Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What To Do When Everyone Is Ignorant/inconsiderate?


Drama-Queen

Recommended Posts

Drama-Queen Rookie

So I went to the Twin's game yesterday and afterwards my boyfriend and his family got the great idea to go to Baker's Square for pie....do I even need to say that it is a gluten-haven? Being nice I didn't say anything and went along with it. At the time I was extremely hungry. I had had breakfast but the game was long. I was at it from 12:00 to 5pm.

So we got to Baker's Square and ordered my beverage....water.....and the waitress came back and asked what I wanted to eat....I said no thanks.

So there I was at a booth with 5 other people...in between my boyfriend and his brother's girlfriend. So I sat there for the next hour watching him eat a brownie a la mode, and the girlfriend eat pumpkin pie. It was torture, and I was getting even hungrier. My boyfriend was well aware that I could not eat any of the food but didn't say anything when the parent's decided on a restaurant, because he is also too polite/nice.

What was the kicker though was that his mom asked "Why didn't you order anything?"

To this I replied "I have Celiac's disease."

She said "What's that?"

So then I had to explain that I can't eat gluten and what kinds of foods it was in.

What is so funny about this was that earlier in the summer before school started I spent a whole weekend (5 days) with my boyfriend's family up in Brainerd. So they accomodated my diet and cooked gluten free for me. I did manage to get glutened that weekend though because of cross-contamination.

Do some people just not have a memory? Do they just not take much interest in others? How hard should I kick my boyfriend in the shins for not saying something?

Peeved....yes. Super flaming angry mad....no. Concerned about my safety....definetely. :unsure:

BTW the Twins won the Division Title! (For those of you that don't like the Twins, don't leave nasty comments about this....that would be not about the point of my post.)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

I always carry food with me so that I have something to eat in that kind of circumstance. With celiac you really have to plan out each meal, so on a day like that, where you are dependent on others, bring enough food for the day so that you're pleasantly surprised if they pick a place you can eat. You can't really kick your boyfriend ... you should have said something to him to remind him to speak up for you. Some people (his family) will never remember ... I have totally clueless people related to me!

Drama-Queen Rookie

What are your favorite gluten-free items to bring with you? I am new at getting myself acclimated to this new diet. I bring snacks but that never is enough. What would you suggest?

I won't kick my boyfriend. I promise. :P

CarlaB Enthusiast

Well, right now I stick close to home because I'm on a diet to correct my adrenal fatigue that is waaayyy more strict than gluten-free .... but nuts, Lara Bars, Bumblebars, fruit, etc. is good, and I used to keep that kind of stuff in my purse at all times. If I were gone all day like you were, I would have actually packed a lunch -- gluten-free sandwich, corn torillas with meat and cheese, or something like that with chips, fruit, a bar, etc. Or just pack your favorite gluten-free snack. Last time we travelled, I brought along a box of gluten-free cereal and some Vance's Dari-Free powdered milk substitute (I can't have dairy, but the plus is you don't have to worry about refrigeration, just add water!) and ate cereal when everyone else was eating at a fast food place. I just brought it right in and ate it there (I dare them to tell me I can't! :P ). I'm always watching out for myself ... then if someone else looks out for me it's a pleasant surprise and a real gift from them!

Fortunately, big purses are coming back in style :D

Ruth52 Newbie

I know how frustrating it is when you aren't able to eat anything on the menu. I have noticed that our local bakery now has the 'token' gluten-free food - chocolate florentines and blueberry friands - not much but at least it's something.

I usually carry my own food. It's annoying and it's inconvenient, but it's safe.

Luckily my husband has learnt that it's a really good idea to cater for my dietary needs when we eat away from home! (I said that with a wry grin on my face).

happygirl Collaborator

peanuts were always a good 'filler' for me if you are aren't allergic (I can't tolerate them now)

any and all fruits, veggies, etc in little bags

I know its not healthy...but I used to bring candy along all the time. Snickers, etc.

fritos, tort chips, gluten free crackers, etc.

surprisingly, there are lots of choices! like carla said, its more about the planning. Which is a pain, but, it'll prevent you from being starving.

Hope this helps!

Drama-Queen Rookie

Thanks guys! Great suggestions! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Kathy Ann

I have a really nice family. But even they have pulled some unbelievably inconsiderate stunts. I have sat many times hungry in a booth surrounded with people chowing down on wonderful stuff. You're not alone. They just aren't thinking.

