Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Non-celiac Wheat Allergies?

FeedIndy

Recommended Posts

FeedIndy Contributor
FeedIndy
Posted

My daughter is 10 months old and has weight issues for 6 months (about since starting cereal). She has tons of other celiac symptoms and it was the first test her ped ran after a CBC and MP. The results came back negative for celiac, but while we waited for the call we put her on gluten free anyway. She immediately started getting better. By day 2 she had more energy, better diapers, and just in general seemed happier, though she's always been a happy baby.

When the doc called with the negative test results I was actually stunned because of the results we were seeing. He encouraged us to stay gluten free for 2 months and plans to refer her to an allergist at her 1-year checkup. Then a week later we took her in for her lingering cold because we were leaving town and I didn't want to find out there that it was becoming an ear infection. She had gained 4 ounces in just a week on gluten free!

I was just wondering what other types of things anyone might have experience with that would react the same as celiac.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AndreaB Contributor
AndreaB
Posted

A wheat or gluten allergy is different from a gluten senisivity/intolerance.

If you want something in writing, contact enterolab and see what the youngest age they can test is. They say you can be gluten free for a certain length of time but I'm not sure that length of time would be the same with little ones. If you want to check it out Open Original Shared Link

A positive dietary response is all you need if you are satisfied with that. Did you have gene testing done?

RiceGuy Collaborator
RiceGuy
Posted

As I'm sure others will point out, it is quite common for young children to get a false-negative from tests. I don't know which "official" tests are the most reliable, but you've already gotten an answer from the best test known - the gluten-free diet. I don't suppose you'd be too quick to put your child back on gluten no matter what test results you get.

For other allergies and such, I suppose dairy/lactose/casein would be among the top ones I'd be cautious about. Then there's soy, tree nuts, peanuts, corn, eggs, nightshades, etc.

I hope you get all the answers you need, and it seems like you've already made great progress.

jayhawkmom Enthusiast
jayhawkmom
Posted

My daughter is allergic to wheat. She also has Celiac, but she IS allergic to wheat as well as intolerant to it. Gluten intolerance is something that most doctors don't seem to "get" yet. She can be intolerant without having Celiac. I agree, if a gluten-free diet works... who cares what the tests say! =)

dawnd Newbie
dawnd
Posted

Enterolab told me it takes 2-3 years for the antibodies from the gluten to clear away. My son has been gluten free for 1 year and they said he does not have to return it to his diet to be tested. DAwn

mrsnj91 Explorer
mrsnj91
Posted

We had a similar story just without the celiac testing. My Dd was 8-9 months old when I noticed something wasn't right. I knew it was related to items with wheat in it but wasnt' sure if it was wheat or something else. I would give her crackers, get a reaction, take her off and clear up. I did this cycle for 4 months with dr. visits inbetween. My final frustration was right after Christmas when my DD started with hives. I KNEW it was not in my mind or something to write off and so I called the dr and demanded a referral. This took us to an allergist. We 1st did a RAST test and got neg. all the way. Then we did a SPT and got neg. It was two days later that I noticed a welt in the area where #7 was tested for the SPT....wheat. She did not have immediate reactions but rather delayed. However in my testing and research I found many similar symptoms in my two other children. They too had problems over the years but were never clearly diagnosed as my youngest was as her symptoms were just so clear something was wrong and to what. Starting to piece together symptoms, diagnoses and family history I do not believe we are Celiac free. Something isn't right and I know it. Thing is my youngest DD is now gluten free and cannot be tested. But we are getting ready to test my middle DD now. #1 I think you have to follow your gut. Mothers know. #2 As some have mentioned you child has probably not been on enough wheat to cause any major damage. I know from our on again and off again cycle and my DD being so young that a biop. would show really nothing. Point is she could just be allergic which is what you wanted to know. Or it could be more. Yes her symptoms are very similar to Celiac.

Why not have you and DH tested too since your child is gluten-free?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Savannah Wert
      - Savannah Wert replied to Savannah Wert's topic in Coping with Celiac Disease
      2

      Hey all!

      Thank you! I’m currently the breadwinner as my husband is pursuing a finance degree so the nights that I am at work they can eat whatever my husband makes but when I am home we have gluten free meals and no complaints so far! I definitely don’t have a choice but to switch but I think slowly transitioning my family is good!😀
    2. trents
      - trents replied to Savannah Wert's topic in Coping with Celiac Disease
      2

      Hey all!

