Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Osteoporisis, Osteopenia?

clay4me

By clay4me
in Related Issues & Disorders

Recommended Posts

clay4me Rookie
clay4me
Posted

Would like to know if anyone else has Osteopporsis and what they are doing to help reverse it?

I am new to this way of chat so it might take time to get use to it. So far I am doing well.

I have lymphatic drainage massage weekly and that has helped with many things. I take supplements,enzymes and eat scd legal 100%. I do not cheat and for the first time in my life have so much energy, and can eat without throwing up. :blink:

I am working out with a trainer for weight bearing exercises. A occasional massage does me well. Has anyone been able to turn there osteo around being on scd? I do know Rome was not built in a day and it takes time... :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Judyin Philly Enthusiast
Judyin Philly
Posted

Good Morning

I'm so glad to see someone post on MLD.

I was dx'd after getting celluitis.

I also have OA. My PT did not go well and am trying so hard to find a new PT.

I need help with daily wraping as 4 pairs of compression stockings and $450 later can find stockings that help. I did get the pump. This has only been dx'd since June 06 and pump for 1 month. could us ANY AND ALL HELP YOU CAN GIVE ME.

I'm hoping that others will join who have the MLD issue but no one joined a thread but a couple.

If you want to PM me please feel free to do so.

Also have you found any info on line about wraping with pictures..etc on compression? Been to the NLN and stocking sites. Have you found a book that helped? Did you PT give you any handouts.. mine did not.

thanks in advance. Judy in Philly

PS did you find the scd diet worked better for you and are you a celiac?????

trents Grand Master
trents
Posted

I am a 55-year-old male with osteopenia. Was dx with Celiac disease about 3 years ago but I know in hind site the initial onset of the disease was at least 16 years ago. Primary care doc didn't have a clue why my liver enzymes were elevated but now I know that celiac disease produces that effect in about 20% people who have the disease. I assume the bone density loss is due to the celiac disease. I have been on Fosamax for about 2/12 years. Bone scans have shown that I am still losing bone density, esp. in my femoral neck, but hopefully, the Fosomax is at least slowing it down. If I had been diagnosed soon after the onset of the disease, things with my bones would probably be much better but can't change that now. Making up bone density loss is much more likely if you are young. I have also developed pronounced chiphosis (that runs in my mother's family, though) and some mild scoliosis.

Steve

  • 3 weeks later...
txnmaryann Rookie
txnmaryann
Posted

I'm 40 years old, just went gluten free a month ago after 20 years of problems. Had a bone density scan today, I have osteopenia. I have been given Boniva and told to take calcium. I'm concerned that i"m not absorbing the calcium yet since I'm so recent on the diet. I too am hoping to reverse or AT LEAST slow the bone thinning.......

lindalee Enthusiast
lindalee
Posted

someone just started a new thread on this and I started one on calcium rich soups.

Clay- I'm not familiar with the lympatic massage. How is the SCD going? I would think all the yogurt would help.

Judy - Hope you are feeling better!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,684
    • Most Online (within 30 mins)
      7,748
    Melanie B
    Newest Member
    Melanie B
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By trents · Posted

      Thanks for the additional information. I was thinking of asking you if your daughter was taking methylated vitamins since she has the MTHFR gene but you beat me to it. To answer the question you posed in your original post, as I explained, celiac disease does not damage the colon but the lining of the small bowel. If the damage is pronounced enough and the doc doing it is experienced, yes, the damage done to the lining of the small bowel can be spotted with the naked eye.
    • cameo674
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By cameo674 · Posted

      I could not locate the correct Gary Brecka video where he explains the methylation process and specifically states things about how people with the MTRR homozygous gene mutation are known to suffer from heartburn due to a weakened valve/sphincter where the esophagus and the stomach connect.  My brother had the youtube video sent to him from 10x health which is probably why I cannot locate it.     I will have read up on mast cell activation.  I do not know anything about it.  Tums is my preferred gerd treatment.  I always figured a little extra calcium could not hurt me.  
    • cameo674
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By cameo674 · Posted

