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- jimmydee posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms0I think a UTI caused by Aspirin, made me a Celiac
Let me start by saying that I am self- diagnosed Celiac. I didn't want to pay for tests, because I don't have health insurance and the doctor said I would HAVE to eat gluten for the tests and I am afraid it will kill me. I diagnosed myself by quitting dairy, sugar and gluten for a couple weeks and figured out the problem by process of elimination. ANYWAYS... -
- knitty kitty replied to Karen Chakerian's topic in Coping with Celiac Disease2Getting rid of the belly bloat
Welcome to the forum, @Karen Chakerian, We need more information, please. What homeopathic remedies or medications are you taking now? Do you still have the blood pressure and other symptoms? What is included in your diet currently? Dairy? Oats? Processed gluten free foods? Vegetarian? Other food allergies? Do you take vitamins? ... -
- knitty kitty replied to SaiP's topic in Related Issues & Disorders18
Dangerously underweight, Perfect gluten free and insomnia
@SaiP, Insomnia is listed as one of the side effects of Loratadine. Niacin B3 in the form Tryptophan, Pyridoxine B 6, Folate B 9, Cobalamine B12, Magnesium, and Thiamine B 1 are needed to produce the sleep hormone melatonin. Insomnia can also be caused by low Vitamin D and low Vitamin A. A strict gluten free diet can be low in essential... -
- trents replied to SaiP's topic in Related Issues & Disorders18Dangerously underweight, Perfect gluten free and insomnia
Earlier, you mentioned the possibility of adding in sweet potatoes. Have you tried that? Have you tried sourdough bread? Some people with celiac disease claim they can eat sourdough without a gluten reaction. The fermentation process alters the protein somewhat. -
- trents replied to Karen Chakerian's topic in Coping with Celiac Disease2
Getting rid of the belly bloat
Welcome to the forum, @Karen Chakerian! So, for the sake of clarity, you have self-diagnosed yourself as having celiac disease but are not officially diagnosed by medical testing. Is this correct?
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Let me start by saying that I am self- diagnosed Celiac. I didn't want to pay for tests, because I don't have health insurance and the doctor said I would HAVE to eat gluten for the tests and I am afraid it will kill me. I diagnosed myself by quitting dairy, sugar and gluten for a couple weeks and figured out the problem by process of elimination. ANYWAYS.......here's why I blame "Aspirin low dose safety coated" for my Celiac Disease. I started taking regular Aspirin for a couple weeks for back pain and decided to switch to low dose safety coated Aspirin because I thought a smaller dose was safer for regular use. Well about 3 days after starting low dose safety coated aspirin, I got a terrible UTI. I didn't know what to do (should have gone to doctor) I started taking cranberry pills and read Aspirin can cause UTIs, so stopped taking that. A week later, the UTI was getting worse but then my Dad gave me some probiotic pills and the next day I felt better, so I took those for a week and the UTI was gone. About a week later, I bought my family cake and pizza for a birthday party. I ate a whole bunch and there was some leftover the next day, so I ate a bunch again. Welp, that was my first Gluten attack. I was home alone and almost called an ambulance, my stomach was so full of gas I couldn't breathe, I was covered in sweat and thought I was having a heart attack. Since quitting Gluten I haven't had the "gas attacks" or had the awful constipation that lasts 3 days. So I'm certain I'm Celiac and I absolutely blame low dose safety coated Aspirin, I think it's the time release binder that is the problem, because I was fine with regular aspirin, I was just breaking those into halves or quarters. Actually now that I think about it I may have even used the regular aspirin at other times in my life before that, just not the little low dose safety coated Aspirin, that's what I think caused it. What's weird is my Dad took the low dose safety coated Aspirin for years and years, for it's reported heart benefits, and he never got Celiac. Anyways, I felt this was important to share, so they can find the cause of this disease, which seems to be affecting more people than ever before. At least Gluten Free Pizza exists, that's been my new staple food in my diet. -
