Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Stiffness And Pain


Guest ~wAvE WeT sAnD~

Recommended Posts

Guest ~wAvE WeT sAnD~

I have such stiff muscles--especially in the neck and shoulder region. Has anyone else felt like this? Sleeping positions have also become excruciating.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flagbabyds Collaborator

I don't know about that, it could just be you need to stretch more, maybe treat yourself to a massage

judy04 Rookie

Hi,

I used to have terrible pains and aches in my neck and shoulders.

I saw an orthopedist, before going gluten-free, he said I had a little

arthritis, but couldn't understand the pain in my shoulder. He

wanted to diagnosis it as Fibromyalgia, but I didn't pass the

test, you need to have several "pressure points" all over the

body. To make a long story short the pain away after going

on the gluten-free diet. I don't want to discourage you, but, soon

after I started this diet I developed pain in both knees

and the tops of both my feet. Maybe after my antibodies

come down I will become pain free :D

Guest LisaB

Jill,

I am following you around this forum, obviously we have had many of the same problems. I am just now getting past this one, first magnesium helped me A LOT, I use Mega Mag by Trace Minerals (liquid ionic magnesium with a whole host of trace minerals to help many things and all are from plant sources which make all the difference in the world) I get it at my local health food store but it can also be ordered online at a discount from places like www.totaldiscountvitamins.com

Also, I recently started making my own kefir which is like yogurt but sooooo much more than yogurt and kombucha tea (both are fermented) and now I am improving by leaps and bounds now and the best part is finally my pain (muscle and otherwise) is subsiding. I had the same problem with sleeping positions that you do, but not anymore. You can get taditional kefir grains and kombucha that reproduce if you take good care of them from people online for the cost of shipping and handling, if your interested I can provide the info you need to get some. These grains are placed in milk and once the milk is fermented, it is then digestible by even those that are lactose intolerant and is loaded with probiotics and nutrients, it helps heal the intestines and pushes infections such as candida out of the system. Kombucha is a culture that you place in black or green tea and sugar, it then ferments and is also loaded with nutrients and nutritional yeasts as well as a componant that helps the body rid itself of toxins. They work great together, and cheap as all get out, I can't believe all the $ I have spent on supplements that didn't help and now I am spending next to nothing and finally improving! Good stuff.

jaimek Enthusiast

Jill- I have had that exact same problem (stiffness in my neck/shoulders) for the past couple of weeks now. I thought it was due to a gluten accident that I had when I was away on vacation, but that was almost 2 weeks ago. I know the symptoms can last for that long, but my neck still hurts. I know this probably sounds funny, but it feels like my head is too heavy. Anyway, I was going to go to the doctors if it continued but I figured he couldn't do anything about it anyway. So strange!

Guest ~wAvE WeT sAnD~

Jaime,

My head feels sort of the same way, and it's constantly numb. My doctors probably won't figure it out...my mom thinks it's because of a vitamin deficiency I have. Oh well, the endoscopy will tell all.

Hang in there!!!

Guest Addicted2Gluten

Interesting...I was just at one of my many doctors today and mentioned to him that the muscles on the sides of my neck have been feeling very stiff for quite some time. He wasn't really sure as to why this would be, though.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Boojca Apprentice

I've had the same thing...followed by some tingling in weird places...my arms, my jaw, etc.... Then I went to my chiropractor. Wow. Apparently I've been a little stressed these past two months (My son, 2 1/2 years old, was diagnosed in June with celiac disease after dropping to 23 lbs in less than 3 months....stress? Nah...haha) He cracked my neck, had me come back for two more visits. Amazing.

I'm still having 'head issues' but that's bc the allergy season this year is out of control. I don't even normally HAVE allergies, but this year apparently I do. My doctor has me on Zyrtec and Nasacort (I'm having sinus issues as well) and it's made a world of difference.

That may not be your problems, but I've discovered it's a little frightening what stress and allergies can do to your body!

