Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Gluten-free, But I'm So Glad I Don't Have To Give Up....

RunnerNYC

By RunnerNYC
in Coping with Celiac Disease

Recommended Posts

Ursa Major Collaborator
Ursa Major
Posted

I am pretty much all-food-free, but I'm glad I don't have to give up water, air and sunshine. :ph34r::P:blink:

Just kidding, but some days that's the way it seems to be.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 73
  • Created
  • Last Reply
jnclelland Contributor
jnclelland
Posted
Pizza! Just made another one that looked just like my avatar for dinner tonight. YUM!

I want to know how you make such a yummy-looking pizza without dairy or soy!!! :)

I'm gluten, dairy, and (recently) soy-free, and I'm actually still pretty bummed about losing my soy lattes and most Asian food. But I'm so glad I don't have to give up margaritas! ;)

Jeanne

Guest Doll
Guest Doll
Posted

Ianm...you are too hilarious!

I'm gluten free (and possibly will be casein free soon :( if I test positive....) and I'm happy I don't have to give up: Coke, Nutella, Reese's Peanut Butter Cups, Cheetos, Cherry Blasters, Carnation Hot Chocolate, and Cool Ranch Doritos. Of course it's not like anyone should be eating these things often anyway, but it's nice to know I still have *some* choices left!

Guest AutumnE
Guest AutumnE
Posted

Im so glad I dont have to give up popcorn or m&m's! I love this thread. As a newbie to this I had no idea I could have funyuns, cheetos, cool ranch doritos or peanut butter cups. No one said I needed them though ;)

elonwy Enthusiast
elonwy
Posted

I'm happy I don't have to give up rice, corn tortillas, popcorn and Spam (its a Hawaii thing).

Elonwy

lonewolf Collaborator
lonewolf
Posted
I want to know how you make such a yummy-looking pizza without dairy or soy!!! :)

I'm gluten, dairy, and (recently) soy-free, and I'm actually still pretty bummed about losing my soy lattes and most Asian food. But I'm so glad I don't have to give up margaritas! ;)

Jeanne

I usually use raw goat cheese (this might still be considered "cheating"), but tonight I tried Buffalo milk mozzarella - you gotta love Trader Joe's for their wide variety of cheeses! I only have the cheese a couple of times a month, but I did avoid ALL dairy for about 9 years first. Yeah, I do miss Asian food...

Nantzie Collaborator
Nantzie
Posted

Elonwy - I have a friend whose parents are from Hawaii. I think she has gluten intolerance, at the least. She's been keeping a close eye on the food I eat, and is starting to be more open to maybe trying going gluten-free to see what happens. Now that I know Spam is gluten-free, and she can have all those nostalgic recipes, I'm sure she'll be one step closer to giving it a shot.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mythreesuns Contributor
mythreesuns
Posted

I am gluten and casein free, and I'm so glad I didn't have to give up marshmallows and soy lattes!

Oh, and Ian, you're a pig! :P

jennyj Collaborator
jennyj
Posted
I'm glad I didn't have to give up tic-tacs and popcorn!! weird choices, I know, but I'm addicted to tic-tacs!!! :P

I have a friend(not gluten free) who is a tic tac addict too. I never thought of it before. She likes the orange ones.

francelajoie Explorer
francelajoie
Posted
I'm really going to have to 2nd chocolate; but in the spirit of contributing something new - ice cream!!! (particularly Haagen Dazs Rocky Road, and Ben & Jerry's Pistachio, Chuncky Monkey and Cherry Garcia).

Ok and this one is lame, but rice. I love white rice. I know, strange.

Same here!!! Love white rice.

taz sharratt Enthusiast
taz sharratt
Posted
Hey guys, I thought this would be fun and interesting. Just fill in the blanks...

I'm (insert gluten-free, soy-free, meat-free, etc here), but I'm so glad I don't have to give up (your answer here-food or not).

I'll start with an easy one.

"I'm gluten-free, but I'm so glad I don't have to give up CHOCOLATE!! (gluten-free) "

and, don't answer that you're celiac free and you're glad you don't have to give up gluten... ;)

im gluten free- milk free- nut free and white suger free, but im glad i dont have to give up wine B)

queenofhearts Explorer
queenofhearts
Posted
Same here!!! Love white rice.

