Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Old? Celiac For How Long?

swittenauer

How old are you?  

63 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

swittenauer Enthusiast
swittenauer
Posted

I was just curious as to how old everyone is in here? I didn't really know if there was more of a certain age bracket that visited this site or not.

I am 34 but my husband is 40. He was diagnosed just over a year ago so we are still newbies at this whole Celiac thing.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted

Age 25 and tomorrow is my 2 year gluten free anniversary!

swittenauer Enthusiast
swittenauer
Posted
  • Author
Age 25 and tomorrow is my 2 year gluten free anniversary!

Well, congratulations! I hope all has been going well with you being gluten free.

AndreaB Contributor
AndreaB
Posted

Susan,

I don't have an official diagnosis. Got tested by enterolab and got the results this past June....been totally gluten free since. Was gluten light for 2 months prior to that due to allergy test results.

Ursa Major Collaborator
Ursa Major
Posted

I'm 53, and self-diagnosed myself ten months ago, still struggling but much better. But I've had celiac disease symptoms all my life, at least from the age of three. Too bad doctors are so clueless.

CarlaB Enthusiast
CarlaB
Posted

Symptoms my whole life.

First emergency room visit for it at 20, college roommate took me there because I only got out of bed for classes. Many throughout the past 23 years always relating to celiac symptoms, usually dehydration.

Diagnosed by Enterolab, doc accepts dietary response.

43 years old.

jerseyangel Proficient
jerseyangel
Posted

I was diagnosed last year on June 2nd at the age of 49.

This was after over 20 years of illness and misdiagnoses.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


2Boys4Me Enthusiast
2Boys4Me
Posted

I voted for Ty. He's 6 (& 3/4). He was 5 3/4 at diagnosis. His gluten-free anniversary was Aug. 18th.

He was diagnosed because we were trying to find out why he was so tired all the time and was such a lightweight. I think he was about 25th percentile for height and below zero for weight if you agree that everyone should fit somewhere on a chart. He had crazy low iron levels. 3 when he should have been in a range of 10 - 110.

I put one to two years gluten-free, but really barely over a year. Ty's on the left in the photo.

morganb Newbie
morganb
Posted

I have not been diagnosed, but I've been gluten free since May and I'm planning on doing a gluten challenge :blink:

I'm 18. I was going to do the poll, but there is no slot for 18 year olds....should I say I'm under 18 or that I'm 19? :huh:

Guest ~jules~
Guest ~jules~
Posted

I'm 30, was diganosed last week :(

jkmunchkin Rising Star
jkmunchkin
Posted

I'm 28 and was diagnosed just over a year ago, but was sick for about 10 years.

swittenauer Enthusiast
swittenauer
Posted
  • Author
I have not been diagnosed, but I've been gluten free since May and I'm planning on doing a gluten challenge :blink:

I'm 18. I was going to do the poll, but there is no slot for 18 year olds....should I say I'm under 18 or that I'm 19? :huh:

Oops! I meant to say 18 & under.

morganb Newbie
morganb
Posted
Oops! I meant to say 18 & under.

It's alright....I should have figured that....I'll take half the blame :) 18 & under is what would make sense.

Guest Viola
Guest Viola
Posted

Age 60, gluten free 17 years

flagbabyds Collaborator
flagbabyds
Posted

age 16

14 years gluten-free (15 in feb.)

mouse Enthusiast
mouse
Posted

Age 64. Gluten free since Feb. 3rd, 2004.

natalunia Rookie
natalunia
Posted

Age 29, diagnosed 3 months ago, been gluten free for 4 months.

KaitiUSA Enthusiast
KaitiUSA
Posted

Age 19. Diagnosed in Jan of 2004

IrishKelly Contributor
IrishKelly
Posted

Age 28, diagnosed 2 months ago, gluten free for almost the past 2 months.

Carriefaith Enthusiast
Carriefaith
Posted

I am now 25 and I was diagnosed in March 2004 (2.5 years).

LKelly8 Rookie
LKelly8
Posted

I'm 37 and I was diagnosed June of '05 by biopsy after five years of mis(sed)diagnosis and negative celiac blood panels.

My mother's 69 and was diagnosed in 1938.

  • 4 months later...
swittenauer Enthusiast
swittenauer
Posted
  • Author

Wow, 1938. Some doctor had his stuff together.

darlindeb25 Collaborator
darlindeb25
Posted

I am 51 and am self diagnosed--gluten-free for over 5 yrs now. Have a sister diagnosed 4 months before me and our dad has been gluten-free for a little over 2 yrs now. We all had been sick for years and years!

Katie618 Apprentice
Katie618
Posted

i'm 21 and was diagnosed in may 06, been gluten free for 6 months -- never really felt sick before that, was diagnosed becasue my iron levels were really low (they've been low since high school) but in retrospect, definately displayed symptoms

plantime Contributor
plantime
Posted

age 42, officially diagnosed Sept. 15, 2004, glutenfree since February 14, 2004.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,096
    • Most Online (within 30 mins)
      7,748
    Beryan Aziz
    Newest Member
    Beryan Aziz
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jeff Platt
      Weird Symptoms

