Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Test Results

susiek

Recommended Posts

susiek Apprentice
susiek
Posted

My doctor called and told me everything tested in the normal range. Here are the results. I'm typing them directly from the lab report she faxed me. Everything also says "see comments" and I cannot find a comments page.

Here are the results:

IgA=303 (normal range: 68-378)

Endomysial Abs: Negative

Gliadin IgG=23.1 (negative range: < or - 25.0 EU)

Gliadin IgA=8.4 (negative range: < or -25.0 EU)

Transglutaminase IgG Auto ABs=<6.0 (negative range: <6.0)

Transgluaminase IgA Auto ABs=<4.0 (negative range: <4.0)

I have an appointment with the gastro in two weeks. I'm also anemic.

Thanks in advance!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nantzie Collaborator
Nantzie
Posted

They look negative to my untrained eye. I also had negative blood tests (actually, very similar numbers to your's...), as well as a negative biopsy, but a dramatic improvement after trying the gluten-free diet. My doctor is blown away by my improvement, but technically I don't have celiac. Now, my doctor encourages her patients who come in with celiac symptoms but test negative to try the diet anyway. There are a lot of cases of false negatives from blood and biopsy. So just keep that in mind as you're exploring the possibility that gluten may be causing a problem for you. I hope you give the diet a try even if all your tests come back negative. I did and it changed my life.

Nancy

susiek Apprentice
susiek
Posted
  • Author

Thanks, Nancy. I did the gluten free diet for a week and really did feel better. Then the sheer weight of it made me think, "I'm negative...I don't need to be gluten free." But after nearly a week on gluten, I'm going back off it! lol For some strange reason, the diarrhea and stomach cramps have been worse than this week than right before I went off. But not as bad as when I first got sick at the end of April.

I'm wondering about the biopsy though. I'm scared all of this is something else--possibly serious--and the endoscopy/colonoscopy will tell me what it is. Maybe I'm off base though...

Nantzie Collaborator
Nantzie
Posted

That's exactly why I ended up doing the biopsy. Just in case...

Nancy

Mayflowers Contributor
Mayflowers
Posted

Don't subject yourself to the uneccessary surgical risk of a biopsy when all you need is a stool test by Enterolab. Go to www.enterolab.com and you'll see how MUCH MORE ACCURATE a stool test is than a biopsy OR blood test. Many people on this forum had negative blood work and negative biopsies, and when tested by Enterolab were positive for gluten intolerance. :)

oceangirl Collaborator
oceangirl
Posted
  Mayflowers said:
Don't subject yourself to the uneccessary surgical risk of a biopsy when all you need is a stool test by Enterolab. Go to www.enterolab.com and you'll see how MUCH MORE ACCURATE a stool test is than a biopsy OR blood test. Many people on this forum had negative blood work and negative biopsies, and when tested by Enterolab were positive for gluten intolerance. :)

I had the biopsy/colonoscopy, too, just to rule out things more "serious". I was so sick and uncomfortable for so long, I needed to do that. My bloodwork was positive, biopsy negative. Of course, I'd been gluten-free for a few months at that time. You have to "trust your gut", but it sounds like doing the biopsy may give you more peace of mind. Good luck. (For the endoscopy they put me completely under as I have a choking fear- that might be an idea for you.)

lisa

  oceangirl said:
I had the biopsy/colonoscopy, too, just to rule out things more "serious". I was so sick and uncomfortable for so long, I needed to do that. My bloodwork was positive, biopsy negative. Of course, I'd been gluten-free for a few months at that time. You have to "trust your gut", but it sounds like doing the biopsy may give you more peace of mind. Good luck. (For the endoscopy they put me completely under as I have a choking fear- that might be an idea for you.)

lisa

Oh yes, AFTER all that I went through Enterolab, just to confirm for myself. Yes to genes for gluten intolerance, yes, to active gluten reactivity.

ravenwoodglass Mentor
ravenwoodglass
Posted
  susiek said:
Thanks, Nancy. I did the gluten free diet for a week and really did feel better. Then the sheer weight of it made me think, "I'm negative...I don't need to be gluten free." But after nearly a week on gluten, I'm going back off it! lol For some strange reason, the diarrhea and stomach cramps have been worse than this week than right before I went off. But not as bad as when I first got sick at the end of April.

