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Baby Has Reflux, Need Some Help!


taweavmo3

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taweavmo3 Enthusiast

I know this isn't totally about celiac, but I know alot of you have had reflux babies. So I'm hoping to get some help!

Right now Lucy has been on reflux meds since she was two weeks old (born 7/18/06). We are now on Prevacid, which has helped some. I am breastfeeding, and I am gluten free and dairy free, but not casein free. I have tried giving her formula, since breastfeeding is still a challenge for us, but she can't tolerate anything we've tried so far. She can't tolerate milk or soy, so we are now trying Nutramigen. But she won't drink it! She detests the taste of it. Today, I diluted it with 1 oz Nutr. and 3 oz of breastmilk. She still wouldn't drink it.

I am willing to keep up pumping since bm is the only thing she seems to tolerate, but I need something to give her if I don't have enough milk stored. My supply has never been the greatest, so I don't have alot of extra milk to spare. I have never heard of a baby refusing this formula....I know it smells pretty bad, but I figured if she was hungry enough she would drink it.

I'm just at my wits end here. She is 10 weeks old now, and I was really hoping to be on some sort of schedule by now. She only catnaps, she still has screaming bouts, and at night she screams non stop for an hour or two. How did you all cope??? Any tips for dealing with reflux babies, other that leaving the room and letting her scream?? Lol.....dh thinks I'm terrible for doing this, but he doesn't understand that it is the only way I can regain some sanity! Thanks in advance for any advice you may have!


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azmom3 Contributor

Don't feel bad about leaving the room. My son screamed around the clock and never slept more than an hour at a time (if we were lucky)...it was basically catnaps 24/7. I used to put him in his crib/bassinet/playpen and go to my room, shut the door, and take 10 really deep breaths, then go back to face him again, try to calm him for a few minutes or as long as I felt I could handle, then back to my room again. I would hand him to my husband as he walked in the door from work, while I was crying. It is very challenging and you feel sad that you can't help them sometimes, but you need to take that time for yourself to be able to give to him what he needs. It doesn't help when we're stressed and crying when we're taking care of them as they sense this and can get even worse. Hang in there. HOpefully, you will get some good suggestions, and hopefully, you will find some relief soon.

hannahsue01 Enthusiast

I am sorry to say I don't have much advise for you. I would make sure you stick to a gluten free diet while breast feeding......luckly it sounds like she is taking that ok. I know where your coming from though. We have a daughter on previcid and have had many feeding issues since she came home. She used to arch her back and refuse to eat but the previcid seemed to elimanate that. She was 3 months premature and has been feed at least some food through a tube since she was born. Now she has surgicly had a tube placed in her tummy as she at 10 months old only takes 1-8 oz a day on her own. Once she started to increase the amount of breast milk she would take a was not able to keep up....my body wouldn't produce enough milk no matter how much or often I pumped. She does ok on regular formula though. Regardless of how cruel your hubby may think it is to let your baby cry don't feel bad for doing it.....I have never heard of a baby being harmed from crying. Sometimes you have to leave the room to keep your own sanity and to make sure you don't crack and do anything. Is she seeing a GI specialist....if not you may want to look into it. I wish you and your baby luck in getting this figured out.

Michi8 Contributor
I know this isn't totally about celiac, but I know alot of you have had reflux babies. So I'm hoping to get some help!

Right now Lucy has been on reflux meds since she was two weeks old (born 7/18/06). We are now on Prevacid, which has helped some. I am breastfeeding, and I am gluten free and dairy free, but not casein free. I have tried giving her formula, since breastfeeding is still a challenge for us, but she can't tolerate anything we've tried so far. She can't tolerate milk or soy, so we are now trying Nutramigen. But she won't drink it! She detests the taste of it. Today, I diluted it with 1 oz Nutr. and 3 oz of breastmilk. She still wouldn't drink it.

I am willing to keep up pumping since bm is the only thing she seems to tolerate, but I need something to give her if I don't have enough milk stored. My supply has never been the greatest, so I don't have alot of extra milk to spare. I have never heard of a baby refusing this formula....I know it smells pretty bad, but I figured if she was hungry enough she would drink it.

