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At What Point Do You Have Your Child Tested.

Roxyk

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Roxyk Newbie
Roxyk
Posted

I have celiac - so does my father & brother. I had a baby girl in March. our ped seems to think testing around 3 or 4 years of age is fine. I would rather have it done earlier.

At what point do you have your child tested?

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Nic Collaborator
Nic
Posted

I think it is up to you. If you are not comfortable waiting until 3 or 4 then do it now. But you have to remember any testing of young children can be inaccurate, false negatives are possible. My 5 year old has Celiac my 4 year old so far has tested negative. He has some questionable symptoms. I did not have him tested until I thought I was seeing a problem but I would have around 5 anyway. I plan to test him again next year.

Nicole

Debbie65 Apprentice
Debbie65
Posted

I agree that the decision made should be one that makes you comfortable rather than what your ped wants.

Perhaps you could have the test to see if your daughter has the gene that means she´s predisposed to celiac disease, if she has then diagnosis might be quicker if symptoms present.

Nic Collaborator
Nic
Posted
Perhaps you could have the test to see if your daughter has the gene that means she´s predisposed to celiac disease, if she has then diagnosis might be quicker if symptoms present.

Very good idea. I thought about that with my 4 year old and my nephews and niece. If you test for the gene, and they don't have it, then it is never a worry again. If they do have it then you know to watch carefully or play it safe and go gluten-free.

Nicole

Esther Sparhawk Contributor
Esther Sparhawk
Posted

If I had the past three and a half years to do over, I would have had Annie tested at birth. Once we quit breast feeding, our problems began. One of the earliest indications was a poor reaction to immunizations. After having her immunized at six months, she came home, had a thrashing fit, and banged her head on the wooden part of her bed for a long time. It scared me to death!

She learned to walk late, because she had DH under her feet. She's still behind her peers in terms of physical dexterity, because of this.

She was a classic celiac, with all the symptoms, but none of the doctors in our rural part of the country put two and two together. It was I who discovered celiac disease on the web and took her to a doctor with a two-year-long journal record of her symptoms.

So keep a journal! It was our saving grace! I don't mean to scare you, but if you can test your child, and there's reason to believe she might be a celiac, why wouldn't you test her?

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    • trents
      Hidden Gluten in distilled vinegar

      By trents · Posted

      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      Hidden Gluten in distilled vinegar

      By Mynx · Posted

      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      Hidden Gluten in distilled vinegar

      By Mynx · Posted

      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
    • trents
      Hidden Gluten in distilled vinegar

      By trents · Posted

      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
    • Mynx
      Hidden Gluten in distilled vinegar

      By Mynx · Posted

      It isn't a conjecture. I have gotten glitened from having some distilled white vinegar as a test. When I talked to some of my scientists friends, they confirmed that for a mall percentage of people, distilled white vinegar is a problem. The cross contamination isn't from wheat glue in a cask. While yhe gluten protein is too large to pass through the distillation process, after the distillation process, the vinegar is still cross contaminated. Please don't dismiss or disregard the small group of people who are 100^ gluten intolerant by saying things are conjecture. Just because you haven't done thr research or aren't as sensitive to gluten doesn't mean that everyone is like you. 
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