Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

What Should I Expect?


Jenybeen

Recommended Posts

Jenybeen Rookie

A couple questions about the endoscopy/colonoscopy procedure. My son's GI doc's office won't give me all the details til a week before, and it's a month away. I am curious NOW, lol! So if your child has had this done, could you please share some of the details with me? Oh, Isaac is 5 years old...Thanks!

1) What is the prep for it like?

2) How do most kids react afterwards?

3) Any uncomfortable side effects?

4) How long (typically) til the results are in?

Any advice on how to explain it to my son? I told him about it and he started complaining that he didn't want to do it...

Jennifer


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Michi8 Contributor
A couple questions about the endoscopy/colonoscopy procedure. My son's GI doc's office won't give me all the details til a week before, and it's a month away. I am curious NOW, lol! So if your child has had this done, could you please share some of the details with me? Oh, Isaac is 5 years old...Thanks!

1) What is the prep for it like?

2) How do most kids react afterwards?

3) Any uncomfortable side effects?

4) How long (typically) til the results are in?

Any advice on how to explain it to my son? I told him about it and he started complaining that he didn't want to do it...

Jennifer

They won't give you info until a week before? My gastroscopy (upper GI endoscopy) was booked for end of November, and I was given the information packet and consent forms when we booked (mid-August!) Heck, I have the info packet for my colonoscopy too, and it's not scheduled until March! (Yeah, long wait for elective procedures here.) :rolleyes:

Here is a site that has basics on endoscopy: Open Original Shared Link and basics on colonoscopy: Open Original Shared Link For the colonoscopy your son will likely need to go through a cleansing procedure (done at home) before the appt. For both procedures you'll be expected to avoid certain meds and refrain from eating & drinking for some time before your scheduled appointment.

Michelle

schmenge Newbie

I can't say how it was for any of my kids (who have not had this procedure), but I know what to was like for me. Had to fast beforehand as the previous poster mentioned. I was in the room for the procedure and the next thing I remember I was in recovery. Apparently I was a little chatty while I was out, but I've not figured out how I did that with anything in my throat. :D The Doctor showed me pictures of my intestines and told me that he would not be sure until the biopsy results (Thursday-Tuesday(, but that I had Celiac. You "ease" back into eating that day. I felt no side effects at all.

Now several weeks earlier I had a colonoscopy and I felt pretty crappy after that procedure.

Nikki2003 Contributor

Nicole just went through this at the end of july so it is still fresh. This is how it was at childrens in boston. But they have you arrive 90 min before (If general anesthesia is given) usually used for younger children. They check all vitals and don't eat I think 12 hrs before. They do paperwork I can't remember exactly why it took so long for the prep. But then the anesthesiologist came in and out to have nicole feel comfortable which she did. and even put on the mask for fun while waiting for the dr to get to the hospital (Traffic) but when it came time she did great she sat on the bed in the OR and they had me put the mask on her and Basically our trick was smell it (they have different flavors) And within 30 seconds she was barely consious (I cried it was the saddest thing you ever saw) Be prepared for that one. It took me by suprise but she did well. Despite the waking up procedure she looked uncomfortable and her Blood pressure was kinda high so it came down a bit and we left about an hour later. The procedure takes about 30 min. She slept the rest of the afternoon,Probably the anesthesia wearing off. They say no big activities for the rest of the day. Have a quiet afternoon.

I have to now do it again with my 7 yr old daughter sometime.

Should be interesting.

Good Luck and her results took 4 days to come back,Found out she also besides Celiac she has chronic gastritis and esophagitis and is now on prevacid and doing good.

Celina

Jenybeen Rookie
Nicole just went through this at the end of july so it is still fresh. This is how it was at childrens in boston. But they have you arrive 90 min before (If general anesthesia is given) usually used for younger children. They check all vitals and don't eat I think 12 hrs before. They do paperwork I can't remember exactly why it took so long for the prep. But then the anesthesiologist came in and out to have nicole feel comfortable which she did. and even put on the mask for fun while waiting for the dr to get to the hospital (Traffic) but when it came time she did great she sat on the bed in the OR and they had me put the mask on her and Basically our trick was smell it (they have different flavors) And within 30 seconds she was barely consious (I cried it was the saddest thing you ever saw) Be prepared for that one. It took me by suprise but she did well. Despite the waking up procedure she looked uncomfortable and her Blood pressure was kinda high so it came down a bit and we left about an hour later. The procedure takes about 30 min. She slept the rest of the afternoon,Probably the anesthesia wearing off. They say no big activities for the rest of the day. Have a quiet afternoon.

I have to now do it again with my 7 yr old daughter sometime.

Should be interesting.

Good Luck and her results took 4 days to come back,Found out she also besides Celiac she has chronic gastritis and esophagitis and is now on prevacid and doing good.

