Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gf & Pregnancy


Guest aross

Recommended Posts

Guest aross

Hello, I am new to this website. Actually I am new to this disease called celiac disease. I have been diagnosed for about 4 mo. now and my husband and I want to try for our third child. I am scared to death. I have read some of the postings and it has helped ease some fear. I also have hypothyroidism. Meds take care of that problem. I don't understand why I am not underweight with celiac disease. I hardly eat anything and still struggle with weight issues. What is going on? I recently had a 2nd. biopsy and it still showed traces of gluten. Better but still there. Should I even be considering pregnancy. I have so many questions. :ph34r:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



beccathorn Newbie

Hi! I'm also new at this. Tho I'm still undiagnosed, It's been about 7 mos or so that I've been gluten free and am 5 1/2 mos pregnant with my first. I didn't know about all the risks to the baby before I became pg. It's been scary for me, wondering if the baby is getting all the nutrients that she/ he needs. I've read that Celiacs are often deficient in calcium, folic acid and iron- that really freaked me out. But so far so good. I seem to be progressing normally. I've have had no problems other than trying to eat gluten free with morning sickness- ugh. And getting just a tiny bit of gluten makes me even more nauseas. Anyway, I would say get used to the diet a little more first and make sure you're not deficient in any vitamins or minerals first. And of course talk to your Dr. but definitely have another baby. If you don't have a history of miscarriages you'll do fine, I'm sure. Just be informed ahead of time. Have you learned to bake yet? I know I crave all the foods I can't eat- and if I had known how to bake gluten-free- the breads and goodies- I probably would have felt much less deprived and be able to fill up more. The first few months I couldn't stand meat or veggies- so carbs were my thing- but difficult to get being gluten-free.

I don't know about the weight thing- it was instant for me. I lost 25 lbs in just a couple of months and I'm still losing- tho baby is getting bigger right on schedule. Anyway, good luck!

Beccathorn

lovegrov Collaborator

Have you gone completely gluten-free? If not, don't get pregnant until you have done so. And even if you have gone completely gluten-free, four months isn't enough time to heal completely. I'd still wait a little. The main thing is you want to make sure you are fully absorbing nutrients so that the baby is getting all it needs.

The weight thing is probably your own metabolism and genetics at work. Do you exercise? Even moderate weight lifting and walking can make a big difference. In addition, most people gain weight after they go gluten-free because they start absorbing all those calories they didn't absorb before. This is not true for all, but I would say it is for most. I gained 70 pounds in two years (30 pounds I needed; I've lost another 30; so there's still an extra 10 hanging around).

richard

rattaway Newbie

I had no problems concieving, carrying, and delivering my two daughters ages six and four. Last July we found out that I was preg. with our third baby. At twelve wks. I had to have a D&C due to a miscarriage that my body hadn't done on it's own yet. We waited three months and tried again. I miscarried at eight wks.. We decided not to wait and went for it after my next cycle. I miscarried again at five wks. We did the same thing again after the next cycle and I carried to ten wks. and had my fourth miscarriage. I had been occasionally cheating on on the diet and had some unsafe foods. But during my fourth preg. I was very careful not to cheat. I think maybe I hadn't had enough time in between pregnancies to rid my body of the gluten. I have had all of the blood tests and infertility testing and everything came back normal so I am pretty certain it was the gluten although I can't understand why I had my girls so easily when I was on an all gluten diet. I guess it also could be that God is saying now is not the time. :rolleyes:

Best Wishes For You and Your Baby :lol:,Rian

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - TerryinCO replied to TerryinCO's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      19

      New Guy Here...

    2. - cristiana replied to Karen Chakerian's topic in Related Issues & Disorders
      4

      Getting rid of the belly bloat

    3. - badastronaut replied to badastronaut's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Still unsure.....

    4. - knitty kitty replied to badastronaut's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Still unsure.....

    5. - James47 posted a topic in Coping with Celiac Disease
      0

      Long term recovery


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,562
    • Most Online (within 30 mins)
      7,748

