Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

B Complex And Siezures Related To Dificiancy


sillyken

Recommended Posts

sillyken Enthusiast

Hi gang,

I hope this will further discussion and some studies. For the past few mothns, about 5 I'll say, I've been expereincing siezure like symtems; jerky muscles, out of control upper body movements, and screaming during these events. A nurse friend of mine said she saw a related TV reprort on a girl with a shortage in B vitamins because of celiac and was going into siezures. After special treament on B Complex she got better. I've seen a Nuerologist, a Psychiatrist. and my Family Care Physician and all three say this is not my specialty. I've had the MRI, EEG, and 24 Hour EEG and all showed no sign of seizures. Does anyone else have similar experiences? Does anyone know of a Dr that might specialize in such disorders.

Grasping at straws

Ken


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kody Rookie

damn bro. hell no I don't get seizures like that. I've had a couple bad ones in my life but they weren't like that. Hopefully you figure out what you gotta do.

eKatherine Rookie

Have you been tested for deficiencies in B vitamins? If not, you should. It won't hurt you to get a good quality multi-B supplement and a sublingual B-12, regardless.

rinne Apprentice

Do you know where your Vitamin B 12 count is at?

The range they allow as normal is between about 170 and 770, mine were at 226 and that was so low that I needed an injection. My understanding is that when they get very low an injection is needed as just taking supplements won't bring your levels up quickly enough.

Do you have other symptoms?

RiceGuy Collaborator

I'd say definitely try a B12 right away. You can take that before/without having your level tested, so no harm done. The sublingual type in the form of methylcobalamin is supposed to be just as effective as a shot. It bypasses the digestive system, going directly into the blood stream. The benefits can apparently start the same day too. Source Naturals makes one in that form which is gluten-free. From all my research, it may be best to take only the kind with B12, without the other vitamins unless you are actually low on them. While B12 has no known toxic level, the others like B6 and such can be overdosed.

I think I read that some B vitamin deficiencies don't show up in a blood test very well. I'm not certain what the limits of the tests are. I wouldn't wait to see a nutritionist or whatever is best able to help you in this regard if you need guidance on the vitamins, but fortunately you don't need any prescriptions or doctors to take supplements. I hate doctors for all the years of misdiagnosis, so I'm too biased against them to say more.

Mandy F. Apprentice

I don't know anything about seizures caused by B deficiencies, but my older sister and I had pseudoseizures. We were both diagnosed with PTSD and were under incredible amounts of stress at the time (we didn't have them at the same time, though). Nothing ever showed up on any of the tests that they ran. Good Luck, hope you figure it out.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,950
    • Most Online (within 30 mins)
      7,748

    BeeBarnard
    Newest Member
    BeeBarnard
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @BeeBarnard! I really can't imagine how either skin or skinless chicken thighs could not be gluten free unless one or the other were treated with some seasoning ingredient that was not gluten free. Do the product labels indicate any additional ingredients added to the meat? Is your daughter a super sensitive celiac? If not, the amount of gluten cross contamination found in seasonings is usually inconsequential.
    • BeeBarnard
      HI, My daughter was recently diagnosed with Celiac and I would like to make her some chicken soup (she's got he flu). I found all gluten free ingredients but I'm having trouble with the chicken. I purchased Purdue bone-in chicken thighs from BJ's Wholesale Club. Purdue says that they are gluten free but the BJ's website says no. It seems like skin-on chicken is not, but skinless is. Does this seem accurate? Thank you
    • S V
      On 1/1/2025 10:04 PM, Sandra Vail wrote: The medalions we're actually pretty tasty wrapped in bacon. I was just trying to accommodate one of the guests who is sensitive to wheat. They had other appies to choose from so all's well that ends well. The Costco scallops are excellent but 4 x the price. Thanks!
    • Celiacandme
      Hello there, it's been ages since I signed into this account. Wanted to see if there were other celiac patients that have gone through perimenopause/menopause and chose to take estrogen or wear an estrogen patch? I know all of our bodies are different but curious how it went or is going for you. Thanks so much. 
    • Scott Adams
      I believe I've seen them at Costco still in the shells (in the frozen seafood area), which might be a safe way to go.
×
×
  • Create New...