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Mtndog Collaborator

I'm going to miss you Chelsea even though you're not going to read this. I haven't been on as much lately due to personal stuff and travel, but when I do come on I get frustrated too. I'm going to miss you, but I totally respect and understand your decision.

When I came on, this board saved my life and it continues to do so because of the warm, ssupportive people here ( I could list about 50 names).


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Lisa Mentor

Judy.

I think that you are sooo right. Sometimes I have to walk away from the board, because it can be so very consuming. We all deal with it in everyday life, then sit on the computer for hour and take in more.

Although the ones who have been here for over a year, have learned to read lables and life does become easier. I do try to be there for the newbies, just because I remember. I also have made some dear friends here that I have never met.

We went to the doctor to day to review my one year blood work. I wanted to know if there were any red flags. I even fussed because my doctor did not know much about celiac disease. I know more than he does. My numbers were off and he had no solution.

But I know why. I'm going to make a confession here. I drink too much in the evening, around dinner time, I am not hungry. I don't eat. You don't eat, you don't get the fuel for you body to work properly...and on and on. ....so your blood work gets off.

How's that for a confession and reason for "thinking out of the box". Thinking and doing are two different issues.

Feeling bad is not alway about Celiac. <_<

Mtndog Collaborator
We went to the doctor to day to review my one year blood work. I wanted to know if there were any red flags. I even fussed because my doctor did not know much about celiac disease. I know more than he does. My numbers were off and he had no solution.

But I know why. I'm going to make a confession here. I drink too much in the evening, around dinner time, I am not hungry. I don't eat. You don't eat, you don't get the fuel for you body to work properly...and on and on. ....so your blood work gets off.

How's that for a confession and reason for "thinking out of the box". Thinking and doing are two different issues.

Feeling bad is not alway about Celiac. <_<

mommagoose- First of all, a (((((((((((((((((((HUG)))))))))))))))))))))))))))))))))) I know how stressed you've been lately. And you're right, it's not always abaout Celiac (or physical health). Our emotions can wreak havoc with our bodies too. Another hug, B

jerseyangel Proficient

Lisa,

I think you're amazing--and very brave! You are so right, it's not always about the Celiac....I'd been nauseous for several days, on and off all day. Yesterday, I went to the doctor suspecting an eye infection. It was an infection, and it turns out, the nausea was from that. Since I began the antibiotic drops, the eye is already better, and the nausea is gone! :D

Lisa Mentor
Lisa,

I think you're amazing--and very brave! You are so right, it's not always about the Celiac....I'd been nauseous for several days, on and off all day. Yesterday, I went to the doctor suspecting an eye infection. It was an infection, and it turns out, the nausea was from that. Since I began the antibiotic drops, the eye is already better, and the nausea is gone! :D

Nope, not me. I have NEVER seen you post to someone that was not positive or supportive. Your our "feel good Friend", because you always make us feel better.

I know alot of people on this board struggle with many personal issues, and still they take time to help others. Now that's the amazing aspect of being a member here.

jerseyangel Proficient
Nope, not me. I have NEVER seen you post to someone that was not positive or supportive. Your our "feel good Friend", because you always make us feel better.

I know alot of people on this board struggle with many personal issues, and still they take time to help others. Now that's the amazing aspect of being a member here.

You're very sweet :)

Now, I hope that you are going to take care of you! Make sure that you get enough good "fuel" and maybe a little less of what you don't need ;)

You know that we'll all be here for you Lisa, and feel free to PM or email me anytime!

Judyin Philly Enthusiast
I know alot of people on this board struggle with many personal issues, and still they take time to help others. Now that's the amazing aspect of being a member here.

And I think this pretty well sums it up!

Thanks nini, patti, lisa & and all the rest who have always been there for me.

Judy


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Lisa Mentor

Yup, and I'm the dumb **** that puts it out there for 10,000 people to see. BUT, I know that I'm not the only one in my boat. :blink:

VegasCeliacBuckeye Collaborator

The Celiac learning curve is a long one. Also, it is one that is accomplished only by experience and education. The format of this forum allows for the freedom of speech and expression. Unfortunately, that also can be the freedom of giving misinformation, unintended emotions and misinterpreted emails.

As a "veteran" member, I understand that celiac disease and this board can be extremely intimidating in the beginning. I also understand that "newbies" come here in a sort of spiritual sense and hope to find guidance and affirmation. Sometimes the board delivers it and sometimes it does not.

