Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Breathlessness & Celiac's


Guest Norah022

Recommended Posts

Guest Norah022

I have been having breathing issues (feeling like i wasn't getting enough air, etc.) since about march and was diagnosed with celiac's in may. Have been gluten free since the first week of june and the doctor said the breathlessness was due to anxiety.

Well along with the breathlessness i have had severe vertigo and nausea all of which has been associated with stress along with the breathlessness but it isn't gettig better.

Could this be because of the Celiac's? And does anyone have suggestions how to fix it?

I am a senior in college getting ready to write a thesis and the vetrigo and breathlessness is really affecting getting my work done.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



2kids4me Contributor

When I am under stress - as happens frequently wth my chidlren and their various problems - I get premature atrial beats...managed to catch it on a strip in emerg when it kept going for 8 hours (had been up all night with sick kid, so was stressed and fatigued).

I get out of breath, I sit down on stairs cause I can't make it up and then they go away as sudden as they start...and I do feel dizzy when they happen

I become a couch potatoe if they go on for an hour or more..

and yup it is stress related, "benign" - meaning that there is no underlying physcial cause.

When it happens to you - do you feel like pounding heart beat or feel like skipped beat and then your heart pounds in your chest?

gfp Enthusiast

Breathlessness is often just caused by severe acid reflux... excuse the just... because it is extremely frightening but you can get acid inhibitors that really help this. (omneparazole etc.)

Stress makes it worse and not being able to breath is about as stressful as it gets. Hence the danger of a catch-22.

Vertigo my mum had for a while....but I don't know much more.

chewymom Rookie

The breathlessness could also be asthma. I was just diagnosed with asthma last year, although I've had some of the symptoms for a long time, and now I'm questioning whether I have gluten problems. I have read that celiac can trigger asthma.

queenofhearts Explorer

I've seen many posts here regarding breathlessness so I do think there's a connection. Check out the asthma too especially if you wheeze when trying to get your breath.

Here's one thread: Open Original Shared Link

I would highly recommend looking into yoga breath control-- if you practice when your breathing is comfortable you might be able to marshall those resources when you are gasping.

Leah

gfp Enthusiast
The breathlessness could also be asthma. I was just diagnosed with asthma last year, although I've had some of the symptoms for a long time, and now I'm questioning whether I have gluten problems. I have read that celiac can trigger asthma.

Strangely enough this is where my celiac journey began...

The first thing the Dr did on my shortness of breath was give me a tube you blow into which measures lung efficiency and capacity.

First blow it went off the end of the scale... so he asked me to repeat..which I did....

Hardly a surprise .... really

Guest Norah022

well one of the weird things is that my breathlessness happens most when I am sitting down....it rarely happens when I am active.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



queenofhearts Explorer

Did you read the other thread? I think hers was the same way. Asthma can have many triggers, as can other breathing issues. If you are under a lot of pressure from your schoolwork, it could be triggered by anxiety when you sit down to work. This is quite common, & yoga exercises are excellent for this type of breathlessness.

And by the way, anxiety is also linked to Celiac.

jennyj Collaborator

One of the first symptoms of my anemia, I found this out later, was I would get out of breath walking from one place to another that weren't to far apart.

Guest Norah022
Did you read the other thread? I think hers was the same way. Asthma can have many triggers, as can other breathing issues. If you are under a lot of pressure from your schoolwork, it could be triggered by anxiety when you sit down to work. This is quite common, & yoga exercises are excellent for this type of breathlessness.

And by the way, anxiety is also linked to Celiac.

I did read the thread and what she is describing is not what i am dealing with. My breathlessness is all the time, worse at some points, but pretty much all the time and it doesn't matter whether i have eaten or not.

I have always had anxiety problems but they never showed themselves with breathing problems. It started happening at the same time as the vertigo since i have been at school it has been worse so i know stress is related but my problem is how to get it to stop because it is affecting my work and that makes me more stressed.

gfp Enthusiast
well one of the weird things is that my breathlessness happens most when I am sitting down....it rarely happens when I am active.

How about when you bend over... under a bed or tying laces standing up etc...

Guest Norah022
How about when you bend over... under a bed or tying laces standing up etc...

well i am bending over to write this now and i feel fine but when i was sitting here writing before i was feeling it.

Kat-Kat Newbie
well i am bending over to write this now and i feel fine but when i was sitting here writing before i was feeling it.

Do you feel like air want come from your lungs, like it is getting closed off alittle and does your ears or ear hurt do you have a ringing not bad but there all the time.

gfp Enthusiast
well i am bending over to write this now and i feel fine but when i was sitting here writing before i was feeling it.

