Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Should I Expect?


Jenybeen

Recommended Posts

Jenybeen Rookie

A couple questions about the endoscopy/colonoscopy procedure. My son's GI doc's office won't give me all the details til a week before, and it's a month away. I am curious NOW, lol! So if your child has had this done, could you please share some of the details with me? Oh, Isaac is 5 years old...Thanks!

1) What is the prep for it like?

2) How do most kids react afterwards?

3) Any uncomfortable side effects?

4) How long (typically) til the results are in?

Any advice on how to explain it to my son? I told him about it and he started complaining that he didn't want to do it...

Jennifer


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Michi8 Contributor
A couple questions about the endoscopy/colonoscopy procedure. My son's GI doc's office won't give me all the details til a week before, and it's a month away. I am curious NOW, lol! So if your child has had this done, could you please share some of the details with me? Oh, Isaac is 5 years old...Thanks!

1) What is the prep for it like?

2) How do most kids react afterwards?

3) Any uncomfortable side effects?

4) How long (typically) til the results are in?

Any advice on how to explain it to my son? I told him about it and he started complaining that he didn't want to do it...

Jennifer

They won't give you info until a week before? My gastroscopy (upper GI endoscopy) was booked for end of November, and I was given the information packet and consent forms when we booked (mid-August!) Heck, I have the info packet for my colonoscopy too, and it's not scheduled until March! (Yeah, long wait for elective procedures here.) :rolleyes:

Here is a site that has basics on endoscopy: Open Original Shared Link and basics on colonoscopy: Open Original Shared Link For the colonoscopy your son will likely need to go through a cleansing procedure (done at home) before the appt. For both procedures you'll be expected to avoid certain meds and refrain from eating & drinking for some time before your scheduled appointment.

Michelle

schmenge Newbie

I can't say how it was for any of my kids (who have not had this procedure), but I know what to was like for me. Had to fast beforehand as the previous poster mentioned. I was in the room for the procedure and the next thing I remember I was in recovery. Apparently I was a little chatty while I was out, but I've not figured out how I did that with anything in my throat. :D The Doctor showed me pictures of my intestines and told me that he would not be sure until the biopsy results (Thursday-Tuesday(, but that I had Celiac. You "ease" back into eating that day. I felt no side effects at all.

Now several weeks earlier I had a colonoscopy and I felt pretty crappy after that procedure.

Nikki2003 Contributor

Nicole just went through this at the end of july so it is still fresh. This is how it was at childrens in boston. But they have you arrive 90 min before (If general anesthesia is given) usually used for younger children. They check all vitals and don't eat I think 12 hrs before. They do paperwork I can't remember exactly why it took so long for the prep. But then the anesthesiologist came in and out to have nicole feel comfortable which she did. and even put on the mask for fun while waiting for the dr to get to the hospital (Traffic) but when it came time she did great she sat on the bed in the OR and they had me put the mask on her and Basically our trick was smell it (they have different flavors) And within 30 seconds she was barely consious (I cried it was the saddest thing you ever saw) Be prepared for that one. It took me by suprise but she did well. Despite the waking up procedure she looked uncomfortable and her Blood pressure was kinda high so it came down a bit and we left about an hour later. The procedure takes about 30 min. She slept the rest of the afternoon,Probably the anesthesia wearing off. They say no big activities for the rest of the day. Have a quiet afternoon.

I have to now do it again with my 7 yr old daughter sometime.

Should be interesting.

Good Luck and her results took 4 days to come back,Found out she also besides Celiac she has chronic gastritis and esophagitis and is now on prevacid and doing good.

Celina

Jenybeen Rookie
Nicole just went through this at the end of july so it is still fresh. This is how it was at childrens in boston. But they have you arrive 90 min before (If general anesthesia is given) usually used for younger children. They check all vitals and don't eat I think 12 hrs before. They do paperwork I can't remember exactly why it took so long for the prep. But then the anesthesiologist came in and out to have nicole feel comfortable which she did. and even put on the mask for fun while waiting for the dr to get to the hospital (Traffic) but when it came time she did great she sat on the bed in the OR and they had me put the mask on her and Basically our trick was smell it (they have different flavors) And within 30 seconds she was barely consious (I cried it was the saddest thing you ever saw) Be prepared for that one. It took me by suprise but she did well. Despite the waking up procedure she looked uncomfortable and her Blood pressure was kinda high so it came down a bit and we left about an hour later. The procedure takes about 30 min. She slept the rest of the afternoon,Probably the anesthesia wearing off. They say no big activities for the rest of the day. Have a quiet afternoon.

I have to now do it again with my 7 yr old daughter sometime.

Should be interesting.

Good Luck and her results took 4 days to come back,Found out she also besides Celiac she has chronic gastritis and esophagitis and is now on prevacid and doing good.

Celina

Thank you Celina! This was so helpful!! I hope Isaac does as good as your little one did...I am so nervous. I have this fear of anesthesia for some unknown reason, and I have never even been put under! Crazy. But that is my biggest issue, putting him under. Thanks for the reply!

