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Fiddle-Faddle

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Fiddle-Faddle Community Regular

Check this out: Open Original Shared Link


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Debbie65 Apprentice
Check this out: Open Original Shared Link

The section that explains about celiac disease is very clear and is ideal for newbies. Also I would never have thought to check if a restaurant heats the steamed veggies in pasta water - now they´re gonna think I´m even nuttier. I live in a small Mallorquin village and I´m sure they already think of me as the extranjerna loca - crazy foreigner.

Thanks for posting.

eleep Enthusiast

Wow. Peeps are gluten-free. Wish I was more of a peeps freak. I've got several friends who go rabid over them.

eleep

Judyin Philly Enthusiast

Fiddle--love this site. just got on Elnowy's new site and it's really great.

this is all such great info. Elnowy's dr. Orange even got back to me with answer to a q..and said all i was doing for new lymph dx was on target..wow faster than the dr. office tocall back ;)

will read this on later as i put on desktop.

thanks so much and thanks elnowy too again..wish i could remeber how to spell your dang name. :lol:

judy in philly

queenofhearts Explorer

Thanks, Fiddle-Faddle!

Leah

gfp Enthusiast

Can I just speak out for another member..????

Carla, hope this doesn't break a bandwidth limit for your site :D

Open Original Shared Link

This is an almost definative reference on anything and everything gluten like.

It is hundreds of hours, perhaps thousands of research and categorisation of papers, usually of medical/scientific level, specifically the sort of thing you can take to your MD. but that's doing it an injustice .... its huge, its like a huge library for celiacs.....

You can read the story on the site but do check it out.

lindalee Enthusiast

Thanks for the sites. Right now pop up won't let me go there. :blink:


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Moongirl Community Regular

Thats my support group up here in Mass. They are absolutly wonderful!!! (the healthy villi)

mellajane Explorer

Thanx.... this is an awesome site. Im obsessed with all the research and info. out there I learn new stuff everyday! Good looking Out! Mella C

Check this out: Open Original Shared Link
elonwy Enthusiast

Yeah my name is a bit wierd, isn't it. Dang Welsh folk like to throw W's in wherever. I'm really happy people decided to come over to Open Original Shared Link. Dr Orrange is awesome. She's smart and open minded and has great bed side manner. Its nice to LIKE to go to the doctor. I'm glad she could help you.

:)

Elonwy

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    • ABP2025
      Thanks sending me additional links including how to test for thiamine deficiency. With regards to your first link, I wasn't diagnosed with giardiasis and I didn't take antibiotic for it. I try to generally stay away from antibiotic unless absolutely necessary as it might affect gut health. For treating phimosis, the doctor didn't give me antibiotics. I need to have a circumcision surgery which I haven't got around to schedule it.
    • ABP2025
      I'm not vegan, just vegetarian. I consume dairy but not egg. So I have started including some Vitamin D fortified milk as well as a multivitamin with 2000 IU daily. For Vitamin B12, like you said it's very difficult to get it from just vegetarian sources and have started consuming Vitamin B Complex daily. My PCP was worried when my Vitamin D result came out as It was 3.7 ng/ml last year. He said that being low for a lengthy time could have done some damage to the body over the years. Now, though Vitamin D level has improved after the supplements, I'm not sure if the neurological damage has already been done. I'll continue including the supplements and see if my symptoms improve. I'll also get tested for celiac to see if I need to be in gluten-free diet.
    • dublin555
      The positive DQ2 result is important since it suggests a genetic predisposition to celiac, but the bloodwork not showing clear signs is confusing. The inflammation in her stomach could still be related, and it’s worth pushing for more tests, like a biopsy or a deeper look at other possible causes. It’s a tough spot, but you’re on the right track trying to get clarity.
    • dublin555
      I totally agree, it’s so much more than just the physical struggle that occurs, there is the emotional struggle that goes along with it. It’s almost like you’re always navigating people who are uncomfortable with your needs and that pressure really wears you down. The fact is, the one that really did care will understand. This has nothing to do with you being a burden, it’s about protecting your health, first and foremost. If they don’t like being honest, that’s their problem.
    • knitty kitty
      @ABP2025, Here's some studies and articles that will help you learn more about thiamin and all... I will write more later. It's possible that your antibiotic for giardiasis has caused thiamine deficiency.   https://hormonesmatter.com/metronidazole-toxicity-thiamine-deficiency-wernickes-encephalopathy/ And... https://hormonesmatter.com/thiamine-deficiency-testing-understanding-labs/ And... Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/ and... Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/      
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