Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Need More Of Yall's Wonderful Advice!

ptkds

Recommended Posts

ptkds Community Regular
ptkds
Posted

My dd may have celiac disease. We are going to the GI dr on Monday. Anyway, she doesnt' seem to be eating much. I am not sure if it is from celiac disease or something else. She is 16 months old, and here is what she ate today: 1.5 bananas (she threw half of the 2nd one on the floor), a little bit of milk, 1 pb&j sandwich and a whole cup of milk. That is it. No snacks in between or anything. She never acted like she wanted food. She NEVER needs a snack between meals. She usually eats 3-4 times a day, but recently it has only been 2-3 times. Toddlers just need more food than that!

So, what do you guys think?? Could it be from celiac, or something else?

Thanks,

ptkds

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Maybe she won't eat because eating gives her a tummy ache?

She needs meat to get iron. If she doesn't get enough protein and iron, her brain can't develop properly.

Do you think she might eat if you set out some food on a small kid's table with chairs? I know my grandchildren love sitting at their own little table. Then, instead of you trying to get her to eat, you just let her know the food is there when she wants it. Hopefully, she'll go and help herself now and then (maybe small amounts at a time, but sort of snacking throughout the day). There is no guarantee it will work, but worth a try.

Carriefaith Enthusiast
Carriefaith
Posted

She may just not want to eat because she may associate food with feeling sick. When I was really sick with celiac disease all food seemed to make me sick. I would get explosive gas, bloating, and major D from almost anything I ate. I used to have major D almost every morning and I would usually feel ok stomach wise until I started eating again.

I suggest getting her tested for celiac disease. Just make sure there is gluten in her diet if you decide to gets tests done. If she is gluten-free, then she may get false negative results.

I also suggest getting food allergy testing done.

Daxin Explorer
Daxin
Posted

It possible that she could have an upset stomach. Either from Celiac or some other source.

My DD is a little over 2, and she goes through a few days here and there where she does not eat.

Other possible reasons could be -- teething, ear ache etc. Does she have a fever? How long has this been going on? I would suggest that if she is not eating "normally" in a couple of days, then you may need to take her to see a doctor.

I hope that helps.

TCA Contributor
TCA
Posted

My son was like this until going gluten-free. He's still not a huge eater, but more normal. He hasn't been eating the past couple weeks b/c of a nasty cold and he's losing weight, but hopefully he'll feel better soon. After about a month on the diet he said out of the blue ,"Mommy, my tummy doesn't hurt anymore." I think that's why he wouldn't eat.

eKatherine Apprentice
eKatherine
Posted

It's also true that toddlers, being really small, have fairly low caloric requirements between growth spurts. It is normal for it to appear that they are eating almost nothing.

shayesmom Rookie
shayesmom
Posted
My dd may have celiac disease. We are going to the GI dr on Monday. Anyway, she doesnt' seem to be eating much. I am not sure if it is from celiac disease or something else. She is 16 months old, and here is what she ate today: 1.5 bananas (she threw half of the 2nd one on the floor), a little bit of milk, 1 pb&j sandwich and a whole cup of milk. That is it. No snacks in between or anything. She never acted like she wanted food. She NEVER needs a snack between meals. She usually eats 3-4 times a day, but recently it has only been 2-3 times. Toddlers just need more food than that!

So, what do you guys think?? Could it be from celiac, or something else?

Thanks,

ptkds

Personally, I agree with a pp that she is probably associating feeling ill with eating due to Celiac. My dd was the same way up until we took gluten out of her diet. I swear she ate just enough not to starve! When we went gluten-free, her appetite seemed to triple and now she eats very healthily. We do have days where her appetite is less than others, but it's for a day here or there....or a meal here or there. It usually depends on the atmosphere (if we're at a party or other social venue she barely eats as she's too "busy"). In any case, the difference was quite profound.

I really hope that the biopsy is scheduled for soon. I hate the fact that this takes so incredibly long. Especially when you have a potential answer in sight and you can't even try it!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


azmom3 Contributor
azmom3
Posted

My little guy doesn't each much either. I always carry something in my purse for him so I can sneak in any small amount of calories any where I can....a snack while he's in the stroller, at the park, wherever. I also share a bite of anything I'm eating as sometimes he's more interested in mine, (probably just because it's not his.) Maybe these aren't the best eating habits to establish, but until he is able to put on a little weight, I will try anything and this does seem to help for us. Sometimes, he'll eat 6-8 times a day, but maybe only have 1-2 bites of something each time. We just keep trying. I agree though that a toddler this age doesn't need a whole lot so sometimes it appears they're not eating much when they're really getting enough. Good luck!