I'm just at my wits end here. She is 10 weeks old now, and I was really hoping to be on some sort of schedule by now. She only catnaps, she still has screaming bouts, and at night she screams non stop for an hour or two. How did you all cope??? Any tips for dealing with reflux babies, other that leaving the room and letting her scream?? Lol.....dh thinks I'm terrible for doing this, but he doesn't understand that it is the only way I can regain some sanity! Thanks in advance for any advice you may have!

Keep it up with the breastfeeding...it takes a baby about 3 months for Mom & baby to really get into the groove of breastfeeding, and it takes baby that long to settle into life "on the outside." I know its a long haul, but the benefits are worth it.

In terms of the reflux, I'd recommend also eliminating casein, caffeine, potential allergens (such as peanut) and any gassy foods from your diet. Drinking fennel seed tea (just steep some fennel seed...you can steep it along with an herbal tea if you like) can help settle baby's tummy as well as your own. I liked to steep the fennel seeds with camomile, and keep a jug of it cold in the fridge. You can try boosting your breastmilk production with herbs...there are breastfeeding teas available if you are interested. Otherwise something like blessed thistle, marshmallow root and also fennel seed! will help with production. Stay away from sage and parsley as it will diminish your supply and encourage the milk to dry up. Garlic in your diet may help boost production as well, and the taste may encourage baby to nurse more.

Otherwise, hang in there. I know that dealing with constant spit up/reflux is stressful, as is a baby who is uncomfortable. Try a variety of holds to ease the tummy. Also try using a sling for carrying baby (try carrying through a nap, or to start a nap and then set her down)...the movement and position can be very soothing. I would not worry about a schedule for such a young baby. Every baby is different...my youngest, as long as she was breastfeeding (for 2 years!), never slept through the night...she'd nurse every two hours...but she slept with me so it disturbed my sleep as little as possible. It was tough on me, but I know that she benefitted greatly.

Finally, I found that all three of my kids outgrew the projectile spit up eventually...seemed to coincide with reaching the 20lb mark. My eldest stopped spitting up when he was 6 months, my middle child when he was 9-10 months, and my daughter when she was around 6-7 months.

Michelle

Fiddle-Faddle Community Regular

Hi, welcome aboard!

My third had reflux, too. If you can keep up with the breastfeeding, it does make a huge difference (you've already found out that she tolerates it best). It can be awfully tough, I know, and sometimes the lactation consultants can be lacking in understanding while you feel like there isnothing else in your life but baby screams and engorged breasts!

What helped me:

For the reflux: feed twice as often and half as much. I know, you already feel like you are nursing or pumping nonstop. But it does work. If you feed on one side for as long as the baby wants (maybe with a burp halfway through but don't switch sides), the baby gets more of the hindmilk, which does seem to stay down better. They also get less total volume at one feeding, so if they do upchuck, it's not quite asmuch, and you have another breast full of milk waiting in the wings, so to speak.

Be prepared to nurse every hour during the day--but this will spread out as baby gets bigger! Your daughter is 10 weeks? Usually there is a HUGE growth spurt at around 12 weeks, where the baby will nurse basically non-stop for a day or two, and then taper off as you make more milk (the "marathon nursing" is what makes you produce more milk).

Keep baby upright, preferably in a front-pak or a sling (the Over-the-Shoulder-Baby-Holder and The Baby Sling by NoJo are good). This also keeps the baby MUCH MUCH MUCH calmer, and the baby will probably scream MUCH MUCH MUCH less. The more you wear them, the less they cry.

Sleep with the baby if you can stand it. I ended up sleeping with my babies either on top of me (with a bed rail on the side of the bed so they wouldn't roll off and so my husband couldn't roll on them) or propped on my arm between me and the bedrail. If you can't stand it--don't do it. If Mama ain't happy, ain't NOBODY happy.

My second screamed his head off for a year if we EVER put him down by himself. This magically and mysteriously ended suddenly when he was 1. Sometimes, they just need what they need ( a warm body and a heartbeat), and you can't train them not to need it!

