Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endometriosis?


CantEvenEatRice

Recommended Posts

CantEvenEatRice Enthusiast

I am trying to figure out why I have been feeling so lousy for the past few months. I was diagnosed with Celiac about 3 years ago and have been on the diet ever since. I felt great during my pregnancy (my son is now 18 months) and breastfeeding. After I stopped breastfeeding, things seemed to go downhill. I just feel very tired and am starting to battle diarrhea with everything I eat. The only thing I can pinpoint that is different now is that I am not on birth control pills. I always thought many of my problems were related to hormone issues. The pill helped with painful periods in the past. So I was researching on the internet and began to read about endometriosis. I now have pelvic pain pretty much throughout my cycle. I also have fatigue, muscle aches and occasional dizzy spells. So I was thinking that I should probably go back on the pill to see if it will help. Does this sound like endometriosis to anyone? Thanks for your help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
I am trying to figure out why I have been feeling so lousy for the past few months. I was diagnosed with Celiac about 3 years ago and have been on the diet ever since. I felt great during my pregnancy (my son is now 18 months) and breastfeeding. After I stopped breastfeeding, things seemed to go downhill. I just feel very tired and am starting to battle diarrhea with everything I eat. The only thing I can pinpoint that is different now is that I am not on birth control pills. I always thought many of my problems were related to hormone issues. The pill helped with painful periods in the past. So I was researching on the internet and began to read about endometriosis. I now have pelvic pain pretty much throughout my cycle. I also have fatigue, muscle aches and occasional dizzy spells. So I was thinking that I should probably go back on the pill to see if it will help. Does this sound like endometriosis to anyone? Thanks for your help!

The best person to answer your endometriosis qestion is going to be your GYN, I would make an appointment. I would also do a bit of develving into whether or not you are getting CC anywhere. Did anything change in your diet or environment (does the baby eat food with wheat, do you use Johnson & Johnson baby products, those are not gluten-free, new hobby, new pet and pet food, remodeling in your home) after you stopped breastfeeding? Have you had your TTG levels checked to make sure you are not reacting to unknown CC? If you showed up in blood work that would be the first thing I would do. Do you consume any food with a CYA statement? For example I am recovering from a glutening, my first in months, after consuming some tea that I thought was safe. It had a CYA statement and I ignored it. I won't ignore those again.

kalanfan Explorer

the tests for endo are just an ultra sound and im sure even your family doc wouldnt have any problem sending you to one....

CantEvenEatRice Enthusiast

Thanks so much for all of the replies! I have an appt. scheduled with my obgyn next week. I didn't even think to have my blood levels checked again for gluten. I was originally diagnosed through blood so that is a good idea. As for Lyme, I actually had Lyme and was even treated with a Picc line for many months. I heard Lyme is really hard to get rid of though even though I did feel better after the treatment. My gut tells me it is something with the reproductive area due to such consistent pelvic pain month after month. It is not severe pain, but it just doesn't seem like normal cycle related pain. Thanks again for the responses! I will have to check out my son's Johnson and Johnson's products. I try to wash my hands a ton each day, but I could be missing something.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,676
    • Most Online (within 30 mins)
      7,748