      By Jeff Platt · Posted

      With patients who are experiencing ear ringing and ear pain I first want to make sure there is not any kind of ear infective process verified by your primary care. The next thing that I see as a dentist who treats a lot of temporomandibular joint disorders (TMJ), is that the jaw joint can be having a problem that causes the ringing to happen. My primary care physicians here in Colorado Springs will refer these patients to me for evaluation when they don’t find any source of infection with the ear. We are able to treat with a specific type of mouth splint and get resolution of the ringing and ear pain as we resolve the TMJ problem.  First a visit to your primary care to make sure your inner and outer ear is infection free. And if it is clean, a visit to a dentist who treats TMJ disorders. 
    • cristiana
      Options - 7 year old boy - Helicobacter pylori and serology

      By cristiana · Posted

      One thing I ought to add is that although any new medical condition diagnosis can come as a huge shock/blow, navigating the gluten free diet will one day become second nature to you all  Yes, mistakes occur on the way, but it will get easier.  A few things that have helped me on my journey: 1/ My husband has said to me a few times, and I think it helps. I should to try think of all the food I CAN still eat.  So much natural, unprocessed food, is gluten free, and a whole lot of processed and canned goods available in the supermarkets, too.  I can still eat Heinz Baked Beans and Tomato Soup, for example, and a lot of oven chips are gluten free.  Not all chocolate and candy contains gluten.  Excellent gluten free substitutes now exist in the supermarkets and I've lost count of the times I've been eating a product and shared it with a friend, and they have loved it.  Gluten-free doesn't mean taste free.  A lot of gluten-free substitutes are just as good as the 'real thing'. 2/ As time has gone by, I have met more and more coeliacs and other people who react strongly to gluten. This will happen to your son in time, and it often helps to be able to chat with someone who walks a similar path.  I now have over a dozen such buddies and we share tips and recipes, and also recommend 'safe' restaurants and cafes to each other.   3/ Family support.  It is good if you can offer a safe haven at home.  My family aren't coeliacs, but the only things they eat that are not gluten free is shop bought bread and pies, and occasionally biscuits and we keep them very separate.  The rest of the time we cook with gluten free substitutes and all eat the same.  I have always been a keen cake baker and my daughter who is not a coeliac actually prefers the crumbly texture of gluten free flour, so she always uses that, even outside the home.  You can spend lots of time cooking and baking with your son, he'll acquire a new skill, and without wishing to boast, if his cakes are as good as mine he will never be short of friends!!  My daughter has quite a following at Uni, and I don't think they realise that her cakes are even gluten-free! I hope some of this serves to encourage you. Cristiana    
    • cristiana
      Options - 7 year old boy - Helicobacter pylori and serology

      By cristiana · Posted

      @Kathleen JJ  I am based in the UK.  The following link is to a website for UK based consumers but even post-Brexit, we are still importing from and exporting to mainland Europe, so chances are some of the products mentioned in the link are from the same factory.  Therefore, what your son eats would likely be the same product that I eat when it comes to eating sweets. https://libereat.com/2021/07/gluten-free-sweets/#:~:text=Haribo Gold Bears are gluten,Starmix It would therefore appear that Haribo Gold Bears are the ones you need to buy for your son. In answer to your other questions - yes, European labelling is strict so "Gluten free" is trustable.  However, if I read "Residual gluten" on a label I would say that is not safe for coeliacs. But always check the ingredients lists first as ingredients do change over time.  When doing this, what you need to avoid (usually printed in bold in the ingredient list) are: Wheat, barley and rye. These grains all naturally contain gluten. Coeliacs must also avoid products which state, "May contain traces of wheat, barley and rye" or products where the statement occurs: "Made in a factory which also handles wheat, barley and rye"    However, one other thing to think about:  oats.  In the UK, we do produce quite a few cakes and some candy which contains oats.    Oats do not naturally contain gluten, but as the crops are often grown alongside wheat, barley and rye, or processed in the same plants, cross-contamination can occur and they pick up gluten 'en route'.   The good news is that some food producers now grow oats away from these crops, and process them in oat dedicated plants, so you end up with a product called "pure oats" which are suitable for the majority of coeliacs (a minority react to avenin, the oat protein, in the same way they would to gluten, but I won't go into that here - just making you aware in case down the line you think it could be a problem).   So increasingly, in the UK at least, manufacturers are now printing oats in bold.   In candy production, you might find vegan chocolate which contains oat milk, hence I mention it here.  Unless such a candy bar stated that it was suitable for coeliacs,  your son would have to avoid it.   Incidentally, I think the idea of having a party after your holiday is a very wonderful, positive start to your son's gluten-free diet journey.  I was symptomatic by the time I was finally diagnosed with Coeliac Disease and was quite keen to start the diet straight away.  But just a few days after my endoscopy I was due to visit Normandy.  My consultant said to me, "Don't bother about taking up the diet until you get back".   I did try to start it in France but back then French catering establishments didn't seem to appreciate coeliac customers (something my gastroenterologist seemed to know something about!) so I was so glad he told me not to worry until I came home!
    • Kathleen JJ
      Options - 7 year old boy - Helicobacter pylori and serology

      By Kathleen JJ · Posted

      @cristiana Do you have any suggestions for the gummy bear type of candy? Because that is what is getting passed around. Someone told me "you will have to read all labels thoroughly from now on" but to be honest: I don't know what I'm looking for that should or should not be there? And is the notion "gluten free" trustable? And what about "may contain residual gluten"? Is that safe?
    • CXinjera 2
      Injera recipe ?

      By CXinjera 2 · Posted

      Would someone point me to a good injera recipe?
×
×
  • Create New...