You may need to temporarily modify your diet. Wheat in your diet just might be setting her off, or milk. With my son, it was Mexican food. I have no idea why. However, today he is the only member of our family who LIKES Mexican food. Go figure. :rolleyes:

Hang in there! IT GETS BETTER. REALLY.

Don't be afraid to PM if you think I can help! Good luck, and keep us posted!

Edit: sorry, I see you're already gluten free and casein free. Oh, well.

chrissy Collaborator

is your baby on a high enough dose of prevacid? babies metabolize the medication faster than adults, so they are finding they need higher doses than was previously thought.

i hate to tell you this, but crying only aggravates the reflux and makes it worse. we did whay we could to keep sylvia from crying. my baby's reflux was bad enough that she required surgery---but most reflux babies don't need that done. i know this goes against conventional wisdom----but a reflux baby does better sleeping on their tummy. i can find you a link to the ammerican college of ped recommendations that says this.

your baby sounds like she is definitely still in pain. i also would suggest you see a ped gi.

crittermom Enthusiast

OH DO I HAVE HELP FOR YOU!!!!!! A little history first....I was in your place about 1.5 year. My son is 19 months and just weaned from the breast 2 weeks ago. He is on 30 mg prevacid split 2 times per day. You said that you took dairy and gluten from your diet, how about soy. It wasn't until I took everything out, if it had soy written on the ingredients in ANY form, it was out. This finally helped him feel better. Also, for the sleeping thing, do you have him in a tucker sling wedge or any kind of elevation? I put Michael on a wedge bought at onestepahead.com and a side wedge bought at target. I then rolled a blanket in a U under his butt to keep him there. It worked wonders, he slept sooooo much better. Also, try baby wearing, I can't reccomend it enough, it is the only way I got anything done in the beginning.

Anyway here is my big help..... www.infantreflux.org/forum

It is much the same as this except it deals only with reflux issues. There are wonderful women there who will have endless amounts of suggestions and advice for you. It is the only place anyone understood and could help. It saved me! I hope they can help you as well!


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hannahsue01 Enthusiast

Someone asked if your baby is on a high enough dose of previcid.....I thought I would add that our daughter was increased to 3x the usuall dosage before she quit arching her back and screaming. They also recamended keeping her in an upright position and making sure that when she eats she is sitting up as much as possible. There were some nights that she ended up sleeping in her swing because she couldn't seem to stand to be laying down....but we tried not to make that a habit. Another thing she seemed to like was falling asleep in a front carrier.....like someone else mentioned I think they like the close contact and the sound of mommys heartbeat.

Guest nini

MYLICON DROPS... really, these helped when nothing else would.. (well she was also taking Zantac and Reglan too)... I had a problem where my milk was very very thin, I tried supplimenting her with formula but she projectile vomited them all up... I also agree baby wearing and sleeping with baby were life savers to me. For the first several months of my daughter's life I slept sitting in a recliner section of the couch with her either on me or in a carrier right next to me (portable bassinet)... didn't make for very sound sleeping but she absolutely wouldn't sleep if I laid her down... she screamed constantly. Screaming and crying aggravates the reflux and makes it worse so do what you can to minimize it, BUT it is perfectly ok to set the baby down in her crib and go lock yourself in the bathroom for a few minutes to regain your sanity.

I sympathise with you I really do, I wish I had more suggestions for you, but this is all I've got to offer.

Fiddle-Faddle Community Regular
I had a problem where my milk was very very thin,

That's where the feeding on one side only really helps, especially if you have a hyperactive let-down (there really is such a thing!). Bascially, that's when your letdown is so strong, it chokes the baby--and it also meants that the baby is getting much more of the thin stuff if they nurse both sides at every feeding (and you might see green diarrhea in the baby's diaper with this, too).

I was able to minimize the meds my daughter was getting this way (she got Zantac through my milk because I was on it, but we didn't have to give her anything else).

The downside: I felt like I was constantly nursing her (MOO?), and she still spit up a couple of feedings a day.

The upside: She rarely cried, she gained well, slept well as long as I held her (as long as she slept well, I couldn't care less where, as long as I could sleep, too!), and no foamy green diarrhea in her diapers--just nice mustardy yellow stools that barely smelled.