Jennifer

hannahsue01 Enthusiast

It is not the exact same procedure but my 9 month old daughter recently had a g-tube (feeding tube in her tummy) placed. They had to put camera's down her throat and put a hole through her tummy. However. they didn't nock her out compleatly.....she was still concious. She had to be there about 2 hrs before hand to have an IV placed. We got to stay with her untill she was sedated and then were back with her as soon as they were done (only took about 20 mins). She seemed to have taken it pretty well. The only pain seemed to come from the g-tube sight itself. My 4 yr old will hopefully be having a biobsy done in November....I hope she does as well as her baby sister did.....but I have a feeling the biggest issue will be her being afraid......oh and placing the IV....she hates needle.

Nancym Enthusiast

Don't you have a "clean-out" before hand? You don't have to take the horrible purging stuff?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hannahsue01 Enthusiast
Don't you have a "clean-out" before hand? You don't have to take the horrible purging stuff?

With my daughters tummy surgery she wasn't allowed to eat anything after I think 8pm the night before untill surgery and then didn't eat again untill the night of her surgery. She didn't have to drink that one stuff I think because she wasn't knocked out all the way she was just sedated with the stuff that makes you forget all of it. But I saposse if they were going to nock you out all the way that they may want you to drink that stuff.

schmenge Newbie
Don't you have a "clean-out" before hand? You don't have to take the horrible purging stuff?

Not for the upper. That delicacy is for a colonoscopy.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,053
    • Most Online (within 30 mins)
      7,748

    Suelibrarian
    Newest Member
    Suelibrarian
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Canker sores can be more frequent if deficient in zinc, Thiamin B1, Riboflavin B2, Pyridoxine B6, Cobalamine B12, Folate B9, iron and Vitamin D.   Following a low histamine paleo diet helps heal.  Mast cells in our body make histamine and release it as a part of the inflammation process.  Foods that contain high histamine levels can make inflammation worse.  Mast cells get "itchy triggers" and can release histamine when exposed to some spices and foods.  The vitamins listed above are also required to clear histamine along with Vitamin C.  Following a low histamine diet like @Mari and @Blue Roanand keeping a food journal like @Blue Roan does are excellent ways to travel on our Celiac journey.
    • Scott Adams
      Nature Made B-Complex (Costco) contains 2mg of B6, which is close to the RDA for it.
    • knitty kitty
      @dlaino, Which symptoms are getting worse for you?   Which vitamins do you take?   Do you take Vitamin D?
    • knitty kitty
      Hello, @Lightingthunder2, I understand how confusing Celiac can be, especially when one develops other health problems. I developed Type Two Diabetes and was prescribed Metformin.  I started feeling weak and tired.  I searched for answers using my nutrition and microbiology education to find answers.   I learned that Metformin can cause Thiamin Vitamin B1 deficiency.  Metformin blocks the thiamin transporters that allow thiamin to enter cells.   Keep in mind that Celiac Disease causes poor absorption of all nutrients, vitamins and minerals that our bodies require daily to live.  Thiamin can be rapidly depleted because it cannot be stored for very long (3 - 21 days).  With Metformin blocking entry into cells and malabsorption from celiac disease, thiamine deficiency can set in quickly.  The early symptoms of thiamine insufficiency can be vague and easily be attributed to other things, like a bad day at work, and doctors can easily overlook the symptoms.  Doctors aren't well educated in nutritional deficiencies.  My doctors were clueless.   I took thiamin in the form Benfotiamine and followed the Autoimmune Paleo diet (developed by Dr. Sarah Ballentyne, a Celiac herself).  Benfotiamine has been shown to promote intestinal healing.  The Paleo diet cuts out most high carbohydrate foods.  This helps me keep my blood glucose levels under control without Metformin or other medications.  Now, I do add in occasionally rice or potatoes.  I avoid most gluten free processed foods since they are not enriched with vitamins like gluten containing products and are filled with saturated fats.  I do not take any pharmaceuticals for high blood glucose.  I control my type two diabetes with diet, and take Benfotiamine. Thiamine deficiency is found in both Type One and Type Two Diabetes.  Thiamin is not properly reabsorbed in the kidneys in both types.  Since thiamin is water soluble, it is lost easily in urine.  Type One Diabetes has a genetic component which involves thiamine transporters in cells not functioning properly due to faulty genetic information.  Type Two Diabetes may result as a consequence of thiamine insufficiency.  Ninety-eight percent of diabetics in both types are Thiamin deficient.   Discuss with your doctor and Nutrutionist any dietary changes and supplementing with essential vitamins and minerals while you are healing. Here are some articles I found helpful.  Thiamine and diabetes: back to the future? https://pmc.ncbi.nlm.nih.gov/articles/PMC8505293/ The potential role of thiamine (vitamin B1) in diabetic complications https://pubmed.ncbi.nlm.nih.gov/18220605/ Thiamine Level in Type I and Type II Diabetes Mellitus Patients: A Comparative Study Focusing on Hematological and Biochemical Evaluations https://pubmed.ncbi.nlm.nih.gov/32528766/ Exploring the link between dietary thiamine and type 2 diabetes mellitus risk in US adults aged 45 years and older: Insights from a cross-sectional investigation https://pubmed.ncbi.nlm.nih.gov/39642136/ Metformin Is a Substrate and Inhibitor of the Human Thiamine Transporter, THTR-2 (SLC19A3) https://pubmed.ncbi.nlm.nih.gov/26528626/  
    • Scott Adams
      I'm not a gastro doctor, but it seems reasonable to conclude that they would be able to spot any cancer-related issues during the endoscopy, at least in the areas that were checked.
×
×
  • Create New...