Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Tell Me It Isn't Rice!

emcmaster

By emcmaster
in Food Intolerance & Leaky Gut

Recommended Posts

emcmaster Collaborator
emcmaster
Posted

I started the elimination diet last monday night and had a rough few days and then felt great. Yesterday, I had two small bowls of steamed white rice and felt great when I went to bed. This morning I woke up feeling like I'd been glutened, which I'm 99% sure I wasn't.

I *also* had 4 little Hormel turkey pepperoni slices yesterday, which say gluten-free on the label, but I've never had them before. Probably a bad idea to try something I'd never eaten before on the day I introduce rice. :huh:

I guess my question is whether those of you that have multiple intolerances have the same type of reaction to all of them or if they're different. How can you tell what it is you're reacting to?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

I find that rice gives me pretty much the same reaction as gluten. When I tested rice in January, I got a stomach ache that night, nothing dramatic. So, I thought I could eat it again. But the next morning I had all the symptoms of being glutened (joint pains, stomach and bowel cramps, diarrhea, gas, bloating, acid reflux, tearing eyes, rashes, fatigue................the list goes on).

So, I am afraid I won't be able to tell you it isn't rice, as it very much looks like it was the culprit.

In order to find out if the pepperoni slices were a problem, just eat some a few days from now, after you feel fine again. If you don't get a reaction to them, it will definitely have been the rice.

emcmaster Collaborator
emcmaster
Posted
  • Author

Thanks for the quick reply, Ursula.

I never noticed a problem with rice before. I ate it maybe 3 times a week and never had any of the symptoms I am having now. Do you think it was because I was eating it so frequently?

Thanks!

eleep Enthusiast
eleep
Posted
Thanks for the quick reply, Ursula.

I never noticed a problem with rice before. I ate it maybe 3 times a week and never had any of the symptoms I am having now. Do you think it was because I was eating it so frequently?

Thanks!

I actually think I may be reacting to rice as well -- hadn't really realized how often I was eating it because I "forgot" that my sandwich bread is rice-based. My reactions aren't too severe at all, but I have same "oh no, not rice" feeling that you do. So, it's sweet potatoes for dinner-starch tonight and lentils tomorrow night. Quinoa after that and I may finally get around to cooking some amaranth......

eleep

jerseyangel Proficient
jerseyangel
Posted

Speaking of rice...

I've been off it for a couple months now. I had a bowl of Tinkayda Pasta w/ sauce tonight for dinner. I'm testing myself to see if I can maybe tolerate it once a week or so.

In the past, I've had a tendency to eat something, be ok with it, and then proceed to eat it every day.

If there's one thing I've learned about myself this year, it's I need to rotate my foods as much as possible--and to practice moderation!

I ate about 1 1/2 hours ago and feel fine so far--I'll post again tomorrow as to if I get any reaction.

It was so nice to have something other than meat and potatoes for dinner :D

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

I'd actually be far more suspicious of the turkey pepperoni. I've noticed that turkey ham and turkey bacon contain quite a lot of artificial ingredients, as well as sodium nitrite (which always gave me skin reactions, several decades before I ever reacted to gluten!) and other preservatives. Also, pepperoni is usually quite spicy, which, if your tummy has been dealing with gluten reactions, is probably not a good idea, as spicy foods can irritate the lining of the stomach.

Are you washing the starch off your rice before you cook it? (Usually a good idea, even if you are not celiac!)

Rachel--24 Collaborator
Rachel--24
Posted
I started the elimination diet last monday night and had a rough few days and then felt great. Yesterday, I had two small bowls of steamed white rice and felt great when I went to bed. This morning I woke up feeling like I'd been glutened, which I'm 99% sure I wasn't.

I *also* had 4 little Hormel turkey pepperoni slices yesterday, which say gluten-free on the label, but I've never had them before. Probably a bad idea to try something I'd never eaten before on the day I introduce rice. :huh:

I guess my question is whether those of you that have multiple intolerances have the same type of reaction to all of them or if they're different. How can you tell what it is you're reacting to?

My guess is that your reaction came from the pepperoni slices rather than the rice. I'm only saying this because the pepperoni slices would have alot of natural and added chemicals in them and the rice is just rice. As far as multiple intolerances go I'm kind of a believer in that alot of these cases its chemicals we react to and not so much the actual food we're eating.

