Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctor's Note For Travel With Food


jesscarmel

Recommended Posts

jesscarmel Enthusiast

Hi

Does anyone have a sample of what a doctors note should say to allow you travel with gluten-free food on the plane? i was going to ask my dr but not sure what to ask him to write and how much detail to go into. does anyone already have one.

thanks

Jess


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfp Enthusiast
Hi

Does anyone have a sample of what a doctors note should say to allow you travel with gluten-free food on the plane? i was going to ask my dr but not sure what to ask him to write and how much detail to go into. does anyone already have one.

thanks

Jess

Given they are not even letting pilots take contact lens solution (and hence willing to endanger everyone on the plane) This strikes me as a weird thing, the pilots are behind a bullet proof door and flying the plane but they would smuggle on a bomb when they could just crash the plane???? I'm afraid at the moment 'medical need' is going to mean real need, not discomfort or whatever. Its going to be a pain .... I just can't see them accepting that over the pilot's contact lens solution or eyedrops.

I can't see them accepting a Dr.s note. The longest lights are only 30-40 hours and medically the human body can go without food for 3-4 times that.

I understand your arguament, I just don't think they will. Just as an example most smokers are going to go through far more discomfort than you are and that has never bothered them... I'm sure there are plenty of people on methadone who could claim they need to jab-up on a long flight... etc. etc. I realise its not just the flight, you are going to be stuck in the airport as well ...

Give me the choice of a 30 hour long haul without food and one without children on the flight and I'd go hungry everytime... give most smokers the same option and they would go hungry too.

2kids4me Contributor

I have a diabetic celiac child - he is allowed the insulin, syringes, his glucose meter. No food. If he needs food - they always have juice on board or in real pinch - pop (for carbs).

The letter from the doctor related to his diabetes - simply states : This child _________ has insulin dependent diabetes and it is medically necessary for him to carry insulin, syringes and a monitoring device with him.

Similar letter for daughter's epi -pen

We havent travelled lately (with all the new restrictions) so dont know if they take these items and stow them somewhere during flight

Rikki Tikki Explorer

Hi Jess:

I am afraid that I agree, they just are not going to let anyone bring on food/drink items. If they checking baby formula on the airplanes then I doubt you will have much luck with food. At least we know the water they provide is safe for us! :D

sspitzer5 Apprentice

I think the ban applies to liquids and gels only. I flew a few days ago and brought a sandwich. They didn't seem to have a problem with that.

Here's a link to the TSA website. Open Original Shared Link. It doesn't say that you can't bring food, just stuff like Jello, pudding, whipped cream.

Damn, how am I going to make due without my customary can of whipped cream for cross-country flights? :-)

S

Rikki Tikki Explorer
Damn, how am I going to make due without my customary can of whipped cream for cross-country flights? :-)

S

:lol::lol::lol::lol:

2kids4me Contributor

Amusing reading - I went to the link out of curiosity - maybe I am just warped (and I knw they mean breast milk that has been expressed)...BUT :

All items including formula or breast milk will be inspected.

You or your baby or toddler will not be asked to test or taste breast milk or formula. Our Security Officers will not test or taste formula or breast milk.

:blink::lol: Good thing , hope it would not be a requirement to prove you really were lactating... and the breast milk inspections....hmmm ? ...... :rolleyes:

Ok. ok I am silly today


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mouse Enthusiast

I am flying Southwest from Phoenix to Las Vegas on Thursday. I asked yesterday and I could bring food as long as it was cooked. I am bringing muffins, brownies and choc. chip cookies for Lynne and I to snack on and the muffins are to go with our coffee in the AM. There better not be a problem as we went over the items real well. I also can bring my meds and one is a liquid as long as they are in a RX bottle with my name on it.

queenofhearts Explorer
Amusing reading - I went to the link out of curiosity - maybe I am just warped (and I knw they mean breast milk that has been expressed)...BUT :

:blink::lol: Good thing , hope it would not be a requirement to prove you really were lactating... and the breast milk inspections....hmmm ? ...... :rolleyes:

Ok. ok I am silly today

Look out or you will be deported to Rachelville!

CantEvenEatRice Enthusiast

We just got back from a trip yesterday and had no problem taking food on the plane. I had some beef jerky, Lara bars, raisins and potato chips. I saw lots of people with food, just no drinks or other liquids. One woman tried to take salsa on and she was not allowed because the checker said it was liquid based. They are pretty nice about giving out lots of drinks during the flight as well since they know no one has any drinks in their carry-on bags.

gfp Enthusiast
I think the ban applies to liquids and gels only. I flew a few days ago and brought a sandwich. They didn't seem to have a problem with that.

Good to know... :D any potential terrorists can reduce the risk of premature explosions by stabilising the liquid explosive first :D

They should give out a Nobel prize for the most inventive use of stabilising a liquid high explosive.... <_<

nah.. wait someone already did this.... if only I could remember who?

Guest Norah022

I flew on Saturday and the only foods you can't bring on our gelatins and puddings and yogurts. I even talked to security about it. My gluten free food didnt even get questioned.

  • 2 weeks later...
michelleL Apprentice

I've just returned from travelling to London. I brought food with me going, and returning: I took a bag of cashew nuts with raisins, a disposable plastic container (from Whole Foods...) of a salad with chicken, a sandwich (with gluten-free bread, of course) and a peach (I think) going there; returning I brought a pre-packaged container of salad from Marks and Spencer, a bag of cashew nuts, and a little bag of mini rice crackers. I was ready to protest about having allergies and being diabetic on top of that, but they never questioned the food. They were more concerned about liquids, especially the little bottle of saline solution I brought for my contact lenses, and the little box of apple juice, all under the 4 oz. limit I thought we were allowed to bring on board...

