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You're Know You're A Celiac If...


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Rusla Enthusiast

I had a miserable dream that people were holding me down and feeding me gluten. I woke up crying it was so awful. So, I can relate to that a whole lot.


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amber-rose Contributor
OMG Amber, right with you there on those kind of doughnuts, right down to the raspberry filling, my favorite!!! i think that's at the very top 10 of my list of things i miss, since there is no way to make a gluten-free recipe for THAT!!! I think that's god's way of punishing me for saying to a celiac boss once ten years before i was gluten-free that i didn't think i could never eat another doughnut. guess i was stronger than i thought!!

Haha, yeah, they're my favorite too! Everyday I crave one of those!! Atleast, Kinnikinnick has some doughnuts. But they're not like that rasberry-filled delciousness. :P

gflibrarian Newbie

I'm so glad to know that I am not the only one with food fantasies and imaginary lists! One day I found myself driving thinking about what I would have if I could have a one time chance at having something with gluten. Pizza, canoli, krispy kreme anyone? Really though, if anyone ever knows of a gluten-free canoli, I would---well, everyone knows that I would cry, kiss you- hell, just be so thankful!

Thanks for the list, I'm going to share it with my gluten-free sister.

bremac Apprentice

Preface: Only a few of my classmates know I have celiac disease and I am generally very private about it until people "need to know."

You know you have celiac disease when....

After a tough exam, a classmate comes over and tries to stick a cookie in your mouth to cheer you uo and you're so tired that instead of just saying "no thankyou" like you usually do when people unknowingly offer you gluten, you say "I can't eat that" and he says (while continuing to try to feed it to me:P) "yes you can, you're tiny!" thinking that I was on a weight loss diet or something :blink: Luckily one of my good friends walked over at that point and helped me out.

kalanfan Explorer

...when you have a wishlist of gluten free foods you want to order off the internet...

brendygirl Community Regular

If you feel like you've regressed on the evolutionary scale...back to hunter and gatherer.

If your boyfriend ordered the famous pancake-bigger-than your head and when the waitress finds out you can't have any says to you, Boy is he a jerk!

If you've tipped a waitress/waiter who accommodated you successfully almost as much as the check total

If you've been told you are "blessed" to have a disease that keeps you thin.

If you know what your stomach feels and looks like 6 mos. pregnant, even tho you've never been

emcmaster Collaborator

.... if you've ever bought maternity clothes to hide your enormously bloated belly

.... if every day that you wake up to another good day of no glutening symptoms, you want to shout from the rooftops

.... if you bring your own food to an extremely formal political dinner


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MistressIsis Apprentice
If you've been told you are "blessed" to have a disease that keeps you thin.

I HATE that one...my overweight family members have said, Oh maybe I should try your diet! Then they give up after 2 days.

- Your housemate comes home form a catering job & is thrilled to tell you how someone came in needing a gluten-free meal, explained everything to the chef and then my friend reiterated everything after the guest left and added some info (cc) and was thrilled that chef knew that because "they'd had some problems with it before"

Luvs to Scrap Apprentice

Just wanted to thank you all of the laughs. My DS and DH are the ones who have celiac but I can identify with a lot of it because I am the one preparing the food, shopping, and reading the labels, etc. Here are some to add . . .

You pick your son's friends by who has a mom who will only feed him "safe" snacks.

You celebrate when the poop in the diaper actually can be dumped in the toilet--solid at last!

:) Kendra

Kristen2Denise Apprentice

This is the funniest thread ever!!! :D

I smell all kinds of gluten filled things all the time...friends and family know they have to put their plate in my face before eating so I can get a sniff!

MistressIsis Apprentice

LOL! Kristen! I do the same thing!

Walk down the bread & packaged yummies aisle just for the smell

SarahTorg Apprentice

You feel like you've just won the lottery when you find some gluten free pasta in a discount grocery store for 44 cents a package!

