Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

B Complex And Siezures Related To Dificiancy


sillyken

Recommended Posts

sillyken Enthusiast

Hi gang,

I hope this will further discussion and some studies. For the past few mothns, about 5 I'll say, I've been expereincing siezure like symtems; jerky muscles, out of control upper body movements, and screaming during these events. A nurse friend of mine said she saw a related TV reprort on a girl with a shortage in B vitamins because of celiac and was going into siezures. After special treament on B Complex she got better. I've seen a Nuerologist, a Psychiatrist. and my Family Care Physician and all three say this is not my specialty. I've had the MRI, EEG, and 24 Hour EEG and all showed no sign of seizures. Does anyone else have similar experiences? Does anyone know of a Dr that might specialize in such disorders.

Grasping at straws

Ken


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kody Rookie

damn bro. hell no I don't get seizures like that. I've had a couple bad ones in my life but they weren't like that. Hopefully you figure out what you gotta do.

eKatherine Apprentice

Have you been tested for deficiencies in B vitamins? If not, you should. It won't hurt you to get a good quality multi-B supplement and a sublingual B-12, regardless.

rinne Apprentice

Do you know where your Vitamin B 12 count is at?

The range they allow as normal is between about 170 and 770, mine were at 226 and that was so low that I needed an injection. My understanding is that when they get very low an injection is needed as just taking supplements won't bring your levels up quickly enough.

Do you have other symptoms?

RiceGuy Collaborator

I'd say definitely try a B12 right away. You can take that before/without having your level tested, so no harm done. The sublingual type in the form of methylcobalamin is supposed to be just as effective as a shot. It bypasses the digestive system, going directly into the blood stream. The benefits can apparently start the same day too. Source Naturals makes one in that form which is gluten-free. From all my research, it may be best to take only the kind with B12, without the other vitamins unless you are actually low on them. While B12 has no known toxic level, the others like B6 and such can be overdosed.

I think I read that some B vitamin deficiencies don't show up in a blood test very well. I'm not certain what the limits of the tests are. I wouldn't wait to see a nutritionist or whatever is best able to help you in this regard if you need guidance on the vitamins, but fortunately you don't need any prescriptions or doctors to take supplements. I hate doctors for all the years of misdiagnosis, so I'm too biased against them to say more.

Mandy F. Apprentice

I don't know anything about seizures caused by B deficiencies, but my older sister and I had pseudoseizures. We were both diagnosed with PTSD and were under incredible amounts of stress at the time (we didn't have them at the same time, though). Nothing ever showed up on any of the tests that they ran. Good Luck, hope you figure it out.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,366
    • Most Online (within 30 mins)
      7,748

    Stacey sharkey
    Newest Member
    Stacey sharkey
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • captaincrab55
      Welcome Connie Smitj,  Did you have a follow up test to see if the treatment for H Pylori was successful?  It's possible to catch it again, especially from a partner.  When I contracted it a second time my wife was tested and was positive for two of the bacteria in H Pylori.  
    • trents
      Welcome to the forum, @Connie Smitj! Can you give us a little more history about your celiac journey? How long ago were you diagnosed and how long have your been gluten free? Do you have other symptoms besides quick onset of hunger after eating and gut pain? How long have these symptoms being happening?
    • Connie Smitj
      I eat a gluten-free diet but hunger pains start within an hour of eating dinner. I  had h pylori infection before I was diagnosed. Occasionally I’ll have bouts of pain. Could it come back or is it just celiac disease?
    • trents
      Scott, am I missing something? For the TTG-IGA normal is anything 3 or less and his score less than 2. I think that one is in normal range. @Brown42186, if the GI doc is not interested in doing an endoscopy with biopsy of the small bowel lining based on the elevated TTG-IGG I would request a repeat on the bloodwork now that you have resumed gluten consumption again.
    • Joyes
      Interesting for sure. Have you heard of potential cross reactivity to casein (dairy), corn, milket, iats, rice, and yeast?
×
×
  • Create New...