Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enterolab Tests Vs. Blood Test?

dawnd

Recommended Posts

dawnd Newbie
dawnd
Posted

I've been reading your posts and you all seem to understand gluten intolerance and other allergies very well. I need some advice for my 2 1/2 son. He has Down syndrome and his first 18 months he always had a rash, seemed to zone out a lot and was not progressing as well as our other friend with Downs. I took him off Gluten and the next day his rashes cleared and he started crawling (we had been working on that for 6 months). Two months later I took him off casen and he showed some more improvement although not as drastic. We had his blood tested 4 months after being off gluten and 2 months after off casen with the following results: Celiac AB Profile Antigliadin Abs, IgA = 2 and IgG = 10. IgE for food allergens (including milk and wheat) less than 0.35. According to many of the posts I have read, if he has Celiac I have to watch his playdough, finger paints, soap and so many things that would make things even harder than he already has it with Downs. I am to the point that I need to know as definitively as possible about the gluten and casen. His GI doc said we can do the upper endoscopy for biopsy to know for sure. IThat means putting him back on gluten. I am afraid to do that - he is in school and it would break my heart to see him regress. I have also been reading about enterolab's stool tests. I don't want him to be on this diet if he doesn't have to be. Please, if you have any insight I would appreicate your time and knowledge. I want to make things easier for him if I can. Maybe one of the allergies were coincidence (maybe that's just wishful thinking, but I need to know for him).

Thanks in advance.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


chewymom Rookie
chewymom
Posted

Hi,

I can't really answer your question, because I'm still in the exploration stage myself, but I wanted to say hi as another mom to a son with Down syndrome! My son is almost 16. I noticed the link for a Lowcountry Down syndrome association--are you near Hilton Head/Savannah? We lived in Savannah for several years when my son was younger, and my mom just sold her Hilton Head condo--our vacation spot for 15+ years!!

dawnd Newbie
dawnd
Posted
  • Author

The Down Syndrome Association of the Lowcountry is in the Charleston, SC area. Love, love, love Charleston!!! I've never been to Hilton Head but I know it is nice. I'm sure you will miss your vacation spot! How is your son? Does he have any food allergies? Dawn

chewymom Rookie
chewymom
Posted

My son is great! Very healthy as far as we can tell. And quite outgoing and friendly, I might add. That's him in our itty-bitty family picture on the side--in the center, lying down.

We aren't aware of any food issues, but we do (finally) have an appointment with a dermatologist in October. I am a little suspicious of DH.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,877
    • Most Online (within 30 mins)
      7,748
    SamEsplanade
    Newest Member
    SamEsplanade
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Bebee
      Testing for celiac

      By Bebee · Posted

      I have been diagnosed with Microscopic Colitis (LC) for quite a few years, so I have been gluten-free and DF.  I would like to get tested for Celiac Disease because of the possibility of cross contamination and colon cancer.  And if you were hospitalized and didn't have a celiac diagnosis you could not get gluten-free food, I don't know if that is true or not.  Also because there is chance of colon cancer so I want to know if I have Celiac Disease and need to be on very restrictive diet.  The only testing I did was a sigmoid scope and Enter Lab but no gene testing.  I know I can go back to eating gluten for a few months, but I would worry you would have to stay home for the few months while getting gluten.  What other options do I have?  Should I do the gene testing?  Maybe through Entero Lab?  Any other tests?  How important is it to have Celiac diagnosed? Thank you! Barb
    • trents
      Hidden Gluten in distilled vinegar

      By trents · Posted

      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      Hidden Gluten in distilled vinegar

      By Mynx · Posted

      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      Hidden Gluten in distilled vinegar

      By Mynx · Posted

      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
    • trents
      Hidden Gluten in distilled vinegar

      By trents · Posted

      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
×
×
  • Create New...