We called her the Velcro Baby. In the first 5 months, I don't think she was ever on any surface instead of on us except when we changed her diaper (we gave up on the changing table after the first baby, a towel on the floor was SO much easier!)

crittermom Enthusiast
That's where the feeding on one side only really helps, especially if you have a hyperactive let-down (there really is such a thing!). Bascially, that's when your letdown is so strong, it chokes the baby--and it also meants that the baby is getting much more of the thin stuff if they nurse both sides at every feeding (and you might see green diarrhea in the baby's diaper with this, too).

I was able to minimize the meds my daughter was getting this way (she got Zantac through my milk because I was on it, but we didn't have to give her anything else).

The downside: I felt like I was constantly nursing her (MOO?), and she still spit up a couple of feedings a day.

The upside: She rarely cried, she gained well, slept well as long as I held her (as long as she slept well, I couldn't care less where, as long as I could sleep, too!), and no foamy green diarrhea in her diapers--just nice mustardy yellow stools that barely smelled.

We called her the Velcro Baby. In the first 5 months, I don't think she was ever on any surface instead of on us except when we changed her diaper (we gave up on the changing table after the first baby, a towel on the floor was SO much easier!)

Oh yes, hyperactive letdown, now that is fun stuff right there! ;) Another trick for this is to nurse your baby with the baby up from the breast or laying on top of the breast with you in a reclined position. This causes the forceful letdown to have to fight gravity and also if the baby is on top of a reclined breast the extra milk will "pool" around the breast inside the baby's mouth and they can drink as needed. I used this method, I also would detach Michael at the moment of letdown, let it spray into a burp cloth and once the pressure reduced and it wasn't spraying anymore I would latch him back on. This prevented Michael from gulping and getting to much air on top of everything else.

Also Mylanta Cherry Supreme is a wonderful thing. I would give Michael 1-2 teaspoons of Mylanta (per directions from the ped gi) when he was refluxing and it would calm him immediately!

There is another website www.marcikids.com or the Midwest Acid Reflux Childrens Institue. They have the proper mathmatical equations for medicine dosing based on weight. I highly recommend this site as well.

Feel free to PM me if you would like to hear more about Michael and how we got through the last 20 months! :)

TCA Contributor

I have a daughter with severe reflux. One good place for info is Open Original Shared Link

This is also a great community of people. My daughter had the fundoplication done and it was a horrible experience for her. Chrissy and others have had good experiences, though. Just explore all your options if they bring this up as a possibility. My daughter has a LOT of other issues too, though, so that may have contributed.

When I first started eliminating things, I eliminated all of the 8 major allergens, plus gluten. I then added things back one at a time every 1-2 weeks until it was obvious what was helping. Sometimes this feels impossible, but you might check into The Elimiation Diet - TED. good luck with everything. This is a battle we're still fighting at 17 mos. My daughter has a feeding tube to her intestine to bypass her stomach altogether, but she's also had 2 heart surgeries, so don't think that is all due to reflux, though it was a major reason.

I pumped for 17 mos and just recently stopped after she had her 2nd heart surgery and was finally able to tolerate Neocate 1+. She still isn't able to eat, but we're working on that. Neocate is an amino acid based formula, but it tastes terrible. It might be worth trying, though. I hope things improve soon!

As for the sleeping, we finally put our son in bed with us to get him to sleep. He could "snack" during the night to settle his tummy and I got some much needed rest. It worked for us, but doesn't for everyone. I'm a very light sleeper, so I wasn't worried about rolling over on him or anything. I woke up if he sighed, but it helped us both get some much needed rest. I hope you can get some soon!

Hugs!

Michi8 Contributor
Oh yes, hyperactive letdown, now that is fun stuff right there! ;) Another trick for this is to nurse your baby with the baby up from the breast or laying on top of the breast with you in a reclined position. This causes the forceful letdown to have to fight gravity and also if the baby is on top of a reclined breast the extra milk will "pool" around the breast inside the baby's mouth and they can drink as needed. I used this method, I also would detach Michael at the moment of letdown, let it spray into a burp cloth and once the pressure reduced and it wasn't spraying anymore I would latch him back on. This prevented Michael from gulping and getting to much air on top of everything else.