I must admit that I have not been spending as much time on the board as I used to, but that is primarily due to where I am on the "celiac disease learning curve" and of course, my job. However, after seeing this thread, I will make a better attempt at helping others on this board. Sometimes in life we spend too much time on things that don't affect anyone besides ourselves. I always envisioned the purpose of this board as educational and spiritual. We lean on each other when the majority of society lends a blind eye. Sometimes it is necessary to take a step back and recognize what our roles are and how we can help the most.

Chelsea, I am sorry to hear that you are going AWOL on us, but hopefully you will return. You help prople more than you know and you will be missed.

Personally, I am angered by the Medical profession. I used to vent that anger regularly on here. Recently (before Chelsea's declaration), I decided that I was part of the problem. No, I am not a doctor, but I was doing nothing to help the problem of their ignorance. I finally asked myself, "Chris, how can you assist the doctor's learning curve?" -- After several days of allowing the question to ping-pong around my head, I decided that there is only one way to do it. One doctor at a time. I am not sure whether it means I need to mail them info, talk on the phone, email them or attend their secret meetings (lol), but the bottom line is that things will never be better (at least in Vegas) until I make them listen.

Once I have a plan in action, I will tell the group about my successes/failures...

In any event, I just wanted to say that this thread got me thinking and I will make a better effort to welcome people and educate people and hopefully, help someone better their life...

Bronco

tiredofdoctors Enthusiast

L- My thoughts and prayers are with you . . . you are such an amazing person. I hope things get much, much better for you.

Love, Love, Love

Lynne

xxxooo

Judyin Philly Enthusiast
Yup, and I'm the dumb **** that puts it out there for 10,000 people to see. BUT, I know that I'm not the only one in my boat. :blink:

Lisa,

Ah, Lisa, your not a dumb **** at all. ;) Your very brave to post something that you think is adding to your eating concerns.

I know I've written alot of personal stuff on this forum and sometimes wonder if it's wise..but we all have our crutches on here in out in the real world for sure. Many people have PM'd me to support me and said they were struggling with the same issues. They'd have never known if we hadn't shared. Please know we care about how your doing and PM me anytime if I can be of any help.

hugs and love

judy

Lisa Mentor

You go Chris!!!!!!! :D:D:D

Lynne, Patti, Judy and that nut case in the northland, what wonderful shoulders you all have.

xxoo - L

Canadian Karen Community Regular
You go Chris!!!!!!! :D:D:D

Lynne, Patti, Judy and that nut case in the northland, what wonderful shoulders you all have.

xxoo - L

I guess that's my cue to jump in, eh? ;):lol:

Lisa,

You are very courageous and I feel honoured that you would feel comfortable enough with us to share that information and what you think might be contributing to the problem. Alcohol just literally rips right through my body now, I couldn't have any if my life depended on it, and coming from an ole' party girl :P (pulled more than my share of all nighters, got home in time to change clothes and off straight to work again!), it's truly a killer! But knowing now how I would feel if I were to have even a glass of wine now, it literally makes me cringe thinking about it. One glass and I feel like I downed a 26er and Javex is rushing through my intestines..... :o:(

You are so right that you certainly are not the only one in that boat. Heck, a cruise ship couldn't fit all of my relatives that drink too much! (Irish/Newfie, need I say more?). Sheesh!, you can't swing a dead cat without hitting someone who drinks too much. You WILL get to the point where having those few drinks in the evening just won't be worth the pain and discomfort it brings on..... Been there, done that...... <_<

By the way, it was great talking to you the other day! I realized later that evening that I must have sounded like a tool! See, Terry gets the National Geographic magazines (has collected them since the 70's, now you know why we can't fit a car in our garage!) and sometimes they come with maps. Well, there was one on the kitchen table and it had a map of the U.S. also. I opened it up, fairly confident that I knew the States so well, only to realize with surprise that North Carolina is more south than Kentucky! And here I am talking to you about Lynne's accent sounding more Southern, being from Kentucky! DUH! :blink: I am going to have to brush up on my geography!

Hugs!

Karen

Lisa Mentor

Karen:

The cool thing about our accents is that it is dirived by a cross between "old-english" and early American.

I am not a native here, but I have picked up some, after being her for almost 30 years. And, it is very much like the Canadian Maritimers. As in "hoi-toid" (high tide). It still lives on the outer reaches of the outer banks.

On the other note:

I know there are others. Healing is all inclusive, whether is it physical, chemical, mental or emotional.

Sending the grits....