Actually, this was the first item on the list I wrote when I was diagnosed "Why I'm Lucky"-- "I really like rice."

Even before diagnosis I had four tins in my kitchen, white rice, brown rice, sushi rice & basmati. Plus I actually enjoy rice cakes. Beginning to wonder about the Quaker ones, though...

Leah

oceangirl Collaborator
oceangirl
Posted
Actually, this was the first item on the list I wrote when I was diagnosed "Why I'm Lucky"-- "I really like rice."

Even before diagnosis I had four tins in my kitchen, white rice, brown rice, sushi rice & basmati. Plus I actually enjoy rice cakes. Beginning to wonder about the Quaker ones, though...

Leah

I'm glad I don't have to give up the ship- I'm the Captain and I'm going DOWN with this sucker! Sigh...

I'm gluten, dairy, soy and corn- free and today I agree with Ursula- glad I don't have to give up air and all! But I'd have to say wine!

lisa

CarlaB Enthusiast
CarlaB
Posted
I'm happy I don't have to give up rice, corn tortillas, popcorn and Spam (its a Hawaii thing).

Elonwy

Spam? Are you crazy? I was hoping we had to give up Spam! :lol:

Actually, I've never had it.

Actually, this was the first item on the list I wrote when I was diagnosed "Why I'm Lucky"-- "I really like rice."

Even before diagnosis I had four tins in my kitchen, white rice, brown rice, sushi rice & basmati. Plus I actually enjoy rice cakes. Beginning to wonder about the Quaker ones, though...

Leah

I've heard people say, or should I say I have seen it written on this board, that Quaker is known for being contaminated.

francelajoie Explorer
francelajoie
Posted
Actually, this was the first item on the list I wrote when I was diagnosed "Why I'm Lucky"-- "I really like rice."

Even before diagnosis I had four tins in my kitchen, white rice, brown rice, sushi rice & basmati. Plus I actually enjoy rice cakes. Beginning to wonder about the Quaker ones, though...

Leah

I eat the plain with salt rice cakes. The ingredients are rice and salt! I like some honey almond butter on it..mmmm...sooooo good. If I feel like a treat, i put a few mini chocolate chips or nutella on it too. Man, I need to go eat..hahah

queenofhearts Explorer
queenofhearts
Posted
I've heard people say, or should I say I have seen it written on this board, that Quaker is known for being contaminated.

Yes, this is why I'm a little worried about them... haven't noticed any problems myself, & I eat a lot of them. I don't care for Lundberg ones, they are too dense for my rice cake moods... I used Mother's for a while until I realized they are just the expensive Quaker brand!

I'd been using Kroger, they claim theirs are gluten-free, but they've stopped carrying the plain ones. Those are the ones I like since I use them for "sandwiches" & breakfast "toast". I wonder anyway if theirs are made by Quaker...

penguin Community Regular
penguin
Posted
Yes, this is why I'm a little worried about them... haven't noticed any problems myself, & I eat a lot of them. I don't care for Lundberg ones, they are too dense for my rice cake moods... I used Mother's for a while until I realized they are just the expensive Quaker brand!

I'd been using Kroger, they claim theirs are gluten-free, but they've stopped carrying the plain ones. Those are the ones I like since I use them for "sandwiches" & breakfast "toast". I wonder anyway if theirs are made by Quaker...

Quaker reccommends that all celiacs avoid their products. How lame, Quaker, you aren't my friend! :rolleyes:

You may want to try corn thins...I prefer them to rice cakes...they're made by Real Foods, and they're much less akward for "sandwiches"

queenofhearts Explorer
queenofhearts
Posted
Quaker reccommends that all celiacs avoid their products. How lame, Quaker, you aren't my friend! :rolleyes:

You may want to try corn thins...I prefer them to rice cakes...they're made by Real Foods, and they're much less akward for "sandwiches"

Wow, I didn't know they actually warned us off! That's horrible! Rice cakes seem so perfect for us, would it be that hard to make them safe? Grrr...

I actually do enjoy the corn thins too. Looks like I'll be switching to those. Sigh... another food bites the dust!

