Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):
    GliadinX

    Celiac.com Sponsor (A1-M):
    GliadinX

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

You're Know You're A Celiac If...

chgomom

By chgomom
in Coping with Celiac Disease

Recommended Posts

Rusla Enthusiast
Rusla
Posted

I had a miserable dream that people were holding me down and feeding me gluten. I woke up crying it was so awful. So, I can relate to that a whole lot.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
GliadinX
Food for Life

Celiac.com Sponsor (A8-M):
Smith & Truslow

  • Replies 112
  • Created
  • Last Reply
amber-rose Contributor
amber-rose
Posted
OMG Amber, right with you there on those kind of doughnuts, right down to the raspberry filling, my favorite!!! i think that's at the very top 10 of my list of things i miss, since there is no way to make a gluten-free recipe for THAT!!! I think that's god's way of punishing me for saying to a celiac boss once ten years before i was gluten-free that i didn't think i could never eat another doughnut. guess i was stronger than i thought!!

Haha, yeah, they're my favorite too! Everyday I crave one of those!! Atleast, Kinnikinnick has some doughnuts. But they're not like that rasberry-filled delciousness. :P

gflibrarian Newbie
gflibrarian
Posted

I'm so glad to know that I am not the only one with food fantasies and imaginary lists! One day I found myself driving thinking about what I would have if I could have a one time chance at having something with gluten. Pizza, canoli, krispy kreme anyone? Really though, if anyone ever knows of a gluten-free canoli, I would---well, everyone knows that I would cry, kiss you- hell, just be so thankful!

Thanks for the list, I'm going to share it with my gluten-free sister.

bremac Apprentice
bremac
Posted

Preface: Only a few of my classmates know I have celiac disease and I am generally very private about it until people "need to know."

You know you have celiac disease when....

After a tough exam, a classmate comes over and tries to stick a cookie in your mouth to cheer you uo and you're so tired that instead of just saying "no thankyou" like you usually do when people unknowingly offer you gluten, you say "I can't eat that" and he says (while continuing to try to feed it to me:P) "yes you can, you're tiny!" thinking that I was on a weight loss diet or something :blink: Luckily one of my good friends walked over at that point and helped me out.

kalanfan Explorer
kalanfan
Posted

...when you have a wishlist of gluten free foods you want to order off the internet...

brendygirl Community Regular
brendygirl
Posted

If you feel like you've regressed on the evolutionary scale...back to hunter and gatherer.

If your boyfriend ordered the famous pancake-bigger-than your head and when the waitress finds out you can't have any says to you, Boy is he a jerk!

If you've tipped a waitress/waiter who accommodated you successfully almost as much as the check total

If you've been told you are "blessed" to have a disease that keeps you thin.

If you know what your stomach feels and looks like 6 mos. pregnant, even tho you've never been

emcmaster Collaborator
emcmaster
Posted

.... if you've ever bought maternity clothes to hide your enormously bloated belly

.... if every day that you wake up to another good day of no glutening symptoms, you want to shout from the rooftops

.... if you bring your own food to an extremely formal political dinner

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
NutHouse! Granola Co.
Food for Life

Celiac.com Sponsor (A8-M):
Little Northern Bakehouse

MistressIsis Apprentice
MistressIsis
Posted
If you've been told you are "blessed" to have a disease that keeps you thin.

I HATE that one...my overweight family members have said, Oh maybe I should try your diet! Then they give up after 2 days.

- Your housemate comes home form a catering job & is thrilled to tell you how someone came in needing a gluten-free meal, explained everything to the chef and then my friend reiterated everything after the guest left and added some info (cc) and was thrilled that chef knew that because "they'd had some problems with it before"

Luvs to Scrap Apprentice
Luvs to Scrap
Posted

Just wanted to thank you all of the laughs. My DS and DH are the ones who have celiac but I can identify with a lot of it because I am the one preparing the food, shopping, and reading the labels, etc. Here are some to add . . .

You pick your son's friends by who has a mom who will only feed him "safe" snacks.

You celebrate when the poop in the diaper actually can be dumped in the toilet--solid at last!

:) Kendra

Kristen2Denise Apprentice
Kristen2Denise
Posted

This is the funniest thread ever!!! :D

I smell all kinds of gluten filled things all the time...friends and family know they have to put their plate in my face before eating so I can get a sniff!

MistressIsis Apprentice
MistressIsis
Posted

LOL! Kristen! I do the same thing!

Walk down the bread & packaged yummies aisle just for the smell

SarahTorg Apprentice
SarahTorg
Posted

You feel like you've just won the lottery when you find some gluten free pasta in a discount grocery store for 44 cents a package!