Lisa

Rikki Tikki Explorer

I think all of you are incredible, brave, strong smart and wonderful people and I cherish each of you!

tiredofdoctors Enthusiast

Lisa -- throwing it out there for ANYONE to hear/read/know is hard. You are so brave for doing that. Our family has had its fair share of alcoholic troubles. It would take the fingers and toes of me AND Dave to count the alcoholics in my extended family, I think. My son, Brandon, is an alcoholic. He has been sober now for two years. His two year "birthday" was August 4. It was, is and will be the hardest thing he will ever do in his life -- remaining sober. And not just free from alcohol, but healthy -- not using ANYTHING to mask his pain.

By itself, life is pretty doggoned hard. Add to it this STUPID disease, compound it with so many other factors, and it sometimes seems insurmountable. So, masking how you feel -- either to the world, your family or yourself -- well, sure beats the heck out of reality. Until it rears its ugly head again.

If you ever want to just talk, about anything, please know that I'll be here to listen. No judgement, ever. That, I promise to you.

And, BTW: My accent is much more "hick" than it is Southern, I think!

Love to you,

Lynne

xxxooo

CarlaB Enthusiast

I'm like Karen, I can't drink anything anymore or I'll be sick for days. I look forward to having a drink here and there again sometime, but for the next few months I'm not going to be able to. When we went to visit my grandmother last summer, I had a couple glasses of wine (all I could handle), and truthfully, it was the only time in the past several months that I have felt good. I can see how that would be addicting.

Lynne, everyone in KY has more of a hick accent than a southern accent! :lol: And, it's so funny, because you just drive over the bridge, and everyone has a midwestern accent. I can be in KY in 30 minutes, and no one around here talks like that! I think you should post how you say things phonetically ... that would be a hoot!

tiredofdoctors Enthusiast

Hey Carla -- where do you live? I would LOVE to meet one Saturday . . . it would be FUN! If we can drive 2 hours and then some because I left the instructions at home to see Jen, 30 minutes would be a piece of cake! Canadian cake, which, evidently is in the mail and is the best you've eaten!!

It is true, however, that most of us sound like hicks. Don't understand it. When I was working as a sales rep, the bulk of my accounts were in Cincinnati and Southern Ohio. Had to work hard to "Northern up" my accent because of all the garbage I took about my accent. Unfortunately, because that was in the 80's, I'm back to sounding like a hick. If I spelled it phoenetically (which, many from my state don't understand what that means . . . sorry, but it's true) you guys pronounced "giz" (long I) wouldn't be able to understand me AT ALL!!! Not that I make a heck of a lot of sense ANYWAY . . . .

CarlaB Enthusiast

Lynne, since you're familiar with Southern Ohio ... I live very close to Kings Island. It takes me about 30 minutes to cross the bridge into Covington. I also live about 2 hours from Indy.

If I remember correctly, it takes about 1 1/2 hours to get from Louisville, to Bloomington, IN. It takes about 1 1/4 hours to get from the northside of Indy to Bloomington. I go there every other month to get my hair cut (read - to see Morgan!!!). We could even meet there sometime .... Kate lives there, too, in fact, all you have to do is go into her favorite spot and order "the Kate" and the cook knows what you want!! We could all five meet up there sometime!

But I'm game for meeting you somewhere in the meantime, maybe somewhere in the middle ... but don't know about gluten-free food ... now ... hubby goes to Louisville, it's in his territory, next time he says he's going there, I'll tag along (after I see if you're busy or not).

tiredofdoctors Enthusiast

Me? Busy? You've got to be kidding. I can't drive, not supposed to WALK, and getting a ride from my family? I sit at home on my BUTT all day.

CarlaB Enthusiast
Me? Busy? You've got to be kidding. I can't drive, not supposed to WALK, and getting a ride from my family? I sit at home on my BUTT all day.

Well, then I'll definately tag along next time he's going to Loo-u-vull.

happygirl Collaborator

Lynne,

But you sure are busy sitting on that butt!

xoxo,

Laura

mouse Enthusiast

You luckies living close to each other!! A couple of hours is close in my estimation. Carla you are going to love Lynne and her wonderful accent. I don't think of it as a hick accent, but just neat sounding. And I don't even know what a hick accent is and I have lived in the South.

tiredofdoctors Enthusiast

Thanks, Laura!!!! . . . . .

And, just so EVERYONE can say it correctly . . . it is Lu(a)vuhl -- in the laziest, most diction-free speaking which you can muster.

Actually, if you guys heard the "blackmail" tape my aunt gave my kids of me talking & singing as a child, THEN you would know for sure what a hick accent is!!!!!

VydorScope Proficient

I was just in Lousville this weekend (for Promise Keepers, awsome event btw!)... guess I missed out on any Celiac Forum Hip Meeting Parties :(

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