Leah

kabowman Explorer
kabowman
Posted

My first thought was my hubby and all he can do for me...but we will keep with the topic and I would have to say, homegrown tomatoes, strawberries, and margaritas!!!!

elonwy Enthusiast
elonwy
Posted

Nantzi- let her know that I make Spam Musubi at home and its really easy. Actually, I make a lot of Hawaiian things at home, I even have a shave ice machine. Most Hawaiian food can be recreated very easily by switching to gluten-free soy sauce. I only get to go home about once a year, so I have to recreate alot of that childhood stuff, cause I miss it so much. Big staple of the hawaiian diet - Sticky rice, totally gluten free. mmmmmm.

I think I'm making Musubi this week, this is making me hungry just talking about it.

Elonwy

wacky~jackie Rookie
wacky~jackie
Posted

I'm just recently gluten free and I'm so glad I didn't have to give up a great steak and baked potato. B)

aikiducky Apprentice
aikiducky
Posted

How come noone has mentioned them yet - RAISINS! :D:D:D

I'm gluten free dairy free mostly lectin free and soyfree light - but I can still have bananas... :rolleyes:

Pauliina

Mayflowers Contributor
Mayflowers
Posted
Beginning to wonder about the Quaker ones, though...

Leah

Funny you should mention that about the Quaker rice cakes. I have indigestion after eating them, hence my feeling that I was thinking I have a rice intolerance. I don't usually get indigestion after eating rice. I LOVE basmati rice even though I don't care for regular rice. I'd hate to have to give that up too..

I'm glad I can still have peanut butter...food of the gods. Of course it's the natural, no salt added type. And NO I'm not getting tested for peanut butter! I draw the line! :lol:

jennyj Collaborator
jennyj
Posted
Funny you should mention that about the Quaker rice cakes. I have indigestion after eating them, hence my feeling that I was thinking I have a rice intolerance. I don't usually get indigestion after eating rice. I LOVE basmati rice even though I don't care for regular rice. I'd hate to have to give that up too..

I'm glad I can still have peanut butter...food of the gods. Of course it's the natural, no salt added type. And NO I'm not getting tested for peanut butter! I draw the line! :lol:

Me too on the peanutbutter. I could give up just about everything else but not my peanutbutter. I have a 5 year old niece who loves it too but if you ask her What does aunt jenny love you more than she'll answer---peanutbutter and she LOVES peanutbutter.

Sweetfudge Community Regular
Sweetfudge
Posted

So many good things! Steak, chocolate, potatoes, fruit, tomatoes (mmmm...).

I think I would die if I had to give up chips :) I am a sucker for Terra kettle chips, and I grew up eating mexican food as well (chips and salsa, bean dip, guac....) Hooray for Mission Tortilla Chips! The first gluten-free thing I ever realized I had in my house!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. DayaInTheSun
      - DayaInTheSun replied to DayaInTheSun's topic in Coping with Celiac Disease
      5

      Being a burden to family/friends

      Interesting you mention MCAS. I have come across mcas before but I wasn’t entirely sure if that’s what it was. When I eat certain food like dairy or soy my face gets so hot and I feel flush and my heart rate shoot’s up. And sometimes my bottom lip swells or I get hives somewhere. This started happening after I had a really bad case of Covid. Before that ...
    2. Kiwifruit
      - Kiwifruit replied to Kiwifruit's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Years of testing - no real answers

      This is all really useful information, thank you so much to you both. I have a history of B12 and vit D deficiency which has always just been treated and then ignored until it’s now again.
    3. trents
      - trents replied to Gill.brittany8's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      9 Year Old test results - help interpret

      Welcome to the forum, @Gill.brittany8! There are two main genes that have been identified as creating potential for developing celiac disease, HLDQ2 and HLDQ8. Your daughter has one of them. So, she possesses genetic the potential to develop celiac disease. About 40% of the general population carries one or both of these genes but only about 1% of the...
    4. Gill.brittany8
      - Gill.brittany8 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      9 Year Old test results - help interpret

      Hi everyone After years of stomach issues being ignored by doctors, my 9 y/o daughter finally had an upper endoscopy which showed a ton of stomach inflammation. The GI doctor ordered some bloodwork and I’m attaching the results here. Part will be from the CBC and the other is celiac specific. I’m not sure what’s relevant so I’m just including extra i...
    5. Mnofsinger
      - Mnofsinger replied to Mnofsinger's topic in Related Issues & Disorders
      7

