Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Couple Of Random Questions...

AshleyE

By AshleyE
in Coping with Celiac Disease

Recommended Posts

AshleyE Apprentice
AshleyE
Posted

I have a couple of totally unrelated questions. I know that I can get glutened by kissing my husband after he's eaten something with gluten in it, so my question is this: what can he do to clean it off? Does just brushing his teeth get rid of the gluten? If not, what does he have to do?

Also, I know that I can get glutened by even just one crumb. What I'm wondering is how many people on here are actually symptomatic after ingesting one crumb? I know there are degrees of glutening, like I can tell when it's slipped in somewhere just because my mood changes, but then if I accidentally eat more of it I am on the toilet all day long with other symptoms lasting about a week. Is there anybody who gets outwardly physically ill after eating a crumb?

Sorry for the randomness, but these are the things that go through my newbie brain. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted

Ashley,

My husband brushes his teeth extremely well after he eats gluten, and usually rinses a little bit, too.

I am one of the super sensitive people who get sick off "one crumb." I have not eaten anything that has gluten in its ingredients in over 2 years (I get so sick, that I don't risk it. I go hungry insted of eat, if I haven't planned ahead, its that bad). However, I have gotten sick from cross contamination (even from small amounts). I shudder to think if I actually ate gluten in terms of a full bite of bread or such.

I'm sure you'll get more answers, hope this is a good start for you!

kbtoyssni Contributor
kbtoyssni
Posted

I've read that some people make their significant other use mouthwash before kissing. I have no idea myself since I haven't done much kissing since going gluten-free :)

I assume I'd get symptoms from one crumb of gluten (not about to do a self-test to find out, though!) I have gotten glutened at restaurants when I KNOW that the ingredients themselves were gluten-free, so there had to be some cross-contamination. After carefully instructing the waitstaff, I can only assume that the glutening came from a very small amount of gluten.

celiacgirls Apprentice
celiacgirls
Posted

I got sick from eating rice that the server patted down with his gloved hand (which probably had held a flour tortilla before). I scooped off the top part, hoping to get rid of all the gluten, but I was still sick the next day.

Another time, I got sick after discovering part of a crouton in my salad. I'm sure I didn't eat any of it but there was enough gluten in the salad to make me sick.

I was never sick before I gave up gluten. I only discovered I was intolerant after my daughter was dx'ed.

I would never test myself by eating any gluten intentionally. It just isn't worth it.

tarnalberry Community Regular
tarnalberry
Posted

I don't know if I get sick off "one crumb" but going by symptoms is useless, since you can have damage without symtoms anyway. :(

As for the kissing - I use primarily waiting (something that studies on peanut proteins for the allergic seem to support) and brushing. My husband mostly eats gluten-free, but not all the time.

aikiducky Apprentice
aikiducky
Posted

My hubby wipes his mouth, and rinses with a bit of water, and for a bit more "thorough" kissing :D , we wait and don't do it right after eating.

I get symptoms from less tha a crumb. A crumb is actually quite a lot of gluten...

Pauliina

Guest Norah022
Guest Norah022
Posted

i don't really worry about kissing my boyfriend after he has eaten gluten.

I am not as sensitive as most so one crumb doesn't really bother me.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ashley Enthusiast
Ashley
Posted

At the most, my mouth burned a little bit. That was about...maybe three hours so after my boyfriend had ate pizza. There wasn't a toothbrush 'round for him at the time, since it was at my 16th B-Day party and kinda didn't see that one comin' at me. I was actually surpised that I didn't breakout.

My reactions are really weird. Some make me hurl it back up, others just make my capilliars burst faintly and sometimes they're so shot that it takes a week and a half before my face isn't covered in red dots. I'm not sure what the deal is.

-Ash

ÆON Newbie
ÆON
Posted

I've gotten sick off of crumbs, but worse, got sick once off of just a smell. Actually I was taking a very deep smell of a plate of chicken nuggets - I probably breathed some crumbs in - very stupid move on my part.

As tarnalberry mentioned a crumb can cause damage that you may not feel, though.