      Welcome aboard, @Savannah Wert! There usually is a learning curve involved in arriving at a consistently gluten free diet since gluten is found in so many food products where you would never expect it to be. This article may be helpful: It is good that you have identified some other foods that you cannot tolerate at this point as this is so common...
    3. Savannah Wert
      - Savannah Wert posted a topic in Coping with Celiac Disease
      2

      Hey all!

      Hey everyone! I just joined and figured I’d introduce myself, my name is Savannah, I’ve been with my husband for over 8 years and we have 3 kids, a 7 year old, 5 year old, and 3 year old. I was diagnosed with celiac disease beginning of October along with microscopic colitis, lactose intolerance, and sucrose intolerance. I got sick the day before my 5th ...
    4. glucel
      - glucel replied to Bindi's topic in Super Sensitive People
      36

      Refractory or super sensitive?

      I don't react the same way to all of them but do react badly to many of them where others may not. I also have a touch of hypochondria so when the labs come back too high or makes me anxious. I am dismayed but not really surprised that I may be in the small group of people to suffer a particular side effect. I was originally on warfirin. I think that was...
    5. trents
      - trents replied to Bindi's topic in Super Sensitive People
      36

      Refractory or super sensitive?

      What do you mean when you say, "blood thinners are all the same to me"? Do you mean you react negatively in the same way to all of them? Otherwise, they are not all the same. They work in different ways. Aspirin causes the platelets to be less sticky. Warfarin and related meds work by reducing the production of platelets. You might talk to your doctor about...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      125,942
    • Most Online (within 30 mins)
      7,748
    sheridreghornn
    Newest Member
    sheridreghornn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Savannah Wert
      Hey all!

      By Savannah Wert · Posted

      Thank you! I’m currently the breadwinner as my husband is pursuing a finance degree so the nights that I am at work they can eat whatever my husband makes but when I am home we have gluten free meals and no complaints so far! I definitely don’t have a choice but to switch but I think slowly transitioning my family is good!😀
    • trents
      Hey all!

      By trents · Posted

      Welcome aboard, @Savannah Wert! There usually is a learning curve involved in arriving at a consistently gluten free diet since gluten is found in so many food products where you would never expect it to be. This article may be helpful:  It is good that you have identified some other foods that you cannot tolerate at this point as this is so common in the celiac population and it often goes unaddressed for years. You may find that the lactose intolerance disappears as your gut heals. No guarantee, though. Keep an eye out for the development of celiac symptoms in your children as the likelihood of first degree relatives developing active celiac disease is somewhere between 10% and almost 50%. Yes, the studies on this are all over the map. Is your home gluten free or will you be attempting to avoid CC (Cross Contamination) while fixing gluten-containing foods for your family members? It is always best for everyone in the home to commit to gluten free eating in the home environment when one member has celiac disease. 
    • Savannah Wert
      Hey all!

      By Savannah Wert · Posted

      Hey everyone! I just joined and figured I’d introduce myself, my name is Savannah, I’ve been with my husband for over 8 years and we have 3 kids, a 7 year old, 5 year old, and 3 year old. I was diagnosed with celiac disease beginning of October along with microscopic colitis, lactose intolerance, and sucrose intolerance. I got sick the day before my 5th wedding anniversary and thought it was just the flu, which lasted over 3 months. I finally had a colonoscopy and endoscopy and was diagnosed. This has been such a hard transition and any tips are greatly appreciated!
    • glucel
      Refractory or super sensitive?

      By glucel · Posted

      I don't react the same way to all of them but do react badly to many of them where others may not. I also have a touch of hypochondria so when the labs come back too high or makes me anxious. I am dismayed but not really surprised that I may be in the small group of people to suffer a particular side effect. I was originally on warfirin. I think that was the one where I had trouble with vitamin k numbers and or was anemic with low hemoglobin, red blood cells etc.  My blood pressure drops to very low numbers after taking something as simple as turmeric for a few weeks. My diastolic had touched 50 one day before I finally figured out that the herb was the problem. No intention to go for 40 so never looked back. I wanted to try benfothiamine but one of the listed side effects is bradycardia and other stuff that I am not going to challenge esp since I have had and still have to a lesser degree heart rhythm problems. 
    • trents
      Refractory or super sensitive?

      By trents · Posted

      What do you mean when you say, "blood thinners are all the same to me"? Do you mean you react negatively in the same way to all of them? Otherwise, they are not all the same. They work in different ways. Aspirin causes the platelets to be less sticky. Warfarin and related meds work by reducing the production of platelets. You might talk to your doctor about alternatives to aspirin. 
×
×
  • Create New...