AND you call your husband up to tell about it. LOLOL

Oh, and just this morning I was putting some gluten cookies in a baggie for my husband, and I slowly inhaled their sweet, gluteny smell before sealing the bag.

I do that with his bread too. I probably shouldn't even be sniffing it.

Or if you are preparing someone elses gluten food, you wash your hands off before touching anything else in the kitchen. Yeah, its like a disease..

emcmaster Collaborator
emcmaster
Posted
Or if you are preparing someone elses gluten food, you wash your hands off before touching anything else in the kitchen. Yeah, its like a disease..

That's actually really important to do. If you were to transfer crumbs from his gluteny food to the fridge door and then later you touched the fridge door and then ate something, you could transfer gluten from his food to the fridge door to your hands to your food to your mouth.

Yes, it's a pain, but there's actually a reason we do it - to avoid cc.

aikiducky Apprentice
aikiducky
Posted

Don't know if this got mentioned yet...

...you find rice cake crumbs EVERYWHERE :ph34r::blink::D

Pauliina

who just finished vacuuming...

casnco Enthusiast
casnco
Posted
This is the funniest thread ever!!! :D

I smell all kinds of gluten filled things all the time...friends and family know they have to put their plate in my face before eating so I can get a sniff!

That is so funny! I do the same thing. I was just in Venice, Italy and I made my travel companion eat pizza so I could smell it. Sounds kind of kinky doesn't it?

jaten Enthusiast
jaten
Posted
you pay relatives back east exorbitant shipping rates to send you a $12 six pack of Gluten-free beer.

...you wonder if you can pay the "back east relatives" of a forum-mate you've never met exorbitant shipping rates to send you a $12 six pack of Gluten-free beer.

...you and your spouse sit on the couch reading this thread together, and both of you laugh knowingly

CarlaB Enthusiast
CarlaB
Posted

You know you're a celiac if ...

You understand the jokes on this thread!

Anteau25 Apprentice
Anteau25
Posted

... You get nervous that you ingested gluten because you blew wind ONCE even though in reality it was from all the beans you ate earlier!

Jestgar Rising Star
Jestgar
Posted

...You are THRILLED that you now have an excuse not to go to all those community fund-raiser breakfasts. (For all us introverts).

kbtoyssni Contributor
kbtoyssni
Posted

You have a panic attack when your manager puts the meeting sign-in sheet on the table next to the bagels and donuts... And you spend a good five minutes trying to figure out if you should ask a coworker to sign in for you or email your manager to tell him you were there before finally signing the sheet... using your own pen of course and being ever so careful not to touch the table or the paper... which means your name is practically illegable but you don't care because it means you avoided touching the gluten crumbs!

Kristen2Denise Apprentice
Kristen2Denise
Posted
That is so funny! I do the same thing. I was just in Venice, Italy and I made my travel companion eat pizza so I could smell it. Sounds kind of kinky doesn't it?

That is me to a T!!!

Lyza Jay Newbie
Lyza Jay
Posted

This has made be cry, both from laughter and just joy that people understand where i am coming from!

... you can read an ingredient label with over 100 ingredients in 10 seconds flat.

... you tell people you have a wheat "allergy" so that they will take you more seriously.

thanks everyone!

CarlaB Enthusiast
CarlaB
Posted
This has made be cry, both from laughter and just joy that people understand where i am coming from!

... you can read an ingredient label with over 100 ingredients in 10 seconds flat.

... you tell people you have a wheat "allergy" so that they will take you more seriously.

thanks everyone!

WELCOME, Lyza Jay!!

... you know what all the ingredients on a 100 ingredient list are derived from!!

Guest CD_Surviver
Guest CD_Surviver
Posted

you have to ask someone where the wheat flour is b/c you never have to buy but all of the sudden you need for a non gluten-free family member

you forget to get gluten hamburger buns b/c you don't eat them

MWD Newbie
MWD
Posted
...... you carry an ingredient list everywhere you go :( at least I do... hah

...... you buy cookies at a water store

......you need a bigger fanny pack for all the new forbidden & safe lists you find to print to carry with you

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):
    Little Northern Bakehouse


  • Member Statistics

    • Total Members
      128,876
    • Most Online (within 30 mins)
      7,748
    Princess Gregory
    Newest Member
    Princess Gregory
    Joined
  • Celiac.com Sponsor (A20):
    Holidaily Brewing Co.

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.3k
  • Celiac.com Sponsor (A22):
    GliadinX


  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):
    NutHouse! Granola Co.


  • Upcoming Events

  • Posts

    • trents
      How long after being diagnosed with Celiac do you feel better?

