Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting An Upper Gi Xray And A Colonoscopy

mythreesuns

By mythreesuns
in Related Issues & Disorders

Recommended Posts

mythreesuns Contributor
mythreesuns
Posted

He got me questioning myself.....for about 5 minutes! LOL

Anyway, when he pressed down on my abdomen I almost lept off the table because it hurt so bad.

So what do you think I should expect from these tests? I know about the prep :wacko: but I'm wondering what sort of results I could get. Just what could they find?

I'm still having diarrhea on the gluten-free diet...been about 2 mos now. He's looking for colitis and Chrone's.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

Has anything changed on the gluten-free diet? Are you still consuming dairy/casein? I didn't get completely better until eliminating casein as I have the same reaction to it as to gluten.

Have any of your test results indicated celiac at all (sorry, 11k members, I can't remember!)? If you are having no dietary response and no test showed it, then it might just be something else.

mythreesuns Contributor
mythreesuns
Posted
  • Author
Has anything changed on the gluten-free diet? Are you still consuming dairy/casein? I didn't get completely better until eliminating casein as I have the same reaction to it as to gluten.

Have any of your test results indicated celiac at all (sorry, 11k members, I can't remember!)? If you are having no dietary response and no test showed it, then it might just be something else.

Well, I've been off casein since before I went off gluten (see sig... ;) ) so it can't be that. I suspected that soy was giving me trouble so I stopped using soy milk (every morning in my cereal and in my coffee) and a couple of days ago, I suspected I may have been glutened by one of those pre-cooked chickens from Sam's.

As of this date, no test has indicated celiac for me. I'm still waiting for my Enterolab results. Again, see sig... :D If EnteroLab comes up with nothing, I'm gonna be majorly stumped!

I have had some improvement with the diet. First of all, I have NO reflux/ heartburn anymore, and I've been off Prevacid for more than a week now. Previously, I couldn't go 2 days without it. Also, the diarrhea is less severe. I don't have the horrible stomach pains that I used to have, and bloating only comes with suspected milk or gluten contaminations. I'm back to diarrhea every day right now, but it's still not as bad as before. It's more soupy than watery. Sorry for the TMI <_<

jayhawkmom Enthusiast
jayhawkmom
Posted

Granted, this is just my OWN experience.... but when my GI pushed down on my stomach, I had massive pain. When he did the biopsy, he found that my LES is weakened - and believes that is what was causing the pain. That was part of my reflux issues.

Honestly, I was dx with "severe" GERD, but I never get heartburn. Had no idea that I had reflux issues. Perhaps you need to continue taking Prevacid for healing purposes, for a while longer?

Again.... I really have no idea what I'm talking about, other than identifying to my own specific issues. SO, I could be 1000 miles off the mark on that one.

mythreesuns Contributor
mythreesuns
Posted
  • Author
Again.... I really have no idea what I'm talking about, other than identifying to my own specific issues. SO, I could be 1000 miles off the mark on that one.

LOL How's that for a disclaimer? :D

Anyway, where he pushed was on my lower left abdomen, right where he said my decending colon was. He was ok with me not taking the Prevacid if I wasn't having reflux or heartburn.

jayhawkmom Enthusiast
jayhawkmom
Posted

Ohh, ok! I really hope that I can get to that point.

I have no idea how to know if it's better, since I don't seem to have (or notice) the issues. Hmmm.

CarlaB Enthusiast
CarlaB
Posted

Kris, sorry, I don't know other than to wait for Enterolab and to see what your doc finds. I seem to be at the bottom of my own problems ... gluten, casein, and adrenal fatigue. One of the symptoms of adrenal fatigue is diarrhea, so you can google it and see if it may be a problem.

It could be that (according to your sig ;) ) you've only been truly gluten-free for a few days. Give it some time. Many people need at least a few months.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
He got me questioning myself.....for about 5 minutes! LOL

Anyway, when he pressed down on my abdomen I almost lept off the table because it hurt so bad.

So what do you think I should expect from these tests? I know about the prep :wacko: but I'm wondering what sort of results I could get. Just what could they find?

I'm still having diarrhea on the gluten-free diet...been about 2 mos now. He's looking for colitis and Chrone's.

I think the tests are a good idea but I would ask if he could do an endoscopy at the same time he does the colonoscopy. That way he can do some biopsies for celiac while he is in there. As far as what they may find there is no telling. I was extrememly ill when they did my colo and all they found was divericuli, lots of them. They couldn't understand why I almost burst into tears from a good result. <_< Of course they also thought I was exagerating when I said I was up for at least 3 agonizing hours every night. They should be taking biopsies to look for colitis and for the Chrones and they will also be looking for any signs of inflammation and polyps or structural changes or abnormalities. A bit of a warning about the upper GI, not all barium is gluten free so make sure you stress that they check.

Hopefully by the time you have the tests you will have heard back from Enterolab and at least have a start on some answers.

I hope you start to feel better soon.

AndreaB Contributor
AndreaB
Posted

Toni,

I don't have anything to add. Please keep us posted on both enterolab and your other tests.

jayhawkmom Enthusiast
jayhawkmom
Posted
Kris, sorry, I don't know other than to wait for Enterolab and to see what your doc finds. I seem to be at the bottom of my own problems ... gluten, casein, and adrenal fatigue. One of the symptoms of adrenal fatigue is diarrhea, so you can google it and see if it may be a problem.

It could be that (according to your sig ;) ) you've only been truly gluten-free for a few days. Give it some time. Many people need at least a few months.

