Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do I Sound Glutened To You?

Mtndog

By Mtndog
in Coping with Celiac Disease

Recommended Posts

Mtndog Collaborator
Mtndog
Posted

I need some feedback from those who know me well and some who don't (for more objectivity) because I am trying to distinguish between this feeling I have now and a gluten reaction (I'll explain why at the end).

Now:

  • headache
    face/jaw/neck feel stiff
    eyes feel half open
    COLD (really really cold)
    nauseous
    back, joint pain
    little "hive" above right eye
    moody
    exhausted but restless
    breasts very painful!
    night sweats varying in intensity
    noxious gas
    constipated

DEFINITIVELY recognized gluten reaction:

headache

no facial stiffness

brain fog

clumsy

cold (really really cold)

nausea/vomiting

back pain

hive above right eye

too out of it to be moody until a few days later

exhausted

soaking night sweats

sulfur-smelling gas

constipated and bloated.

The reason I'm asking is because reaction # 1 is the feeling I had while living in my apartment often and reaction #2 I KNOW is gluten.

Reaction #1 HURTS a lot more than gluten. I just feel like my whole body hurts. I have not knowingly eaten any legume product.

I feel AWFUL and it's freaking me out. Admittedly, I was in the apartment Saturday and yesterday. Ugh!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mtndog Collaborator
Mtndog
Posted
  • Author

ANYONE???? PLEASE!

CarlaB Enthusiast
CarlaB
Posted

If you always had that reaction in the apt. and you were in the apt., then I would say it's probably the apt. You're not crazy!!

Mtndog Collaborator
Mtndog
Posted
  • Author

Thanks Carla- I feel like pooop!!!!!!!!!!!!!!

I'm just nervous. About a lot of things. My biggest concern now is that our stuff is being moved Friday into our new place and I'm worried that whatever was in the apt. will come with it. We are ditching the sofas, curtains and anything fabric that can't be washed or dry cleaned EXCEPT the bed because we just can't afford all new furniture.

CarlaB Enthusiast
CarlaB
Posted
Thanks Carla- I feel like pooop!!!!!!!!!!!!!!

I'm just nervous. About a lot of things. My biggest concern now is that our stuff is being moved Friday into our new place and I'm worried that whatever was in the apt. will come with it. We are ditching the sofas, curtains and anything fabric that can't be washed or dry cleaned EXCEPT the bed because we just can't afford all new furniture.

Sorry you feel so bad. I wish you lived closer, we have beds coming out of our ears!!! I have no idea how we ended up with so many beds, but we have plenty!! I would be sure to wipe down everything that can be wiped down as you bring it in. It definately sounds like that place was toxic for you.

daffadilly Apprentice
daffadilly
Posted

Did you test for airborne mold in the apartment? If it was an old building or had plumbing leaks or roof leaks in the past, it could be mold that was airborne. I had it in my house & had half the back of the house torn out & replaced. & believe me the insurance company would not have paid for it, if the mold was not bad and in fact airborne - they can measure how much it is. I never walked back in my kitchen when I got the results.

If it is mold, you would need to clean all your things with a bleach solution, like wipe down everything, get gloves, so you do not mess up your skin with the bleach. Run all your dishes thru the dishwasher etc.

also, if an apartment was someone in the next apartment smoking? I am highly allergic to cigarette smoke & could not live in an apartment where people were smoking, it gets thru the walls & air filter systems somehow.

Judyin Philly Enthusiast
Judyin Philly
Posted

Bev..dang, was hoping it was ALL the apt and still could be. I think you could have residual effects of being in there over the weekend..really i do.

also , my personal stress can really make ANY bad food contact more agravated by it. Oh, not making sense tonight..sorry

did you do the mold airborn test..seems like a good idea

I know you can't afford new stuff for apt but i'd only take what you have to have and go curtain less...to see how you do there.

better put you back on my prayer list.

judy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


DingoGirl Enthusiast
DingoGirl
Posted

AS Judy said....

