Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Need More Of Yall's Wonderful Advice!


ptkds

Recommended Posts

ptkds Community Regular

My dd may have celiac disease. We are going to the GI dr on Monday. Anyway, she doesnt' seem to be eating much. I am not sure if it is from celiac disease or something else. She is 16 months old, and here is what she ate today: 1.5 bananas (she threw half of the 2nd one on the floor), a little bit of milk, 1 pb&j sandwich and a whole cup of milk. That is it. No snacks in between or anything. She never acted like she wanted food. She NEVER needs a snack between meals. She usually eats 3-4 times a day, but recently it has only been 2-3 times. Toddlers just need more food than that!

So, what do you guys think?? Could it be from celiac, or something else?

Thanks,

ptkds


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Maybe she won't eat because eating gives her a tummy ache?

She needs meat to get iron. If she doesn't get enough protein and iron, her brain can't develop properly.

Do you think she might eat if you set out some food on a small kid's table with chairs? I know my grandchildren love sitting at their own little table. Then, instead of you trying to get her to eat, you just let her know the food is there when she wants it. Hopefully, she'll go and help herself now and then (maybe small amounts at a time, but sort of snacking throughout the day). There is no guarantee it will work, but worth a try.

Carriefaith Enthusiast

She may just not want to eat because she may associate food with feeling sick. When I was really sick with celiac disease all food seemed to make me sick. I would get explosive gas, bloating, and major D from almost anything I ate. I used to have major D almost every morning and I would usually feel ok stomach wise until I started eating again.

I suggest getting her tested for celiac disease. Just make sure there is gluten in her diet if you decide to gets tests done. If she is gluten-free, then she may get false negative results.

I also suggest getting food allergy testing done.

Daxin Explorer

It possible that she could have an upset stomach. Either from Celiac or some other source.

My DD is a little over 2, and she goes through a few days here and there where she does not eat.

Other possible reasons could be -- teething, ear ache etc. Does she have a fever? How long has this been going on? I would suggest that if she is not eating "normally" in a couple of days, then you may need to take her to see a doctor.

I hope that helps.

TCA Contributor

My son was like this until going gluten-free. He's still not a huge eater, but more normal. He hasn't been eating the past couple weeks b/c of a nasty cold and he's losing weight, but hopefully he'll feel better soon. After about a month on the diet he said out of the blue ,"Mommy, my tummy doesn't hurt anymore." I think that's why he wouldn't eat.

eKatherine Apprentice

It's also true that toddlers, being really small, have fairly low caloric requirements between growth spurts. It is normal for it to appear that they are eating almost nothing.

shayesmom Rookie
My dd may have celiac disease. We are going to the GI dr on Monday. Anyway, she doesnt' seem to be eating much. I am not sure if it is from celiac disease or something else. She is 16 months old, and here is what she ate today: 1.5 bananas (she threw half of the 2nd one on the floor), a little bit of milk, 1 pb&j sandwich and a whole cup of milk. That is it. No snacks in between or anything. She never acted like she wanted food. She NEVER needs a snack between meals. She usually eats 3-4 times a day, but recently it has only been 2-3 times. Toddlers just need more food than that!

So, what do you guys think?? Could it be from celiac, or something else?

Thanks,

ptkds

Personally, I agree with a pp that she is probably associating feeling ill with eating due to Celiac. My dd was the same way up until we took gluten out of her diet. I swear she ate just enough not to starve! When we went gluten-free, her appetite seemed to triple and now she eats very healthily. We do have days where her appetite is less than others, but it's for a day here or there....or a meal here or there. It usually depends on the atmosphere (if we're at a party or other social venue she barely eats as she's too "busy"). In any case, the difference was quite profound.

I really hope that the biopsy is scheduled for soon. I hate the fact that this takes so incredibly long. Especially when you have a potential answer in sight and you can't even try it!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



azmom3 Contributor

My little guy doesn't each much either. I always carry something in my purse for him so I can sneak in any small amount of calories any where I can....a snack while he's in the stroller, at the park, wherever. I also share a bite of anything I'm eating as sometimes he's more interested in mine, (probably just because it's not his.) Maybe these aren't the best eating habits to establish, but until he is able to put on a little weight, I will try anything and this does seem to help for us. Sometimes, he'll eat 6-8 times a day, but maybe only have 1-2 bites of something each time. We just keep trying. I agree though that a toddler this age doesn't need a whole lot so sometimes it appears they're not eating much when they're really getting enough. Good luck!

Guest Jordan

When I read your posting I couldn't believe how similar it sounded to one I posted on a different site a few months ago. At the time my 15 month old was barely eating and I could not figure out why. Finally the doctors found out she had celiac (I had never even heard of it or gluten until then). Even when the doctor told me about it I was very skeptical b/c I figured it wasn't anything serious - just a extremely picky eater with a small appetitie. I would never believed how big of a difference a change in diet has made. She does eat more (without any fighting) although still quite picky about what, but more importantly she is completely changed in behavior. Not whiny or clingy anymore. She wants to run around and play. She is no longer what I used to think was "shy" (she really was feeling lousy" but is now as people often remark a "social butterfly." Anyways I just wanted to let you know that your posting really struck a cord with me and I hope the best for you and your daughter.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    2. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    3. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,412
    • Most Online (within 30 mins)
      7,748

    Susan Marble
    Newest Member
    Susan Marble
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.