Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oh My, That Was Hellacious


eleep

Recommended Posts

eleep Enthusiast

Well, I just narrowly escaped from my department's beginning-of-the-year party -- which has always been known for its stodginess and social discomfort, but this is the first year I realized that the food was really the only reason I've ever even remotely enjoyed attending. Not anymore -- there wasn't a thing I could eat and this is the fourth social event of the week I've been to involving food -- I had one relatively mild cc episode early on, got lucky at two other events and just ate at home before heading out for the past few nights.

On top of all this, there's the "Erica's recovering from some weird and rare illness" factor -- gossip gets around and it was something I really didn't want to talk about, although I got plenty of comments about how I look "well". The people I care about most in the department weren't there -- my advisor decided to avoid the thing -- I honestly went in, grabbed a glass of pinot grigio, made one circuit around the room, put the glass down by the door and left.

I'm so ready to graduate and move on to a place where people meet me as a celiac!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Glad you made it through the week. I usually can't stand those obligatory events ...

queenofhearts Explorer

I hate that sort of thing too. The awkward chit-chat, the food which is rarely that great even without considering gluten... & especially anything when someone gives a supposedly inspirational speech... ugh!

eleep Enthusiast

The thing is, I used to be so good at "working" events like this even if I hated them. I'm not a big small-talker, but I do know how to draw people out in conversation and get them to tell me interesting things they would otherwise probably not discuss at a superficial meet-and-greet. Tonight, however, I was just so paralyzed by my own stuff that I simply had no energy to focus on anyone else. I also blurted out "oh, I can't have any of that" when someone (who knows about my diagnosis, but can't be expected to keep track of everything going on with every graduate student) suggested that I go have some of the freakin' wood-oven-baked-gourmet pizza on one of the tables -- he's been great and supportive and he meant really well, but I guess I'm just not in a place yet where I've learned how to be gracious AND deal with all this other stuff at the same time.

Sheesh. I'm going to have to start throwing my own dinner parties again, I think. That way I can be social and have food and be in control of the situation!

eleep

CarlaB Enthusiast

Don't worry about it. I have those moments, too. I've always thought that bringing out conversation in others, you know, where you ask them about themselves and do little talking about yourself generally makes you the most interesting person in the room! I've gotten bad at it, too. It's hard when you're just trying to get through the day. I can't even keep it straight in the grocery store anymore ... I love those checkout lines where you scan your own groceries! I got "paralyzed" at the grocery the other day and had to call hubby at work to tell me I'd be okay and home in a little while. He said to start bringing one of the kids with me so that I didn't have to worry about finding the stuff and figuring out what we need.

queenofhearts Explorer

Yeah, the social thing is by far the biggest issue for me too. I used to love "breaking bread" with friends & eating adventurously in restaurants... now I feel like a recovered alcoholic in a bar must feel... not tempted, that is, just... what do I do now? I'm even afraid to eat things like cruditees & such for fear of cc, so I end up just sipping a drink & feeling a little left out. I guess once I get to the point when I know for sure when I've been glutened, I'll feel less paranoid, maybe, but for now, I don't really know what I can tolerate.

CarlaB Enthusiast

We live in a 90 year old house in the downtown of a small town, so the houses are close together. Our driveway is usually mistaken for being our neighbor's, so his pizzas are delivered there. We have a table on our driveway (it's a detached garage, corner lot, makes sense if you see it because the driveway is the BACK yard), and we cookout there. So, we sit out there and have wine or margaritas, and he's a recovering alcoholic! So, he understands how I feel, and I him. He was concerned one day when he came home with a couple pizzas that I'd be sitting out there, and I said, "Well, just because I can't have it doesn't mean you can't!" He said that he feels the same way with alcohol.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Levi replied to Bindi's topic in Super Sensitive People
      42

      Refractory or super sensitive?

    2. - Levi replied to Paula Andrews's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Can celiac cause widespread pain??

    3. - trents replied to Eldene's topic in Food Intolerance & Leaky Gut
      10

      Oats gluten free?

    4. - Levi replied to Bindi's topic in Super Sensitive People
      42

      Refractory or super sensitive?

    5. - Levi replied to Bindi's topic in Super Sensitive People
      42

      Refractory or super sensitive?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,375
    • Most Online (within 30 mins)
      7,748

    Grubmouse
    Newest Member
    Grubmouse
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Levi
      In your whole posts the red flag raised is “villous atrophy,” this is serious as it is the villi that holds the nutrients until they are absorbed into the cells of the body… the focus should be on healing of the villi while maintaining gluten free diet. I’m sure there is a Dr’s and Specialist section on this forum that can assist you with more information.    In our Prayers with GOD for you and your daughter. LORD GOD send YOUR Holy Angels to Protect and Provide for Your children and All those involved and affected by All they are enduring, that All their Spiritual and temporal needs are met according to THY Most Perfect and HOLY will O LORD 🙏😇   
    • Levi
      You can add Axonal Peripheral Neuropathy, Bone and Joints degeneration, Cataracts, Hypothyroidism, Gluten Bumps for those of us with dermatitis herpetiformis, and Malabsorption which contributes to so many other complications. Sadly though, other than gluten bumps all the aforementioned and many other autoimmune diseases, eventually, can and will take its toll on the body, even while maintaining 100% gluten free. Coeliac, just like all Autoimmune Diseases beget autoimmune diseases. It’s in the cards, and inevitable, just a matter of time when. I’m living Proof! 
    • trents
      The oat protein, avenin, is not gluten. It is similar to gluten, however, and similar enough to cause a gluten-like reaction in some celiacs.
    • Levi
      What is the correlation in taking supplemental Magnesium with D?  I can attest to Dr. McCarthy when it comes to influenza. In all 7 full years that I took extremely high weekly dose D2 50K only once did I become ill with flu like symptoms. At the time I became ill I was sharing residence with a sibling, 3 children, and 1 additional adult - a full house that was almost daily trafficked by other children and adults. Total 7 years, other than contracting Covid twice at 22 months apart, when it comes to flu illness I was practically immune. 
    • Levi
      I have taken D2 50K oral capsules once weekly for 7 years consecutively due to a dangerously low deficiency level of 17. It took 3 whole years before I reached D level 34, followed by higher D levels up to low 70s. Two or three times throughout the following 4 yrs my labs would show slight high TSH (hypothyroidism). Is it possible that the last 4 of the 7 consecutive years of D2 50K which gradually increased my D levels to 60s & 70s is causing current labs of high TSH, even though for at least the last 4 months I have reduced my D2 50K intake to half dosage, every other week vs. weekly?   
×
×
  • Create New...