Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dh - How Long Does It Take To Show Up?

BFreeman

By BFreeman
in Dermatitis Herpetiformis

Recommended Posts

BFreeman Explorer
BFreeman
Posted

After you get weaned off Dapsone, how long does it take for the rash to return if you have slipped up?

My husband was diagnosed a few months ago and has been on gradually-reduced levels of Dapsone since then. It has had side effects of headaches and fatigue, and so, based on a comment his doctor made at his last visit of "I have several patients who go off the Dapsone and then back on if the rash returns," he has decided to stop taking it. (This doctor is a dermatologist; should we seek out a gastroenterologist? The dermatologist didn't say so; this is a small-town area.)

Does anyone have experience on how soon you can tell if you aren't doing the diet right? Thanks!

B Freeman

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lovegrov Collaborator
lovegrov
Posted

As with everything related to celiac, it depends on the person. My DH never came back even though I went off dapsone right after going gluten-free (this is very unusual, apparently). Others report problems months and months later even when strictly gluten-free.

richard

brizzo Contributor
brizzo
Posted

I took tetracycline before going gluten-free. It usually took me about 10-14 days before I would re-erupt after stopping tetracycline

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,404
    • Most Online (within 30 mins)
      7,748
    Jenih67
    Newest Member
    Jenih67
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • ChrisSeth
      Waiting on Blood test results…

      By ChrisSeth · Posted

      Okay thanks Scott. So based on my results will they order more tests to be done? Kind of confused.
    • Scott Adams
      Waiting on Blood test results…

      By Scott Adams · Posted

      Yes, this sounds right. Let us know when you find out your results.
    • ChrisSeth
      Waiting on Blood test results…

      By ChrisSeth · Posted

      Hi thanks for your response! This is the only other info that’s on my test results for the IgA. The initial testing performed in the Celiac Disease Reflex Panel is the total IgA. If the total IgA is <10 mg/dL, the reflex tests that will be ordered are the Tissue Transglutaminase IgG Antibody and the Deamidated Gliadin Peptide IgG Antibody. If the total IgA is >=10 mg/dL, the reflex test that will be ordered is the Tissue Transglutaminase IgA Antibody. Does that give some insight?  following up with my Dr early next week… thanks again.  And I didn’t eat more gluten than usual during the last 6-8 weeks on purpose. Just a normal diet prior to testing. I had gluten everyday for 6-8 weeks though I’m sure.
    • Scott Adams
      Celiac, Fructose and Lactose

      By Scott Adams · Posted

      Have you tried sheep's milk and goat's milk cheeses? After my diagnosis I could not tolerate cow's milk for ~2 years until my villi healed, but for some reason I did not have issues with sheep milk or goat milk cheeses.  I also had temporary issues with chicken eggs, but could eat duck eggs.
    • Scott Adams
      Waiting on Blood test results…

      By Scott Adams · Posted

      This is not a test for celiac disease, but your total IgA levels. This test is usually done with other celiac disease blood tests to make sure the results are accurate. Did they do a tTg-IgA test as well? Were you eating lots of gluten in the 6-8 weeks leading up to your blood tests? This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...