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How Old? Celiac For How Long?

swittenauer

How old are you?  

63 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

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swittenauer Enthusiast
swittenauer
Posted

I was just curious as to how old everyone is in here? I didn't really know if there was more of a certain age bracket that visited this site or not.

I am 34 but my husband is 40. He was diagnosed just over a year ago so we are still newbies at this whole Celiac thing.

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happygirl Collaborator
happygirl
Posted

Age 25 and tomorrow is my 2 year gluten free anniversary!

swittenauer Enthusiast
swittenauer
Posted
  • Author
Age 25 and tomorrow is my 2 year gluten free anniversary!

Well, congratulations! I hope all has been going well with you being gluten free.

AndreaB Contributor
AndreaB
Posted

Susan,

I don't have an official diagnosis. Got tested by enterolab and got the results this past June....been totally gluten free since. Was gluten light for 2 months prior to that due to allergy test results.

Ursa Major Collaborator
Ursa Major
Posted

I'm 53, and self-diagnosed myself ten months ago, still struggling but much better. But I've had celiac disease symptoms all my life, at least from the age of three. Too bad doctors are so clueless.

CarlaB Enthusiast
CarlaB
Posted

Symptoms my whole life.

First emergency room visit for it at 20, college roommate took me there because I only got out of bed for classes. Many throughout the past 23 years always relating to celiac symptoms, usually dehydration.

Diagnosed by Enterolab, doc accepts dietary response.

43 years old.

jerseyangel Proficient
jerseyangel
Posted

I was diagnosed last year on June 2nd at the age of 49.

This was after over 20 years of illness and misdiagnoses.

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2Boys4Me Enthusiast
2Boys4Me
Posted

I voted for Ty. He's 6 (& 3/4). He was 5 3/4 at diagnosis. His gluten-free anniversary was Aug. 18th.

He was diagnosed because we were trying to find out why he was so tired all the time and was such a lightweight. I think he was about 25th percentile for height and below zero for weight if you agree that everyone should fit somewhere on a chart. He had crazy low iron levels. 3 when he should have been in a range of 10 - 110.

I put one to two years gluten-free, but really barely over a year. Ty's on the left in the photo.

morganb Newbie
morganb
Posted

I have not been diagnosed, but I've been gluten free since May and I'm planning on doing a gluten challenge :blink:

I'm 18. I was going to do the poll, but there is no slot for 18 year olds....should I say I'm under 18 or that I'm 19? :huh:

Guest ~jules~
Guest ~jules~
Posted

I'm 30, was diganosed last week :(

jkmunchkin Rising Star
jkmunchkin
Posted

I'm 28 and was diagnosed just over a year ago, but was sick for about 10 years.

swittenauer Enthusiast
swittenauer
Posted
  • Author
I have not been diagnosed, but I've been gluten free since May and I'm planning on doing a gluten challenge :blink:

I'm 18. I was going to do the poll, but there is no slot for 18 year olds....should I say I'm under 18 or that I'm 19? :huh:

Oops! I meant to say 18 & under.

morganb Newbie
morganb
Posted
Oops! I meant to say 18 & under.

It's alright....I should have figured that....I'll take half the blame :) 18 & under is what would make sense.

Guest Viola
Guest Viola
Posted

Age 60, gluten free 17 years

flagbabyds Collaborator
flagbabyds
Posted

age 16

14 years gluten-free (15 in feb.)

mouse Enthusiast
mouse
Posted

Age 64. Gluten free since Feb. 3rd, 2004.

natalunia Rookie
natalunia
Posted

Age 29, diagnosed 3 months ago, been gluten free for 4 months.

KaitiUSA Enthusiast
KaitiUSA
Posted

Age 19. Diagnosed in Jan of 2004

IrishKelly Contributor
IrishKelly
Posted

Age 28, diagnosed 2 months ago, gluten free for almost the past 2 months.

