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You're Know You're A Celiac If...


chgomom

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chgomom Enthusiast

You know you're a celiac if...

...you've ever been caught licking a discarded Twinkie wrapper.

...at Christmas, visions of guar gum dance in your head.

...you've ever had to give a doctor a crash course in Celiac 101.

...you weep at picnics, parties, receptions and fast food joints.

...you weep at breakfast, lunch, and dinner.

...you've ever "brown bagged it" to an elegant dinner engagement.

...a 7 Course Meal is a 1 Course Meal for you. Lettuce.

...you've installed floor-to-ceiling bookcases in your bathroom.

...you've ever driven more than 40 miles to buy flour or a cookie.

...it takes you 4 hours to grocery shop and your eyesight is

ruined.

...you hyperventilate when passing by the bakery counter.

...you've ever deliberately rammed your cart into a Shredded Wheat

display in a fit of rage.

...you've ever had to take out a loan to pay the grocery bill.

...you'd gladly pay any price for a pretzel that doesn't taste like

sawdust, or bread that doesn't taste like an old shoe.

...the centerpiece on your dining room table is a bread machine with memorial candles.

...your bread looks like a moon rock and tastes like dried out Play

Doh.

...your bread weighs more than any moon rock could possibly weigh.

...one of your primary goals in life is to create "Fake Oreo

Cookies".

...you've disinherited loved ones for putting their knife in your

mayo.


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  • Replies 112
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Guest Kathy Ann

...you've brought a suitcase full of food with you on a cruise.

chgomom Enthusiast
...you've brought a suitcase full of food with you on a cruise.

*lol*

AndreaB Contributor

I don't have anything to add........ :lol::lol::lol:

Guest Kathy Ann

I actually did that. And the airlines and the cruise line searched my suitcase twice! Probably thought I was a whacko. :blink:

AndreaB Contributor
I actually did that. And the airlines and the cruise line searched my suitcase twice! Probably thought I was a whacko. :blink:

:ph34r::blink::lol:

They obviously hadn't met too many celiacs.

chgomom Enthusiast

.........You pace and circle the store three or four times when deciding on a new product, pick it up look at the ingredients, each time. Only to leave without it, figuring why bother.


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ArtGirl Enthusiast
.........You pace and circle the store three or four times when deciding on a new product, pick it up look at the ingredients, each time. Only to leave without it, figuring why bother.

Boy, do I relate to that. :blink:

LonelyWolf307 Rookie

...your family thinks you're crazy for not tasting their new chocolate chocolate chip cookie recipe, because surely a little nibble couldn't hurt right?

Guest Kathy Ann

.......your financial portfolio consists of stock in two major toilet paper companies.

.......you are up late at night trying to develop a recipe for pizza without flour, cheese, yeast, tomatoes, beef, garlic and oregano.

.......you can spell transglutaminase and dermetitis herpetiformis.

.......you just discovered how to make flour out of turnips.

.......you show up at the annual church pancake breakfast with a mask and sardine lettuce rollups

Kody Rookie
.......your financial portfolio consists of stock in two major toilet paper companies.

.......you are up late at night trying to develop a recipe for pizza without flour, cheese, yeast, tomatoes, beef, garlic and oregano.

.......you can spell transglutaminase and dermetitis herpetiformis.

.......you just discovered how to make flour out of turnips.

.......you show up at the annual church pancake breakfast with a mask and sardine lettuce rollups

hahahah... :lol:

I can't think of anything... I've only been a certified Celiac for three days now. :(

Guest Kathy Ann

Don't worry......you'll get your sense of humor back! :D:D

Kody Rookie
Don't worry......you'll get your sense of humor back! :D:D

Uh, I hope so... always being sick kinda ruins your life in general. <_<

AndreaB Contributor

Kathy Ann,

Those are great!

:lol::lol::lol::lol::lol::lol:

Kody Rookie

...... you carry an ingredient list everywhere you go :( at least I do... hah

...... you buy cookies at a water store

Guest Kathy Ann

See? Now you're getting the hang of it! :D:D

Drama-Queen Rookie

....having solid poop is the highlight of your day.

....you have actually doodled a new cartoon dog on your notes named "Sprue"

.....you have a sign in your kitchen saying "Gluten free environment"

.....you have actually considered using a gluten-free bagel for a hockey puck

:P

Guest melannen
....having solid poop is the highlight of your day.

