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Ages Of Diagnosis

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Corkdarrr Enthusiast
Corkdarrr
Posted

I'm 24 and I self-diagnosed about two months ago.

When I was about 18 I had a blood prick test that said I was sensitive to wheat - not intolerant. Granted I had just moved out on my own and was eating macaroni and cheese an average of twice a day. No wonder I felt so crappy all the time!

I've had stomach problems since my teens at least. But I've finally reached an age where I have the discipline and desire to take care of myself correctly.

I still feel pretty crappy most of the time because I'm new at this and am undoubtedly messing up on all sorts of weird things. But pretty crappy is a vast improvement over what I used to feel like all the time! And dear lord, the brain fog had gotten unbearable! I'm just plugging away at it...one day at a time...

-Courtney

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  • Recent Activity

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      Gluten migranes at night

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      Guidance on next steps after the lab tests

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      Night time migranes

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    4. Debado
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      Gluten migranes at night

      Thank you for that information. I had no idea about that. I have not been diagnosed with Celiac the Dr says I have gluten intolerance. I don't have any symptoms other than migranes from gluten and from coconut oil. I hate the medicine they gave me for migranes. It makes my blood pressure go up, is a diaretic so I am up all night then feel dehydrated the...
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      What should I do with these test results?

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  • Posts

    • knitty kitty
      Guidance on next steps after the lab tests

      By knitty kitty · Posted

      @ABP2025, Have you thought about having a DNA test to check for known Celiac genes?    I do hope you will make sure that you are getting sufficient gluten to provoke an autoimmune response strong enough that the antibodies can be measured in the blood.  See article below. Celiac disease affects the absorption of nutrients,  including vitamins and minerals.  Your symptoms may be associated with thiamine deficiency.   Migraines and peripheral neuropathy, phimosis (yes, even this), and white spots on the brain are seen in thiamine deficiency.  Celiac disease disrupts the absorption of all the essential nutrients, but thiamine can be quickly depleted, in as little as three days.  Thiamine deficiency can occur even if blood tests show normal levels.  Thiamine deficiency can affect antibody production.      
    • Debado
      Night time migranes

      By Debado · Posted

      Anybody ever heard of getting a migrane from gluten and coconut oil ONLY at night?   If I consume gluten or coconut oil, even in the morning,  I will get a migrane. But not until half way thru the night. I don't get this. Why at night? Why not right after I eat?
    • trents
      What should I do with these test results?

      By trents · Posted

      Early on,  DQ2 and DQ8 were the primary genes that have been connected to the potential to develop celiac genes but more recent genetic research suggests there may be more.
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      What should I do with these test results?

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      What markers /genes are these DNA test? 
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      Guidance on next steps after the lab tests

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      After I get the endoscopy done, I’ll try to be in gluten-free diet even if I test negative for celiac disease or NCGS to avoid any complications. It does suck because I love wheat breads and Indian breads like rotis and naans, lol. I guess I have to jump to gluten-free options for those. Again, thanks for all your help.
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