I'm wondering about the biopsy though. I'm scared all of this is something else--possibly serious--and the endoscopy/colonoscopy will tell me what it is. Maybe I'm off base though...

If the endo and colonoscopy are going to ease your mind about the possibility of other problems then go ahead and do it. The worst part is the prep for most. If you feel better off of gluten I would certainly stay off it. While the blood tests showed a negative result they were at the high end of that negative. I also agree that Enterolab would be a good thing if you can afford it. The truest test though is dietary response.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mayflowers Contributor
Mayflowers
Posted

Ocean Girl, do you remeber how many units you were over "normal range" (gluten sensitivity) from Enterolab? I was 72.

oceangirl Collaborator
oceangirl
Posted
  Mayflowers said:
Ocean Girl, do you remeber how many units you were over "normal range" (gluten sensitivity) from Enterolab? I was 72.

Yes, I have it here and it is MILD compared to you- 12 units! Of course, I was off gluten at that point for 4 months. (Except for the "stray" gluten that seems to easily permeate my aura...) My tTg was down from 28 when my blood was tested ("mild" positive) to 7- so that was good. I have a sneaking suspicion you might do well to go through with the colonoscopy/endoscopy to rule out other things. I was scared, like you, but glad I did it. Then I HIGHLY recommend Enterolab, particularly with your numbers, to give you assurance you're on the right track. Of course, I also agree with everyone else that you know best and if gluten-free feels better- just do it! "Dangerous Grains"- aarrgghhhh!!!, can't think of the authors' names is a good read that explains WHY so many people are gluten-sensitive. If you are older, which you probably aren't, a colonoscopy is recommended after age 50. I am 48 so it made sense to do that at least. In my lifetime I've had upper and lower GIs (FUN!!!!!) too many times to count! I wish you great luck!

lisa

  oceangirl said:
Yes, I have it here and it is MILD compared to you- 12 units! Of course, I was off gluten at that point for 4 months. (Except for the "stray" gluten that seems to easily permeate my aura...) My tTg was down from 28 when my blood was tested ("mild" positive) to 7- so that was good. I have a sneaking suspicion you might do well to go through with the colonoscopy/endoscopy to rule out other things. I was scared, like you, but glad I did it. Then I HIGHLY recommend Enterolab, particularly with your numbers, to give you assurance you're on the right track. Of course, I also agree with everyone else that you know best and if gluten-free feels better- just do it! "Dangerous Grains"- aarrgghhhh!!!, can't think of the authors' names is a good read that explains WHY so many people are gluten-sensitive. If you are older, which you probably aren't, a colonoscopy is recommended after age 50. I am 48 so it made sense to do that at least. In my lifetime I've had upper and lower GIs (FUN!!!!!) too many times to count! I wish you great luck!

lisa

Aargghhh again! I just mixed up Susiek and Mayflowers! Sorry- well, you get the gist. Mayflowers- I have similar genes to you- subtypes 5 and6.

lisa

Mayflowers Contributor
Mayflowers
Posted

Thanks OceanGirl. I was wondering why you're telling me to have a colonoscopy. :D

I am due for one but I broke my ankle in June and I figured I have one next year.

oceangirl Collaborator
oceangirl
Posted
  Mayflowers said:
Thanks OceanGirl. I was wondering why you're telling me to have a colonoscopy. :D

I am due for one but I broke my ankle in June and I figured I have one next year.

Mayflowers,

'Cause I'm a LUNATIC! Pretty savvy with the old computer! Sorry. yes, I would never encourage anyone to just get a colonoscopy for the heck of it! Take care.

lisa

  oceangirl said:
Mayflowers,

'Cause I'm a LUNATIC! Pretty savvy with the old computer! Sorry. yes, I would never encourage anyone to just get a colonoscopy for the heck of it! Take care.

lisa

Ooh... sorry about your ankle!

Guest ~jules~
Guest ~jules~
Posted
  susiek said:
My doctor called and told me everything tested in the normal range. Here are the results. I'm typing them directly from the lab report she faxed me. Everything also says "see comments" and I cannot find a comments page.