Dang, Bev! I don't know.....can it be residul apartment stuff? Time will tell....so maybe that's the only way to know? Just give it a few more days and see? Wish you were feeling better, though, you have really had a rough time of it. Um, you're not preggers, are you? :o:ph34r::lol:

Yup, also putting you back on the prayer list...... :)

AndreaB Contributor
AndreaB
Posted

Beverly,

I think it is the residual effects....but who knows since that was this weekend.

Keep us posted on how you are doing.

Mtndog Collaborator
Mtndog
Posted
  • Author

Well- the packing is done... we ditched as much as we could (1-800-Got-Junk was GREAT!!!!). I'm pretty sure it was mold as I was looking at the window sill in the bathroom today and it was mold and it was black. Also there are cracks in our bedroom ceiling, bathroom ceiling and kitchen sealing.

I read a bunch of stuff on decontaminatig your stuff from mold and I think it will be OK. All the dry cleaning if off to the dry cleaners, all the clothes will be washed and everything else disinfected. No curtain, no couches. The only thing that's fabric that we couldn't ditch was the bed and I am buying anti-allergen covers for mattress and boxspring tomorrow a.m. before the stuff arrives.

I think it may have been a combo of being in the apartment, stress and SOY. I thought I could tolerate soy lechithin but I CLEARLY can't.

I'll be off-liner for a bit until we get it hooked back up at our new abode but I'll try to check in at school when I'm there.

See you soon!!!!! Hugs and love to all, Beverly

AndreaB Contributor
AndreaB
Posted

We'll be waiting for you to get back online. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,673
    • Most Online (within 30 mins)
      7,748
    rubyme
    Newest Member
    rubyme
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.6k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      What might this EMA result mean?

      By RMJ · Posted

      g/L, a weight per volume unit, would be a very unusual unit for a celiac specific (EMA) test.   1.24 g/L would be in the normal range if this was a TOTAL IgA test. Best to ask the doctor.
    • Lieke
      Searching for good MD/PCP in Portland ME Area

      By Lieke · Posted

      Hi Hi! I am looking for a PCP in the Portland ME area. I have been dealing with Celiac disease for 30 years. My specialist Celiac MD is in Boston, but I want somebody closer by. Am thinking of an MD working in functional medicine/integrative medicine who is willing to ‘walk the journey’ with me. Despite a strict gluten-free diet, I still have challenges, am ‘super sensitive celiac’ with at time cross contact issues when going out to dinner.  any suggestions?  much appreciated! lieke
    • knitty kitty
      Food Tasting Salty

      By knitty kitty · Posted

      Part of the body's immune reaction to gluten is to release histamine.  This tastes salty, just like tears and snot.        
    • knitty kitty
      Eye irritation 2.5 months into gluten free diet