All the suggestions here have helped me too. I need to completely change how I think when I go places. I need to come up with treats I REALLY like and make sure to have a big supply of them to take wherever I go. I might not be able to enjoy what they are all having, but at least I won't have to starve at the same time! :blink:

Looks like I'll have to get a bigger purse! :P

Drama-Queen Rookie

Thrift Store large purse hunting here I come!!!!

And it will be vintage, and cheap too.....!!

Or I can just make one.....

(my creative mind is already working) :lol:

tarnalberry Community Regular

I suggest a couple things:

1. bring backup food in a purse/pocket - you never know when you won't be able to find food

2. speak up for yourself and don't rely on others to do it for you

3. talk to the waitress/waiter/manager about what you can have - I'll bet they would have had a baked potato or plain steak they could have made for you.

Michi8 Contributor
Do some people just not have a memory? Do they just not take much interest in others? How hard should I kick my boyfriend in the shins for not saying something?

Some people can't think beyond themselves, and really cannot even grasp being unable to eat something, especially if they have none of their own allergy/intolerance problems. Take my dad for example...I've had a peanut allergy since childhood, yet he would forget and bring home treats for the family that obviously had peanuts in them. Gosh he must have felt awful to see the hurt look on his little girl's face (and then he'd return to the store to get me something too.) :rolleyes:

Michelle

JenKuz Explorer
Thrift Store large purse hunting here I come!!!!

And it will be vintage, and cheap too.....!!

Or I can just make one.....

(my creative mind is already working) :lol:

Off topic, but check out www.craftster.org They have a thousand and one amazing bag patterns. And millions of other fantastic ideas for things to make. My user name is craft-matic, so watch for me :)

Or ebay "vintage airline bag" for some really cool large totes. Some are overpriced, but others are dirt cheap, thrift store prices. But that's coming from a girl in a sad, sad city where the thrift stores are worthless :(

Guest Kathy Ann

How about designing a stylish purse with clever hidden lined pockets to house a small ice pack and lots and lots of zippers or velcro for all those snacks, condiments, etc. to stay put? I'm going to work on that! :)

Adelle Enthusiast

I'm notorious for bringing food with me. Even before I discovered celiac. I always keep at least 1 "zone" bar with me. It tastes yummy and it tides me over till I can get actual food. I keep nonperishables stashed in my car, and usually have some fruit with me too. The local grocery store sells these instant nukeable thai food things, I stash them everywhere.

I'm also kind of a jerk, if someone wanted to go "out to eat" I would either say " well since I can't eat there, just drop me off at home and I'll eat there" or if they insist I'd say, "ok but let's find a phone book and call around to find a place that won't make me SICK". Usually they back off. Lol

And I have a big purse too :)

Guest melannen
Off topic, but check out www.craftster.org They have a thousand and one amazing bag patterns. And millions of other fantastic ideas for things to make. My user name is craft-matic, so watch for me :)

Or ebay "vintage airline bag" for some really cool large totes. Some are overpriced, but others are dirt cheap, thrift store prices. But that's coming from a girl in a sad, sad city where the thrift stores are worthless :(

I just have to chime in and second the recommendation for craftster. I'm over there too (night_owl)!

ok, back on topic :)

I love dried cranberries and peanuts, always have some with me. I also love KIND fruit and nut bars (made by PeaceWorks); my favorite is coconut almond.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to science enthusiast Christi's topic in Coping with Celiac Disease
      2

      Sugar intolerance 10 years into gluten-free diet

    2. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      Insomnia help

    3. - catnapt replied to xxnonamexx's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten Free Sugar or Starch known to increase gas?

    4. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      Insomnia help

    5. - hjayne19 replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,465
    • Most Online (within 30 mins)
      7,748