Celina

Thank you Celina! This was so helpful!! I hope Isaac does as good as your little one did...I am so nervous. I have this fear of anesthesia for some unknown reason, and I have never even been put under! Crazy. But that is my biggest issue, putting him under. Thanks for the reply!

Jennifer

hannahsue01 Enthusiast

It is not the exact same procedure but my 9 month old daughter recently had a g-tube (feeding tube in her tummy) placed. They had to put camera's down her throat and put a hole through her tummy. However. they didn't nock her out compleatly.....she was still concious. She had to be there about 2 hrs before hand to have an IV placed. We got to stay with her untill she was sedated and then were back with her as soon as they were done (only took about 20 mins). She seemed to have taken it pretty well. The only pain seemed to come from the g-tube sight itself. My 4 yr old will hopefully be having a biobsy done in November....I hope she does as well as her baby sister did.....but I have a feeling the biggest issue will be her being afraid......oh and placing the IV....she hates needle.

Nancym Enthusiast

Don't you have a "clean-out" before hand? You don't have to take the horrible purging stuff?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hannahsue01 Enthusiast
Don't you have a "clean-out" before hand? You don't have to take the horrible purging stuff?

With my daughters tummy surgery she wasn't allowed to eat anything after I think 8pm the night before untill surgery and then didn't eat again untill the night of her surgery. She didn't have to drink that one stuff I think because she wasn't knocked out all the way she was just sedated with the stuff that makes you forget all of it. But I saposse if they were going to nock you out all the way that they may want you to drink that stuff.

schmenge Newbie
Don't you have a "clean-out" before hand? You don't have to take the horrible purging stuff?

Not for the upper. That delicacy is for a colonoscopy.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      New Study Reveals Hidden Gut Damage in Celiac Disease—Even Without Gluten (+Video)

    2. - Wheatwacked replied to Ginger38's topic in Coping with Celiac Disease
      6

      The Struggle Has Overtaken Me

    3. - cristiana replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

    4. - CC90 replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

    5. - Wheatwacked replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,194
    • Most Online (within 30 mins)
      10,442

    RitaRenee
    Newest Member
    RitaRenee
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      Hi @Ginger38, By now you know that these things improve without gluten. I once saw an interview with a corporation executive where he proudly declared that his wheat products are more addictive than potato chips. Dr Fuhrman (Eat to Live) said find foods that are friendly to you to be friends with.  
    • cristiana
      Hi @CC90 Ah... that is very interesting.  Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time?   I could be wrong, but I would not be at all surprised if they find something on the next attempt.  Coeliac damage can be very patchy, as I understand it, so that's why my own gastroenterologist always likes to point out that he's taken lots of samples!  In the kindest possible way (you don't want to upset the person doing the procedure!) I'd be inclined to tell them what happened last time and to ask them in person to take samples lower down, as  if your health system is anything like the one in my country, communication between GPs, consultants and hospitals isn't always very good.  You don't want the same mistake to be made again. You say that your first endoscopy was traumatic?  May I ask, looking at your spelling of coeliac, was this done at an NHS hospital in England?  The reason for the question is that one of my NHS diagnosed friends was not automatically offered a sedative and managed without one.  Inspired by her, I tried to have an endoscopy one time, in a private setting, without one, so that I could recover quicker, but I had to request sedative in the end it was so uncomfortable.    I am sorry that you will have to go through a gluten challenge again but to make things easier, ensure you eat things containing gluten that you will miss should you have to go gluten free one day. 😂 I was told to eat 2 slices of normal wholemeal bread or the equivalent every day in the weeks before , but I also opted for Weetabix and dozens of Penguin chocolate biscuits.  (I had a very tight headache across my temple for days before the procedure, which I thought was interesting as I had that frequently growing up. - must have been a coeliac symptom!)  Anyway, I do hope you soon get the answers you are looking for and do keep us posted. Cristiana  
    • CC90
      Hi Cristiana   Yes I've had the biopsy results showing normal villi and intestinal mucosa.  The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.      
    • Wheatwacked
      Transglutaminase IgA is the gold-standard blood test for celiac disease. Sensitivity of over 90% and specificity of 95–99%. It rarely produces false positives.  An elevated level means your immune system is reacting to gluten.  Non-Celiac Gluten Sensitivity (NCGS) does not typically cause high levels of tTG-IgA. Unfortunately the protocols for a diagnosis of Celiac Disease are aimed at proving you don't have it, leaving you twisting in the wind. Genetic testing and improvement on a trial gluten free diet, also avoiding milk protein, will likely show improvement in short order if it is Celiac; but will that satisfy the medical system for a diagnosis? If you do end up scheduling a repeat endoscopy, be sure to eat up to 10 grams of gluten for 8 - 12 weeks.  You want  to create maximum damage. Not a medical opinion, but my vote is yes.
    • trents
      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
×
×
  • Create New...