    Tazzy11
    Newest Member
    Tazzy11
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • TerryinCO
      They've not made that call at this point. They say it looks more like Celiac's than common variable immune deficiency.  They say to get a positive diagnosis another endoscopy is needed after I've been on gluten-free diet awhile.  So, waiting for more input from Docs'.
    • cristiana
      Karen, welcome to the forum. Another thing to add:  Belly bloat can persist if you are lactose intolerant, a situation caused by coeliac disease or it can simply be a stand alone condition.  In the case of coeliac disease, it could be your damaged gut cannot break down lactose efficiently but, in time, once the gut heals, your lactose intolerance and bloating should improve.  You might also find it helpful to stay clear of certain high fibre foods for a while, perhaps keeping a food diary to see if any are causing you to bloat a lot or give you stomach pain.  Lentils and soya were an issue for me in the short term, while I was recovering.  Also, are you taking iron - that can really hurt your belly and in my case it added to the bloating. The other point I wanted to make is has your doctor looked into any other reasons for your belly bloat.? There are a number of other gastric conditions that can result in a bloated belly.  A blood test and an ultrasound to check for possible gynaecological issues could also be something to speak to your GP about. It took me a few months for my bloating to subside, but the journey which involved a few tests along the way to ensure nothing else was was worth it.   Cristiana
    • badastronaut
      Thanks very much for the in depth reply!!! I'll discuss it with my doctor next week!
    • knitty kitty
      Hello, @badastronaut, I reread your last post on your previous thread... "Had some new bloodworks and an echo done because I still have problems with my stomach. According to my latest bloodworks I'm still negative for celiac and still low on zinc (even after supplementing it for quite a long time), I'm low on folic acid now too and my bilirubin is quite high (2,5 and 0,6). My ALT is also slightly elevated. I have been doing a gluten free diet quite strict although I did eat some gluten in the previous weeks.  "Could my blood result be this way because of gluten sensitivity and me being not strict enough? My echo showed no problems with my liver or pancreas. My bile ducts were fine too (although I don't have a gallbladder anymore).  "What to do??? Could this be gluten related?"   Your bilirubin is high.  The liver breaks down bilirubin.  The liver needs Thiamine to break down bilirubin.  Without sufficient Thiamine, bilirubin is not broken down and escapes into the bloodstream. High levels of bilirubin suppress the immune system.  High levels of bilirubin suppress the production of white blood cells, including anti-gluten antibodies.  The suppression of your immune system by high bilirubin could be the explanation for false negative Celiac antibody testing.  Thiamine is needed for antibody production.  Thiamine deficiency can cause false negatives on Celiac antibody tests.  If you are not making a lot of antibodies, you won't have much damage to the small intestine.   Your ALT is high.  The liver produces ALT.  When the liver does not have sufficient Thiamine, the liver produces more ALT that escapes into the bloodstream.  Elevated ALT is seen in thiamine deficiency. Your Lipase is high.  Lipase is produced in the liver and pancreas.  More Lipase is released by both in thiamine deficiency. Your gallbladder has been removed.  Gallbladder dysfunction is common in thiamine deficiency. Your Zinc is low.  Zinc absorption is enhanced when Thiamine is present.  Zinc is not absorbed well in thiamine deficiency. Your Folate is low.  Celiac Disease causes malabsorption of all the essential nutrients we need for health, the eight B vitamins, including Thiamine, the four fat soluble vitamin, Vitamin C and minerals like Zinc and Magnesium.  Thiamine stores can be depleted in as little as three weeks or even as quickly as three days.  Thiamine deficiency symptoms can wax and wane depending on how much thiamine is consumed that day.   If a high carbohydrate is eaten regularly, additional Thiamine is needed (500 mg per 1000 calories). Anxiety and depression are symptoms of thiamine insufficiency.  The brain just thinking  uses as much thiamine as muscles do when running a marathon.   I have had thiamine deficiency symptoms like you are experiencing.  My doctors did not recognize the symptoms of thiamine deficiency.  They just prescribed pharmaceuticals to cover up the symptoms which only made things worse.  I had a lot of nutritional deficiencies.  I ended up getting a DNA test to check for known genes for Celiac.  I have two Celiac genes.   Have you had a DNA test for Celiac genes?   I took Benfotiamine, a form of thiamine that promotes intestinal healing, and a B Complex to correct my deficiencies.   High doses of thiamine need to be taken to correct deficiency.  Talk to your doctor about administering thiamine intravenously.  Thiamine is safe and nontoxic even in high doses.  Thiamine is easily excreted in urine if not needed.  Improvement of symptoms should be seen within a few hours to a few days.  No harm in trying.  Process of elimination, etc.   Talk to your doctor and nutritionist.  Testing for nutritional deficiencies should be done before taking vitamin supplements, otherwise the vitamin supplements already taken will be measured.   I hope this helps you on your journey. References: https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6662249/#:~:text=CONCLUSION%3A,in men than in women. https://pubmed.ncbi.nlm.nih.gov/24923275/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6040496/ https://pmc.ncbi.nlm.nih.gov/articles/PMC3772304/#:~:text=Based on the patient's history,were also no longer present. https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/#:~:text=Benfotiamine (Fig.,]%2C [62]].  
    • James47
      Hey everyone I hope all are well and having a good 2025 so far. I am 50 this year and I only got diagnosed with celiac in June 2023. I have followed my diet to the letter since and they said after so many years undiagnosed it would take a long time to recover. Although I feel I have lot more energy and health and wellbeing is a lot better I still have severe gluten belly even though I work out daily and have a physical job. Any advice or info of anything else I can do would be greatly appreciated 👍 👍 
×
×
  • Create New...