      Food Tasting Salty

      Those are great points and some follow up thoughts and ideas. I think you're both stating the same thing in two different ways, but I appreciate the "accuracy" of what you're getting to. 1. Are you both stating that the "too salty of a taste" could be triggered by a histamine reaction, and the flavor is coming from the electrolytes? If...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,834
    • Most Online (within 30 mins)
      7,748
    mcsmommy
    Newest Member
    mcsmommy
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DayaInTheSun
      Being a burden to family/friends

      By DayaInTheSun · Posted

      Interesting you mention MCAS. I have come across mcas before but I wasn’t entirely sure if that’s what it was. When I eat certain food like dairy or soy my face gets so hot and I feel flush and my heart rate shoot’s up. And sometimes my bottom lip swells or I get hives somewhere. This started happening after I had a really bad case of Covid.  Before that I was able to eat all those things (minus gluten) I was diagnosed with celiac way before I had Covid.  Hmm, not sure really. I may look for a different allergist my current one told me to take Zyrtec and gave me an epi pen. 
    • Kiwifruit
      Years of testing - no real answers

      By Kiwifruit · Posted

      This is all really useful information, thank you so much to you both.    I have a history of B12 and vit D deficiency which has always just been treated and then ignored until it’s now again.
    • trents
      9 Year Old test results - help interpret

      By trents · Posted

      Welcome to the forum, @Gill.brittany8! There are two main genes that have been identified as creating potential for developing celiac disease, HLDQ2 and HLDQ8. Your daughter has one of them. So, she possesses genetic the potential to develop celiac disease. About 40% of the general population carries one or both of these genes but only about 1% of the general population develops celiac disease. It takes both the genetic potential and some kind of triggering stress factor (e.g., a viral infection or another prolonged health problem or an environmental factor) to "turn on" the gene or genes. Unfortunately, your daughter's doctor ordered a very minimal celiac antibody panel, the tTG-IGA and total IGA. Total IGA is not even a test per celiac disease per se but is a check for IGA deficiency. If the person being checked for celiac disease is IGA deficient, then the scores for individual IGA tests (such as the tTG-IGA) will be abnormally low and false negatives can often be the result. However, your daughter's total IGA score shows she is not IGA deficient. You should consider asking our physician for a more complete celiac panel including DGP-IGA, TTG_IGG and DGP-IGG. If she had been avoiding gluten that can also create false negative test results as valid antibody testing requires having been consuming generous amounts of gluten for weeks leading up to the blood draw. Do you know if the GI doc who did the upper GI took biopsies of the duodenum and the duodenum bulb to check for the damage to the small bowel lining caused by celiac disease? Having said all that, her standard blood work shows evidence of possible celiac disease because of an elevated liver enzyme (Alkaline Phosphatase) and low values for hemoglobin.
    • Gill.brittany8
      9 Year Old test results - help interpret

      By Gill.brittany8 · Posted

      Hi everyone  After years of stomach issues being ignored by doctors, my 9 y/o daughter finally had an upper endoscopy which showed a ton of stomach inflammation. The GI doctor ordered some bloodwork and I’m attaching the results here. Part will be from the CBC and the other is celiac specific. I’m not sure what’s relevant so I’m just including extra information just in case.   The results are confusing because they say “No serological evidence of celiac disease. tTG IgA may normalize in individuals with celiac disease who maintain a gluten-free diet. Consider HLA DQ2 and DQ8 testing to rule out celiac disease.” But just a few lines down, it says DQ2 positive. Can someone help make sense of this? Thanks so much.  result images here: https://ibb.co/WFkF0fm https://ibb.co/kHvX7pC https://ibb.co/crhYp2h https://ibb.co/fGYFygQ  
    • Mnofsinger
      Food Tasting Salty

      By Mnofsinger · Posted

      Those are great points and some follow up thoughts and ideas. I think you're both stating the same thing in two different ways, but I appreciate the "accuracy" of what you're getting to.   1. Are you both stating that the "too salty of a taste" could be triggered by a histamine reaction, and the flavor is coming from the electrolytes? If that is the case, wouldn't the individuals mouth always be salty during a "Glutening" situation, or are we saying that the person could get "use to the flavor" until introducing food or beverage and that could be enough to "stir the pot" and notice the salty flavor? 2. To push back on "#1": If that were true anyone with issues of histamine releasing foods/treatments would experience the same thing. Also, I did not experience a situation where most beverages were "too salty". Thoughts?
×
×
  • Create New...