Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

It's Official

BostonCeliac

Recommended Posts

BostonCeliac Apprentice
BostonCeliac
Posted

Just thought I would share with everyone... My Doctor just let me know that my biopsies came back showing "classic unambiguous Sprue" as he put it. He mentioned that when he was doing the endoscopy he "saw it" but I was so out of it, I couldn't remember exactly what he said...

Anyway, I'm relieved, it would have been frustrating if it was negative. It's strange - I only had stomach issues beginning approx. 2-3 months prior to the biopsy. I have had unexplained anemia for about 6 years -- but I would have thought the damage to the intestines would have caused more problems. I knew right away what it was because my sister was diagnosed, and they thought I might have it.

Well, I've been gluten-free for 3 weeks today! So far so good... here's to a life of gluten-free living!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


queenofhearts Explorer
queenofhearts
Posted

Congratulations & Welcome to Celiac World!

ravenwoodglass Mentor
ravenwoodglass
Posted
Just thought I would share with everyone... My Doctor just let me know that my biopsies came back showing "classic unambiguous Sprue" as he put it. He mentioned that when he was doing the endoscopy he "saw it" but I was so out of it, I couldn't remember exactly what he said...

Anyway, I'm relieved, it would have been frustrating if it was negative. It's strange - I only had stomach issues beginning approx. 2-3 months prior to the biopsy. I have had unexplained anemia for about 6 years -- but I would have thought the damage to the intestines would have caused more problems. I knew right away what it was because my sister was diagnosed, and they thought I might have it.

Well, I've been gluten-free for 3 weeks today! So far so good... here's to a life of gluten-free living!

I am glad you now know for sure and for certain. Welcome to the family.

floridanative Community Regular
floridanative
Posted

I had anemia just over a year before my dx but I too was surprised that my biospy showed so much damage and I didn't have the GI symptoms except for very occasional bloating or a stomach ache that coule be explained by a spicey Mexican dinner or so I thought - lol!

I can say that after almost 8 months, living gluten free really is just second nature to me now. I never thought I'd get use to reading labels or paying a small fortune for gluten-free food but I did. I just have a new normal now and since I feel better than ever (without knowing I didn't before) I can't complain.

I should add that about a month in to eating gluten free, I got very overwhelmed that I had to do this forever. That feeling passed fairly quickly (less than a week) and each month since has just gotten better and better.

Welcome and good luck!

Guest ~jules~
Guest ~jules~
Posted

Hello, and welcome to the group....My doctor also said more or less he could tell it was sprue, but he needed the biopsies back to say for sure. This group has been very helpful to me since my diagnosis last month, and I think your really going to find this a great resource, and place for support when you are feeling the need to vent, everyone is great! Welcome again! Julie :D

jcc Rookie
jcc
Posted

Congratulations on receiving your gold star! You may not feel lucky, but it is great when the diagnosis is clear cut. Best of luck with your gluten free life...you will do fine!

Cara

BostonCeliac Apprentice
BostonCeliac
Posted
  • Author

Thanks for the comments everyone! I've already found this site EXTREMELY helpful -- we're lucky to have this.

FloridaNative --- looks you were the same as me, did you notice a big change when your iron levels got back to normal? How long did it take you? Also, thanks for the heads up about the 1-month mark 'freak out', I could definitely see myself getting to that point, and then just taking a deep breath & realizing, It's not that bad! It's just food!! :)

Have a great day everyone....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Bindi's topic in Super Sensitive People
      31

      Refractory or super sensitive?

      Using a pressure cooker will break down Lectins. Long cooking times as in using a crock pot will also reduce Lectin content. However, having tried both, going lectin free for a few weeks is like a vacation for my digestive system. I do hope you give the AIP diet a try. I understand that changing ones diet takes a lot of mental readjustment...
    2. glucel
      - glucel replied to Bindi's topic in Super Sensitive People
      31

      Refractory or super sensitive?

      Depending on which source you research sprouting or fermentation can reduce lectins. I sprout rice, buckwheat and quinoa. However, I admit that gas and intestinal inflammation still plague me after 5 1/2 mo gluten-free. I have been resisting but I may try the aip diet at some point.
    3. cristiana
      - cristiana replied to jadeceoliacuk's topic in Doctors
      3

      How to choose a Naturopath for 6yr old

      Hi @jadeceoliacuk I am a UK based coeliac and I have used a private nutritionist a few times. She is very highly qualified and having just googled her details, she is listed on this website (see link). For that reason, I think you could trust the listings here as I am quite sure she would not want to associate with this website unless it was a...
    4. jadeceoliacuk
      - jadeceoliacuk replied to jadeceoliacuk's topic in Doctors
      3

      How to choose a Naturopath for 6yr old

      thank you knitty kitty. I will give those articles a read. Yes he is deficient in Iron and Vit D, that is all they tested for. Do you have any tips for finding a pediatric nutritionalist? He has an NHS dietician who has been helpful sending me generalised info on increasing Iron and cutting out dairy but they won't see him now for another year and I...
    5. Wheatwacked
      - Wheatwacked replied to Gluten is bad's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Gluten Free ADHD medications

      Yes, Lisinopril gave me an inguinal hernia from the persistant cough. Amlodipine doubled urine output and dry eyes so I could not wear contacts, another had me walking bent over like a ninety year old and one knocked out control of my quadracepts so knees would give out. None lowered my blood pressure. Average BP 132/67 for Oct 21 - 26. Lowest was 10...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      125,909
    • Most Online (within 30 mins)
      7,748
    AntonellaZ
    Newest Member
    AntonellaZ
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Refractory or super sensitive?

      By knitty kitty · Posted

      Using a pressure cooker will break down Lectins.  Long cooking times as in using a crock pot will also reduce Lectin content.   However, having tried both, going lectin free for a few weeks is like a vacation for my digestive system.  I do hope you give the AIP diet a try.  I understand that changing ones diet takes a lot of mental readjustment which is difficult, but it's really worth the effort for long-term health.  
    • glucel
      Refractory or super sensitive?

      By glucel · Posted

      Depending on which source you research sprouting or fermentation can reduce lectins. I sprout rice, buckwheat and quinoa. However, I admit that gas and intestinal inflammation still plague me after 5 1/2 mo gluten-free. I have been resisting but I may try the aip diet at some point.
    • cristiana
      How to choose a Naturopath for 6yr old

      By cristiana · Posted

      Hi @jadeceoliacuk I am a UK based coeliac and I have used a private nutritionist a few times. She is very highly qualified and having just googled her details, she is listed on this website (see link).  For that reason, I think you could trust the listings here as I am quite sure she would not want to associate with this website unless it was a professional, trustworthy resource. https://www.nutritionist-resource.org.uk/ I hope this helps. Cristiana  
    • jadeceoliacuk
      How to choose a Naturopath for 6yr old

      By jadeceoliacuk · Posted

      thank you knitty kitty. I will give those articles a read. Yes he is deficient in Iron and Vit D, that is all they tested for. Do you have any tips for finding a pediatric nutritionalist? He has an NHS dietician who has been helpful sending me generalised info on increasing Iron and cutting out dairy but they won't see him now for another year and I feel like I need more support than that...
    • Wheatwacked
      Gluten Free ADHD medications

      By Wheatwacked · Posted

      Yes,  Lisinopril gave me an inguinal hernia from the persistant cough. Amlodipine doubled urine output and dry eyes so I could not wear contacts, another had me walking bent over like a ninety year old and one knocked out control of my quadracepts so knees would give out.  None lowered my blood pressure. Average BP  132/67 for Oct 21 - 26.  Lowest was 100/59. High 157/62.
×
×
  • Create New...