Here are the results:

IgA=303 (normal range: 68-378)

Endomysial Abs: Negative

Gliadin IgG=23.1 (negative range: < or - 25.0 EU)

Gliadin IgA=8.4 (negative range: < or -25.0 EU)

Transglutaminase IgG Auto ABs=<6.0 (negative range: <6.0)

Transgluaminase IgA Auto ABs=<4.0 (negative range: <4.0)

I have an appointment with the gastro in two weeks. I'm also anemic.

Thanks in advance!

I was just diagnosed recently, and in my bloodwork I only tested moderately high for one antibody, the gliadin. It was when I went in for my upper enoscopy and biopsy, that I was diagnosed with celiac. I also read that you can have normal bloodwork, but have a posative upper biopsy, I wouldn't take the chance, go get the endoscopy not a colonoscopy, I had one of those and it was normal of course. take care...~jules~

Mayflowers Contributor
Mayflowers
Posted

THAT's why I believe (along with others) that the stool test is more sensitive and accurate than blood. It makes MUCH more sense because the antibodies that attack the gluten are in the intestines NOT in the blood as much and are more readily found in the stool.. What is with GI's? How stupid are they? I suppose they can sell more drugs for the drug companies if they can't diagnose it. And I suppose they make more money when a person is dying from celiac than prevention...It's a business.

The blood test probably doesn't show anything until you're half dead. I don't know about you but I don't want to wait that long.

You should get one just for the heck of it to see... only $99 at Enterolab. I just received the egg, soy and yeast test kit which I'm sending back tomorrow. I'm very happy with the other results. I'd like to get the York test kit for 113 food allergies, but I'm afraid I won't have much left to eat.... :lol:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,865
    • Most Online (within 30 mins)
      7,748
    davesnoni
    Newest Member
    davesnoni
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Inhaler problem

      By knitty kitty · Posted

      Hello,   The medication in these inhalers can cause a thiamine deficiency if used by someone already low in thiamine.  We don't absorb sufficient amounts of vitamins and minerals due to the inflammation and damage done to our villi in Celiac Disease.  Even a long term strict gluten free diet may not provide sufficient amounts of vitamins and minerals.  There are eight B vitamins that all work together.  Thiamine deficiency often shows up first because our bodies use so much of it and it can't be stored very long. Thiamine deficiency symptoms can appear in as little as three days.  Without thiamine, the other B vitamins may not be able to function properly.   Thiamine is needed to clear lactic...
    • trents
      How long after being diagnosed with Celiac do you feel better?

      By trents · Posted

      Welcome to the forum, @jnstefan! She should start feeling better within a week or two if she is truly avoiding gluten and if she isn't also showing intolerance to other foods. It is quite common for celiacs to be dairy intolerant (not just the lactose but the protein casein in dairy) and to oats (protein is avenin). Casein and avenin have structures similar to gluten. We call this cross reactivity (not to be confused with cross contamination). So, you might look at pulling these two food items from her diet to see if there is improvement. But achieving a gluten free state is more challenging than people realize when the first start in. It is hidden in so many foods you would never expect to find...
    • jnstefan
      How long after being diagnosed with Celiac do you feel better?

      By jnstefan · Posted

      My 10 year old daughter was diagnosed with Celiac 2 weeks ago. We've been on gluten free diet now for 2 weeks. She still experiences abdominal pain at times , and is struggling with fatigue. What is everyone's experience with how long it takes for the body to heal and stabilize after starting the gluten free diet? Thanks for any feedback!
    • thejayland10
      Recent blood test results check in - TTG- IGA

      By thejayland10 · Posted

      thank you for the insight  Thank a small elevation can be due to this or is it more likely to be cross contamination ? 
    • Championjaidlyn
      Does this look like DH? Pics

      By Championjaidlyn · Posted

      HEY HB333!! Did you ever find out what you had???  I’ve been having those same things for 10 months almost a year now!! but I’ve also been in extreme agonizing hell!!  With those bumps, I’ve become itchy everywhere to the point we’re not be able to do anything but itch and cry for hours!! they have gotten so bad they’re all over my body head to toe. I have stuff coming off my scalp and stuff coming out of my ears and all my nails are brittle and breaking and I’ve got stuff under my nails and it’s even in my nose and my eyebrows, and I don’t know what to do!!!   But I’m having those little bumps just like you and white stuff around them and then my hair follicles have white stuff on them and...
×
×
  • Create New...