So I am guessing that foods are allowed. Well, what do you expect, when there is very little food to be had on planes anyways.

Maybe, next time, I'll consider going by boat instead. At least the ride will be more enjoyable, and you most definitely will be fed.

tiffjake Enthusiast

I have a note that says "(my full name) has Celiac Diease and must adhere to a strick gluten-free diet. Your cooperation would be greatly appreciated. Please feel free to contact me with any questions." Signed by the doc. On letterhead. I thought I needed it for a convention center (to take my own food in) but they didn't ask to see it in the end. But I am prepared now!

  • 1 month later...
linds Apprentice

YAY!!! you can even bring liquid on planes now as long as you buy it after you have passed through security. We are making a bit of headway.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,199
    • Most Online (within 30 mins)
      7,748

    PamelaGayle
    Newest Member
    PamelaGayle
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • joleenrae
      My daughter was tested at her annual appointment when she turned 4 because her brother has celiac's. She has no symptoms. She eats a lot of gluten.  Blood work round #1 March 2024:  -          Endomysial IgA Ab: Negative  (Range: Negative) -          Gliadin IgA: <10.0 U/ml  (Range: <20.0 Negative) -          IGA: 93.43 mg/dL  (Range: 27.00 - 195.00) -          TISSUE TRANSGLUTAMINASE IGA: 9.1 U/ml  (Range: <4.0) *** this was high. the range changes for the next one, but it was noted that it was about double the range.  We went for an endoscopy in May 2024 and it was negative.  Blood work round #2 October 2024: -          ENDOMYSIAL ANTIBODY TITER: 1:5 titer  (Range: <1:5) **flagged as high -          ENDOMYSIAL ANTIBODY SCR (IGA) W/REFL TO TITER: POSITIVE  (Range: NEGATIVE) **flagged because its not negative -          IMMUNOGLOBULIN A  TISSUE TRANSGLUTAMINASE AB, IGA:  28.8U/mL  (Range: 22 – 140.  <15.0  =Antibody not detected. >or= 15.0 =Antibody detected.) **flagged high but the ratio/range was different and about double. Note says: Serological evidence for celiac disease is present. Blood work round #3 January 2025: -          TTG IGA: 28.1U/mL  (Range: 22 – 140.  <15.0  =Antibody not detected. >or= 15.0 =Antibody detected.) Now we are scheduling another endoscopy. My main concern right now is if the endoscopy is negative again…where does that leave us??? Public Schools and daycare will not feel her gluten free if its not an official diagnosis.
    • Lindquist
      Hi im from northern europe are blood type 0+ have celiac with code K900 on the paper from doctor, have low vitamin D and b12 and folate, zinc, manganese and high copper it say in test. The best food i have eaten for now is LCHF, i tried paleo but i was missing the dairy. And i love the cream in sauces. LCHF is good choice there is no grains in the dishes. It's completly gluten free lifestyle i say. Because i feel good to eat it.
    • WednesdayAddams13
      Hello,   I contacted the makers of Alpine Original Spiced Cider Drink Mix and they sent me this email.....   Subject: [EXTERNAL] Fw: Ref. ID:1335211 Alpine Original Spiced Cider Drink Mix.               On Friday, December 6, 2024, 1:04 PM, Consumer <baking@continentalmills.com> wrote: December 06, 2024   Dear Janie, Thank you for taking the time to contact us regarding our Alpine Original Spiced Cider Drink Mix. We appreciate your interest and are happy to provide you with additional information. This product does not contain gluten. However, it is not manufactured in a gluten free facility. If I can be of further help, please contact me at 1 (800) 457-7744, weekdays 7:00 a.m. to 4:00 p.m. (PT), or visit www.alpinecider.com and select "Contact Us." Sincerely, Kristin Kristin Consumer Relations Specialist Ref # 1335211   I hope this helps everyone.  I am currently looking for a spiced hot apple cider drink and have yet to find one that is not made in a plant that manufactures other gluten products.  It's so frustrating. 
    • trents
      @Rogol72, dermatitis herpetiformis occurs in a minority of celiac patients and if the OP hasn't developed it yet I doubt it will show up in the future. I think it unwise to use a scare tactic that probably won't materialize in the OP's experience. It has a good chance of backfiring and having the opposite effect.
    • Rogol72
      Hi @trents, You're correct. The OP mentioned fatigue and vitamin deficiencies as the only symptoms at the time of diagnosis. Since the family are not taking him/her seriously and find them to be too fussy, I suggested showing them pictures of dermatitis herpetiformis as one of the consequences of not taking the gluten-free diet seriously ... would make life easier for him/her, and the family might begin to take his/her strict gluten-free diet more seriously. A picture says a thousand words and the shock factor of dermatitis herpetiformis blisters might have the desired effect. The OP did say ... "How do you deal with people close to you who just refuse to understand? Are there any resources anyone could recommend for families that are short and easy to read?".  @sillyyak52, It might also help mentioning to your family that Coeliac Disease is genetic and runs in families. Any one of them could develop it in the future if they have the HLA DQ 2.5 gene. Here's a Mayo Clinic study calling for screening of family members of Coeliacs ... https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-celiac-disease-screening-for-family-members/ https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-study-calls-for-screening-of-family-members-of-celiac-disease-patients/ I got glutened a few months ago because I missed the may contains statement on a tub of red pesto. It was my own fault but it happens.
×
×
  • Create New...