Guest Jordan
Guest Jordan
Posted

When I read your posting I couldn't believe how similar it sounded to one I posted on a different site a few months ago. At the time my 15 month old was barely eating and I could not figure out why. Finally the doctors found out she had celiac (I had never even heard of it or gluten until then). Even when the doctor told me about it I was very skeptical b/c I figured it wasn't anything serious - just a extremely picky eater with a small appetitie. I would never believed how big of a difference a change in diet has made. She does eat more (without any fighting) although still quite picky about what, but more importantly she is completely changed in behavior. Not whiny or clingy anymore. She wants to run around and play. She is no longer what I used to think was "shy" (she really was feeling lousy" but is now as people often remark a "social butterfly." Anyways I just wanted to let you know that your posting really struck a cord with me and I hope the best for you and your daughter.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Son's legs shaking

      @lizzie42, You're being a good mom, seeking answers for your son. Cheers! Subclinical thiamine deficiency commonly occurs with anemia. An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal. Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps...
    2. Scott Adams
      - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this...
    3. knitty kitty
      - knitty kitty replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease. Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease. Though having the genes for Celiac...
    4. trents
      - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining...
    5. SamAlvi
      - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,868
    • Most Online (within 30 mins)
      7,748
    LMGarrison
    Newest Member
    LMGarrison
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
    • Scott Adams
      Bob red mill gluten free oats

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      High TTG-IgG and Normal TTG-IgA

      By knitty kitty · Posted

      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease.   Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease.  Though having the genes for Celiac is not diagnostic in and of itself, taken with the antibody tests, the anemia and your reaction to gluten, it may be a confirmation you have Celiac disease.   Do discuss Gastrointestinal Beriberi with your doctors.  In Celiac disease, Gastrointestinal Beriberi is frequently overlooked by doctors.  The digestive system can be affected by localized Thiamine deficiency which causes symptoms consistent with yours.  Correction of nutritional deficiencies quickly is beneficial.  Benfotiamine, a form of thiamine, helps improve intestinal health.  All eight B vitamins, including Thiamine (Benfotiamine), should be supplemented because they all work together.   The B vitamins are needed in addition to iron to correct anemia.   Hope this helps!  Keep us posted on your progress!
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining of the small bowel which generates specific kinds of antibodies. Some people are IGA deficient and such that the IGA antibody tests done for celiac disease will have skewed results and cannot be trusted. In that case, there are IGG tests that can be ordered though, they aren't quite as specific for celiac disease as the IGA tests. But the possibility of IGA deficiency is why a "total IGA" test should always be ordered along with the TTG-IGA. The other modality is an endoscopy (scoping of the upper GI track) with a biopsy of the small bowel lining. The aforementioned autoimmune response produces inflammation in the small bowel lining which, over time, damages the structure of the lining. The biopsy is sent to a lab and microscopically analyzed for signs of this damage. If the damage is severe enough, it can often be spotted during the scoping itself. The endoscopy/biopsy is used as confirmation when the antibody results are positive, since there is a small chance that elevated antibody test scores can be caused by things other than celiac disease, particularly when the antibody test numbers are not particularly high. If the antibody test numbers are 10x normal or higher, physicians will sometimes declare an official diagnosis of celiac disease without an endoscopy/biopsy, particularly in the U.K. Some practitioners use stool tests to detect celiac disease but this modality is not widely recognized in the medical community as valid. Both celiac testing modalities outlined above require that you have been consuming generous amounts of gluten for weeks/months ahead of time. Many people make the mistake of experimenting with the gluten free diet or even reducing their gluten intake prior to testing. By doing so, they invalidate the testing because antibodies stop being produced, disappear from the blood and the lining of the small bowel begins to heal. So, then they are stuck in no man's land, wondering if they have celiac disease or NCGS. To resume gluten consumption, i.e., to undertake a "gluten challenge" is out of the question because their reaction to gluten is so strong that it would endanger their health. The lining of the small bowel is the place where all of the nutrition in the food we consume is absorbed. This lining is made up of billions of microscopically tiny fingerlike projections that create a tremendous nutrient absorption surface area. The inflammation caused by celiac disease wears down these fingers and greatly reduces the surface area needed for nutrient absorption. Thus, people with celiac disease often develop iron deficiency anemia and a host of other vitamin and mineral deficiencies. It is likely that many more people who have issues with gluten suffer from NCGS than from celiac disease. We actually know much more about the mechanism of celiac disease than we do about NCGS but some experts believe NCGS can transition into celiac disease.
    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.