captain173 · Posted

      I had celiac panel done back in October, only ttg iga came back high  (22 with positive being over 3). Endoscopy done in January, it was  negative. Genetic test done after endoscopy, negative for both hla dq2 & dq8. Did show positive for dqa1*05.  Scheduled to meet with an allergist next week. Not scheduled to meet with GI specialist till after allergist. Confused if I have celiac or what caused high the antibodies originally if I do not.
×
×
  • Create New...