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- cristiana replied to Beck1430's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4Reaction to gluten or gastro bug?
Hi @Beck1430 You are very welcome. I am looking at your spelling of coeliac disease and see you spell it the English way. If you are British, like me, perhaps you could update us if you are successful in getting genetic testing. It seems more commonplace in the US. I have been a diagnosed coeliac since 2013 I have not yet met anyone with coeliac... -
- trents replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1Conflicting results
Welcome to the forum, @Jy11! The way you have posted his blood antibody test results is very confusing. TTg and IgA are not two different tests. These abbreviations should be combined into one expression: TTg-IgA. You seem to have listed the same test twice in 1. and 2. but with different results. Is the way you have posted the results exactly... -
- breadbreadbaby replied to breadbreadbaby's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4Test Results
Hi everyone! Thanks so much for your feedback on my post. Here’s the updated information: IgA 0.98 (Range 0.80 - 4.90) Tissue transglutaminase IgA Ab 45.4 (<=14.99 U/mL, Positive >=15.0 U/mL) -
- Eric.C posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease0Stagnating recovery
Hi I got my diagnosis about 3 months ago and has been gluten-free since that. In the beginning I started to feel better right after just a few weeks with things like joint pain disappearing, more energy and improved bowel movements. However, it seems like my recovery has sort of stagnated and my stomach has begun feeling worse as of lately. I find it... -
- Lucille Cholerton commented on Scott Adams's article in Refractory Celiac Disease & Collagenous Sprue1A New Study Focuses on Understanding Non-Responsive Celiac Disease
Thank you for this very informative article. However, I believe that oats is a major contributor to non-responsive gluten sensitivity or celiac disease. Even the so-called "gluten free oats" is a problem. It is not 100% gluten free. About 10 years ago 3 major supermarkets in UK used a new machine to measure gluten in their oats-containing health foods. Those...- celiac disease
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Welcome to the forum, @Jy11! The way you have posted his blood antibody test results is very confusing. TTg and IgA are not two different tests. These abbreviations should be combined into one expression: TTg-IgA. You seem to have listed the same test twice in 1. and 2. but with different results. Is the way you have posted the results exactly as they appear on the printout you were given? I cannot make heads or tales of the data you supply the way you have posted it. But let me say this. At the very minimum, there are two blood tests that should be run when checking for celiac disease: 1. total IGA and 2. tTG-IGA. The total IGA test looks for IGA deficiency. If a person is IGA deficient, then individual IGA tests scores will be artificially low and can result in false negatives. The most popular individual IGA celiac disease test ordered by physicians is the tTG-IGA. The EMA test is an older test that is not often ordered anymore and has largely been replaced by the tTG-IGA. The EMA test is expensive to conduct. However, if the EMA is positive, it is a highly accurate test and strongly suggests that the person does have celiac disease. To summarize: 1. a physician should always check for IGA deficiency. 2. tTG-IGA test results are expressed in terms of being "normal" or "high" but not "deficient". 3. EMA test results are expressed in terms of being "negative" or "positive". Here is an overview of celiac disease antibody testing: -
By breadbreadbaby · Posted
Hi everyone! Thanks so much for your feedback on my post. Here’s the updated information: IgA 0.98 (Range 0.80 - 4.90) Tissue transglutaminase IgA Ab 45.4 (<=14.99 U/mL, Positive >=15.0 U/mL) -
Hi I got my diagnosis about 3 months ago and has been gluten-free since that. In the beginning I started to feel better right after just a few weeks with things like joint pain disappearing, more energy and improved bowel movements. However, it seems like my recovery has sort of stagnated and my stomach has begun feeling worse as of lately. I find it very strange because I haven't really changed much from when I first got my diagnosis and I'm very careful with what I eat and CC. Is it normal for symtoms to come back or what experiences do you have? And how long did it take you from going gluten-free to having normal bowel movements regularly?
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My 7yo has been complaining of tummy aches for some months. Bloods show very low iron and vitamin D. We have had multiple bloods as follows… 1. TTg 0.3 (normal) IgA deficient 2. TTg 6.6 (cut off is 7) IgA 0.54 (cut off is 0.5 so only just over not being deficient) 3. TTg 3 (cut off 7) EMA Positive We are awaiting biopsy but why are the blood results so conflicting? Is it likely he is coeliac? We have strong family history with dad having coeliac plus other relative. Can positive EMA be caused by anything other that coeliac disease? It has been bought up the EMA could be from other inflammation but I can’t find any studies that say this? thank you.
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Chronic mildly elevated liver enzymes was what eventually led to my celiac diagnosis but it took thirteen years to ferret that out and by that time I had developed osteopenia. Yes, you've got a lot going on there in the way of autoimmune disorders and all of them we now know have a connection with celiac disease. It is true that autoimmune disorders tend to cluster. But it sounds like you are getting medical attention and keeping an eye on things.
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