Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Zelnorm

debmidge

Recommended Posts

debmidge Rising Star
debmidge
Posted

How many with celiac disease take this for better bowel movement regulation?

Does it work? Does it cause any side effects?

Are you content with the results of this prescription?

Do you recommend it?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gooddawg315 Newbie
gooddawg315
Posted

hi debmidge. FYI...I have 2 friends who were both prescribed Zelnorm for IBS (irritable bowel). Both had severe side effects to the med. They both had super high elevated liver function tests (LFT's) after starting the med. One also developed bruising and bleeding to the point where she was covered in black and blues looking like someone had beat her up! Both girls(ages 30/31) have since stopped the med and their liver tests have both returned to normal, as for the bruising. It took a good 3 months though. My doctor wanted to put me on it too due to my gastric emptying study that I flunked, with a time of over 3 hours to digest my food. I have gallstones also. I told her NO WAY! She reassures me that they would check my LFT's every 3 months, but I still am not going to take it. Not worth the potential side effects! Plus my insurance (Anthem) won't cover it anyway. So before taking it, please discuss it and research it with you doctor. Good luck!

BamBam Community Regular
BamBam
Posted

I've been taking zelnorm for the better part of two years. I was taking it twice daily, but now am taking it once daily. I feel it has helped me regulate my system. It helps mainly with constipation. It is very expensive medicine but I feel it has helped me a lot. A couple weeks ago I thought I would try life without Zelnorm, and a lot of my sluggish/can't go to the bathroom mode came back after about ten days.

bambam

mamaw Community Regular
mamaw
Posted

I've used it on & off for the big C but I can't say that it did much for me but a bomb probably wouldn't help me.....I drink milk of mag for help......... I want to buy stock in that stuff!!!

mamaw

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,073
    • Most Online (within 30 mins)
      7,748
    David Croft
    Newest Member
    David Croft
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Celiac or Addison's complications? Can someone share their experience?

      By trents · Posted

      @KRipple, thank you for the lab results from your husband's celiac disease blood antibody testing. The lab result you share would seem to be the tTG-IGA (Tissue Transglutaminase IGA) and the test result is in excess of 10x normal. This is significant as there is an increasing tendency for physicians to grant a celiac disease diagnosis on the basis of antibody testing alone when the scores on that particular test exceed 10x normal. This trend started in the UK during the COVID pandemic when there was tremendous pressure on the medical system over there and it has spread to the USA. The tTG-IGA is the centerpiece of celiac disease blood antibody testing. All this to say that some doctors would grant a celiac disease diagnosis on your husband's bloodwork alone and not feel a need to go forward with an endoscopy with biopsy. This is something you and your husband might wish to take up with his physicians. In view of his many health issues it might be wise to avoid any further damage to his small bowel lining by the continuing consumption of gluten and also to allow healing of such to progress. The lining of the small bowel is the place where essentially all of our nutrition is absorbed. This is why celiac disease when it is not addressed with a gluten free diet for many years typically results in additional health problems that are tied to nutritional deficiencies. The millions and millions of tiny finger-like projections that make up the nutrient absorbing surface of the small bowel lining are worn down by the constant inflammation from gluten consumption. In celiac disease, the immune system has been tricked into labeling gluten as an invader. As these finger-like projections are worn down, the efficiency of nutrient absorption becomes more and more compromised. We call this villous atrophy.   
    • KRipple
      Celiac or Addison's complications? Can someone share their experience?

      By KRipple · Posted

      Thank you so much! And sorry for not responding sooner. I've been scouring the hospital records and can find nothing other than the following results (no lab info provided): Component Transglutaminase IgA   Normal Range: 0 - 15.0 U/mL >250.0 U/mL High   We live in Olympia, WA and I will be calling University of Washington Hospital - Roosevelt in Seattle first thing tomorrow. They seem to be the most knowledgeable about complex endocrine issues like APS 2 (and perhaps the dynamics of how APS 2 and Celiacs can affect each other). His diarrhea has not abated even without eating gluten, but that could be a presentation of either Celiac's or Addison's. So complicated. We don't have a date for endoscopy yet. I will let my husband know about resuming gluten.    Again, thank you so much for sharing your knowledge with me!
    • Jmartes71
      Celiac pain relief

      By Jmartes71 · Posted

      Ginger is my best friend, it helps alot with tummy issues..
    • aattana
      Positive gliadin (deamidated) IgG, normal everything else?

      By aattana · Posted

      Hi Phosphone, did you ever figure out what elevated your DGP?  I am in the same boat. 
    • trents
      Celiac or Addison's complications? Can someone share their experience?

      By trents · Posted

      Scott makes a good point about the prednisone. It has a general suppressing effect on the immune system. Don't misunderstand me. In view of your husband's several autoimmune afflictions, it would seem to be an appropriate medication therapy but it will likely invalidate endoscopy/biopsy test results for celiac disease.
×
×
  • Create New...