      By trents · Posted

      Thanks for sharing, Karen. Certainly a needed reminder what we already knew (and I've posted many times on this forum) but sometimes forget, namely, autoimmune disorders tend to cluster. Where one is found, you can look for others to show up eventually. The thing that is unusual in your son's case is the onset of several of them at such a young age. My sister in law, who is in her early 60's has Crohn's and struggles with constipation so I don't think that is unusual with Crohn's. If nothing else, it's the outcome of not eating much because of the pain. Now that you know what is going on with your son and the Crohn's, we hope he is beginning to improve.
    • Nathan.
      How long after being diagnosed with Celiac do you feel better?

      By Nathan. · Posted

      Hi there. My son is turning 16 this month. He had an endoscopy and biopsy to confirm celiac. He went gluten-free and his pain never got any better. I think it got worse. Months went by. The pain started around 7th grade. He missed a lot of school in 8th grade, and a whole lot in 9th grade. He couldn't go to school in 10th grade. All along the gastroenterologist prescribed Hyoscyamine, didn't help at all. Cyproheptadine, no less pain. Peppermint oil, ginger, Miralax, Senna. Doc said he was constipated, but I couldn't get him to have Miralax daily. Eventually he went on Linzess and no senna or Miralax. Sorry this is long, there will be a point.  We gave his school not just a doctors not, but everything, and U of M makes a lot of notes. They still turned us in for Truancy.  I didn't get him enrolled in online school fast enough.  The school would not recommend an online school and i didn't know which one to choose.  Doc thought it was nerve pain and mental. He recommended the u of m my pain program.  Nathan did so good, 3 days a week supposed to be for 4 weeks.  Never missed, always on time.   After two weeks, they discharged him. Said it was not  benefitting him.  Pain went on. I had been asking if there were any other test they could do. Ultrasound, colonoscopy. Doc said we can do it, but I don't think we'll find anything.  Finally he had a colonoscopy and another endoscopy.  Guess what, they did find something. They found a ton of tiny ulcers everywhere, from the esophagus to his rectum. They think Crohn's. I understand they didn't check for that because he was more constipated, not much diarrhea. He is getting an MRI with contrast on Sunday. Also they want him to do a cal-protectin (give a poop sample). Then an appointment on the 16th to talk about treatment. Then the probation officer on the 17th. In the meantime he is taking Budesonide extended release.  $276.00 for 30 pills, and that's with insurance. Also he was diagnosed with hyperthyroidism, Graves disease a few months ago. If it is for sure Crohn's,  it will be three autoimmune diseases. If someone is gluten-free for a month or more, and the pain is no better, don't stop looking. I was beside myself. Did they think he was exaggerating, lying? I was considering taking him to a holistic doctor, who would probably recommend Peppermint oil and ginger.  He's such a good kid. Kind of an introvert. He was on the 9th grade soccer team. He would try to go to practice and kept having to stop, the pain was that bad. Every time he ate, it didn't matter what, gluten-free chicken tenders, mac and cheese, pizza, ice cream, all gluten-free, he would eat a normal amount but stop and say, I can't eat anymore, my stomach hurts.  If anyone reads all this, thank you. I had a gut feeling, no pun intended, that he had an additional problem. They found celiac and stopped looking. If you don't feel better, keep on your doctor to check further, keep looking.   Take care, Karen  
    • Scott Adams
      Recent blood test results check in - TTG- IGA

      By Scott Adams · Posted

      Most likely cross-contamination I believe.
    • cristiana
      How long after being diagnosed with Celiac do you feel better?

      By cristiana · Posted

      I think it takes different people different amounts of time, but in my own case I had pain,  bloating and loose stools for some time, exacerbated by a lactose intolerance, which eventually went.  I would say the really bad diarrhea got better quite quickly, but the bloating pain carried on for a few months, until I was told to give up lactose for a few weeks.  That helped enormously and once I realised milk and yoghurt was the cause, after a short break I went back to lactose very gradually and felt a lot better.  Now I can tolerate it well. From Coeliac UK "The enzyme lactase is found in the brush border of the small intestine. This is why people with coeliac disease can be deficient in lactase at diagnosis. Once established on a gluten free diet, the gut is able to heal and lactose digestion returns to normal. Lactose intolerance is therefore usually temporary." So if this helps your daughter, this doesn't mean you have to give up lactose forever, especially as dairy is such a good source of calcium for growing kids.   Bear in mind you should be able to reintroduce it. As for fatigue, this can be due to vitamin and mineral deficiencies,such as iron, vitamin D and B12.  Were these levels tested?  If not, I would suggest you get them done.  If your daughter is deficient in these, it is vital you address the deficiencies, and get the tests redone in a few months, particularly the iron, because too much can be dangerous.
    • knitty kitty
      Inhaler problem

