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BostonCeliac

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BostonCeliac Apprentice
BostonCeliac
Posted

Just thought I would share with everyone... My Doctor just let me know that my biopsies came back showing "classic unambiguous Sprue" as he put it. He mentioned that when he was doing the endoscopy he "saw it" but I was so out of it, I couldn't remember exactly what he said...

Anyway, I'm relieved, it would have been frustrating if it was negative. It's strange - I only had stomach issues beginning approx. 2-3 months prior to the biopsy. I have had unexplained anemia for about 6 years -- but I would have thought the damage to the intestines would have caused more problems. I knew right away what it was because my sister was diagnosed, and they thought I might have it.

Well, I've been gluten-free for 3 weeks today! So far so good... here's to a life of gluten-free living!

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queenofhearts Explorer
queenofhearts
Posted

Congratulations & Welcome to Celiac World!

ravenwoodglass Mentor
ravenwoodglass
Posted
Just thought I would share with everyone... My Doctor just let me know that my biopsies came back showing "classic unambiguous Sprue" as he put it. He mentioned that when he was doing the endoscopy he "saw it" but I was so out of it, I couldn't remember exactly what he said...

Anyway, I'm relieved, it would have been frustrating if it was negative. It's strange - I only had stomach issues beginning approx. 2-3 months prior to the biopsy. I have had unexplained anemia for about 6 years -- but I would have thought the damage to the intestines would have caused more problems. I knew right away what it was because my sister was diagnosed, and they thought I might have it.

Well, I've been gluten-free for 3 weeks today! So far so good... here's to a life of gluten-free living!

I am glad you now know for sure and for certain. Welcome to the family.

floridanative Community Regular
floridanative
Posted

I had anemia just over a year before my dx but I too was surprised that my biospy showed so much damage and I didn't have the GI symptoms except for very occasional bloating or a stomach ache that coule be explained by a spicey Mexican dinner or so I thought - lol!

I can say that after almost 8 months, living gluten free really is just second nature to me now. I never thought I'd get use to reading labels or paying a small fortune for gluten-free food but I did. I just have a new normal now and since I feel better than ever (without knowing I didn't before) I can't complain.

I should add that about a month in to eating gluten free, I got very overwhelmed that I had to do this forever. That feeling passed fairly quickly (less than a week) and each month since has just gotten better and better.

Welcome and good luck!

Guest ~jules~
Guest ~jules~
Posted

Hello, and welcome to the group....My doctor also said more or less he could tell it was sprue, but he needed the biopsies back to say for sure. This group has been very helpful to me since my diagnosis last month, and I think your really going to find this a great resource, and place for support when you are feeling the need to vent, everyone is great! Welcome again! Julie :D

jcc Rookie
jcc
Posted

Congratulations on receiving your gold star! You may not feel lucky, but it is great when the diagnosis is clear cut. Best of luck with your gluten free life...you will do fine!

Cara

BostonCeliac Apprentice
BostonCeliac
Posted
  • Author

Thanks for the comments everyone! I've already found this site EXTREMELY helpful -- we're lucky to have this.

FloridaNative --- looks you were the same as me, did you notice a big change when your iron levels got back to normal? How long did it take you? Also, thanks for the heads up about the 1-month mark 'freak out', I could definitely see myself getting to that point, and then just taking a deep breath & realizing, It's not that bad! It's just food!! :)

Have a great day everyone....

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      Inconclusive biopsy results

      By trents · Posted

      In the time leading up to the blood draw for the antibody testing, attempt to consume at least 10g of gluten daily, about the amount found in 4-6 slices of wheat bread. Concerning the two antibody tests I suggested, the "total IGA" is not a test per se to detect celiac disease but to check for IGA deficiency. If you are IGA deficient, the test scores for individual IGA tests will be artificially low and can generate false negatives. The TTG-IGA test is the most popular test ordered by physicians when checking for celiac disease, and considered to be the centerpiece of celiac disease antibody testing, but it is not the only one. Ideally, others would be ordered but cost containment in medicine being what it is, physicians seldom order a "full celiac panel" at the outset. Here is an overview of the tests that can be run:  
    • Lizy487
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      By Lizy487 · Posted

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      Inconclusive biopsy results

      By trents · Posted

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    • Ann13
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      By Scott Adams · Posted

      So there can be gluten in pain meds, but I've never heard of it in anesthesia before. Do you have any more info on this claim, perhaps a link to a source?
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