By knitty kitty · Posted
Welcome to the forum, @Karen Chakerian, We need more information, please. What homeopathic remedies or medications are you taking now? Do you still have the blood pressure and other symptoms? What is included in your diet currently? Dairy? Oats? Processed gluten free foods? Vegetarian? Other food allergies? Do you take vitamins? When gluten is removed from the diet, the body stops making the anti-gluten antibodies that are usually measured in blood tests used to diagnose Celiac disease. To measure the anti-gluten antibodies, you would have to consume 10 grams of gluten (4-6 slices of bread or equivalent) per day for a minimum of 2 weeks or longer. A DNA test which looks for the most common genes for Celiac Disease may be a less invasive avenue to pursue. Has your doctor checked you for nutritional deficiencies? Glad you're here! -
By knitty kitty · Posted
@SaiP, Insomnia is listed as one of the side effects of Loratadine. Niacin B3 in the form Tryptophan, Pyridoxine B 6, Folate B 9, Cobalamine B12, Magnesium, and Thiamine B 1 are needed to produce the sleep hormone melatonin. Insomnia can also be caused by low Vitamin D and low Vitamin A. A strict gluten free diet can be low in essential vitamins. Gluten containing products are required to replace vitamins lost in processing and milling. Gluten free processed foods are not required to have vitamins added. White rice is not a good source of B vitamins. Brown rice is little better. Exposure to light (even grocery store lights) and heat (during transportation) can destroy B vitamins. B vitamins are easily lost in urine and diarrhea because they are water soluble. If you have had diarrhea longer than two weeks, you are probably low in B vitamins. Fat based vitamins, like Vitamins D and A, can be low due to fat malabsorption in Celiac disease, too. Damaged villa in Celiac Disease do not absorb B vitamins and fat based vitamins and minerals well. Supplementing with essential nutrients while villi heal boosts the ability to absorb essential vitamins and minerals. Vitamins are stored and utilized inside cells. Blood levels are not accurate measurements of vitamin deficiencies. You can have normal blood levels while having deficiencies inside cells. The brain orders cells to release their stores so the brain and heart can keep functioning. This results in normal blood levels, but vitamin deficits inside cells. Your indulgence in a little bit of bread is providing some, but insufficient amounts, of vitamins needed to make sleep hormone melatonin while keeping your inflammation and histamine production high. In addition to a B Complex, I took 1000 mg of tryptophan before bed to correct my insomnia caused by high histamine levels. Correcting my Vitamin D level to between 75-100 nmol/ml helped as well. Also Passion flower extract is helpful in falling asleep quickly. Please stop eating gluten bread as this will keep your autoimmune response triggering and your antibody levels won't go down and your histamine levels will stay up as well. Celiac is a marathon, not a sprint. P.S. I wanted to reiterate that insomnia and weight loss are symptoms of Thiamine deficiency. Benfotiamine is a form of thiamine that promotes intestinal healing. Thiamine is water soluble and nontoxic even in high doses. High doses are needed to correct thiamine deficiency. All mitochondria in cells utilize thiamine. The World Health Organization says to take 500 - 1000 mg per day of thiamine and look for health improvement. Diets that are high in carbohydrates like rice and gluten require more thiamine. For every 1000 calories from carbohydrates, we need 500 mg more thiamine. Thiamine is found in meat. Few veggies contain thiamine. Can you rise from a squat without assistance? This is the field test for thiamine deficiency used by WHO. If you cannot rise easily from a squat you may be thiamine deficient. -
Earlier, you mentioned the possibility of adding in sweet potatoes. Have you tried that? Have you tried sourdough bread? Some people with celiac disease claim they can eat sourdough without a gluten reaction. The fermentation process alters the protein somewhat.
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Welcome to the forum, @Karen Chakerian! So, for the sake of clarity, you have self-diagnosed yourself as having celiac disease but are not officially diagnosed by medical testing. Is this correct?
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