Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do You Miss?

Guest ~jules~

By Guest ~jules~
in Coping with Celiac Disease

Recommended Posts

em2005 Rookie
em2005
Posted

POUTINE!!!!!!!!!!!

Mmm...fries with cheese curds and gravy...esp. the ones you get at the casse-croûte stands. Mmmmmmmmmmmmmmmm.........

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 92
  • Created
  • Last Reply
gdobson Explorer
gdobson
Posted

I miss being able to go into any restaurant and looking at the menu and saying, "hmmm, I've never had that before. I think I'll try that," and not having to wonder or care what was in it.

I also miss Pizza Treats!!!! And my memory of those Hostess Cupcakes and Snowballs - definitely Snowballs. I know it sounds way weird, but I just want to touch one to remember that spongey texture. Oh, and Miller Genuine Draft. sigh

jaten Enthusiast
jaten
Posted
Have you tried real latin american tortillas?

I'm not sure where to get them. Can you tell me? Thanks, Jennyj, for your suggestion of Mission brand, too. Yes, I've tried Mission. I don't know. There was a thread on here a couple of mos ago about corn tortillas. I've tried all of the ones that I could find around here. I get sick every time. But I can eat On the Border tortilla chips and many other corn products, but not a single corn tortilla. It doesn't make sense to me. (I wish On the Border made corn tortillas). I don't want to hijack this thread. Thanks for your suggestions, though!

Guest ~jules~
Guest ~jules~
Posted
I'm not sure where to get them. Can you tell me? Thanks, Jennyj, for your suggestion of Mission brand, too. Yes, I've tried Mission. I don't know. There was a thread on here a couple of mos ago about corn tortillas. I've tried all of the ones that I could find around here. I get sick every time. But I can eat On the Border tortilla chips and many other corn products, but not a single corn tortilla. It doesn't make sense to me. (I wish On the Border made corn tortillas). I don't want to hijack this thread. Thanks for your suggestions, though!

I buy the mission corn tortillas, and chips. I like mission products because it simply states "gluten free" so I can pick it up and throw it in the cart instead of standing there reading the label. Its just more convinient, any shot of eating being simple I'm taking it....plus they taste really good. Now I'm on a "tort. chip kick" I've been melting cheese over my tort. chips, and drowning them in Newmans Own chunky salsa...Yummmy

Also, (this may sound gross but its actually really good) Dip your cool ranch doritos in cottage cheese....Don't knock it till you try it....lol :D

jerseyangel Proficient
jerseyangel
Posted
Also, (this may sound gross but its actually really good) Dip your cool ranch doritos in cottage cheese....Don't knock it till you try it....lol :D

One of my favorite snacks, pre dairy free, was potato chips or Fritos dipped in cottage cheese! :D I really miss cottage cheese.....

Guest ~jules~
Guest ~jules~
Posted
One of my favorite snacks, pre dairy free, was potato chips or Fritos dipped in cottage cheese! :D I really miss cottage cheese.....

I'm sorry :( I really do feel for those of you with multiple food allergies. It really makes me appreciate the things I can eat. When I first got here I was so mad at doctors and the lach of food. Now that I've gotten to know more about the people here, and the extent of food allergies I'm a lot more posative about eating.... B)

L.A. Contributor
L.A.
Posted

Trashy breakfast cereal...Alpha Bits, Captain Crunch, Fruit Loops :rolleyes: Or maybe it's just the fact my choice is gone---sigh.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted
I'm sorry :( I really do feel for those of you with multiple food allergies. It really makes me appreciate the things I can eat. When I first got here I was so mad at doctors and the lach of food. Now that I've gotten to know more about the people here, and the extent of food allergies I'm a lot more posative about eating.... B)

Oh, don't feel bad! It's ok, really :D I feel so much better, that it makes it pretty easy to stay away from the foods that I'm intolerant to.

