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What Should I Expect?

Jenybeen

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Jenybeen Rookie
Jenybeen
Posted

A couple questions about the endoscopy/colonoscopy procedure. My son's GI doc's office won't give me all the details til a week before, and it's a month away. I am curious NOW, lol! So if your child has had this done, could you please share some of the details with me? Oh, Isaac is 5 years old...Thanks!

1) What is the prep for it like?

2) How do most kids react afterwards?

3) Any uncomfortable side effects?

4) How long (typically) til the results are in?

Any advice on how to explain it to my son? I told him about it and he started complaining that he didn't want to do it...

Jennifer

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Michi8 Contributor
Michi8
Posted
A couple questions about the endoscopy/colonoscopy procedure. My son's GI doc's office won't give me all the details til a week before, and it's a month away. I am curious NOW, lol! So if your child has had this done, could you please share some of the details with me? Oh, Isaac is 5 years old...Thanks!

1) What is the prep for it like?

2) How do most kids react afterwards?

3) Any uncomfortable side effects?

4) How long (typically) til the results are in?

Any advice on how to explain it to my son? I told him about it and he started complaining that he didn't want to do it...

Jennifer

They won't give you info until a week before? My gastroscopy (upper GI endoscopy) was booked for end of November, and I was given the information packet and consent forms when we booked (mid-August!) Heck, I have the info packet for my colonoscopy too, and it's not scheduled until March! (Yeah, long wait for elective procedures here.) :rolleyes:

Here is a site that has basics on endoscopy: Open Original Shared Link and basics on colonoscopy: Open Original Shared Link For the colonoscopy your son will likely need to go through a cleansing procedure (done at home) before the appt. For both procedures you'll be expected to avoid certain meds and refrain from eating & drinking for some time before your scheduled appointment.

Michelle

schmenge Newbie
schmenge
Posted

I can't say how it was for any of my kids (who have not had this procedure), but I know what to was like for me. Had to fast beforehand as the previous poster mentioned. I was in the room for the procedure and the next thing I remember I was in recovery. Apparently I was a little chatty while I was out, but I've not figured out how I did that with anything in my throat. :D The Doctor showed me pictures of my intestines and told me that he would not be sure until the biopsy results (Thursday-Tuesday(, but that I had Celiac. You "ease" back into eating that day. I felt no side effects at all.

Now several weeks earlier I had a colonoscopy and I felt pretty crappy after that procedure.

Nikki2003 Contributor
Nikki2003
Posted

Nicole just went through this at the end of july so it is still fresh. This is how it was at childrens in boston. But they have you arrive 90 min before (If general anesthesia is given) usually used for younger children. They check all vitals and don't eat I think 12 hrs before. They do paperwork I can't remember exactly why it took so long for the prep. But then the anesthesiologist came in and out to have nicole feel comfortable which she did. and even put on the mask for fun while waiting for the dr to get to the hospital (Traffic) but when it came time she did great she sat on the bed in the OR and they had me put the mask on her and Basically our trick was smell it (they have different flavors) And within 30 seconds she was barely consious (I cried it was the saddest thing you ever saw) Be prepared for that one. It took me by suprise but she did well. Despite the waking up procedure she looked uncomfortable and her Blood pressure was kinda high so it came down a bit and we left about an hour later. The procedure takes about 30 min. She slept the rest of the afternoon,Probably the anesthesia wearing off. They say no big activities for the rest of the day. Have a quiet afternoon.

I have to now do it again with my 7 yr old daughter sometime.

Should be interesting.

Good Luck and her results took 4 days to come back,Found out she also besides Celiac she has chronic gastritis and esophagitis and is now on prevacid and doing good.

Celina

Jenybeen Rookie
Jenybeen
Posted
  • Author
Nicole just went through this at the end of july so it is still fresh. This is how it was at childrens in boston. But they have you arrive 90 min before (If general anesthesia is given) usually used for younger children. They check all vitals and don't eat I think 12 hrs before. They do paperwork I can't remember exactly why it took so long for the prep. But then the anesthesiologist came in and out to have nicole feel comfortable which she did. and even put on the mask for fun while waiting for the dr to get to the hospital (Traffic) but when it came time she did great she sat on the bed in the OR and they had me put the mask on her and Basically our trick was smell it (they have different flavors) And within 30 seconds she was barely consious (I cried it was the saddest thing you ever saw) Be prepared for that one. It took me by suprise but she did well. Despite the waking up procedure she looked uncomfortable and her Blood pressure was kinda high so it came down a bit and we left about an hour later. The procedure takes about 30 min. She slept the rest of the afternoon,Probably the anesthesia wearing off. They say no big activities for the rest of the day. Have a quiet afternoon.