      By knitty kitty · Posted

      I've had dry eye symptoms.  The eye drops did not help me.  What did help was making sure I was consuming Omega Three fats like flax seed oil and olive oil, and taking essential B vitamins, especially Riboflavin, Thiamin, and Vitamin C, as well as Vitamin A, one of the fat soluble vitamins.   Newly diagnosed Celiac can have trouble absorbing fats and absorbing B vitamins.  Most gluten free processed foods contain saturated fats which the body can't utilize. Gluten free processed foods are not enriched with vitamins like gluten containing products.  The eyes make a film of healthy omega three fats which keeps the eyes lubricated.  Insufficient omega threes can show up as dry eyes.  Most newly diagnosed Celiac are low in Vitamin D, as well as Vitamin A, both fat based vitamins.   Thiamin Vitamin B 1 and Riboflavin B 2 are needed for eye health and optic nerve health.  Taking a B Complex vitamin supplement is beneficial.  Since the B vitamins are water soluble, any excess that the body doesn't need is excreted easily in urine.  The gluten free diet is low in essential B vitamins because gluten free processed foods that replace gluteny breads are not required to have vitamins and minerals added to them in order to replace vitamins and minerals lost in processing as is required with gluten containing products.   Other things that are helpful is to refrain from using highly perfumed products (hair care, body washes, deodorants, room fresheners, cleaning products, etc.).  These can dry out the eyes, too.   Staring at computer screens can be detrimental because you STARE and don't blink.  The tear ducts that keep the eyes lubricated are in the corners of the eyes.  Take breaks from staring at the computer screen.  Look out of the corners of your eyes to the right and blink several times, then look to the left and blink to help the tears spread over the whole eye.   My eyes have sustained permanent damage because of nutritional deficiencies.  My ophthalmologist and my doctors did not connect any of my health problems with nutritional deficiencies which occurred with undiagnosed Celiac Disease.  My optic nerve shuts down and I lose my vision if I spend too much time looking at computer screens, led lights, and TV.  My vision goes gray and dim.  It's much worse than "optic snow".  It can take  hours or days for my vision to return.  My ophthalmologist said my vision might not come back from that sometime.  My ophthalmologist said the flash rate, refresh rate, is registered by the optic nerve which gets over stimulated and shuts down.  The optic nerve uses lots of Thiamine.  Thiamine insufficiency will cause permanent optic nerve damage unless corrected promptly.  My thiamine insufficiency/deficiency was not corrected promptly and I have this permanent damage and light sensitivity.  I take Benfotiamine, a form of Thiamine that also is beneficial for healing the intestinal tract.  Riboflavin,  Pyridoxine B 6,  and Vitamin A are also needed for eye health.   Thiamine insufficiency can also cause anxiety.  Thiamine and magnesium will relieve muscle cramps. Talk to your nutritionist and doctor about supplementing with essential vitamins and minerals while your intestines are recovering.  Hope this helps!  
    • cristiana
      Reflux related cough anyone?

      By cristiana · Posted

      UPDATE I've been asked for an update by someone who sent a PM, but It's best to post health info publicly because this means fellow Mods can make sure I'm staying on the straight and narrow path with any advice I'm giving out! Alex...   Yes, my symptoms did slowly improve.  They started around October, from memory.  Approaching Christmas I remember the feeling as if there were feathers irritating my chest in my lower throat and in my lungs, and things like scented candles made things even worse.  I had a endoscopy and they found nothing wrong, I also had a chest X-Ray because of the cough which lasted more than six weeks and nothing showed. In the end I think the end it settled because I was doing the following: following a reflux/gastritis diet  (you can find lots of these diets on line, which focus on a low fat, low acidndiet, avoiding spices etc, avoiding alcohol and coffee etc) not eating three hours before I went to bed, which means going to bed with an empty stomach sleeping with a wedge pillow, which I still do, five years on... taking Gaviscon Advanced before bedtime, and after meals (not much, just a large teaspoon) using a blue Salbutamol inhaler, I think it was two puffs in the morning and two puffs at night. I felt a lot better after about three or four months.  I then only used the inhaler and Gaviscon when I had to, if I started to feel my chest was getting irritated again. I find keeping on top of reflux symptoms the way forward.  My gastroenterologist told me that the cough was to do with reflux/gasses in the gut coming up that can irritate the throat and airways and the fact I noticed improvement when using Gaviscon showed that that was what was causing it, because it provides a barrier that stops this happening. From the Gaviscon UK website: "It creates a protective barrier or raft over the Stomach contents (which is mostly acid, but also pepsin and bile)." https://www.gaviscon.co.uk/#:~:text=It creates a protective barrier,water and other neutral substances. This protective barrier stopped the contents of my stomach from coming up to irritate my throat, as I understand it, and allowed any irritation in my throat to settle. I do still take Gaviscon if I eat a late meal but not every day.  I hope this helps.  Do come back to me on this thread if I can help further. Cristiana    
×
×
  • Create New...