Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ugh Displaced Mind

Lister

By Lister
in Coping with Celiac Disease

Recommended Posts

queenofhearts Explorer
queenofhearts
Posted

Lister, I know you are anxious about the meds, but give them a chance... eat something mild, drink some water, & try to relax. After a few days you'll begin to see the positive results. The meds won't cause any immediate damage, so try to give them some time to act on your inflammation.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 411
  • Created
  • Last Reply
jerseyangel Proficient
jerseyangel
Posted

It's gonna be ok, Lister.

I think you agonized so much about the pills, you gave yourself an anxiety attack!

Hope you can lay down, take a few deep breaths and relax. If you're at work, get caught up in something--stay busy so you won't have time to think about it. :)

queenofhearts Explorer
queenofhearts
Posted
well i was wrong i did get bit, it just took 2 days for them to show up for some reason, now i really dont wanna take the meds until these bug bites are gone, because if there west nile i need my defense up at 100% (yes it sounds silly to worry about west nile but the camp site we were at just had a breakout) i got one nice bite on my arm that itchs like hell. Im super dizzy this morning i hope the 2 are not related back to my worrying while getting ready for work bye

-------------

AHHHH wtf since when does it take 48 hours for masquito bites to show up, im coverd i have 5 so far and they all took 48 hours to develop now i itch everywhere

You are far more likely to suffer physically & mentally from an anxiety attack than from West Nile. Yes, it's out there, but still very rare in humans. And in fact, the delayed "bites"may even be hives brought on by anxiety & histimine inflammation, in which case the prednisone would be extremely helpful.

Lister Rising Star
Lister
Posted
  • Author

ok yes it was a panick attack and it went away, but i am having slight reaction to the meds

my stomic is becoming very sore, my vision is definatly slightly messed up, my body tempature is rised (making me hot) i know these are not from anxiety because i calmed myself, also my back is starting to really hurt (could just be normal pain) and i am super super super wound up hyper i cant controle my mouth like im spaztec like adhd spaztec from when i wasd 11 im bouncing all around

queenofhearts Explorer
queenofhearts
Posted
ok yes it was a panick attack and it went away, but i am having slight reaction to the meds

my stomic is becoming very sore.... finish in a sec gottta take drive thru

Remember, Lister, anxiety often triggers stomach distress, so it may not be the meds at all.

Did you eat something? Drink water?

Lister Rising Star
Lister
Posted
  • Author

i took the meds with lunch and water

CarlaB Enthusiast
CarlaB
Posted

You were very upset, the residual effects could still be lingering around and bothering your tummy.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


penguin Community Regular
penguin
Posted

Personally, I think it's still psychosomatic. You've been staring at these lists of possible side effects for more than a week, and now that you've taken the drug, you think you're having all of the side effects. I know I've done it! And sorry, it sounds like you're definitely still panicking.

Also, if your body temp was rising, you'd be cold, not hot.

And anxiety makes your stomach hurt. That's how ulcers happen :)

Lister Rising Star
Lister
Posted
  • Author

took first dosage at 9:45 when should i take second?? it says it gives problems sleeping and should take early, but i dont wanna take it to early while the other ones are still in effect

penguin Community Regular
penguin
Posted
took first dosage at 9:45 when should i take second?? it says it gives problems sleeping and should take early, but i dont wanna take it to early while the other ones are still in effect

How many times a day does it say to take it?

jerseyangel Proficient
jerseyangel
Posted
took first dosage at 9:45 when should i take second?? it says it gives problems sleeping and should take early, but i dont wanna take it to early while the other ones are still in effect

You should take this exactly as directed--what does it say on the label?

Lister Rising Star
Lister
Posted
  • Author

it doesnt, it just says take 2 twice daily for 4 days then take 1 twice daily for 5 days then take 1 daily for 7 days

jerseyangel Proficient
jerseyangel
Posted
it doesnt, it just says take 2 twice daily for 4 days then take 1 twice daily for 5 days then take 1 daily for 7 days

Well, I would take the first dose with breakfast and the second with dinner for the first nine days, and take the one at breakfast for the remaining 7 days.

Lister Rising Star
Lister
Posted
  • Author

well crap i took my first dosage with lunch (9:45- because of work) so i have to do them slightly diffrent when should my last dosage be? keep in mind acording to the pills and the pharamasist these cause problems sleeping (even though i feel fricking tired right now)

penguin Community Regular
penguin
Posted
well crap i took my first dosage with lunch (9:45- because of work) so i have to do them slightly diffrent when should my last dosage be? keep in mind acording to the pills and the pharamasist these cause problems sleeping (even though i feel fricking tired right now)

Personally, and this is just me, but I didn't have problems sleeping with these. For most people, 9:45 is breakfast. The important thing is spacing. For most people, the time between breakfast and dinner is 8-10 hours, so I'd say take your next dose at 8pm or so. That'll do you fine. If you have problems sleeping, take some benadryl and it will help (yes, it's gluten-free). :)

