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- Scott Adams replied to Tyoung's topic in Related Issues & Disorders2Celiac Disease and Mild Chronic Gastritis
I agree that the gastritis may go away after you've been on a gluten-free diet for a while. If you are concerned, it might make sense for you to do a follow up biopsy after a year or so on a gluten-free diet. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.... -
- Scott Adams replied to Bebee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
Testing for celiac
Getting tested for celiac disease is a valid concern, especially given your history of microscopic colitis and the potential risks associated with undiagnosed celiac disease, such as cross-contamination, nutrient malabsorption, and increased cancer risk. Since you’ve been gluten-free for years, reintroducing gluten for the standard celiac blood tests or e... -
- Scott Adams replied to ognam's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease2
Glutening symptom? oily stool
Steatorrhea (oily or fatty stools) can indeed be a symptom of malabsorption, which is often linked to gluten exposure in individuals with celiac disease. While it’s possible that a single glutening event, like cross-contamination at a restaurant, could trigger temporary steatorrhea, it’s also worth considering whether there’s a more chronic source of glute... -
- Scott Adams replied to TerryinCO's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1
Status Update...
As you noticed, GliadinX is a site sponsor which I use regularly whenever I eat outside my home. There have been multiple studies which have shown that AN-PEP enzymes, used in the product, can break down small amounts of gluten in the stomach, which you can read here: https://www.gliadinx.com/publications -
- Scott Adams replied to Dora77's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1
Permanent Floating & Undigested Stools for a Year
It sounds like you're dealing with a complex situation involving multiple factors, including type 1 diabetes, celiac disease, and potential pancreatic or digestive issues. While your doctor has ruled out pancreatic insufficiency based on one normal elastase result, it’s worth noting that elastase levels can fluctuate, and a single test might not capture t...
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By Scott Adams · Posted
I agree that the gastritis may go away after you've been on a gluten-free diet for a while. If you are concerned, it might make sense for you to do a follow up biopsy after a year or so on a gluten-free diet. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.): -
By Scott Adams · Posted
Getting tested for celiac disease is a valid concern, especially given your history of microscopic colitis and the potential risks associated with undiagnosed celiac disease, such as cross-contamination, nutrient malabsorption, and increased cancer risk. Since you’ve been gluten-free for years, reintroducing gluten for the standard celiac blood tests or endoscopy would be challenging, as it requires consuming gluten for several weeks to months, which could worsen your symptoms and disrupt your daily life. Gene testing (HLA-DQ2 and HLA-DQ8) through a lab like EnteroLab could be a helpful first step. While these genes are present in nearly all celiac patients, having them doesn’t confirm celiac disease—it only indicates genetic susceptibility. If you don’t have these genes, celiac disease is highly unlikely, which could provide some peace of mind. However, if you do have the genes, it doesn’t confirm celiac disease but suggests further testing might be warranted if you’re willing to undergo a gluten challenge. Another option is to discuss with your doctor whether a follow-up endoscopy or other non-invasive tests (like stool tests for gluten antibodies) could provide insights without requiring a gluten challenge. While a formal celiac diagnosis can be important for ensuring strict dietary adherence, access to gluten-free options in hospitals, and monitoring for complications, it’s also worth weighing the risks and benefits of reintroducing gluten. If you’re already strictly gluten-free and managing your symptoms well, the urgency of a formal diagnosis may depend on your personal health goals and concerns. Consulting a gastroenterologist familiar with celiac disease and Microscopic Colitis can help guide your decision. -
By Scott Adams · Posted
Steatorrhea (oily or fatty stools) can indeed be a symptom of malabsorption, which is often linked to gluten exposure in individuals with celiac disease. While it’s possible that a single glutening event, like cross-contamination at a restaurant, could trigger temporary steatorrhea, it’s also worth considering whether there’s a more chronic source of gluten exposure, such as in medications or ongoing dietary mistakes. Since you’ve been less careful recently and experienced this symptom after eating out, it’s plausible that the fries or other cross-contaminated foods could be the culprit. However, if the steatorrhea persists, it might indicate ongoing gluten exposure or another underlying issue, such as pancreatic insufficiency or bile acid malabsorption. Until you can see a GI doctor, it might help to strictly avoid any potential sources of gluten, including cross-contamination, and monitor your symptoms. If the issue continues, it’s important to investigate further, as persistent steatorrhea can lead to nutrient deficiencies. In the meantime, keeping a detailed food and symptom diary could help identify patterns or triggers. Good luck finding a new GI doctor—hopefully, they can provide clarity soon! -
By Scott Adams · Posted
As you noticed, GliadinX is a site sponsor which I use regularly whenever I eat outside my home. There have been multiple studies which have shown that AN-PEP enzymes, used in the product, can break down small amounts of gluten in the stomach, which you can read here: https://www.gliadinx.com/publications -
By Scott Adams · Posted
It sounds like you're dealing with a complex situation involving multiple factors, including type 1 diabetes, celiac disease, and potential pancreatic or digestive issues. While your doctor has ruled out pancreatic insufficiency based on one normal elastase result, it’s worth noting that elastase levels can fluctuate, and a single test might not capture the full picture. Weight gain, especially with hgh injections, doesn’t necessarily rule out malabsorption, as nutrient deficiencies can still occur even if weight is stable. Regarding celiac disease, even small cross-contamination from "may contain gluten" foods could contribute to ongoing intestinal damage, especially since antibody tests aren’t always reliable indicators of healing. A follow-up endoscopy might provide more clarity. The persistent floating and undigested stools could suggest malabsorption, potentially impacting vitamin or protein levels, so it might be helpful to check for deficiencies. The fructose and lactose intolerance tests could be unreliable due to improper fasting or dietary preparation, so repeating them under correct conditions might be necessary. Stress or heavy lifting could temporarily affect digestion, but persistent symptoms likely point to another underlying issue. Consulting a gastroenterologist for further evaluation, including potential small intestinal bacterial overgrowth (SIBO) or other digestive disorders, might be a good next step. Keep advocating for yourself—your concerns are valid!
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