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Docs! Liver Enzymes High, Not Feeling Well.

chgomom

By chgomom
in Coping with Celiac Disease

Recommended Posts

chgomom Enthusiast
chgomom
Posted

I went to my GP cause my GI can't get me in for a while.

I have had no biopsy yet.

So...Gp tells me my liver enzymes are high, although not int he thousands and that, thats a "whole lotta nothing"

He said all of the things I am feeling, fever, nausea, elevated liver enzymes are all likely related to the Sprue, because sprue can so all that. Yet...he won't check my vitamin levels or help me with anything.

Can you liver enzymes really go outta whack??

Can I get fevers?

nausea...insomnia....

Sheesh....

I have been doing my best....

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lorka150 Collaborator
lorka150
Posted

Hi there,

I am not sure how high your enzymes are - it's a little common, as I was in the same boat and searched this board for answers.

However, mine were ridiculously high and remained that way for about seven months. I don't have a GP, but a combined effort of my GI and internist insisted on a liver biopsy.

My levels were over 800. Slightly elevated, however, seems 'normal' for a celiac.

I also got nausea and insomnia for awile - both have subsided, and now I only get that upon casein or gluten consumption.

chgomom Enthusiast
chgomom
Posted
  • Author

Slightly high is 100

Guest ~jules~
Guest ~jules~
Posted

Mine were high on some labs I did about a week after I was diagnosed. I'm not sure the level though, I was also told it was celiac related.

LKelly8 Rookie
LKelly8
Posted

My mother was diagnosed as a baby and of course back then they routinely told the moms that their babies would "outgrow it" <_< And to let them start eating gluten in a few years.

Long story short, by the time she was in her 30s and "rediagnosed" her liver enzymes were so out of whack the docs insisted on taking a liver biopsy (very scary :unsure: long needle) before her endoscopy biopsy.

(PS - you're not taking Voltaren are you?)

(PPS - It's a common nsaid that can cause liver trouble.)

chgomom Enthusiast
chgomom
Posted
  • Author

NOpe...no meds at this time.

queenofhearts Explorer
queenofhearts
Posted

Liver enzymes were the "last straw" that finally got me checked for Celiac after years of anemia & chronic D. (The anemia was supposedly due to my heavy periods, the D was IBS of course... & I was tested for liver tumors before they thought of Celiac!) After 3 months gluten-free I was just retested, & what do you know, my iron is up & my liver enzymes down-- so I'm pretty sure it was all Celiac related.

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jenvan Collaborator
jenvan
Posted
I went to my GP cause my GI can't get me in for a while.

I have had no biopsy yet.

So...Gp tells me my liver enzymes are high, although not int he thousands and that, thats a "whole lotta nothing"

He said all of the things I am feeling, fever, nausea, elevated liver enzymes are all likely related to the Sprue, because sprue can so all that. Yet...he won't check my vitamin levels or help me with anything.

Can you liver enzymes really go outta whack??

Can I get fevers?

nausea...insomnia....

Sheesh....

I have been doing my best....

High lever enzymes are very common with Celiacs and the vast majority of Celiacs with high enzyme levels find they return to normal after a period of time on the diet. However, what is your fever like? They may be a related issue, but if it is very high I would want to investigate it further.

jcc Rookie
jcc
Posted

Here are a couple references for interpreting lab tests~

Lab Tests Online

Open Original Shared Link

Merck's on high/low results

Open Original Shared Link

I know from experience that abnormal labs are often ignored if "not abnormal enough" or passed off as related to the one condition they know you have, rather than explore the possibility of other co-existing conditions. I guess in your case, the celiac disease is so far just suspected. Have you had any celiac blood testing done yet? Gosh, if you can't get into the GI for a while, and you are feeling this lousy, you might want to ask your GP to run the blood work at least.

Perhaps it is all related to celiac disease. I would certainly want to keep a close on watch on the liver enzymes because if it is all related to the celiac disease, those liver enzyme levels should come back down.

What else have they tested for or ruled out?

Cara

Nancym Enthusiast
Nancym
Posted

Liver problems can definitely cause nausea. Not sure about the fever though.

Chris E Rookie
Chris E
Posted

I have not been diagnosed celiac anc i am still undergoing tests to try and discover the cause for my many symtoms. I suspect celiac because i have many of the GI and neurological symptoms, even though my bloodwork for celiac came back negative. My doctor did notice that my liver enzymes were slightly high with my first lot of blood. could this be down 2 celiac?

Chris

chgomom Enthusiast
chgomom
Posted
  • Author

Positive IGA, TTG and high c3c , c4c, and crp levels, along with high liver enzymes.

I went gluten free from July then the GI doc said add some gluten in som we don't ruin the test.

I did that and after 4 days I was in the hospital...the big d...horrible stomach pain, fever, and the ER doc said..."I'm a doctor....but I also work on common sense, biopsy or not, will you really ever eat gluten after this? I said no, and he said good...on here I am putting one of my instructions to be a gluten free only diet.

jenvan Collaborator
jenvan
Posted
Positive IGA, TTG and high c3c , c4c, and crp levels, along with high liver enzymes.

I went gluten free from July then the GI doc said add some gluten in som we don't ruin the test.

I did that and after 4 days I was in the hospital...the big d...horrible stomach pain, fever, and the ER doc said..."I'm a doctor....but I also work on common sense, biopsy or not, will you really ever eat gluten after this? I said no, and he said good...on here I am putting one of my instructions to be a gluten free only diet.

It can really take a while to start improving with the diet. You'll need to give it more time. You should have follow-up testing after 6 mos to ck your antibodies again and level enzymes. I'd guess that most likely, since you haven't been gluten-free for long, your enzymes will return to normal. However, keep up on these things even if your doctor doesn't suggest it, as we need to be safe rather than sorry...

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