Lister Rising Star
Lister
Posted
  • Author

alright thanks for the advice oh and pegin your right on the money, i called my dx to make sure because i did not want to mess up and take to much to fast, he told me to take the next two at 8pm

jerseyangel Proficient
jerseyangel
Posted
well crap i took my first dosage with lunch (9:45- because of work) so i have to do them slightly diffrent when should my last dosage be? keep in mind acording to the pills and the pharamasist these cause problems sleeping (even though i feel fricking tired right now)

We're all different, but I never had a problem sleeping with steriods. (I've even had the long-lasting kind that are injected)

Since you took the first dose at 9:45, Can you take the second around 9PM?

See how it affects your sleep--if at all.

Tomorrow, take the first dose earlier--with breakfast. Then continue with it at dinner time.

That's just so the doses are close to 12 hours apart--it dosen't have to be exact, but you want to spread it as evenly as you can. Don't worry about the times being exact.

How are you feeling now?

Lister Rising Star
Lister
Posted
  • Author

umm i dont know kinda the same kinda not, my stomic is still slightly bothering me (usualy does around this time) but not nearly as bad as it usualy does, like its not knawing at me i can bare it like this. so maybe htey are working i dont know. i do know my head is really fogged up from them though

i would take it at 9 but it has to be taken with lots of food and as late as i can go for dinner is 8 if i wanna let it digest at all before sleep

besides for the pretty heavy fog im incrediably tired like really really tired, anyone else get this from these pills?- there supposed to make you really awake i hope the pills are working correctly

jerseyangel Proficient
jerseyangel
Posted

Lister,

I'm not surprised that you feel tired. You've been through a lot very recently--not the least of which the emotional upset you've had the past few days!

The meds are beginning to ease some of the inflammation--as you feel more comfortable, I think you'll calm down and allow yourself to sleep. That's the best thing for you right now.

Taking the pills at 8 or 9--that really dosen't matter too much--just so the doses are 10-12 hours apart. Don't obsess over that--just take them when you eat, and above all, relax and let them do their job.

Lister Rising Star
Lister
Posted
  • Author

man these pills are making my stretch marks show for some reason, they had finally died down

Lister Rising Star
Lister
Posted
  • Author

anyone know if these pills can cure anything? or do they just temporarly subdu the inflamation? or could it acually make it go away and not come back? basically im asking once im off the pills will i be back to the way i was? or will it acually change things for the better?

_____

not sure if its from pills or not but im having really bad chest pains in my right chest

queenofhearts Explorer
queenofhearts
Posted

The idea behind these pills is that they will put a halt to the vicious cycle of inflammation that is going on in your digestive system. Once you have eliminated the inflammation you will be better able to tolerate food, to digest, to get stronger. I've never taken them myself, but from what I've seen in those who have, the results last quite a long time-- long after the course of meds is over. It will give your system a chance to heal.

Lister Rising Star
Lister
Posted
  • Author

but once im all healed up will the inflmation just come back? like is it chronic and only temporarly meds will work?? or is once the inflmation gone it stays away?

queenofhearts Explorer
queenofhearts
Posted

If you take care & eliminate the things that were causing the inflammation, you can break the cycle & stay well. It's sort of like those mosquito bites-- if you scratch & scratch them they won't get a chance to heal. But if you let them alone, your body's healing power takes over & you get better.

Lister Rising Star
Lister
Posted
  • Author

how do i leave my stomic alone? should i start eating very very little for a few weeks? i dont quite understand how i take care of it?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. DayaInTheSun
      - DayaInTheSun replied to DayaInTheSun's topic in Coping with Celiac Disease
      5

      Being a burden to family/friends

      Interesting you mention MCAS. I have come across mcas before but I wasn’t entirely sure if that’s what it was. When I eat certain food like dairy or soy my face gets so hot and I feel flush and my heart rate shoot’s up. And sometimes my bottom lip swells or I get hives somewhere. This started happening after I had a really bad case of Covid. Before that ...
    2. Kiwifruit
      - Kiwifruit replied to Kiwifruit's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Years of testing - no real answers

      This is all really useful information, thank you so much to you both. I have a history of B12 and vit D deficiency which has always just been treated and then ignored until it’s now again.
    3. trents
      - trents replied to Gill.brittany8's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      9 Year Old test results - help interpret

      Welcome to the forum, @Gill.brittany8! There are two main genes that have been identified as creating potential for developing celiac disease, HLDQ2 and HLDQ8. Your daughter has one of them. So, she possesses genetic the potential to develop celiac disease. About 40% of the general population carries one or both of these genes but only about 1% of the...
    4. Gill.brittany8
      - Gill.brittany8 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      9 Year Old test results - help interpret