Also Mylanta Cherry Supreme is a wonderful thing. I would give Michael 1-2 teaspoons of Mylanta (per directions from the ped gi) when he was refluxing and it would calm him immediately!

There is another website www.marcikids.com or the Midwest Acid Reflux Childrens Institue. They have the proper mathmatical equations for medicine dosing based on weight. I highly recommend this site as well.

Feel free to PM me if you would like to hear more about Michael and how we got through the last 20 months! :)

Yes, hyperactive letdown is a challenge. :) I always seemed to produce way too much all at once. Took my kids a while to figure out how to deal with it...turns out they had to adjust their latch to control the flow. The lacation consultant commented on the "poor latch" when my daughter was born, but it was obvious it was a way of coping with the milk...made nursing uncomfortable for the first couple of weeks (ouch!) but all worked out fine over time.

Laying down in bed to breastfeed seems to help too. My kids had much less trouble with spitting up when we breastfed that way. I could get a nap in at that time too. :)

Michelle

shan1523 Rookie

Hi,

I have a daughter going through the same thing, she is 11 weeks tomorrow...and she too is on prevacid, but is on 7.5mg 3x a day...she needed it upped after a few weeks of 7.5mg 2x/day (the 15mg solutab cut in half) she has been on it since 2.5 weeks old (zantac did nothing) mylicon drops actually made it worse for her, but I have heard that works wonders for other kids.-she is also on nutramigen as she was 3 weeks early and a c-section so I had supply issues from the start (my milk didnt come in till day 6 and she was already down over 15% of her body weight) Her issues started from day one...if you were holding her she was fine, the minute she was laying flat, screaming non-stop....only this week has she been able to "play on her back for a few minutes"

I agree with the babywearing--it saved my sanity, and still does....also she only sleeps in a her carseat, in her swing or on me...the wedges dont seem to elevate her enough...she has slept on her tummy, but only short bits, she sleeps best in her carseat....sad I know, but hey if it works.

THe other thing is the timinig of prevacid...its best on an empty stomach and then followed by eating a half an hour later...total pain in the a@@ but when I do that it seems to help the most...

good luck!

Shannon

Noah 2yr old celiac

Audrey 11 weeks reflux/GERD

Michi8 Contributor
Hi,

I have a daughter going through the same thing, she is 11 weeks tomorrow...and she too is on prevacid, but is on 7.5mg 3x a day...she needed it upped after a few weeks of 7.5mg 2x/day (the 15mg solutab cut in half) she has been on it since 2.5 weeks old (zantac did nothing) mylicon drops actually made it worse for her, but I have heard that works wonders for other kids.-she is also on nutramigen as she was 3 weeks early and a c-section so I had supply issues from the start (my milk didnt come in till day 6 and she was already down over 15% of her body weight) Her issues started from day one...if you were holding her she was fine, the minute she was laying flat, screaming non-stop....only this week has she been able to "play on her back for a few minutes"

I agree with the babywearing--it saved my sanity, and still does....also she only sleeps in a her carseat, in her swing or on me...the wedges dont seem to elevate her enough...she has slept on her tummy, but only short bits, she sleeps best in her carseat....sad I know, but hey if it works.

THe other thing is the timinig of prevacid...its best on an empty stomach and then followed by eating a half an hour later...total pain in the a@@ but when I do that it seems to help the most...

good luck!

Shannon

Noah 2yr old celiac

Audrey 11 weeks reflux/GERD

Do be careful with sleeping too often in the carseat or swing, it is not good for a developing body/spine to be in the same position all the time (plus babies get so used to sleeping in a seat that they have difficulty sleeping anywhere else.) Sleeping in a sling is better as it mimicks the position in the womb. But just like adults, babies do need some freedom to move in their sleep too.

Michelle

KayJay Enthusiast

Your story sounds just like mine did. Sorry if I repeat something I didn't have a chance to read it all.

I put a pillow under mattress to help elevate Maddie at night it worked wonders. She was on a med. that starts with a "A" and I can't think of it but it was great also.