AND you call your husband up to tell about it. LOLOL

Oh, and just this morning I was putting some gluten cookies in a baggie for my husband, and I slowly inhaled their sweet, gluteny smell before sealing the bag.

I do that with his bread too. I probably shouldn't even be sniffing it.

Or if you are preparing someone elses gluten food, you wash your hands off before touching anything else in the kitchen. Yeah, its like a disease..

emcmaster Collaborator
Or if you are preparing someone elses gluten food, you wash your hands off before touching anything else in the kitchen. Yeah, its like a disease..

That's actually really important to do. If you were to transfer crumbs from his gluteny food to the fridge door and then later you touched the fridge door and then ate something, you could transfer gluten from his food to the fridge door to your hands to your food to your mouth.

Yes, it's a pain, but there's actually a reason we do it - to avoid cc.

aikiducky Apprentice

Don't know if this got mentioned yet...

...you find rice cake crumbs EVERYWHERE :ph34r::blink::D

Pauliina

who just finished vacuuming...

casnco Enthusiast
This is the funniest thread ever!!! :D

I smell all kinds of gluten filled things all the time...friends and family know they have to put their plate in my face before eating so I can get a sniff!

That is so funny! I do the same thing. I was just in Venice, Italy and I made my travel companion eat pizza so I could smell it. Sounds kind of kinky doesn't it?

jaten Enthusiast
you pay relatives back east exorbitant shipping rates to send you a $12 six pack of Gluten-free beer.

...you wonder if you can pay the "back east relatives" of a forum-mate you've never met exorbitant shipping rates to send you a $12 six pack of Gluten-free beer.

...you and your spouse sit on the couch reading this thread together, and both of you laugh knowingly

CarlaB Enthusiast

You know you're a celiac if ...

You understand the jokes on this thread!

Anteau25 Apprentice

... You get nervous that you ingested gluten because you blew wind ONCE even though in reality it was from all the beans you ate earlier!

Jestgar Rising Star

...You are THRILLED that you now have an excuse not to go to all those community fund-raiser breakfasts. (For all us introverts).

kbtoyssni Contributor

You have a panic attack when your manager puts the meeting sign-in sheet on the table next to the bagels and donuts... And you spend a good five minutes trying to figure out if you should ask a coworker to sign in for you or email your manager to tell him you were there before finally signing the sheet... using your own pen of course and being ever so careful not to touch the table or the paper... which means your name is practically illegable but you don't care because it means you avoided touching the gluten crumbs!

Kristen2Denise Apprentice
That is so funny! I do the same thing. I was just in Venice, Italy and I made my travel companion eat pizza so I could smell it. Sounds kind of kinky doesn't it?

That is me to a T!!!

Lyza Jay Newbie

This has made be cry, both from laughter and just joy that people understand where i am coming from!

... you can read an ingredient label with over 100 ingredients in 10 seconds flat.

... you tell people you have a wheat "allergy" so that they will take you more seriously.

thanks everyone!

CarlaB Enthusiast
This has made be cry, both from laughter and just joy that people understand where i am coming from!

... you can read an ingredient label with over 100 ingredients in 10 seconds flat.

... you tell people you have a wheat "allergy" so that they will take you more seriously.

thanks everyone!

WELCOME, Lyza Jay!!

... you know what all the ingredients on a 100 ingredient list are derived from!!

Guest CD_Surviver

you have to ask someone where the wheat flour is b/c you never have to buy but all of the sudden you need for a non gluten-free family member

you forget to get gluten hamburger buns b/c you don't eat them

MWD Newbie
...... you carry an ingredient list everywhere you go :( at least I do... hah

...... you buy cookies at a water store

......you need a bigger fanny pack for all the new forbidden & safe lists you find to print to carry with you