      Hi everyone After years of stomach issues being ignored by doctors, my 9 y/o daughter finally had an upper endoscopy which showed a ton of stomach inflammation. The GI doctor ordered some bloodwork and I’m attaching the results here. Part will be from the CBC and the other is celiac specific. I’m not sure what’s relevant so I’m just including extra i...
    5. Mnofsinger
      - Mnofsinger replied to Mnofsinger's topic in Related Issues & Disorders
      7

      Food Tasting Salty

      Those are great points and some follow up thoughts and ideas. I think you're both stating the same thing in two different ways, but I appreciate the "accuracy" of what you're getting to. 1. Are you both stating that the "too salty of a taste" could be triggered by a histamine reaction, and the flavor is coming from the electrolytes? If...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,834
    • Most Online (within 30 mins)
      7,748
    mcsmommy
    Newest Member
    mcsmommy
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DayaInTheSun
      Being a burden to family/friends

      By DayaInTheSun · Posted

      Interesting you mention MCAS. I have come across mcas before but I wasn’t entirely sure if that’s what it was. When I eat certain food like dairy or soy my face gets so hot and I feel flush and my heart rate shoot’s up. And sometimes my bottom lip swells or I get hives somewhere. This started happening after I had a really bad case of Covid.  Before that I was able to eat all those things (minus gluten) I was diagnosed with celiac way before I had Covid.  Hmm, not sure really. I may look for a different allergist my current one told me to take Zyrtec and gave me an epi pen. 
    • Kiwifruit
      Years of testing - no real answers

      By Kiwifruit · Posted

      This is all really useful information, thank you so much to you both.    I have a history of B12 and vit D deficiency which has always just been treated and then ignored until it’s now again.
    • trents
      9 Year Old test results - help interpret

      By trents · Posted

      Welcome to the forum, @Gill.brittany8! There are two main genes that have been identified as creating potential for developing celiac disease, HLDQ2 and HLDQ8. Your daughter has one of them. So, she possesses genetic the potential to develop celiac disease. About 40% of the general population carries one or both of these genes but only about 1% of the general population develops celiac disease. It takes both the genetic potential and some kind of triggering stress factor (e.g., a viral infection or another prolonged health problem or an environmental factor) to "turn on" the gene or genes. Unfortunately, your daughter's doctor ordered a very minimal celiac antibody panel, the tTG-IGA and total IGA. Total IGA is not even a test per celiac disease per se but is a check for IGA deficiency. If the person being checked for celiac disease is IGA deficient, then the scores for individual IGA tests (such as the tTG-IGA) will be abnormally low and false negatives can often be the result. However, your daughter's total IGA score shows she is not IGA deficient. You should consider asking our physician for a more complete celiac panel including DGP-IGA, TTG_IGG and DGP-IGG. If she had been avoiding gluten that can also create false negative test results as valid antibody testing requires having been consuming generous amounts of gluten for weeks leading up to the blood draw. Do you know if the GI doc who did the upper GI took biopsies of the duodenum and the duodenum bulb to check for the damage to the small bowel lining caused by celiac disease? Having said all that, her standard blood work shows evidence of possible celiac disease because of an elevated liver enzyme (Alkaline Phosphatase) and low values for hemoglobin.
    • Gill.brittany8
      9 Year Old test results - help interpret

      By Gill.brittany8 · Posted

      Hi everyone  After years of stomach issues being ignored by doctors, my 9 y/o daughter finally had an upper endoscopy which showed a ton of stomach inflammation. The GI doctor ordered some bloodwork and I’m attaching the results here. Part will be from the CBC and the other is celiac specific. I’m not sure what’s relevant so I’m just including extra information just in case.   The results are confusing because they say “No serological evidence of celiac disease. tTG IgA may normalize in individuals with celiac disease who maintain a gluten-free diet. Consider HLA DQ2 and DQ8 testing to rule out celiac disease.” But just a few lines down, it says DQ2 positive. Can someone help make sense of this? Thanks so much.  result images here: https://ibb.co/WFkF0fm https://ibb.co/kHvX7pC https://ibb.co/crhYp2h https://ibb.co/fGYFygQ  
    • Mnofsinger
      Food Tasting Salty

      By Mnofsinger · Posted

      Those are great points and some follow up thoughts and ideas. I think you're both stating the same thing in two different ways, but I appreciate the "accuracy" of what you're getting to.   1. Are you both stating that the "too salty of a taste" could be triggered by a histamine reaction, and the flavor is coming from the electrolytes? If that is the case, wouldn't the individuals mouth always be salty during a "Glutening" situation, or are we saying that the person could get "use to the flavor" until introducing food or beverage and that could be enough to "stir the pot" and notice the salty flavor? 2. To push back on "#1": If that were true anyone with issues of histamine releasing foods/treatments would experience the same thing. Also, I did not experience a situation where most beverages were "too salty". Thoughts?
×
×
  • Create New...