Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Need More Of Yall's Wonderful Advice!


ptkds

Recommended Posts

ptkds Community Regular

My dd may have celiac disease. We are going to the GI dr on Monday. Anyway, she doesnt' seem to be eating much. I am not sure if it is from celiac disease or something else. She is 16 months old, and here is what she ate today: 1.5 bananas (she threw half of the 2nd one on the floor), a little bit of milk, 1 pb&j sandwich and a whole cup of milk. That is it. No snacks in between or anything. She never acted like she wanted food. She NEVER needs a snack between meals. She usually eats 3-4 times a day, but recently it has only been 2-3 times. Toddlers just need more food than that!

So, what do you guys think?? Could it be from celiac, or something else?

Thanks,

ptkds


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Maybe she won't eat because eating gives her a tummy ache?

She needs meat to get iron. If she doesn't get enough protein and iron, her brain can't develop properly.

Do you think she might eat if you set out some food on a small kid's table with chairs? I know my grandchildren love sitting at their own little table. Then, instead of you trying to get her to eat, you just let her know the food is there when she wants it. Hopefully, she'll go and help herself now and then (maybe small amounts at a time, but sort of snacking throughout the day). There is no guarantee it will work, but worth a try.

Carriefaith Enthusiast

She may just not want to eat because she may associate food with feeling sick. When I was really sick with celiac disease all food seemed to make me sick. I would get explosive gas, bloating, and major D from almost anything I ate. I used to have major D almost every morning and I would usually feel ok stomach wise until I started eating again.

I suggest getting her tested for celiac disease. Just make sure there is gluten in her diet if you decide to gets tests done. If she is gluten-free, then she may get false negative results.

I also suggest getting food allergy testing done.

Daxin Explorer

It possible that she could have an upset stomach. Either from Celiac or some other source.

My DD is a little over 2, and she goes through a few days here and there where she does not eat.

Other possible reasons could be -- teething, ear ache etc. Does she have a fever? How long has this been going on? I would suggest that if she is not eating "normally" in a couple of days, then you may need to take her to see a doctor.

I hope that helps.

TCA Contributor

My son was like this until going gluten-free. He's still not a huge eater, but more normal. He hasn't been eating the past couple weeks b/c of a nasty cold and he's losing weight, but hopefully he'll feel better soon. After about a month on the diet he said out of the blue ,"Mommy, my tummy doesn't hurt anymore." I think that's why he wouldn't eat.

eKatherine Apprentice

It's also true that toddlers, being really small, have fairly low caloric requirements between growth spurts. It is normal for it to appear that they are eating almost nothing.

shayesmom Rookie
My dd may have celiac disease. We are going to the GI dr on Monday. Anyway, she doesnt' seem to be eating much. I am not sure if it is from celiac disease or something else. She is 16 months old, and here is what she ate today: 1.5 bananas (she threw half of the 2nd one on the floor), a little bit of milk, 1 pb&j sandwich and a whole cup of milk. That is it. No snacks in between or anything. She never acted like she wanted food. She NEVER needs a snack between meals. She usually eats 3-4 times a day, but recently it has only been 2-3 times. Toddlers just need more food than that!

So, what do you guys think?? Could it be from celiac, or something else?

Thanks,

ptkds

Personally, I agree with a pp that she is probably associating feeling ill with eating due to Celiac. My dd was the same way up until we took gluten out of her diet. I swear she ate just enough not to starve! When we went gluten-free, her appetite seemed to triple and now she eats very healthily. We do have days where her appetite is less than others, but it's for a day here or there....or a meal here or there. It usually depends on the atmosphere (if we're at a party or other social venue she barely eats as she's too "busy"). In any case, the difference was quite profound.

I really hope that the biopsy is scheduled for soon. I hate the fact that this takes so incredibly long. Especially when you have a potential answer in sight and you can't even try it!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



azmom3 Contributor

My little guy doesn't each much either. I always carry something in my purse for him so I can sneak in any small amount of calories any where I can....a snack while he's in the stroller, at the park, wherever. I also share a bite of anything I'm eating as sometimes he's more interested in mine, (probably just because it's not his.) Maybe these aren't the best eating habits to establish, but until he is able to put on a little weight, I will try anything and this does seem to help for us. Sometimes, he'll eat 6-8 times a day, but maybe only have 1-2 bites of something each time. We just keep trying. I agree though that a toddler this age doesn't need a whole lot so sometimes it appears they're not eating much when they're really getting enough. Good luck!

Guest Jordan

When I read your posting I couldn't believe how similar it sounded to one I posted on a different site a few months ago. At the time my 15 month old was barely eating and I could not figure out why. Finally the doctors found out she had celiac (I had never even heard of it or gluten until then). Even when the doctor told me about it I was very skeptical b/c I figured it wasn't anything serious - just a extremely picky eater with a small appetitie. I would never believed how big of a difference a change in diet has made. She does eat more (without any fighting) although still quite picky about what, but more importantly she is completely changed in behavior. Not whiny or clingy anymore. She wants to run around and play. She is no longer what I used to think was "shy" (she really was feeling lousy" but is now as people often remark a "social butterfly." Anyways I just wanted to let you know that your posting really struck a cord with me and I hope the best for you and your daughter.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,398
    • Most Online (within 30 mins)
      7,748

    Megannnnn
    Newest Member
    Megannnnn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
    • Mmoc
      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.