I have to now do it again with my 7 yr old daughter sometime.

Should be interesting.

Good Luck and her results took 4 days to come back,Found out she also besides Celiac she has chronic gastritis and esophagitis and is now on prevacid and doing good.

Celina

Thank you Celina! This was so helpful!! I hope Isaac does as good as your little one did...I am so nervous. I have this fear of anesthesia for some unknown reason, and I have never even been put under! Crazy. But that is my biggest issue, putting him under. Thanks for the reply!

Jennifer

hannahsue01 Enthusiast
hannahsue01
Posted

It is not the exact same procedure but my 9 month old daughter recently had a g-tube (feeding tube in her tummy) placed. They had to put camera's down her throat and put a hole through her tummy. However. they didn't nock her out compleatly.....she was still concious. She had to be there about 2 hrs before hand to have an IV placed. We got to stay with her untill she was sedated and then were back with her as soon as they were done (only took about 20 mins). She seemed to have taken it pretty well. The only pain seemed to come from the g-tube sight itself. My 4 yr old will hopefully be having a biobsy done in November....I hope she does as well as her baby sister did.....but I have a feeling the biggest issue will be her being afraid......oh and placing the IV....she hates needle.

Nancym Enthusiast
Nancym
Posted

Don't you have a "clean-out" before hand? You don't have to take the horrible purging stuff?

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hannahsue01 Enthusiast
hannahsue01
Posted
Don't you have a "clean-out" before hand? You don't have to take the horrible purging stuff?

With my daughters tummy surgery she wasn't allowed to eat anything after I think 8pm the night before untill surgery and then didn't eat again untill the night of her surgery. She didn't have to drink that one stuff I think because she wasn't knocked out all the way she was just sedated with the stuff that makes you forget all of it. But I saposse if they were going to nock you out all the way that they may want you to drink that stuff.

schmenge Newbie
schmenge
Posted
Don't you have a "clean-out" before hand? You don't have to take the horrible purging stuff?

Not for the upper. That delicacy is for a colonoscopy.

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      Good evening @EssexMum You are quite right to be concerned about this situation.  Once diagnosed as coeliac, always a coeliac, and the way to heal  is through adopting and sticking to a strict gluten diet. That said... I have travelled twice to France since my diagnosis, firstly in May 2013 and again in August 2019.   My spoken French isn't bad, and whilst there I tried my best to explain my needs to chefs and catering staff, and I read labels very carefully when shopping in supermarkets, but both times I came away with worsening gastric symptoms and pain. Interestingly,  after the second holiday, my annual coeliac review took place the following month and although I'd been very careful to avoid gluten all year, thanks to that August holiday my coeliac antibodies were elevated,  Clearly I hadn't been imagining these symptoms and they must have been caused by gluten sneaking in somehow. When I spoke to my gastroenterologist on my return, who is an excellent doctor, he told me with a smile that this was a very common experience in France among his patients, and not to worry too much about it! In fact, before we went away in May 2013, which was just after I had been formally diagnosed, he told me not to even bother trying to adopt a gluten free diet until I returned, knowing what France was like, but I was feeling so awful at that time I ignored his advice and at least tried to make a start with it. (I ought to say - both these visits were some time ago, so perhaps things are a lot better there now.) So what to do?  I would say at least try to explain to catering staff the situation - they should be able to rustle up a plate of cheese, boiled eggs, tuna, salad and fruit, and if things like crackers and gluten-free pot noodle or oats can be packed in the UK, those can be produced at mealtimes.    Of course, most larger supermarkets in France do now cater for coeliacs, but when I was last there the the choice wasn't as wide a range as we have in the UK but I think that is partly because the French like to cook from scratch, whereas our gluten-free aisles have quite a lot of dried or pre-baked goods in them/convenience foods, because I think we as a nation tend to use them more. I would be worth doing a bit of research on the internet before the trip, - the words you want are 'sans gluten'.  I've just googled 'sans gluten Disney Paris" and this came up.  I do hope at least some of this is of help. https://www.tripadvisor.co.uk/Restaurants-g2079053-zfz10992-Disneyland_Paris_Ile_de_France.html  Whatever befalls in France, at least your stepdaughter can resume her usual diet on her return. On a related tack, would you be happy to post any positive findings/tips upon her return - it might be of use to others travelling to Disneyland Paris with children in future? Cristiana
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