Other than that I can just tell you that it does get better. Maddie quit spitting up a ton around 10 months or so and now hardly spits up at all. She was also intolerant to dairy and soy and has gotten over that so maybe that gives you some home.

Hang in there :)

shan1523 Rookie

She does sleep in a sling during the day some...but I also have a two year old, so I have some one on one time with him

My ped said the carseat at night is fine, she has room to wiggle and what not...she sleeps more free than my 2 year old who was swaddled for 8 months...and tightly at that, and besides celiac is developing fine...She cant sleep in a crib/bassinette, and often does sleep on me, but some nights I need to sleep deeper to "catch up"...so since my ped said it was fine, and we are all getting sleep and she has plenty of wiggle time during the day Im not too worried.

before the carseat she woke up every 40 minutes screaming, now she sleeps 4 hour strectches.....I think she must be comfortable.

Shannon

taweavmo3 Enthusiast

Thanks everyone, you all had great ideas as usual! We had a horrible day yesterday, so I'm going to call the ped again today and see if we can up her meds to 15mg a day. I had to hold her upright for 5 hours last night, and dh was not here to help. She wouldn't go in the swing, the bouncy seat, or the baby carrier. I am so beat today! As soon as I would try to cradle her to go to sleep, she would start gulping like crazy, then arching her back.

We think Lucy has silent reflux...her throat was red at her last checkup, but she never spits up. She just gulps like crazy, has had brief apnea spells, and then of course, the screaming. I think the Prevacid is helping a bit, since she has finally started taking a daily nap...but nights are miserable. I'll try eliminating more from my diet too, and stick with breastfeeding. I just need a formula that she'll tolerate on the days I'm gone and I don't have enough milk frozen for back up.

Thanks for letting me vent, and for sharing info. Hopefully we'll get this baby girl sorted out soon!

Fiddle-Faddle Community Regular

Hope things get better for you--sounds very frustrating.

I couldn't cradle mine to go to sleep for what seemed like forever--I think that ends up being a bad position for reflux?. They would either nurse to sleep, or fall asleepin the frontpak or sling. If it was the frontpak, I would just lie down (propped up on pillows) with them in it and go to sleep,too! I eventually learned how to take the sling off without taking the baby off, and would go to sleep that way, too.

I know they say never to put the baby on his tummy, but putting the baby on his tummy on top of me was the only way we got ANY sleep.

Sometimes the rules gotta change when you're dealing with a reflux baby.

Michi8 Contributor
I know they say never to put the baby on his tummy, but putting the baby on his tummy on top of me was the only way we got ANY sleep.

Sometimes the rules gotta change when you're dealing with a reflux baby.

I would think tummy sleeping on mom would be a fine exeption to the rule, because you're right there to help if baby has issues. Besides, sleeping with mom helps to regulate baby's breathing and heart rate...makes a big difference for preventing SIDS.

Michelle :)

NoGluGirl Contributor
Thanks everyone, you all had great ideas as usual! We had a horrible day yesterday, so I'm going to call the ped again today and see if we can up her meds to 15mg a day. I had to hold her upright for 5 hours last night, and dh was not here to help. She wouldn't go in the swing, the bouncy seat, or the baby carrier. I am so beat today! As soon as I would try to cradle her to go to sleep, she would start gulping like crazy, then arching her back.

We think Lucy has silent reflux...her throat was red at her last checkup, but she never spits up. She just gulps like crazy, has had brief apnea spells, and then of course, the screaming. I think the Prevacid is helping a bit, since she has finally started taking a daily nap...but nights are miserable. I'll try eliminating more from my diet too, and stick with breastfeeding. I just need a formula that she'll tolerate on the days I'm gone and I don't have enough milk frozen for back up.

Thanks for letting me vent, and for sharing info. Hopefully we'll get this baby girl sorted out soon!

Dear taweavmo3,

It might help to play some soothing music, too. Babies hate high-pitched sounds. They are very sensitive to sight, sound, and touch. Playing some Enya could really help. "Only Time" is the best one I can recommend. It could help you relax, too!