Bridget

Georgia, VT USA

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,015
    • Most Online (within 30 mins)
      7,748

    Carrie-S
    Newest Member
    Carrie-S
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      The NIH article you link actually supports what I have been trying to explain to you: "Celiac disease (celiac disease) is an autoimmune-mediated enteropathy triggered by dietary gluten in genetically prone individuals. The current treatment for celiac disease is a strict lifelong gluten-free diet. However, in some celiac disease patients following a strict gluten-free diet, the symptoms do not remit. These cases may be refractory celiac disease or due to gluten contamination; however, the lack of response could be related to other dietary ingredients, such as maize, which is one of the most common alternatives to wheat used in the gluten-free diet. In some celiac disease patients, as a rare event, peptides from maize prolamins could induce a celiac-like immune response by similar or alternative pathogenic mechanisms to those used by wheat gluten peptides. This is supported by several shared features between wheat and maize prolamins and by some experimental results. Given that gluten peptides induce an immune response of the intestinal mucosa both in vivo and in vitro, peptides from maize prolamins could also be tested to determine whether they also induce a cellular immune response. Hypothetically, maize prolamins could be harmful for a very limited subgroup of celiac disease patients, especially those that are non-responsive, and if it is confirmed, they should follow, in addition to a gluten-free, a maize-free diet." Notice that those for whom it is suggested to follow a maize-free diet are a "very limited subgroup of celiac disease patients". Please don't try to make your own experience normative for the entire celiac community.  Notice also that the last part of the concluding sentence in the paragraph does not equate a gluten-free diet with a maize-free diet, it actually puts them in juxtaposition to one another. In other words, they are different but for a "limited subgroup of celiac disease patients" they produce the same or a similar reaction. You refer to celiac reactions to cereal grain prolamins as "allergic" reactions and "food sensitivity". For instance, you say, "NIH sees all these grains as in opposition to celiacs, of which I am one and that is science, not any MD with a good memory who overprescribes medications that contain known food allergens in them, of which they have zero knowledge if the patient is in fact allergic to or not, since they failed to do simple 'food sensitivity' testing" and "IF a person wants to get well, they should be the one to determine what grains they are allergic to and what grains they want to leave out, not you. I need to remind you that celiac disease is not an allergy, it is an autoimmune disorder. Neither allergy testing nor food sensitivity testing can be used to diagnose celiac disease. Allergy testing and food sensitivity testing cannot detect the antibodies produced by celiac disease in reaction to gluten ingestion.  You say of me, "You must be one of those who are only gluten intolerant . . ." Gluten intolerance is synonymous with celiac disease. You must be referring to gluten sensitivity or NCGS (Non Celiac Gluten Sensitivity). Actually, I have been officially diagnosed with celiac disease both by blood antibody testing and by endoscopy/positive biopsy. Reacting to all cereal grain prolamins does not define celiac disease. If you are intent on teaching the truth, please get it straight first.
    • Bebygirl01
      Perhaps you would still like to answer the questions I posed on this topic, because that is all I asked. I am curious to know the answers to those questions, I do not care about the background of Dr. Osborne as I am more aware of the situation than you are, and he is also one of the best known authors out there on Celiac disease. But did you even bother to read the three Research Papers I posted by NIH? You must be one of those who are only gluten intolerant and not yet reacting to all glutens aka grains, but I AM one of those who react to ALL the glutens, and again, that is one of the two questions I originally posted on this matter. NIH sees all these grains as in opposition to celiacs, of which I am one and that is science, not any MD with a good memory who overprescribes medications that contain known food allergens in them, of which they have zero knowledge if the patient is in fact allergic to or not, since they failed to do simple 'food sensitivity' testing. I started with the failed FDA explanation of what Gluten Free is and I stayed sick and got even sicker. It wasn't until I came across NIH's papers and went off all grains that I realized that in fact, I am Celiac and reacting to all the glutens. IF a person wants to get well, they should be the one to determine what grains they are allergic to and what grains they want to leave out, not you. Those who are just getting started with learning about grains etc., can take it easy by just being "grain free' and eating a lot of meat, vegetables, etc. or whole foods as God has intended, without buying so called gluten free garbage out there that is making them sick and the whole reason they are not better. I tried the stupid gluten free garbage and it didn't work, and that will make anyone want to give up, it is better to teach the entire truth and let the patient decide, rather than give them misinformation and lies.
    • Nicola McGuire
      Thank you so much I will speak to the doctor for dietician apt . Thank you for your advice Beth much appreciated 
    • Scott Adams
      Oh no, I'm sorry to hear about the accidental gluten! This article, and the comments below it, may be helpful:    
    • Karmmacalling
      I was born with celiac disease im 20 years old. And I've been gluten free my whole life. Yes my diet is 100 percent gluten free and no i don't eat at restaurants at all. I got glutened by a chips that was marked as gluten free but it wasn't the company said the packaging was old and the recipe was new. 
×
×
  • Create New...