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- cristiana replied to Cathijean90's topic in Introduce Yourself / Share Stuff2I’m terrified it’s too late for me😭
Hello @Cathijean90 Firstly, welcome to the forum, you have come to the right place! I know this is much easier to say than to do, but try not to worry. Whilst it is awful on so many levels that you have only just found out that Coeliac Disease is the issue behind all your problems, when you could have known 15 years ago, as Trents has said, it... -
- Jack Common replied to Jack Common's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms32What should I do with these test results?
Thank you for your answer. I read it here: https://www.beyondceliac.org/celiac-disease/non-celiac-gluten-sensitivity/ With the title "What’s the Difference Between Gluten Sensitivity and Celiac Disease?" -
- Jack Common replied to Jack Common's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9
How many grams is there in one slice of wheat bread?
@Scott Adams Thank you for your answer. -
- Jacki Espo replied to Itsabit's topic in Dermatitis Herpetiformis3SkinSafe
For me I gave up oat products and it finally cleared. I had a whole body reaction for months. Two additional culprits for me: shared grill at a restaurant or a shared toaster. Hope you have relief soon. -
- Russ H replied to Itsabit's topic in Dermatitis Herpetiformis3SkinSafe
It can take between 6 months and 2 years for the dermatitis herpetiformis rash to resolve. The symptoms of dermatitis herpetiformis arise from deposits of certain antibodies building up in the skin. These deposits attract immune cells leading to inflammation and blistering. It can take 10 years for the deposits to be reabsorbed although symptoms resolve long...
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Hello @Cathijean90 Firstly, welcome to the forum, you have come to the right place! I know this is much easier to say than to do, but try not to worry. Whilst it is awful on so many levels that you have only just found out that Coeliac Disease is the issue behind all your problems, when you could have known 15 years ago, as Trents has said, it is really not at all uncommon for people to have symptoms for years before the doctors know what they are dealing with. I was worried, too, that I'd never get better when I was first diagnosed. My nutritionist said it wasn't too late and I didn't believe her! But you know what - I am feeling so much better now. I've known of people living near me who were diagnosed in their 70s and 80s and have bounced back, and my consultant has even diagnosed someone in their 90s! So being diagnosed older is something that also happens a lot. I am now in my 50s but my first symptoms, looking back, probably started with bouts of diarrhea in my teens and terrible nauseating migraines in my 20s, with a mouth full of ulcers twice in my 30s, aura migraines starting with my first pregnancy at 34, hallucinations with both pregnancies and a pre-term baby with my second pregnancy. Weird liver function tests suggestive and iron deficiency, which sent me into a spin because my GP said it might be a type of cancer, then blood in my stools and clinical anxiety in the months prior to my diagnosis. Wow - what gluten can do to someone! But now, apart from a few minor issues with aura migraines, these issues have gone away. It has been so worth giving up gluten, people say I have good self-control but frankly, and I am sure you feel the same, knowing how sick gluten can make us, I'm not remotely interested in eating gluten ever again! I've recently discovered my GP didn't tell me my cholesterol is creeping up when he tested me three years ago. If I had known I'd have started being much more careful with my diet. I dread to think what my cholesterol levels are now, I'll have to do a test sooner or later but I do need to try to do something about it now. So I do relate with your situation. To have not had the diagnosis passed onto you is awful. But the good news is you do know now. Also, you will be taking your diet seriously, which will give you the best chance of a good recovery. Kick gluten out of your diet, get your doctor to run some tests to see if you have any vitamin deficiencies, and address those, and also see if you have any thyroid issues which occasionally affect coeliacs and can be easily treated. Build your strength up with the best whole food you can manage, and try to take one day at at time. On having children: my friend had a series of miscarriages before she was diagnosed with coeliac disease, and then when she started a gluten free diet, no more - she carried two more pregnancies to term. I am so glad you have a faith, my Christian faith has been a huge help to me on my journey. Two books on anxiety and depression too, helped, if you feel you are struggling with either or both. The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs, by Dr Steve Llardi, and At Last a Life by Paul David. Both available online. Come back to us if you have any more questions. You are not alone. Cristiana -
By Jack Common · Posted
Thank you for your answer. I read it here: https://www.beyondceliac.org/celiac-disease/non-celiac-gluten-sensitivity/ With the title "What’s the Difference Between Gluten Sensitivity and Celiac Disease?" -
By Jack Common · Posted
@Scott Adams Thank you for your answer. -
By Jacki Espo · Posted
For me I gave up oat products and it finally cleared. I had a whole body reaction for months. Two additional culprits for me: shared grill at a restaurant or a shared toaster. Hope you have relief soon. -
It can take between 6 months and 2 years for the dermatitis herpetiformis rash to resolve. The symptoms of dermatitis herpetiformis arise from deposits of certain antibodies building up in the skin. These deposits attract immune cells leading to inflammation and blistering. It can take 10 years for the deposits to be reabsorbed although symptoms resolve long before this.
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