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    • Hmart
      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 10/24, I have been strict about being gluten free - so about a month. I have been eating dairy free and low FODMAP as well because it’s what my stomach allows. Baked fish, potatoes, rice, etc. Whole foods and limited Whole foods. I have continued to lose weight but it has slowed down, but a total of about 15 pounds since I went gluten free. Along with stomach pain, my symptoms included nausea, body and joint pain, a burning sensation throughout my body and heart rate spikes. I still have them but I have them less now. These are the symptoms that led to my doctor appointments and subsequent diagnosis. I also did the DNA screening and was positive. So, at this point, the answer is yes, I have celiac. I have two questions for this group. Any ideas on why my enteropathy was so severe (marsh 3B) and my TtG was so minimal? Is that common? Or are there other things to consider with that combo? And this recovery, still having pain and other symptoms a month later (7 weeks gluten free and 4 weeks after the glutening) normal? I’m going to continue down this path of bland foods and trying to heal but would love to understand the reasons for the long journey. I read so much about people who stop eating gluten and feel amazing. I wish that was my experience but it certainly hasn’t been. Thank you again!
    • knitty kitty
      @Trish G,  I like dates, they have lots if fiber as well.  But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small intestines where our nutrients are absorbed.  If you have constipation, where your body is rather pushing your food away and not interacting with it, the nutrients in the food are not being released and absorbed.  You can develop deficiencies in all the vitamins and minerals necessary for the body to function properly.   The B vitamins cannot be stored for long, so they must be replenished daily.  Thiamine B 1 stores can run out in as little as three days.  Constipation (or diarrhea or alternating) is one of the first symptoms of thiamine deficiency.  Thiamine needs magnesium, Pyridoxine B 6, and Riboflavin B 2 to make the intestinal tract function.  Thiamine and Niacin make digestive enzymes.  Thiamine provides the energy for nerve impulses to carry messages to the brain and back about digestion.  Thiamine provides the energy for the muscle contractions which move your food through the digestive tract. High calorie meals containing lots of starches and sugars can deplete thiamine stores quickly because more thiamine is required to turn them into energy.   Are you taking any vitamin and mineral supplements?  Correction of malnutrition is very important in Celiac disease.  Thiamine, the other B vitamins and magnesium will help with constipation better than adding more fiber.  What did your nutritionist recommend you take, besides just the fiber? The association between dietary vitamin B1 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11100033/ Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Association between dietary vitamin B6 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11584952/
    • knitty kitty
      @kpf, Were you eating ten grams or more of gluten daily in the month preceding your antibody blood tests? TTg IgA antibodies are made in the intestines.  Ten grams of gluten per day for several weeks before testing is required to provoke sufficient antibody production for the antibodies to leave the intestines and enter the blood stream and be measured in blood tests. If you had already gone gluten free or if you had lowered your consumption of gluten before testing, your results will be inaccurate and inconclusive.   See link below on gluten challenge guidelines. Have you had any genetic testing done to see if you carry genes for Celiac disease?  If you don't have genes for Celiac, look elsewhere for a diagnosis.  But if you have Celiac genes, you cannot rule out Celiac disease. You mentioned in another post that you are vegetarian.  Have you been checked for nutritional deficiencies?  The best sources of the eight essential B vitamins are found in meats.  Do you supplement any of the B vitamins as a vegetarian? Deficiency in Thiamine Vitamin B 1 is strongly associated with anemia which can cause false negatives on antibody tests.  Fatigue, numbness or tingling in extremities, difficulty with coordination, headaches and anemia are strongly associated with thiamine deficiency.  Other B vitamins that contribute to those symptoms are Riboflavin B 2, Pyridoxine B 6, Folate B 9 and B12 Cobalamine.  The eight B vitamins all work together with minerals like magnesium and iron.  So your symptoms are indicative of B vitamin deficiencies.  You can develop vitamin and mineral deficiencies just being a vegetarian and not eating good sources of B vitamins like meat.  B vitamin deficiencies are found in Celiac due to the malabsorption of nutrients because the lining of the intestines gets damaged by the antibodies produced in response to gluten.    
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