I just had to comment on the cottage cheese dipping--I was surprised to see that someone else did that :lol:

burdee Enthusiast
burdee
Posted

My answer to that question would depend on when you asked ... When first was diagnosed with celiac disease, I found many great gluten-free substitute foods and didn't miss anything. After my dairy diagnosis, I tried to substitute soy products for dairy, but really missed cottage cheese. When I realized I also didn't tolerate soy, I really missed ice cream, yogurt, butter and other dairy products. Then I found almond milk, some sorbets and margarine substitutes as well as other new foods. So I stopped missing anything and enjoyed new favorites. However in August I was diagnosed with additional egg and cane sugar allergies (and confirmed soy intolerance). So I really missed mayonnaise at first. Then I started using guacomole or hummus spread in sandwiches. Strangely I did NOT miss eggs as a food. I also found many egg replacement foods for baking.

I don't miss cane sugar per se, but I SURE MISS CHOCOLATE!!! I had previously found some dairy/soy free chocolate which had sugar. I can't tolerate many artificial sweetners (especially alcohol derivatives like sorbitol, etc.). So I have not yet found a safe chocolate candy substitute. However, I suspect that once I start experimenting with recipes from my new food allergy cookbooks, I'll come up with a pretty good fudge substitute recipe.

Above all I miss spontaneity ... I can't just walk into any restaurant and find something suitable on the menu. I stick with classier ($$$) restaurants who want to please their patrons and prepare safe meals or Mexican restaurants where I can substitute corn tortillas, avoid deep fried foods possibly contaminated by gluten foods in the same fryer and pass on cheese. Frequently I order simple grilled meats and steamed vegies, while enjoying a glass of wine. Nevertheless, I sure don't miss that chronic cramping pain, bloating and gas. I'm happy to abstain from 5 different foods to avoid those symptoms.

BURDEE

Pearia Newbie
Pearia
Posted

Fish & chips, pizza, a GOOD sandwich, BEER, Big Mac & Filet of fish, french bread with pasta, the list goes on & on.

Mango04 Enthusiast
Mango04
Posted

Rubios...mmmmmm

Other than that I'm completey okay with being gluten and dairy free...but I miss soy!!!!!!!!! How sad is that? I miss Earth Balance!!!!!!! and all the yummy gluten-free stuff made with soy flour...and this is even more sad...the other day I saw some gluten-free, dairy-free, tofu cheesecake and I just looked at it longingly. Hehe how many "normal eaters" would laugh in my face if they knew all I wanted in life was some gluten-free tofu cheesecake? Okay I'm exaggerating a bit...but still....

ÆON Newbie
ÆON
Posted

Oh, this is an easy question. I'm a vegetarian and I miss meat substitutes so, so, so bad. Fake chicken, fake lunchmeats, I even had access to fake tuna for a while and it was soooo good.

I get overwrought just thinking about that stuff. :wub:

Guest ~jules~
Guest ~jules~
Posted
Oh, this is an easy question. I'm a vegetarian and I miss meat substitutes so, so, so bad. Fake chicken, fake lunchmeats, I even had access to fake tuna for a while and it was soooo good.

I get overwrought just thinking about that stuff. :wub:

I have a veggie friend, she eats alot of morningstar farms chic patties, are they gluten free? I have had them and they are really good. Just curious...

Carriefaith Enthusiast
Carriefaith
Posted

I miss being able to go to any restaurant and eat with everyone else. I always try and recreate the foods I miss myself in a gluten-free and casein free way.

ÆON Newbie
ÆON
Posted
I have a veggie friend, she eats alot of morningstar farms chic patties, are they gluten free? I have had them and they are really good. Just curious...

No, I'm sorry to say that they're not. Morningstar makes good stuff though, I agree. Alot of fake meat has wheat in it but there are a very few that don't.

Qourn makes some chicken bits (little chunks that go nicely in rice) that are gluten-free and really good and Gardenburger makes a grilled burger that's okay.

