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- DebJ14 replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease13Getting sick much more often
I had the exact opposite thing happen. Prior to my diagnosis and introduction of the gluten-free diet, I was sick all the time. My file at the ENT was so thick because it was one upper respiratory infection, one sinus infection, one ear infection after another. Year after year after year. I have only been sick once in 18 years and I know exactly who gave... -
- jamiet06 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms0Duodenum biopsy result confusion
Hello, I hope I am posting this in the correct space, so apologies if not! After my last two endoscopies (2019 and 2024), I received the following comment in my report: Duodenal biopsy: Duodenal mucosa with mild intra-epithelial lymphocytosis in the presence of normal villous architecture. Comment: Findings are non-specific. They... -
- cococo replied to Jsingh's topic in Related Issues & Disorders1Receommendations for kids multivitamins
My kids take Whole Earth & Sea Kid’s Multivitamin as per our naturopath’s recommendation. They’re chewable but can be crushed and added to juice or food. No gums or citric acid. GMO free and gluten free too. -
- Murilo P replied to Murilo P's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms45DR1-DQ5 neurological symptoms
It has been a while and I would like to post an update. The hallucinations are completely gone. Thanks to one bottle of B1 as benfotiamine and one of B3 as niacin, both taken together. I will buy more. The other symptoms are still being treated. Now I can already affirm that the symptoms are part of Borderline Personality Disorder. Yet I do have... -
- Jsingh posted a topic in Related Issues & Disorders1Receommendations for kids multivitamins
Hi, My six year old has been complaining of tingling in the legs off late. This used to be pretty common thing with her pre-diagnosis and a couple of weeks after the diagnosis as well. And now it is back again. I am not sure if it's a glutening symptom, or she could be deficient in something. I got her Pure Encapsulations' multivitamin capsule, which...
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I had the exact opposite thing happen. Prior to my diagnosis and introduction of the gluten-free diet, I was sick all the time. My file at the ENT was so thick because it was one upper respiratory infection, one sinus infection, one ear infection after another. Year after year after year. I have only been sick once in 18 years and I know exactly who gave me the infection back in 2012. It was a coronavirus cold. I was sick for 6 weeks and lost my sense of smell and taste for over 2 years. I had every test in the book and took boatloads of prescriptions to try to get it back. It was not until my chiropractor suggested I take zinc that my senses started coming back. I have been exposed to lab confirmed flu, norovirus, covid and a host of other illnesses over the past 13 years and have not caught anything, Not even a sniffle. My GI doctor said that once I stopped poisoning my system with gluten that my immune system was able to fight off all these other infections. I also had extensive tests for nutritional deficiencies (every 6 months for 5 years) and took large doses of targeted supplements until my levels finally came back to normal, or it was determined that I have a genetic mutation, making me a lifetime consumer of high dose Vitamin D, B 12 and multiple antioxidants. Amazing that now at 72 I am healthier than I was in my all through early adulthood. I was 54 when finally diagnosed with Celiac Disease, and it has been pretty much smooth sailing ever since, but I am a fanatic about my gluten-free diet because the alternative is not pretty. -
Hello, I hope I am posting this in the correct space, so apologies if not! After my last two endoscopies (2019 and 2024), I received the following comment in my report: Duodenal biopsy: Duodenal mucosa with mild intra-epithelial lymphocytosis in the presence of normal villous architecture. Comment: Findings are non-specific. They can be seen in coeliac disease, peptic or medication induced injury and H.pylori infection among others. Correlation with clinical findings and results of serological studies is recommended. I didn't have an ulcer and crohns disease was not mentioned to me. For the past few years I have had on and off digestive issues (gas, mild diarrhea, lower abdominal bloating). Just recently I went to my GP and he stated it was probably all related to IBS, however, I forgot to mention this statement from my endoscopy report. Does this sound like it is pointing towards celiacs? I am a 52 year old male. Any advice would be awesome. Thank you
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My kids take Whole Earth & Sea Kid’s Multivitamin as per our naturopath’s recommendation. They’re chewable but can be crushed and added to juice or food. No gums or citric acid. GMO free and gluten free too.
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It has been a while and I would like to post an update. The hallucinations are completely gone. Thanks to one bottle of B1 as benfotiamine and one of B3 as niacin, both taken together. I will buy more. The other symptoms are still being treated. Now I can already affirm that the symptoms are part of Borderline Personality Disorder. Yet I do have hopes that we will achieve the remission of BPD symptoms over the next couple of years. I think her issues come from this chain of events: Nutritional deficiencies at birth, due to being twin and having low birth weight. Low levels of Omega-3 during pregnancy and first years resulting in weak HPA axis development (predisposition for BPD). Consumption of gluten before age of 2 leading to predisposition for gluten sensitivity as adult Excessive consumption of gluten and sugar as an adult, leading to dysregulation of microbiome. Two severe gut infections due to lack of healthy bacteria, followed by hospitalization and use of antibiotics Poor diet after using antibiotics, worsening even more the gut health and leading to anorexia nervosa. Worsening of gluten sensitivity, then resulting in bouts of anxiety and depression, especially if added with sugar. Different forms of therapy haven't shown effectiveness yet, but I think it's because the issues must be treated with nutrients first, so we are taking that more seriously now and focusing on nutrients that are especially easy to digest and absorb. She still has intense gluten sensitivity, but I have hopes that this can go away after the body is completely re-nourished with the missing nutrients and then gets a few years to recover. Notes: The hallucinations begun after we tried Ayahuasca low dosage. I guess it was the result of a bad combination: "DR1 genes + B1 deficiency + Ayahuasca". I'd guess that would not have happened if it wasn't for the vitamin deficiencies. She has been fully in non-gluten diet, except for accidents that happen sometimes due to her food compulsion. I have been giving more importance to Omega-3, which is very effective in emotional regulation for BPD. Recently bought special products from Omnilife which use special "micelles" to promote quick absorption close to 100% rate. - "Micelles are tiny, spherical particles formed when amphiphilic molecules, like those in soap, aggregate in a liquid, typically water." Currently buying special whey protein which is hydrolyzed (easy to digest). I think we have underestimated the importance of proteins, which is not usually refereed as part of mental health treatment. She is pregnant again, but doing well. 🙂 Thanks for all of the help!
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Hi, My six year old has been complaining of tingling in the legs off late. This used to be pretty common thing with her pre-diagnosis and a couple of weeks after the diagnosis as well. And now it is back again. I am not sure if it's a glutening symptom, or she could be deficient in something. I got her Pure Encapsulations' multivitamin capsule, which she is ok taking, but she began reacting to cellulose in the capsule. I don't know if I can just break the capsule and she could drink it in a smoothie. I haven't tried that yet, so do not know whether it'll be palatable to her. If any of you know of a CGF multivitamin that do not contain any gums and are preferably free of citric acid, I'd greatly appreciate. Thank you.
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