:P

hahahaha

There was another thread like this awhile ago (I just found it yesterday). Check it out Open Original Shared Link

jaten Enthusiast

You have to buy extra memory for your Treo to be able to carry all your gluten-free food and restaurant suggestions

angel-jd1 Community Regular
.......you can spell transglutaminase and dermetitis herpetiformis.

haha just incase you are practicing the spelling.............................dermAtitis herpetiformis :lol:

marciab Enthusiast

...you've mastered saying "I actually enjoy MY food" ... without your face twitching ... :D Marcia

chgomom Enthusiast

you've gotten in the habit of looking in the toilet everytime you go, as though its a crystal ball.

TriticusToxicum Explorer

...you know all about xanthan gum and its uses.

...you have ever dreamt about Wonder Bread.

2kids4me Contributor

... you hide the gluten-free cookies when guests come over, so they dont eat them.

tarnalberry Community Regular

You read the ingredient label on green tea - plain green tea.

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    • trents
      Welcome to the forum, @Cathijean90! I went 13 years from the first laboratory evidence of celiac disease onset before I was diagnosed. But there were symptoms of celiac disease many years before that like a lot of gas. The first laboratory evidence was a rejected Red Cross blood donation because of elevated liver enzymes. They assume you have hepatitis if your liver enzymes are elevated. But I was checked for all varieties of hepatitis and that wasn't it. Liver enzymes continued to slowly creep up for another 13 years and my PCP tested me for a lot of stuff and it was all negative. He ran out of ideas. By that time, iron stores were dropping as was albumin and total protein. Finally, I took it upon myself to schedule an appointment with a GI doc and the first thing he did was test me for celiac disease. I was positive of course. After three months of gluten free eating the liver enzymes were back in normal range. That was back in about 1992. Your story and mine are more typical than not. I think the average time to diagnosis from the onset of symptoms and initial investigation into causes for symptom is about 10 years. Things are improving as there is more general awareness in the medical community about celiac disease than there used to be years ago. The risk of small bowel lymphoma in the celiac population is 4x that of the general population. That's the bad news is.  The good news is, it's still pretty rare as a whole. Yes, absolutely! You can expect substantial healing even after all these years if you begin to observe a strict gluten free diet. Take heart! But I have one question. What exactly did the paperwork from 15 years ago say about your having celiac disease? Was it a test result? Was it an official diagnosis? Can you share the specifics please? If you have any celiac blood antibody test results could you post them, along with the reference ranges for each test? Did you have an endoscopy/biopsy to confirm the blood test results?
    • Cathijean90
      I’ve just learned that I had been diagnosed with celiac and didn’t even know. I found it on paperwork from 15 years ago. No idea how this was missed by every doctor I’ve seen after the fact. I’m sitting here in tears because I have really awful symptoms that have been pushed off for years onto other medical conditions. My teeth are now ruined from vomiting, I have horrible rashes on my hands, I’ve lost a lot of weight, I’m always in pain, I haven’t had a period in about 8-9 months. I’m so scared. I have children and I saw it can cause cancer, infertility, heart and liver problems😭 I’ve been in my room crying for the last 20minutes praying. This going untreated for so long has me feeling like I’m ruined and it’s going to take me away from my babies. I found this site googling and I don’t know really what has me posting this besides wanting to hear from others that went a long time with symptoms but still didn’t know to quit gluten. I’m quitting today, I won’t touch gluten ever again and I’m making an appointment somewhere to get checked for everything that could be damaged. Is this an automatic sentence for cancer and heart/liver damage after all these symptoms and years? Is there still a good chance that quitting gluten and being proactive from here on out that I’ll be okay? That I could still heal myself and possibly have more children? Has anyone had it left untreated for this amount of time and not had cancer, heart, fertility issues or liver problems that couldn’t be fixed? I’m sure I sound insane but my anxiety is through the roof. I don’t wanna die 😭 I don’t want something taking me from my babies. I’d gladly take anyone’s advice or hear your story of how long you had it before being diagnosed and if you’re still okay? 
    • trents
      Genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out and also to establish the potential to develop celiac disease. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop it. To develop celiac disease when you have the genetic potential also requires some kind of trigger to turn the latent genes "on", as it were. The trigger can be a lot of things and is the big mystery component of the celiac disease puzzle at this point in time with regard to the state of our knowledge.  Your IGA serum score would seem to indicate you are not IGA deficient and your tTG-IGA score looks to be in the normal range but in the future please include the reference ranges for negative vs. positive because different labs used different reference ranges. There is no industry standard.
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