My all-time favorite was gravy with fake sausage crumbled up in it over biscuits - ohhh so yummy. That would incapacitate me now - oh well.. memories. :D

barbara3675 Rookie
barbara3675
Posted

One of the things I miss is oatmeal with brown sugar and milk on a cold winter morning......I tried it after being gluten-free for a while and it gave me problems. I know there are some gluten-free people that eat it, but it does not work for me. Some of the things that have been mentioned multiple times, like Pizza Hut pizza, KFC, and good crusty breads would be up there on my list of things that I miss also.

burdee Enthusiast
burdee
Posted

There are safe substitutes for most foods we miss. Our food preferences develop through habits. We can develop other food favorites if we look for appealing substitutes. Lots of people, who say they hate gluten free bread, have not tried all the many gluten free breads available. I dislike most gluten-free breads, but have a few (3-4) absolute favorites which I found after doing lotsa research. I've also found decent substitutes for other former favorites containing gluten, dairy, soy, eggs and cane sugar. Just don't eat choclate in front of me!!! LOL (I wear a teeshirt that says "Just drop the chocolate and nobody gets hurt".)

BARBARA: Quinoa flakes are very similar to oatmeal as a hot cereal or in cookies.

MANGO: Smart Squeeze makes a tasty gluten/dairy/soy free margarine in a squeeze bottle.

ANY VEGETARIANS: Look for soy based meat substitutes if you can have soy.

BURDEE

jerseyangel Proficient
jerseyangel
Posted

burdee--

Where do you find that Smart Squeeze Margarine? I have looked everywhere.

burdee Enthusiast
burdee
Posted

I found "Smart Squeeze" at my local QUALITY FOOD CENTER (QFC), but they're owned by Kroeger Foods who also owns Fred Meyer. So you might find them at Fred Meyer Stores. Maybe that's a Northwest Chain. You could also look up the "Smart Balance" (who makes "Smart Squeeze") and look for a store locator or 'google' Smart Squeeze.

BURDEE

Ashley Enthusiast
Ashley
Posted

Poptarts. I crave those things all the time! There's almost an edible substitute for everything, except for pastries. I don't miss regular pretzels because there's awesome substitutes. But, I do miss the mustard-flavored ones though. Can't find gluten-free ones.

-Ash

jerseyangel Proficient
jerseyangel
Posted
I found "Smart Squeeze" at my local QUALITY FOOD CENTER (QFC), but they're owned by Kroeger Foods who also owns Fred Meyer. So you might find them at Fred Meyer Stores. Maybe that's a Northwest Chain. You could also look up the "Smart Balance" (who makes "Smart Squeeze") and look for a store locator or 'google' Smart Squeeze.

BURDEE

Thanks! I went to their website and sent an email to customer service--they didn't have a store locater. There's also a phone # I can call on Monday :)

mouse Enthusiast
mouse
Posted

Does Smart Squeeze marg. have corn in it? I bought Spectrum marg. and it does not even melt on my baked potato.

jerseyangel Proficient
jerseyangel
Posted
Does Smart Squeeze marg. have corn in it? I bought Spectrum marg. and it does not even melt on my baked potato.

Hi Armetta

I've not actually seen the Smart Squeeze--so I don't know if it has corn in it. That's something I'd want to check when I can read the label.

I've never seen the Spectrum Margarine--dosen't sound too good, though, from what you said--I do love their shortening!

Why is it so hard to find a margarine without soy, corn and whey? :angry:

CarlaB Enthusiast
CarlaB
Posted

Have you tried Ghee? I use it or coconut oil exclusively -- and the benefit of coconut oil is that it's good for you!

jerseyangel Proficient
jerseyangel
Posted
Have you tried Ghee? I use it or coconut oil exclusively -- and the benefit of coconut oil is that it's good for you!

I haven't tried ghee, but I'd like to. Do you make your own, or is there a good brand I should look for?