If you have a lot of stomach acid it acts on your lungs and causes breathlessness.

Most people notice it worse if lying down, especailly if the head is not propped up or when really bending over like hands and kness under a bed but any sitting type activity makes it happen....

Its really bad if you dive.... you naturally have your feet above your head and being 100m down and needing decompression to surface while sucking on a tube but not being able to breath is not nice!

You could have a haitus hernia and/or excessive acid production. The latter is very common in celiac disease if undiagnosed.

Either way its something to get checked out.... it could be asthma or acid but very effective meds are available for both. Asthma is usually associated with wheezing but ....

I know its easy to say but don't panic! .... Yeah I know.... but really .. don't panic, it will subside and the worst thing for either is stressing yourself!

Guest Norah022
Do you feel like air want come from your lungs, like it is getting closed off alittle and does your ears or ear hurt do you have a ringing not bad but there all the time.

Yeah it does feel sometimes like there is air but it isgetting stuck in my chest. I have ear problems and have been diagnosed with an inner ear infection before.

Guest Norah022

I have never been told i am anemic and i get a lot of blood tests done.

But the symptoms sound a lot like mine.

I am meeting with my dietician on campus on monday so I am going to ask her about it.

Guest Norah022

So it isn't anemia....Any other ideas :( I am desperate it is getting so much worse

Michi8 Contributor
So it isn't anemia....Any other ideas :( I am desperate it is getting so much worse

Has your doctor ruled out lupus?

Michelle

Guest Norah022

My doctor told me my breathlessness and the feeling of having a lump in my throat or something stuck in my throat (which will not go away and is driving me nuts) is because of allergies.....

anerissara Enthusiast

How long have you been gluten-free? I had breathlessness and dizziness at the peak of my sickness before going off gluten, and it eventually went away. It took a couple of months at least, though. I don't think I was anemic enough to cause those symptoms, they just seemed to be a part of the celiac package as it were. I hope you feel better soon!

Guest Norah022

i have been gluten free for 3 months but this began in march following an inner ear infection...Now the stuck in the throat aspect is the worst

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,152
    • Most Online (within 30 mins)
      10,442

    Melinda S Hooper
    Newest Member
    Melinda S Hooper
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • BelleDeJour
      I hope you all had a nice weekend. Cloudy here in Hampshire. Just a little update that might help someone else one day. Over the weekend, I realised that the brand of almond milk I had been buying contains added iodine. So, I visited the supermarket and chose a different brand (Plenish) that does not contain added iodine and have been drinking that since Saturday. No itching at all yesterday! Another breakthrough (thank you @knitty kitty). I think the added iodine milk may have been what was causing that last 10% itch.  I also met a friend for coffee in town yesterday. The cafe only had soya milk (which I have not been sure I am OK with) but I had 2 delicious latte's made with soya milk. I also had a gluten-free millionaire's shortbread. I am beginning to enjoy the taste of almond and soya milk a lot more than cows milk now.  I seem to be fine with a little sprinkle of cheddar cheese on my jacket potato. I bake them in my air fryer and have them with a big mixed salad and baked beans. I also made a gluten-free tuna pasta bake on Saturday; it's my son's favourite dish. I was  fine with that, too but have noticed that a whole can of tuna sets me off itching.  It is a learning curve. My dermatology appointment is tomorow and I will come back to update. Have a good week everyone. 
    • Aretaeus Cappadocia
      Thanks for posting this. I hadn't come across the Alchemist before. Great site!
    • transplantwest
      Psyllium can't sit for more than a minute in the water or it is like drinking sludge. Swallowed fairly soon means it's more like an flavorless undermixed protein smoothie. Chlorophyll ( or two tbsp) really helps the taste, makes it minty. Taking Psyllium and Chlorophyll separately rather than together at first helps determine if there's intolerance to either. Also starting the Psyllium in small doses, starting with 1/2 to 1 teaspoon to tolerate the fiber change. 
    • DanMc
      BuddhaBar, I came across this thread while searching online for celiac insomnia (having also scared myself stupid by finding out about fatal insomnia) and it did bring me some piece of mind as it so closely matches my own experience. I know this thread is old now, I hope you're doing well, and thanks for posting your experience.
    • cristiana
      That's great news, @HelloFlowersGoodbyeFlour.  And you might find that if you do have asthma, keeping your reflux under control may help, if my experience is anything to go by.  
×
×
  • Create New...