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- knitty kitty replied to Whyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1Test
Hello, @Whyz, You're in the "hurry up and wait" part of diagnosis. The anxiety can be hard to deal with. Do you have a hobby? I like knitting. Watching suspense movies (Alfred Hitchcock movies are a favorite) helps focus that anxiety which gets resolved by the end of the movie, a temporary relief, but helpful. I have a small hernia, which won... -
- ShariW replied to ShariW's topic in Coping with Celiac Disease2Not All Corn Grits are Safe
I don't react to corn in general. I think it was cross-contact in manufacturing that got me. But if I do find that I have problems with gluten-free grits, I will see corn elimination in my diet will solve the issues.- 1
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- knitty kitty replied to ShariW's topic in Coping with Celiac Disease2
Not All Corn Grits are Safe
@ShariW, Some of us react to corn the same as we react to gluten because maize and gluten share some similar segments which trigger the Celiac autoimmune response. Maize Prolamins Could Induce a Gluten-Like Cellular Immune Response in Some Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC3820067/#:~:text=The current treatment...- 1
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- trents replied to TerryinCO's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms10New Guy Here...
I have concern as well about the long term use of any PPI. I understand it was given to you to address the GERD but PPIs were never intended to be long term solutions. Yet, docs prescribe them like candy and never monitor for the ongoing need. They just leave people on them indefinitely which has long term negative health consequences from raising gut PH...- 1
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- knitty kitty replied to Itchyperson's topic in Dermatitis Herpetiformis31
Cycle of dermatitis herpetiformis
Have you tried Niacin? The form of niacin that causes flushing, nicotinic acid (not the same as nicotine in cigarettes) helps clear the tTg 3 IgA deposits out of the skin which causes the dermatitis herpetiformis blisters. (tTg 2 IgA is what blood tests for Celiac Disease measure). Niacin really helps heal and improve skin health. Niacin along with Benfotiamine...
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By knitty kitty · Posted
Hello, @Whyz, You're in the "hurry up and wait" part of diagnosis. The anxiety can be hard to deal with. Do you have a hobby? I like knitting. Watching suspense movies (Alfred Hitchcock movies are a favorite) helps focus that anxiety which gets resolved by the end of the movie, a temporary relief, but helpful. I have a small hernia, which won't get any attention, too. Not to worry. Mine hasn't been an issue for years. Don't worry. You'll be fine. The tribe here understands. Sending {{{hugs}}} -
I don't react to corn in general. I think it was cross-contact in manufacturing that got me. But if I do find that I have problems with gluten-free grits, I will see corn elimination in my diet will solve the issues.
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By knitty kitty · Posted
@ShariW, Some of us react to corn the same as we react to gluten because maize and gluten share some similar segments which trigger the Celiac autoimmune response. Maize Prolamins Could Induce a Gluten-Like Cellular Immune Response in Some Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC3820067/#:~:text=The current treatment for celiac disease,%2C a maize-free diet. And... The Prevalence of Anti-Zein Antibodies: A Comparative Study between Celiac Disease and Irritable Bowel Syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC7922782/#:~:text=Another important conclusion was derived,IgA antibody test [38]. This is one reason I suggest a Paleo diet, the Autoimmune Protocol diet (designed by Dr. Sarah Ballantyne, a Celiac herself). The AIP diet cuts out all grains and pseudo grains for several months so the body will be less likely to trigger on proteins similar to gluten. Following the low histamine version of the AIP diet is very helpful in reducing histamine which lowers inflammation and promotes healing. -
I have concern as well about the long term use of any PPI. I understand it was given to you to address the GERD but PPIs were never intended to be long term solutions. Yet, docs prescribe them like candy and never monitor for the ongoing need. They just leave people on them indefinitely which has long term negative health consequences from raising gut PH such as osteoporosis and other nutrient deficiency related problems. Raising gut PH (lower acidity) inhibits digestion and the assimilation of nutrients. I was on a PPI for years and weaned myself off of it in about a year. It was not easy because you get rebound, typically, that is. I used TUMS as a bridge.
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By knitty kitty · Posted
Have you tried Niacin? The form of niacin that causes flushing, nicotinic acid (not the same as nicotine in cigarettes) helps clear the tTg 3 IgA deposits out of the skin which causes the dermatitis herpetiformis blisters. (tTg 2 IgA is what blood tests for Celiac Disease measure). Niacin really helps heal and improve skin health. Niacin along with Benfotiamine (a form of thiamine that promotes intestinal healing), Vitamin C, Vitamin A, and a B Complex supplement really works. Don't take over 500 mg total per day of flushing Niacin. Small doses throughout the day, like with meals or snacks, helps immensely. Vaccinations for Covid and other diseases like the flu or RSV can cause a drop in Thiamine. Niacin cannot function without Thiamine. Replacing vitamins that we aren't able to absorb properly due to the malabsorption of Celiac is essential for healing.
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