Yep. I went back and forth... in a state of denial I guess. However, since attending the Celiac Conference in Stanford... I've been 100% gluten-free, to the best of my ability.

I definitely feel MUCH better gluten free.... my issue is reflux more than anything. I'm taking Prevacid, as my GI noted "severe" GERD. However, I never have heartburn or any classic reflux symptoms. I'm wondering how long I'll have to take the Prevacid. Since I have no symptoms, I have no way of knowing if I'm better.

Sorry I wasn't clear with my actual response there!!! =)

mythreesuns Contributor
mythreesuns
Posted
  • Author
I think the tests are a good idea but I would ask if he could do an endoscopy at the same time he does the colonoscopy.

I've already had the endoscopy (doesn't anyone read the signatures?! LOL) and the biopsies for celiac were negative. He's not even doing them for the colonoscopy because he's positive I don't have it. <_<

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,684
    • Most Online (within 30 mins)
      7,748
    Melanie B
    Newest Member
    Melanie B
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By trents · Posted

      Thanks for the additional information. I was thinking of asking you if your daughter was taking methylated vitamins since she has the MTHFR gene but you beat me to it. To answer the question you posed in your original post, as I explained, celiac disease does not damage the colon but the lining of the small bowel. If the damage is pronounced enough and the doc doing it is experienced, yes, the damage done to the lining of the small bowel can be spotted with the naked eye.
    • cameo674
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By cameo674 · Posted

      I could not locate the correct Gary Brecka video where he explains the methylation process and specifically states things about how people with the MTRR homozygous gene mutation are known to suffer from heartburn due to a weakened valve/sphincter where the esophagus and the stomach connect.  My brother had the youtube video sent to him from 10x health which is probably why I cannot locate it.     I will have read up on mast cell activation.  I do not know anything about it.  Tums is my preferred gerd treatment.  I always figured a little extra calcium could not hurt me.  
    • cameo674
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By cameo674 · Posted

      Trents: Due to a genetic mutation, my daughter has inherited from both parents she cannot process the Folic Acid provided in the fortified American grains.   An MD told her to avoid eating fortified grains.   My daughter makes the assumption that unless she makes the food item, that the baker used a fortified grain so she has been limiting her gluten intake since 2020.   Her Psychiatrist was who tested her for MTHFR gene issue because she suffers from depression and severe anxiety. The Psychatrist also instructed my daughter to supplement with a methylated version of folate once she knew my daughter was homozygous, because the methylated version bypasses the mutated gene step so her body can absorb it.  Low folate absorption impacts serotonin and dopamine production.  My husband and I also both have two other homozygous gene mutations that interfere with vitamin absorption: MTRR and VDR taq.  The first interferes with B-12 absorption which requires us to take a methylated B-12 vitamin and the second with Vitamin D absorption so we have to take higher doses to stay within normal levels.   My brother, who has the exact same gene mutations, went through 10x health genetic testing for vitamin supplements (paid by his employer) and received a huge report saying the same things about which types of supplements had to be taken.  Gary Brecka does videos on how these gene mutations impact the vitamin absorption pathways.       If my brother had not gotten his testing through work, he would never would have started his supplement journey.  His testing is what triggered my getting functional health testing that tested similar biomarkers to his.  Again the celiac testing was an add-on test that I did off the cuff.  
    • trents
      Colonoscopy with large are of inflammation

      By trents · Posted

      Welcome to the forum, @growlinhard1! If eliminating gluten from your diet makes significant improvement in your symptoms then there are two possibilities. Either you have celiac disease (aka, gluten intolerance) or NCGS (Non Celiac Gluten Sensitivity, aka, gluten sensitivity). The difference is that celiac disease is an autoimmune disorder that creates inflammation and, over time, damages the lining of the small bowel which inhibits nutrient absorption whereas NCGS does not damage the lining of the small bowel. They share many of the same symptoms. At the end of the day, the antidote for both is to abstain from foods that contain wheat, barley or rye, the three gluten-containing grains. Some countries supply stipends and healthcare benefits for those with an official celiac diagnosis. If you live in the USA that does not apply. The main reasons for seeking an official celiac diagnosis are psychological and social. Many people have a hard time not falling off the gluten free bandwagon without an official diagnosis. They find it easy to rationalize it all away as being temporary or due to something else. When you have an official diagnosis, you tend to take gluten-free eating more seriously. Socially, family and friends are more likely to respect and attempt to comply with your need to eat gluten free if you have an official diagnosis of celiac disease. Your physician is more likely to take you seriously as well if you have an official diagnosis because there are typically other health problems that are spinoffs which develop from celiac disease in time. One autoimmune disease invites others. There are no tests for NCGS. Celiac disease must first be ruled out. We do have specific tests for celiac disease. By the way, some experts believe that NCGS can transition into celiac disease. If your endoscopy/biopsy is only a month away, I would encourage you to stick it out and go back on gluten to get an official diagnosis. You still have time to get a valid test result if you start back on gluten now, 10g of gluten daily which is about the amount found in 4-6 slices of wheat bread.
    • BoiseNic
      dermatitis herpetiformis outbreaks while on strict gluten-free diet

      By BoiseNic · Posted

      I have the same problem. No matter what I eat, I seem to get a break out every 1 to 2 months. I do not do oats, citrus fruits, apples, onions and other foods also, as those cause reactions. The only time I have zero problems is when I fast. The only staple grain I have is quinoa, as that doesn't seem to cause me issues. I have linked mine to a microbiome imbalance. I am currently on month 3 of Skinesa. It's supposed to take 3 months before seeing results. I guess we'll see.
×
×
  • Create New...