Sincerely,

NoGluGirl

Guest tracey and emma

Hi i only pop in every so often but saw your post, my daughter has a server gastric reflux and so did my son. My daughter had a fundoplication 2 years ago and i know how hard reflux can be.

I started up with a friend a new support group for this, it was originally founded by a grand parent years ago but i have just spent the last 3 mths moving and re-writing it.

please come and join us you are more than welcome we have only been on line with the new site since June.

we link to this site as it is so fantastic and celiacs and intolerance's seem to go hand in hand.

here is the address link:

Open Original Shared Link

reflux is really hard but it looks like you have a pretty good bunch here :D . Apneas are not easy and neather is the gulping and screaming, i remeber it well.

Just a quick note it used to be advised that babies with reflux should sleep on there front, and this was one of only a few conditions that babies sleeping on there backs was advised against. but in the last year or so recent tests and studies have now said that it is safer for babies with reflux to be on there back and that the risk of SIDS is far greater if they are on on there front. but like the others have said that's all very well on paper.

take care

tracey

AmyTopolski Apprentice

Hi,

I'm not much help on the feeding issue. All I can say on that is that my daughter who is 16 months old now has had reflux since day one. It is a big challenge! We tried a lot of formulas that didn't work. We never tried the Nutramagine but we did try Allimentum. (not sure on the spelling) The other thing our doctor did (which you might want to talk to them about) is adding infant cerea. Just enough to thicken. It helps them keep it down better. She was put on Zantac and that help a lot, but we had to increase the dosage all the time. Hope that helps.

On the topic of what to do, I'm not the type that can let them cry. (if you can, I know some people have luck with this) Reflux babies love the warmth of the body on their tummies. I used a wrap and learned many ways to carry her. I could clean house, cook, help my toddler, and she always fell asleep. If you want to know more about this you can ask me or go to www.wearyourbaby.com. It can work wonders. Especailly for such a little one like yours and it is very easy. It's a quick way to get some peace of mind.

If you need any other help please let me know and I'll do my best to help.

Amy

Matilda Enthusiast

...

taweavmo3 Enthusiast

Matilda....your post made me laugh. Alot of our neighbors don't have children, and I joke with dh that our kids probably scare them away from even trying! It seems like screams of some sort, whether in play or tantrums, are always coming from our house. I'm sure they wonder what the heck is going on.

You know though, as trying a time as we have had with Emmie and now Lucy, it is still SO worth it. They can be so much fun, and of course I wouldn't change a thing now! That being said, I thought I'd post this funny that I got in an e-mail today. I know the mommies of reflux babies will find this very amusing!

If you can answer yes to six of these, maybe it isn't "just" colic...

Your baby cries six hours a day

For six days a week

It has been going on for over six weeks

The neighbor six doors down can hear the screaming

You tried six formulas or cut six foods from your diet if nursing

You and your baby need six changes of clothes per day

It takes six hours to feed six ounces

Your baby never sleeps for more than 60 minutes at a time

Your baby spits up six times after each bottle

You keep wondering if you overlooked a 666 birthmark

At the last six appointments doc said "colic" or "babies just cry"

You dread driving anywhere more than six minutes away

Your baby belches like a six year old

Six hours alone with the baby is the max anybody can take

You do six loads of laundry a week - just for you and the baby

By six pm you want a 7&7

Wishing you a few minutes of peace and quiet,

Beth

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    • Scott Adams
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    • Bebee
      I have been diagnosed with Microscopic Colitis (LC) for quite a few years, so I have been gluten-free and DF.  I would like to get tested for Celiac Disease because of the possibility of cross contamination and colon cancer.  And if you were hospitalized and didn't have a celiac diagnosis you could not get gluten-free food, I don't know if that is true or not.  Also because there is chance of colon cancer so I want to know if I have Celiac Disease and need to be on very restrictive diet.  The only testing I did was a sigmoid scope and Enter Lab but no gene testing.  I know I can go back to eating gluten for a few months, but I would worry you would have to stay home for the few months while getting gluten.  What other options do I have?  Should I do the gene testing?  Maybe through Entero Lab?  Any other tests?  How important is it to have Celiac diagnosed? Thank you! Barb
    • trents
      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
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