Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enterolab Casein, Soy, Yeast Antibodies


Matilda

Recommended Posts

Matilda Enthusiast

..


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

As far as I understand, intolerances are for life. The antibodies should go down if you are not consuming the food in question and not getting trace amounts from cc or other such thing.

I just got tested a few months back so I haven't been retested.

Matilda Enthusiast

..

  • 2 weeks later...
Rachel--24 Collaborator

Matilda....I tested neg. for everything but gluten so I cant really answer your question. I was always confused about Enterolab saying all these IgA antibodies are "for life". I havent seen evidence of this anywhere. As far as I know...once a person heals and if there arent other issues to deal with like leaky gut, candida, etc...other food intolerances should go away. They arent allergies....which would be a more permanent thing. Gluten is the intolerance which would be life long....I dont know why Enterolab groups these other food intolerances into the same category....saying that they should be avoided for life in order to prevent further damage?? Since when does an egg intolerance cause the same type of damage as gluten?? I could never wrap my head around this logic. :unsure:

I believe that *while* there is still damage and *while* these intolerances are present due to leaky gut or whatever....then yes, these other food intolerances could keep the intestinal lining inflamed and prevent healing. However, after the intestinal lining is healed and a persons health is restored...I'm pretty sure the intolerances would no longer be an issue because they would no longer be leaking out of the gut and the immune system would have settled down not having all these food proteins to deal with. That was always my belief anyways.

Matilda Enthusiast

..

Nancym Enthusiast

He has lecture notes on his site about gluten antibodies. Basically they go down, but very very slowly. And it does require very good adherence.

Hmmm... just to turn things around on you. Why would you believe that your body would forget about one protein being a foreign invader (lets say casein) before another? In another discussion (autoimmune one) we're having, someone said the body remembers these things for 30 years or more. Basically for life.

Rachel--24 Collaborator
Maybe when I've got some spare $$$ I'll test again and see. In the interest of scientificness!

Or maybe I'll just go shoe shopping or something....

:lol::lol:

I know what I would do.....

Nancy,

I think that with a leaky gut the immune system is basically going to be *highly* reactive to all sorts of "invaders". Take away the leaky gut and eventually the immune system is going to calm down and stop fighting all these antigens simply because healing has taken place.

For example....When I was really sick I was reacting to just about every chemical there is...I had to hold my breathe when driving cuz of all the fumes from cars, I was reacting to newspaper ink, carpet fibers, etc. As I improved these things lessened and now I dont react to any of these things...I cant even smell them anymore...whereas before they would overwhelm me. I still react to perfumes and cleaning agents and those types of chemicals but my immune system has recovered somewhat and I'm not reacting to *everything* and to the degree that I once was. Its the same with foods...I can tolerate more now. I dont think its about the immune system *forgetting* necessarily....its more about recovery. My immune system has recovered somewhat and can now tolerate more foreign invaders.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



diamondheart Newbie
Has anyone who had positive antibodies to casein, soy or yeast from Enterolab retested to see if they go away?

Interesting question, and I'd like to know the answer myself. I never tested positive to the EnteroLab tests, but I do have two genes for gluten intolerance. I was also off dairy and gluten for so long (7 months) before doing the test, I didn't test positive. I would like to try the soy as I recently tested positive for that on a blood test. I guess I'll wait 3 months though soy free. It is expensive, but I'm one of those people who needs the concrete evidence, so it's worth it to me.

