Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Should I Expect?


Jenybeen

Recommended Posts

Jenybeen Rookie

A couple questions about the endoscopy/colonoscopy procedure. My son's GI doc's office won't give me all the details til a week before, and it's a month away. I am curious NOW, lol! So if your child has had this done, could you please share some of the details with me? Oh, Isaac is 5 years old...Thanks!

1) What is the prep for it like?

2) How do most kids react afterwards?

3) Any uncomfortable side effects?

4) How long (typically) til the results are in?

Any advice on how to explain it to my son? I told him about it and he started complaining that he didn't want to do it...

Jennifer


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Michi8 Contributor
A couple questions about the endoscopy/colonoscopy procedure. My son's GI doc's office won't give me all the details til a week before, and it's a month away. I am curious NOW, lol! So if your child has had this done, could you please share some of the details with me? Oh, Isaac is 5 years old...Thanks!

1) What is the prep for it like?

2) How do most kids react afterwards?

3) Any uncomfortable side effects?

4) How long (typically) til the results are in?

Any advice on how to explain it to my son? I told him about it and he started complaining that he didn't want to do it...

Jennifer

They won't give you info until a week before? My gastroscopy (upper GI endoscopy) was booked for end of November, and I was given the information packet and consent forms when we booked (mid-August!) Heck, I have the info packet for my colonoscopy too, and it's not scheduled until March! (Yeah, long wait for elective procedures here.) :rolleyes:

Here is a site that has basics on endoscopy: Open Original Shared Link and basics on colonoscopy: Open Original Shared Link For the colonoscopy your son will likely need to go through a cleansing procedure (done at home) before the appt. For both procedures you'll be expected to avoid certain meds and refrain from eating & drinking for some time before your scheduled appointment.

Michelle

schmenge Newbie

I can't say how it was for any of my kids (who have not had this procedure), but I know what to was like for me. Had to fast beforehand as the previous poster mentioned. I was in the room for the procedure and the next thing I remember I was in recovery. Apparently I was a little chatty while I was out, but I've not figured out how I did that with anything in my throat. :D The Doctor showed me pictures of my intestines and told me that he would not be sure until the biopsy results (Thursday-Tuesday(, but that I had Celiac. You "ease" back into eating that day. I felt no side effects at all.

Now several weeks earlier I had a colonoscopy and I felt pretty crappy after that procedure.

Nikki2003 Contributor

Nicole just went through this at the end of july so it is still fresh. This is how it was at childrens in boston. But they have you arrive 90 min before (If general anesthesia is given) usually used for younger children. They check all vitals and don't eat I think 12 hrs before. They do paperwork I can't remember exactly why it took so long for the prep. But then the anesthesiologist came in and out to have nicole feel comfortable which she did. and even put on the mask for fun while waiting for the dr to get to the hospital (Traffic) but when it came time she did great she sat on the bed in the OR and they had me put the mask on her and Basically our trick was smell it (they have different flavors) And within 30 seconds she was barely consious (I cried it was the saddest thing you ever saw) Be prepared for that one. It took me by suprise but she did well. Despite the waking up procedure she looked uncomfortable and her Blood pressure was kinda high so it came down a bit and we left about an hour later. The procedure takes about 30 min. She slept the rest of the afternoon,Probably the anesthesia wearing off. They say no big activities for the rest of the day. Have a quiet afternoon.

I have to now do it again with my 7 yr old daughter sometime.

Should be interesting.

Good Luck and her results took 4 days to come back,Found out she also besides Celiac she has chronic gastritis and esophagitis and is now on prevacid and doing good.

Celina

Jenybeen Rookie
Nicole just went through this at the end of july so it is still fresh. This is how it was at childrens in boston. But they have you arrive 90 min before (If general anesthesia is given) usually used for younger children. They check all vitals and don't eat I think 12 hrs before. They do paperwork I can't remember exactly why it took so long for the prep. But then the anesthesiologist came in and out to have nicole feel comfortable which she did. and even put on the mask for fun while waiting for the dr to get to the hospital (Traffic) but when it came time she did great she sat on the bed in the OR and they had me put the mask on her and Basically our trick was smell it (they have different flavors) And within 30 seconds she was barely consious (I cried it was the saddest thing you ever saw) Be prepared for that one. It took me by suprise but she did well. Despite the waking up procedure she looked uncomfortable and her Blood pressure was kinda high so it came down a bit and we left about an hour later. The procedure takes about 30 min. She slept the rest of the afternoon,Probably the anesthesia wearing off. They say no big activities for the rest of the day. Have a quiet afternoon.

I have to now do it again with my 7 yr old daughter sometime.

Should be interesting.

Good Luck and her results took 4 days to come back,Found out she also besides Celiac she has chronic gastritis and esophagitis and is now on prevacid and doing good.

Celina

Thank you Celina! This was so helpful!! I hope Isaac does as good as your little one did...I am so nervous. I have this fear of anesthesia for some unknown reason, and I have never even been put under! Crazy. But that is my biggest issue, putting him under. Thanks for the reply!

Jennifer

hannahsue01 Enthusiast

It is not the exact same procedure but my 9 month old daughter recently had a g-tube (feeding tube in her tummy) placed. They had to put camera's down her throat and put a hole through her tummy. However. they didn't nock her out compleatly.....she was still concious. She had to be there about 2 hrs before hand to have an IV placed. We got to stay with her untill she was sedated and then were back with her as soon as they were done (only took about 20 mins). She seemed to have taken it pretty well. The only pain seemed to come from the g-tube sight itself. My 4 yr old will hopefully be having a biobsy done in November....I hope she does as well as her baby sister did.....but I have a feeling the biggest issue will be her being afraid......oh and placing the IV....she hates needle.

Nancym Enthusiast

Don't you have a "clean-out" before hand? You don't have to take the horrible purging stuff?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hannahsue01 Enthusiast
Don't you have a "clean-out" before hand? You don't have to take the horrible purging stuff?

With my daughters tummy surgery she wasn't allowed to eat anything after I think 8pm the night before untill surgery and then didn't eat again untill the night of her surgery. She didn't have to drink that one stuff I think because she wasn't knocked out all the way she was just sedated with the stuff that makes you forget all of it. But I saposse if they were going to nock you out all the way that they may want you to drink that stuff.

schmenge Newbie
Don't you have a "clean-out" before hand? You don't have to take the horrible purging stuff?

Not for the upper. That delicacy is for a colonoscopy.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - marlene333 replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Bee balm lipbalm not gluten free

    2. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

    3. - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    4. - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    5. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,261
    • Most Online (within 30 mins)
      7,748

    Pbaentine
    Newest Member
    Pbaentine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • marlene333
      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    • Mari
      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.