The best way to figure it out is wait till you feel better and then eat the rice by itself...with nothing else new added into your diet. If nothing happens after a day or two try the pepperoni slices and see what happens.

If you react to the pepperoni slices I wouldnt think its an intolerance to turkey or to pepperoni....more likely it would be something *in* the pepperoni slices that is the culprit.

This is just what I've learned from my own experience and of course everyone is different but just wanted to share some of what I've learned.

Also....if you're not already doing this...keep a food diary. Very important and it will come in handy later on.

To answer your question...its very hard to tell what you're reacting to...especially since most of the time reactions are delayed. This is why a food diary is important. My reactions arent the same every time....it probably depends on alot of different factors but my tolerance for certain foods goes up and down. Are there any foods that you know for sure are causing problems?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


emcmaster Collaborator
emcmaster
Posted
  • Author

Thanks for all the replies!!!

Rachel, I know for sure that I have a dairy intolerance and a fat intolerance (I have to be careful how much I have).

I started keeping a food diary last weekend and from what I can tell, the pepperoni and rice were the only "new" things added to my diet on Monday. I can't believe I didn't think about it being a problem to try the pepperoni! :blink:

I haven't been washing the starch off my rice - I didn't realize that was something you were supposed to do?

Rachel--24 Collaborator
Rachel--24
Posted
I haven't been washing the starch off my rice - I didn't realize that was something you were supposed to do?

If you're sensitive to cornstarch you should rinse the rice well to get the coating off.

Natlay Apprentice
Natlay
Posted

If you're sensitive to cornstarch you should rinse the rice well to get the coating off.

There's cornstarch on rice!? Do most brands have that? That would explain a few things :P

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease...
    2. Scott Adams
      - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especia...
    3. Scott Adams
      - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can t...
    4. Scott Adams
      - Scott Adams commented on knitty kitty's blog entry in Thiamine Thiamine Thiamine
      1

      About Celiac Remission

      This idea comes up often, but it’s important to separate theory from what’s actually supported by evidence. In celiac disease, the immune system does not “forget” gluten in a permanent or reliable way, even after long periods of avoidance, and the celiac genes do not turn off. While antibody levels (like tTG IgA) can normalize on a strict gluten-free diet an...
    5. Scott Adams
      - Scott Adams replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      need help understanding testing result for Naked Nutrition Creatine please

      Gluten testing is normally reported in ppm (parts per million), which is equivalent to mg/kg, not micrograms by itself. A result of <0.025 mcg only becomes meaningful if you know the sample size tested (for example, mcg per gram or per kg). If that value represents <0.025 mcg per gram, that would equal <25 ppm, which is above the gluten-free threshold...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,190
    • Most Online (within 30 mins)
      7,748
    Atl222
    Newest Member
    Atl222
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
    • Scott Adams
      need help understanding testing result for Naked Nutrition Creatine please

      By Scott Adams · Posted

      Gluten testing is normally reported in ppm (parts per million), which is equivalent to mg/kg, not micrograms by itself. A result of <0.025 mcg only becomes meaningful if you know the sample size tested (for example, mcg per gram or per kg). If that value represents <0.025 mcg per gram, that would equal <25 ppm, which is above the gluten-free threshold; if it’s <0.025 mcg per kilogram, it would be extremely low and well within GF limits. Without the denominator, the result is incomplete. It’s reasonable to follow up with the company and ask them to confirm the result in ppm using a validated method (like ELISA R5)—that’s the standard used to assess gluten safety.
    • Scott Adams
      Medications

      By Scott Adams · Posted

      Medication sensitivity is very real for many people with celiac and other autoimmune conditions, and it’s frustrating when that’s brushed off. Even when a medication is technically gluten-free, fillers, dose changes, or how your nervous system reacts—especially with things like gabapentin—can cause paradoxical effects like feeling wired but exhausted. The fact that it helped bloating suggests it may be affecting gut–nerve signaling, which makes sense in the context of SIBO, but that doesn’t mean the side effects should be ignored. You’re carrying a heavy load right now with ongoing skin, eye, and neurological uncertainty, and living in that kind of limbo is exhausting on its own. It’s understandable to feel overwhelmed and discouraged when systems and providers don’t meet you where you are—your experience is valid, and continuing to advocate for yourself, even when it’s hard, really does matter. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.