Claire

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,575
    • Most Online (within 30 mins)
      7,748

    Ahorne
    Newest Member
    Ahorne
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com, @Rejoicephd! 1. "Gluten Free" does not equate to "contains no gluten". According to FDA advertising regulations, it means it cannot contain more than 20ppm of gluten. This is a good standard for most in the celiac community but not good enough for those on the sensitive end of the spectrum. If you find the "Certified Gluten Free" symbol on a package that is even better, indicating that there is no more than 10ppm of gluten.  2. When you are choosing "gluten free" items from a restaurant, realize that it only means gluten is not an intentional ingredient. It does not rule out CC (Cross Contamination) caused by those cooking and preparing the food back in the kitchen who may be cooking it on the same surfaces or in the same pots/pans as they are gluten containing food items and handling it with the same utensils they are handling gluten-containing food. 3. About 8% of celiacs react to the protein avenin in oats as they do the protein gluten in wheat/barley/rye. In addition, some cultivars of oats actually contain the protein gluten. Many celiacs also react to the protein casein in dairy products as they do gluten or they are lactose intolerant. Eggs, soy and corn are also common "cross reactors" in the celiac community but oats and dairy are the most common.
    • Rejoicephd
      Hi everyone! I was diagnosed with celiac a year ago (they confirmed it on endoscopy following a positive TTG antibody and positive genetic test). I thought the gluten free diet thing wasn’t going to be that hard of an adjustment, but man was I wrong. I’m a year in and still having issues in terms of accidentally glutening myself and getting super sick (I’m starting to think I need to just bring my own food everywhere I go). And also even when I am eating foods that say they are gluten free, I’m still dealing with an upset stomach often. My GI doc said I should avoid dairy as well, and the internal medicine doc said my gut microbiome might be messed up from all of this. I’m just looking for some answers/ideas/tips on what additional things I can do to feel better. Do you all do avoid additional categories of foods beyond just gluten to help alleviate symptoms? Thanks! 
    • trents
      If your total IGA is low then the values for the other IGA tests cannot be trusted. They will be depressed. Celiacs who have the DQ2 gene typically are on the more sensitive side as opposed to those who only have the DQ8. But keep in mind that having either or both of those genes does not equate to having celiac disease as 40% of the general population have one or the other and only about 1% of the general population develops active celiac disease. Genetic typing can be used for ruling it out, however. Because of the low total IGA, symptoms and the possession of the DQ2 gene, my suggestion would be for you to go seriously gluten free for a few months and see if your symptoms improve. It may be the only way you can ascertain if you are gluten intolerant because of the low total IGA.
    • Cat M
      Ah ok, I just saw didn’t even post the DGP IgA at all. 😫 I started with itching and hives Jan 2024, been taking a ton of meds and on Xolair and even that is not providing total relief. The other primary symptoms: intermittent but worsening abdominal pain, diarrhea and bloating. This summer I am just exhausted. I uploaded my 23andMe data to genetic lifehacks and discovered quite a few variations, including DQ2, MTHFR, VDR and I have always had very low ferritin, vitamin D and B12. I still think that mast cell disease makes the most sense, but latest labs show I am barely in range for thiamine, zinc and vitamin A, so the GI stuff feels more important to figure out than the hives right now. I did SIBO testing this morning. TTG IGA <2   0-3 is negative TTG IGG  3   0-5 is neg DGP IGA 21    20-30 is weak positive DGP IGG 4    0-19 is negative Although total IGA is not resulted, there is a footnote stating it was low and the reason they ran IGG.  
    • Scott Adams
      This is an interesting case. A positive tissue transglutaminase (tTG) antibody with a negative endomysial antibody (EMA) and normal duodenal histology can present a diagnostic challenge, especially in an asymptomatic patient. While the absence of villous atrophy and negative EMA suggest that the likelihood of active celiac disease is low at this time, such serological discordance may still warrant monitoring. Some individuals may be in the early stages of celiac disease, often referred to as potential celiac disease, particularly if they carry the HLA-DQ2 or DQ8 haplotypes. HLA typing can be quite helpful in this situation; a negative result would virtually rule out celiac disease, whereas a positive result may justify periodic follow-up to monitor for evolving disease. The risk of progression to overt celiac disease is not well defined but appears to be higher in children, those with a family history, or those with autoimmune conditions. In this case, routine follow-up including repeat serology and consideration of symptoms or new risk factors over time would be a reasonable and cautious approach. For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions, including cow's milk/casein intolerance, that can also cause this, and here is an article about the other possible causes:      
×
×
  • Create New...