I can't, unfortunately, use coconut oil because I'm intolerant to coconut. :angry:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,567
    • Most Online (within 30 mins)
      7,748
    Trish-e
    Newest Member
    Trish-e
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Cat M
      Weakly positive DGP IgA

      By Cat M · Posted

      Ah ok, I just saw didn’t even post the DGP IgA at all. 😫 I started with itching and hives Jan 2024, been taking a ton of meds and on Xolair and even that is not providing total relief. The other primary symptoms: intermittent but worsening abdominal pain, diarrhea and bloating. This summer I am just exhausted. I uploaded my 23andMe data to genetic lifehacks and discovered quite a few variations, including DQ2, MTHFR, VDR and I have always had very low ferritin, vitamin D and B12. I still think that mast cell disease makes the most sense, but latest labs show I am barely in range for thiamine, zinc and vitamin A, so the GI stuff feels more important to figure out than the hives right now. I did SIBO testing this morning. TTG IGA <2   0-3 is negative TTG IGG  3   0-5 is neg DGP IGA 21    20-30 is weak positive DGP IGG 4    0-19 is negative Although total IGA is not resulted, there is a footnote stating it was low and the reason they ran IGG.  
    • Scott Adams
      Positive TTG antibody and negative EMA antibody

      By Scott Adams · Posted

      This is an interesting case. A positive tissue transglutaminase (tTG) antibody with a negative endomysial antibody (EMA) and normal duodenal histology can present a diagnostic challenge, especially in an asymptomatic patient. While the absence of villous atrophy and negative EMA suggest that the likelihood of active celiac disease is low at this time, such serological discordance may still warrant monitoring. Some individuals may be in the early stages of celiac disease, often referred to as potential celiac disease, particularly if they carry the HLA-DQ2 or DQ8 haplotypes. HLA typing can be quite helpful in this situation; a negative result would virtually rule out celiac disease, whereas a positive result may justify periodic follow-up to monitor for evolving disease. The risk of progression to overt celiac disease is not well defined but appears to be higher in children, those with a family history, or those with autoimmune conditions. In this case, routine follow-up including repeat serology and consideration of symptoms or new risk factors over time would be a reasonable and cautious approach. For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions, including cow's milk/casein intolerance, that can also cause this, and here is an article about the other possible causes:      
    • Scott Adams
      Old to diagnosis

      By Scott Adams · Posted

      Have you tried to start a gluten-free diet since your diagnosis in 2019?
    • trents
      Positive TTG antibody and negative EMA antibody

      By trents · Posted

      Welcome to celiac.com, @Wamedh Taj-Aldeen! Just curious, what is your relationship to the patient? Are you the attending physician? A medical student? A consulted physician? Was a total IGA test ordered? Some physicians are under the dated and mistaken impression that such is only necessary in young children. If total IGA is low, other IGA antibody numbers will be artificially depressed. By the way, it is not unusual to have a positive TTG-IGA and a negative EMA. Are the TTG-IGA numbers borderline high or unequivocally high? There are other diseases and medical conditions that can cause elevated TTG-IGA numbers besides celiac disease but when this is the case, the numbers are usually not dramatically elevated. It can also be the case that villous damage was patchy and affected areas were missed during the biopsy. Or, onset of celiac disease was very recent and villous atrophy has not yet progressed to the point of detectability.  We also have occasional anecdotal reports in this online community of positive antibody testing with negative histology, as you report. But we also know that gluten intolerance can manifest itself apart from enteropathy. It can damage other organ systems. Many celiacs are of the "silent" type, meaning there is an absence or a relative absence of symptoms until the disease has become advanced and there is significant damage to the villous lining or other organ systems. But to answer your questions: 1. I would definitely pursue a routine follow-up and recheck of the antibodies. And, I would order a complete celiac panel including total IGA and IGG stuff in say, six months. Sooner if symptoms manifest. 2. It is impossible to say what is the risk of the future development of over celiac disease. I refer you back to my #1 above concerning rechecking.  3. I would definitely pursue HLA DQ2/DQ8 typing as it can be used as a rule out for celiac disease, though not quite with 100% dependability. I hope my thoughts prove helpful to you.
    • trents
      Old to diagnosis

      By trents · Posted

      Welcome to the forum, @dominiqueccms! Unfortunately, your story is all too common. Some older physicians are dismissive when it comes to gluten intolerance disorders and have this attitude like, "It's the latest fad disease." My advice to you is to get another doctor who has more current knowledge in this area and will take this seriously. In the meantime, this might be helpful: In six months to a year you would do well to get your antibody numbers rechecked to see if you are succeeding in your efforts to eat gluten free. Do you have the numbers from the original testing?
×
×
  • Create New...