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- knitty kitty commented on Scott Adams's article in Latest Research3Study Examines the Nutritional Deficiencies and Challenges of a Gluten-Free Diet for Celiac Disease Patients (+Video)
@LoSmith, I understand, being on the spectrum myself. Please look into the work of Dr. Derrick Lonsdale and Dr. Chandler Marrs. https://hormonesmatter.com/add-adhd-common-problems-modern-childhood/ Thiamine helps immensely.- celiac disease
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- Scott Adams replied to ALBANICKAP's topic in Related Issues & Disorders1Celiac, Fructose and Lactose
Have you tried sheep's milk and goat's milk cheeses? After my diagnosis I could not tolerate cow's milk for ~2 years until my villi healed, but for some reason I did not have issues with sheep milk or goat milk cheeses. I also had temporary issues with chicken eggs, but could eat duck eggs. -
- Scott Adams replied to ChrisSeth's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6
Waiting on Blood test results…
This is not a test for celiac disease, but your total IgA levels. This test is usually done with other celiac disease blood tests to make sure the results are accurate. Did they do a tTg-IgA test as well? Were you eating lots of gluten in the 6-8 weeks leading up to your blood tests? This article might be helpful. It breaks down each type of test... -
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- ChrisSeth replied to ChrisSeth's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6Waiting on Blood test results…
Test results came back for everything that was tested now. Cholesterol is off the charts high. Not sure if that’s related to celiac, I have no idea how it could be so high. Also tested positive for H pylori infection… is there a link to celiac and H pylori? Or am I just experiencing symptoms of the H pylori infection?
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By Scott Adams · Posted
Have you tried sheep's milk and goat's milk cheeses? After my diagnosis I could not tolerate cow's milk for ~2 years until my villi healed, but for some reason I did not have issues with sheep milk or goat milk cheeses. I also had temporary issues with chicken eggs, but could eat duck eggs. -
By Scott Adams · Posted
This is not a test for celiac disease, but your total IgA levels. This test is usually done with other celiac disease blood tests to make sure the results are accurate. Did they do a tTg-IgA test as well? Were you eating lots of gluten in the 6-8 weeks leading up to your blood tests? This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. -
Test results came back for everything that was tested now. Cholesterol is off the charts high. Not sure if that’s related to celiac, I have no idea how it could be so high. Also tested positive for H pylori infection… is there a link to celiac and H pylori? Or am I just experiencing symptoms of the H pylori infection?
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I’m reading that some sites list a high Immunoglobulin A result for my age above 300, another site says above 356, and other sites are saying above 400. I don’t know what to make of this result 🤷♂️
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You got some bum steers my friend. I have little confidence that you can trust your test results as differentiating between NCGS and celiac disease. And I think you would be much more likely to have gotten that note you need if you had been diagnosed with celiac disease. But believe me, I understand the predicament you are in with regard to the risks of repeating the gluten challenge. We have heard this story many times on this forum. People experiment with the gluten free diet before getting an official diagnosis and then cannot tolerate the gluten challenge later on when they seek an official diagnosis.
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