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Gluten Challenge?

TCA

By TCA
in Dermatitis Herpetiformis

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TCA Contributor
TCA
Posted

Well, I have a long awaited dermatology appt. on 10/3. I have been gluten free for a year now because of nursing my celiac daughter. I just stopped pumping last week and am debating about a gluten challenge. It makes sense to do this before the appt. I can't decide if it's worth pursuing an actual diagnosis since I know gluten makes me break out in blisters and feel terrible with joint pains and tummy troubles. It seems like it takes a week or so for the rash to start after accidentally ingesting gluten. Anyone have any tips on how far away from the appt I should do a trial to have something for her to biopsy? I just don't know if it's worth being sick over. any advice is appreciated!

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brizzo Contributor
brizzo
Posted

Hey, TCA...I just went to the derm yesterday and got a biopsy done.... I was gluten free 3 weeks before that. All I did was call the derm and tell him that I would call him when I had something to biopsy. I ate gluten untill I got a papule to biopsy. The day I saw it, I called the derms office and explained that I had something to biopsy, and explained the importance of getting in to the office TODAY so I can get off the gluten and not walk around with leprosy!! =)... well good luck,,,,,hope this helps

mellajane Explorer
mellajane
Posted

That is such a hard call.... For me a gluten challenge is so out of the question! For me I get very sick with throwing up, nausea and sweats from hot to cold for about 2 to 3 days. Its absolutely miserable. A year is a long time. I really feel if this lifestyle has been working for you stick it out. Im 30 and have been sick since 7. This diet has been the only thing in 2 years that has worked. All my test results are Negative.... Its sad when you think about it, but my life has changed incredibly for the better. The people who love me lifes have changed!

Well, I have a long awaited dermatology appt. on 10/3. I have been gluten free for a year now because of nursing my celiac daughter. I just stopped pumping last week and am debating about a gluten challenge. It makes sense to do this before the appt. I can't decide if it's worth pursuing an actual diagnosis since I know gluten makes me break out in blisters and feel terrible with joint pains and tummy troubles. It seems like it takes a week or so for the rash to start after accidentally ingesting gluten. Anyone have any tips on how far away from the appt I should do a trial to have something for her to biopsy? I just don't know if it's worth being sick over. any advice is appreciated!

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