      By knitty kitty · Posted

      Hello,   The medication in these inhalers can cause a thiamine deficiency if used by someone already low in thiamine.  We don't absorb sufficient amounts of vitamins and minerals due to the inflammation and damage done to our villi in Celiac Disease.  Even a long term strict gluten free diet may not provide sufficient amounts of vitamins and minerals.  There are eight B vitamins that all work together.  Thiamine deficiency often shows up first because our bodies use so much of it and it can't be stored very long. Thiamine deficiency symptoms can appear in as little as three days.  Without thiamine, the other B vitamins may not be able to function properly.   Thiamine is needed to clear lactic acid accumulation caused by the inhalers: Shoshin beriberi provoked by the inhalation of salbutamol https://pubmed.ncbi.nlm.nih.gov/12951730/    Significant Lactic Acidosis from Albuterol https://pmc.ncbi.nlm.nih.gov/articles/PMC5965110/ Albuterol-Induced Type B Lactic Acidosis: Not an Uncommon Finding https://pmc.ncbi.nlm.nih.gov/articles/PMC7263006/ Lessons of the month 1: Salbutamol induced lactic acidosis: clinically recognised but often forgotten https://pmc.ncbi.nlm.nih.gov/articles/PMC6964186/ An Overview of Type B Lactic Acidosis Due to Thiamine (B1) Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC10731935/   Thiamine has antifungal and antibacterial properties.  Thiamine helps keep Candida in check.  Thiamine helps keep SIBO in check.  Thiamine helps with black mold, Aspergillis infection.  Riboflavin helps fight Candida infection in the mouth. Riboflavin Targets the Cellular Metabolic and Ribosomal Pathways of Candida albicans In Vitro and Exhibits Efficacy against Oropharyngeal Candidiasis https://pubmed.ncbi.nlm.nih.gov/36625571/   Thiamine deficiency can make ones voice hoarse and can cause localized edema.  Niacin deficiency can make ones voice hoarse.  (Niacin deficiency and Thiamine deficiency can each cause irritability, agitation, and lability.) Hoarseness in pellagra https://pubmed.ncbi.nlm.nih.gov/21507655/ Hidden Hunger: A Pellagra Case Report https://pmc.ncbi.nlm.nih.gov/articles/PMC8152714/   Anesthesia can cause B12 deficiency.  B12 deficiency can show up as mouth sores and geographic tongue, diarrhea, and dementia. Vitamin deficiency, a neglected risk factor for post-anesthesia complications: a systematic review https://pmc.ncbi.nlm.nih.gov/articles/PMC11823251/ Neurologic degeneration associated with nitrous oxide anesthesia in patients with vitamin B12 deficiency https://pubmed.ncbi.nlm.nih.gov/8250714/ Subacute combined degeneration of the spinal cord following nitrous oxide anesthesia: A systematic review of cases https://pubmed.ncbi.nlm.nih.gov/30144777/ The Effect of Vitamin B12 Infusion on Prevention of Nitrous Oxide-induced Homocysteine Increase: A Double-blind Randomized Controlled Trial https://pmc.ncbi.nlm.nih.gov/articles/PMC4052402/     Eating a diet that is heavy in carbohydrates can precipitate a thiamine deficiency.  As the amount of carbohydrates consumed increases, additional thiamine is needed, otherwise the carbs will be stored as fat.   Thiamine deficiency disorders: a clinical perspective https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/   The deficiency symptoms of some of the B vitamins cause gastrointestinal symptoms that resemble the same symptoms as when being glutened.   Thiamine deficiency can present as vomiting, diarrhea and abdominal pain (Gastrointestinal Beriberi).  Niacin deficiency can present as diarrhea (Pellagra = diarrhea, dermatitis, dementia, then death ).  B12 deficiency can present as diarrhea or dementia.  Not everything is caused by hidden gluten.  Gluten free processed foods are not required to be enriched with vitamins lost in processing like gluten containing foods are. Blood tests are not accurate measurements of vitamin levels, but do talk to your doctor and nutritionist about supplementing with the eight B vitamins, Vitamin C, the four fat soluble vitamins and minerals like magnesium.  Your physician can give you a shot of B12 before anesthesia administration.   By the way, Celiac Disease genes have been traced back to having originated in Neanderthals.  I'm not a singing teacher on the net.  I earned a degree in Microbiology after studying nutrition because I wanted to know what vitamins are doing inside the body.  I've experienced nutritional deficiencies myself. Hope this helps!  Keep us posted on your progress!
×
×
  • Create New...