      Trents: Due to a genetic mutation, my daughter has inherited from both parents she cannot process the Folic Acid provided in the fortified American grains.   An MD told her to avoid eating fortified grains.   My daughter makes the assumption that unless she makes the food item, that the baker used a fortified grain so she has been limiting her gluten intake since 2020.   Her Psychiatrist was who tested her for MTHFR gene issue because she suffers from depression and severe anxiety. The Psychatrist also instructed my daughter to supplement with a methylated version of folate once she knew my daughter was homozygous, because the methylated version bypasses the mutated gene step so her body can absorb it.  Low folate absorption impacts serotonin and dopamine production.  My husband and I also both have two other homozygous gene mutations that interfere with vitamin absorption: MTRR and VDR taq.  The first interferes with B-12 absorption which requires us to take a methylated B-12 vitamin and the second with Vitamin D absorption so we have to take higher doses to stay within normal levels.   My brother, who has the exact same gene mutations, went through 10x health genetic testing for vitamin supplements (paid by his employer) and received a huge report saying the same things about which types of supplements had to be taken.  Gary Brecka does videos on how these gene mutations impact the vitamin absorption pathways.       If my brother had not gotten his testing through work, he would never would have started his supplement journey.  His testing is what triggered my getting functional health testing that tested similar biomarkers to his.  Again the celiac testing was an add-on test that I did off the cuff.  
    • trents
      Colonoscopy with large are of inflammation

      By trents · Posted

      Welcome to the forum, @growlinhard1! If eliminating gluten from your diet makes significant improvement in your symptoms then there are two possibilities. Either you have celiac disease (aka, gluten intolerance) or NCGS (Non Celiac Gluten Sensitivity, aka, gluten sensitivity). The difference is that celiac disease is an autoimmune disorder that creates inflammation and, over time, damages the lining of the small bowel which inhibits nutrient absorption whereas NCGS does not damage the lining of the small bowel. They share many of the same symptoms. At the end of the day, the antidote for both is to abstain from foods that contain wheat, barley or rye, the three gluten-containing grains. Some countries supply stipends and healthcare benefits for those with an official celiac diagnosis. If you live in the USA that does not apply. The main reasons for seeking an official celiac diagnosis are psychological and social. Many people have a hard time not falling off the gluten free bandwagon without an official diagnosis. They find it easy to rationalize it all away as being temporary or due to something else. When you have an official diagnosis, you tend to take gluten-free eating more seriously. Socially, family and friends are more likely to respect and attempt to comply with your need to eat gluten free if you have an official diagnosis of celiac disease. Your physician is more likely to take you seriously as well if you have an official diagnosis because there are typically other health problems that are spinoffs which develop from celiac disease in time. One autoimmune disease invites others. There are no tests for NCGS. Celiac disease must first be ruled out. We do have specific tests for celiac disease. By the way, some experts believe that NCGS can transition into celiac disease. If your endoscopy/biopsy is only a month away, I would encourage you to stick it out and go back on gluten to get an official diagnosis. You still have time to get a valid test result if you start back on gluten now, 10g of gluten daily which is about the amount found in 4-6 slices of wheat bread.
    • BoiseNic
      dermatitis herpetiformis outbreaks while on strict gluten-free diet

      By BoiseNic · Posted

      I have the same problem. No matter what I eat, I seem to get a break out every 1 to 2 months. I do not do oats, citrus fruits, apples, onions and other foods also, as those cause reactions. The only time I have zero problems is when I fast. The only staple grain I have is quinoa, as that doesn't seem to cause me issues. I have linked mine to a microbiome imbalance. I am currently on month 3 of Skinesa. It's supposed to take 3 months before seeing results. I guess we'll see.
×
×
  • Create New...