    Nana 5
    Newest Member
    Nana 5
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.6k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      g/L, a weight per volume unit, would be a very unusual unit for a celiac specific (EMA) test.   1.24 g/L would be in the normal range if this was a TOTAL IgA test. Best to ask the doctor.
    • Lieke
      Hi Hi! I am looking for a PCP in the Portland ME area. I have been dealing with Celiac disease for 30 years. My specialist Celiac MD is in Boston, but I want somebody closer by. Am thinking of an MD working in functional medicine/integrative medicine who is willing to ‘walk the journey’ with me. Despite a strict gluten-free diet, I still have challenges, am ‘super sensitive celiac’ with at time cross contact issues when going out to dinner.  any suggestions?  much appreciated! lieke
    • knitty kitty
      Part of the body's immune reaction to gluten is to release histamine.  This tastes salty, just like tears and snot.        
    • knitty kitty
      I've had dry eye symptoms.  The eye drops did not help me.  What did help was making sure I was consuming Omega Three fats like flax seed oil and olive oil, and taking essential B vitamins, especially Riboflavin, Thiamin, and Vitamin C, as well as Vitamin A, one of the fat soluble vitamins.   Newly diagnosed Celiac can have trouble absorbing fats and absorbing B vitamins.  Most gluten free processed foods contain saturated fats which the body can't utilize. Gluten free processed foods are not enriched with vitamins like gluten containing products.  The eyes make a film of healthy omega three fats which keeps the eyes lubricated.  Insufficient omega threes can show up as dry eyes.  Most newly diagnosed Celiac are low in Vitamin D, as well as Vitamin A, both fat based vitamins.   Thiamin Vitamin B 1 and Riboflavin B 2 are needed for eye health and optic nerve health.  Taking a B Complex vitamin supplement is beneficial.  Since the B vitamins are water soluble, any excess that the body doesn't need is excreted easily in urine.  The gluten free diet is low in essential B vitamins because gluten free processed foods that replace gluteny breads are not required to have vitamins and minerals added to them in order to replace vitamins and minerals lost in processing as is required with gluten containing products.   Other things that are helpful is to refrain from using highly perfumed products (hair care, body washes, deodorants, room fresheners, cleaning products, etc.).  These can dry out the eyes, too.   Staring at computer screens can be detrimental because you STARE and don't blink.  The tear ducts that keep the eyes lubricated are in the corners of the eyes.  Take breaks from staring at the computer screen.  Look out of the corners of your eyes to the right and blink several times, then look to the left and blink to help the tears spread over the whole eye.   My eyes have sustained permanent damage because of nutritional deficiencies.  My ophthalmologist and my doctors did not connect any of my health problems with nutritional deficiencies which occurred with undiagnosed Celiac Disease.  My optic nerve shuts down and I lose my vision if I spend too much time looking at computer screens, led lights, and TV.  My vision goes gray and dim.  It's much worse than "optic snow".  It can take  hours or days for my vision to return.  My ophthalmologist said my vision might not come back from that sometime.  My ophthalmologist said the flash rate, refresh rate, is registered by the optic nerve which gets over stimulated and shuts down.  The optic nerve uses lots of Thiamine.  Thiamine insufficiency will cause permanent optic nerve damage unless corrected promptly.  My thiamine insufficiency/deficiency was not corrected promptly and I have this permanent damage and light sensitivity.  I take Benfotiamine, a form of Thiamine that also is beneficial for healing the intestinal tract.  Riboflavin,  Pyridoxine B 6,  and Vitamin A are also needed for eye health.   Thiamine insufficiency can also cause anxiety.  Thiamine and magnesium will relieve muscle cramps. Talk to your nutritionist and doctor about supplementing with essential vitamins and minerals while your intestines are recovering.  Hope this helps!  
    • cristiana
      UPDATE I've been asked for an update by someone who sent a PM, but It's best to post health info publicly because this means fellow Mods can make sure I'm staying on the straight and narrow path with any advice I'm giving out! Alex...   Yes, my symptoms did slowly improve.  They started around October, from memory.  Approaching Christmas I remember the feeling as if there were feathers irritating my chest in my lower throat and in my lungs, and things like scented candles made things even worse.  I had a endoscopy and they found nothing wrong, I also had a chest X-Ray because of the cough which lasted more than six weeks and nothing showed. In the end I think the end it settled because I was doing the following: following a reflux/gastritis diet  (you can find lots of these diets on line, which focus on a low fat, low acidndiet, avoiding spices etc, avoiding alcohol and coffee etc) not eating three hours before I went to bed, which means going to bed with an empty stomach sleeping with a wedge pillow, which I still do, five years on... taking Gaviscon Advanced before bedtime, and after meals (not much, just a large teaspoon) using a blue Salbutamol inhaler, I think it was two puffs in the morning and two puffs at night. I felt a lot better after about three or four months.  I then only used the inhaler and Gaviscon when I had to, if I started to feel my chest was getting irritated again. I find keeping on top of reflux symptoms the way forward.  My gastroenterologist told me that the cough was to do with reflux/gasses in the gut coming up that can irritate the throat and airways and the fact I noticed improvement when using Gaviscon showed that that was what was causing it, because it provides a barrier that stops this happening. From the Gaviscon UK website: "It creates a protective barrier or raft over the Stomach contents (which is mostly acid, but also pepsin and bile)." https://www.gaviscon.co.uk/#:~:text=It creates a protective barrier,water and other neutral substances. This protective barrier stopped the contents of my stomach from coming up to irritate my throat, as I understand it, and allowed any irritation in my throat to settle. I do still take Gaviscon if I eat a late meal but not every day.  I hope this helps.  Do come back to me on this thread if I can help further. Cristiana    
×
×
  • Create New...