    Dferares
    Newest Member
    Dferares
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • cristiana
      PS... I help care for someone in their 90s, albeit part time, but have just been in hospital for a while with him and it has reminded me, even for someone in better physical shape, which I am now, thankfully, it can be very tough on one's health/sleep/mood.  I think what I am trying to say is you are going through a lot all at once, it is not surprising that you are not feeling 100 per cent. Even if we love our relative to bits, and they love us, they often can't understand that we too have lives, and need to keep our houses, families and jobs in running order. Something has to give, but it's often the carer!  When an elderly loved one is resistant to change, it makes things even more exhausting.  Often it has taken a crisis for me to be able to introduce the help that has actually been needed for so long.  It sounds as if you are doing an amazing job but can you get any support from any carers associations or other groups where you live, which might help?  
    • catnapt
      hmm you got me curious as I have suspected that certain foods with sugar may be an issue for me so I googled this and came up with this: " Key Compounds Causing Reactions in Gluten-Free Foods: Fructans: Often found in foods that are gluten-free but high in fiber (e.g., inulin, chicory root), acting as a trigger for digestive issues similar to gluten. Fructose (Fructose Malabsorption): A sugar found in fruits, honey, and high-fructose corn syrup. Some individuals cannot properly absorb this sugar, leading to fermentation in the gut. Sugar Alcohols (Polyols): Examples include mannitol, sorbitol, and xylitol, commonly added to gluten-free, sugar-free products to maintain sweetness. Lactose: A disaccharide found in dairy that frequently causes issues in individuals with damaged gut linings, a common occurrence in celiac disease.  These reactions are often classified as dietary intolerances (such as fructan intolerance or fructose malabsorption) rather than allergies. They are commonly found in packaged "gluten-free" products like bars, cereals, and processed snacks. " hope this helps.    
    • cristiana
      Hi @EvieJean I was delighted to read @hjayne19's comments about A LIfe at Last as the book definitely helped me to understand how anxiety works.   You may be suffering from vitamin and mineral deficiencies which will can contribute to and even cause anxiety. Have you had any tests done?  If you have and 'normal' results , do take a second look at the levels.  Low normal, for instance, in iron and B12, may still be causing you anxiety, so you may need to consider supplementation.  (If you do this, best talk to your GP, particularly regarding iron, as it needs regular monitoring. - too much in the blood can be dangerous) When I was first diagnosed, my GP was happy when my ferritin levels were c. 11 n/gL (just on the cusp of our local normal lab readings) whereas a consultant I saw some months later for continuing mouth issues said, 'Far too low! and told me my levels should at least be at 40.   Another example is B12 -  in some countries a reading of 500 is considered the start of normal levels, in the UK normal range starts at 180 n/gL.  I feel much better when my B12 is at a higher level. If you are feeling depressed and generally stressed I'd also consider reading Dr Steve Llardi's book The Depression Cure which looks at how incorporating a combination of physical exercise,  omega-3 fatty acids, natural sunlight exposure,  restorative sleep and social connectedness in your life can help you feel better.  I have given this book to many people who found it helpful, and a relative of mine who is a doctor thinks it is fantastic.   The run up to my diagnosis and for some time afterwards I had terrible brain fog, insomnia and intrusive thoughts.  In time, with the supplementation, and also with the help of the above books, I did feel so much better.  I really hope that you can find some of these tips help you too, and remember, try to keep your diet as gluten free as you possibly can.  Also, please come back to us if you have any further questions. Cristiana    
    • hjayne19
      @EvieJean Im sorry you’re going through that. I also find it frustrating to navigate different medications. However, it sounds like you have some bad anxiety - I went through and am going through the same thing. One of the posts in this chain recommended a book to me called “a Life at Last” by Paul David. I can honestly say it changed my life. Once you stop trying to think and fix your way out of anxiety it can bring a lot of peace. I found by taking these methods and suggestions into my daily life it did in fact improve my sleep! I also did a full blood panel and found my vitamin d was on the lower end. So currently taking vitamin d and feeling alot better. It sounds like you’ve had repeated gluten exposure so your gut may be delayed in healing. I’m no expert by any means but I really suggest reading the book and hopefully it’s a start!  @EvieJean Im sorry you’re going through that. I also find it frustrating to navigate different medications. However, it sounds like you have some bad anxiety - I went through and am going through the same thing. One of the posts in this chain recommended a book to me called “a Life at Last” by Paul David. I can honestly say it changed my life. Once you stop trying to think and fix your way out of anxiety it can bring a lot of peace. I found by taking these methods and suggestions into my daily life it did in fact improve my sleep! I also did a full blood panel and found my vitamin d was on the lower end. So currently taking vitamin d and feeling alot better. It sounds like you’ve had repeated gluten exposure so your gut may be delayed in healing. I’m no expert by any means but I really suggest reading the book and hopefully it’s a start! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.