Carriefaith Enthusiast
Carriefaith
Posted

I am now 25 and I was diagnosed in March 2004 (2.5 years).

LKelly8 Rookie
LKelly8
Posted

I'm 37 and I was diagnosed June of '05 by biopsy after five years of mis(sed)diagnosis and negative celiac blood panels.

My mother's 69 and was diagnosed in 1938.

  • 4 months later...
swittenauer Enthusiast
swittenauer
Posted
  • Author

Wow, 1938. Some doctor had his stuff together.

darlindeb25 Collaborator
darlindeb25
Posted

I am 51 and am self diagnosed--gluten-free for over 5 yrs now. Have a sister diagnosed 4 months before me and our dad has been gluten-free for a little over 2 yrs now. We all had been sick for years and years!

Katie618 Apprentice
Katie618
Posted

i'm 21 and was diagnosed in may 06, been gluten free for 6 months -- never really felt sick before that, was diagnosed becasue my iron levels were really low (they've been low since high school) but in retrospect, definately displayed symptoms

plantime Contributor
plantime
Posted

age 42, officially diagnosed Sept. 15, 2004, glutenfree since February 14, 2004.

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    • trents
      9 year old- questionable results

      By trents · Posted

      Welcome to the forum, @ABP! We can't comment on the test numbers you give as you didn't include the range for negative. Different labs use different units and different ranges. There are no industry standards for this so we need more information. If your daughter doesn't have celiac disease she still could have NCGS (Non Celiac Gluten Sensitivity) which some experts believe can be a precursor to celiac disease and is 10x more common than celiac disease. However, there is no test for it yet but it does share many of the same symptoms with celiac disease. Both require complete abstinence from gluten.  It is seldom the case during testing where all tests are positive, even for those who do have celiac disease. This is no different than when diagnosing other medical conditions and that is why it is typical to run numbers of tests that come at things from different angles when seeking to arrive at a diagnosis. It seems like you are at the point, since you have had both blood antibody testing and endoscopy/biopsy done, that you need to trial the gluten free diet. If her symptoms improve then you know all you need to know, whatever you label you want to give it. But given that apparently at least one celiac antibody blood test is positive and she has classic celiac symptoms such as slow growth, constipation and bloating, my money would be on celiac disease as opposed to NCGS.
    • ABP
      9 year old- questionable results

      By ABP · Posted

      My nine-year-old daughter has suffered with severe constipation and bloating for years as well as frequent mouth sores, and keratosis Polaris on her arms. She also has recently decreased on her growth curve her % going down gradually.  After seeing a gastroenterologist, her IgG GLIADIN (DEAMIDATED) AB (IGG) was 22.4 while her IGA was normal. Her TISSUE TRANSGLUTAMINASE AB, IGA was 11.9.  Most recently her genetic test for celiac was positive.  After an endoscopy her tissue showed inflammation of the tissue as well as , increased intraepithelial lymphocytes (IELs) but there was no blunting of the change in the villi.    It seems that every result that we get one out of two things positive rather than all leading to an inconclusive diagnosis. While we do have another appointment with the doctor to go over the results. I'm curious based on this information what others think.    I would hate to have her eliminate gluten if not necessary- but also don't want to not remove if it is necessary.    Signed Confused and Concerned Mama
    • Scott Adams
      Gluten Free ADHD medications

      By Scott Adams · Posted

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    • trents
      Help with blood test result

      By trents · Posted

      I was wrong, however, about there being no particular health concerns associated with high total IGA: https://www.inspire.com/resources/chronic-disease/understanding-high-iga-levels-causes-impacts/ So maybe the physician's "borderline" remark is relevant to that.
    • trents
      Help with blood test result

      By trents · Posted

      Sometimes that is the case but what is curious to me is the remark by your physician about being "borderline". I assume he was referring to the total IGA score but it just seems like an irrelevant remark when it is on the high side rather than being deficient.
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