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- Philly224 replied to Philly224's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Weak positive blood test and marsh type 1
Thank you so much for the detailed reply! I was just eating my normal diet so wasn't going out of my way to eat gluten. The week before my blood test I actually had a stomach virus so I wasn't eating much of anything so I do wonder if that contributed at all. Before the biopsy I was just eating my normal amount of gluten, I would say two slices of bread per... -
- Scott Adams replied to Philly224's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Weak positive blood test and marsh type 1
There is no such thing a "mild celiac disease," and your blood test results and biopsy results indicate that you indeed likely have an issues with gluten. It also would make no sense for you to go gluten-free for two months and get the blood test done again--I can predict the results for you--negative. The real question here is how much gluten were... -
- Scott Adams replied to Lynnard's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
Waiting on biopsy results but wanted opinion on bloodwork
Welcome to the forum. You have two positive blood tests for celiac disease, and have symptoms, so there is a high probability that you have it, or non-celiac gluten sensitivity, regardless of the biopsy results. Unfortunately studies have shown that biopsies often miss taking samples in the appropriate areas, or taking enough samples, or properly interpreting... -
- DebJ14 replied to Sicilygirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease6Enegy level extremely low
My iron was not low, but my B-12 levels were extremely low. I had zero energy. I had micronutrient testing and I was put on a boatload of supplements. Everything recovered pretty quickly except for my D, B12 and antioxidant levels. The doctor ordered genetic testing and found that I have a genetic inability to process all three. Thus, my dosages were...- 1
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Thank you so much for the detailed reply! I was just eating my normal diet so wasn't going out of my way to eat gluten. The week before my blood test I actually had a stomach virus so I wasn't eating much of anything so I do wonder if that contributed at all. Before the biopsy I was just eating my normal amount of gluten, I would say two slices of bread per day would likely be about what I was having maybe a tad more. It was mostly white bread and some pasta though. I can't figure out if I can edit my post but my total iga level was normal
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By Scott Adams · Posted
There is no such thing a "mild celiac disease," and your blood test results and biopsy results indicate that you indeed likely have an issues with gluten. It also would make no sense for you to go gluten-free for two months and get the blood test done again--I can predict the results for you--negative. The real question here is how much gluten were you eating before your last blood test? You should have been told to eat 2-6 slices of wheat bread a day for 6-8 weeks before the test, otherwise your results will likely be lower than if you had followed the proper testing protocol. The same is true for the biopsy--how much gluten were you eating daily in the 2 weeks before that test? This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. -
By Scott Adams · Posted
Welcome to the forum. You have two positive blood tests for celiac disease, and have symptoms, so there is a high probability that you have it, or non-celiac gluten sensitivity, regardless of the biopsy results. Unfortunately studies have shown that biopsies often miss taking samples in the appropriate areas, or taking enough samples, or properly interpreting the samples that are taken, so false negatives can be common. Were you eating gluten daily, lots of it (at least 2 slices of wheat bread's worth) for 6-8 weeks leading up to the blood test, and for at least 2 weeks before the endoscopy? If not, your blood test results might be lower scores than if you had followed this protocol, and your biopsy results could also be false negative. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. -
My iron was not low, but my B-12 levels were extremely low. I had zero energy. I had micronutrient testing and I was put on a boatload of supplements. Everything recovered pretty quickly except for my D, B12 and antioxidant levels. The doctor ordered genetic testing and found that I have a genetic inability to process all three. Thus, my dosages were increased, and I was advised I would need to take them for the rest of my life.
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