My husband brushes his teeth after he eats gluten and it seems to work.

KaitiUSA Enthusiast
KaitiUSA
Posted

Not all crumbs may cause symptoms but it causes damage. I was glutened by kissing before.

heathen Apprentice
heathen
Posted

watch out for the new year's kiss!!! miller-lite kisses make me symptomatic within minutes. sure does take the fun out of a saturday night.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Dermatitis Herpetiformis
      1

      Natural remedies

      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living...
    2. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Gluten and short-term memory.

      It's interesting how a single, clear moment—like struggling during a game—can suddenly connect all the dots and reveal the hidden impact of gluten exposure. Your experience with short-term memory fog is a very real and documented symptom for many individuals with gluten sensitivity, often occurring alongside the other issues you mentioned like mood disturbances, sl...
    3. Scott Adams
      - Scott Adams replied to Suze046's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Reintroduction of Gluten

      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. What you're describing is a very common and frustrating experience when reintroducing gluten after a period of avoidance, and your timeline is perfectly c...
    4. Scott Adams
      - Scott Adams replied to Rejoicephd's topic in Coping with Celiac Disease
      2

      Draft gluten-free ciders… can they be trusted ?

      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained...
    5. Scott Adams
      - Scott Adams replied to Mykidzz3's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      High Cost of Gluten-Free Foods

      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,369
    • Most Online (within 30 mins)
      7,748
    Nick H.
    Newest Member
    Nick H.
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Natural remedies

      By Scott Adams · Posted

      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living, particularly for managing systemic inflammation and its various symptoms, so sharing your story is valuable. Your observation that it may also be helping with bloating is fascinating, as that could point to an overall reduction in inflammation. Thank you for sharing what is working for you!
    • Scott Adams
      Gluten and short-term memory.

      By Scott Adams · Posted

      It's interesting how a single, clear moment—like struggling during a game—can suddenly connect all the dots and reveal the hidden impact of gluten exposure. Your experience with short-term memory fog is a very real and documented symptom for many individuals with gluten sensitivity, often occurring alongside the other issues you mentioned like mood disturbances, sleep disruption, and digestive irregularity. It's a frustrating and often invisible effect that can make you feel unlike yourself, so that moment of clarity, though born from a tough dominoes match, is actually a powerful piece of self-knowledge. Identifying a specific culprit like that steak strip is a huge win, as it arms you with the information needed to avoid similar pitfalls in the future and protect your cognitive clarity. You are definitely not alone in experiencing this particular set of neurological and physical symptoms; it's a strong reminder of gluten's profound impact on the entire body, not just the digestive system. Supplementation may help you as well.  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      Reintroduction of Gluten

      By Scott Adams · Posted

      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. What you're describing is a very common and frustrating experience when reintroducing gluten after a period of avoidance, and your timeline is perfectly consistent with a non-celiac gluten sensitivity. While a celiac reaction can be more immediate, a sensitivity reaction is often delayed, sometimes taking several days to manifest as your body's inflammatory response builds up; the fact that your symptoms returned a few days after reintroduction is a strong indicator that gluten is indeed the culprit, not a coincidence. Your doctor's advice to reintroduce it was necessary to confirm the diagnosis, as the initial negative celiac test and subsequent improvement on a gluten-free diet pointed strongly towards sensitivity. Many in this community have gone through this exact same process of elimination and challenging, and it's wise to reintroduce gently as you did. Given your clear reaction, the best course of action is likely to resume a strict gluten-free diet, as managing a sensitivity is the primary way to control those debilitating symptoms and allow your body to heal fully.
    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained gluten-containing beer, contaminating your drink. The fact that you didn't react at a clean brewery suggests they may have had more meticulous practices or separate lines, but this is the exception, not the rule. Many in the community have had identical experiences, leading them to strictly avoid draft cider and opt for bottled or canned versions, which are poured directly from their sealed container and bypass the contaminated tap system entirely. Switching to bottles or cans is the safest strategy, and your plan to do so is a smart move to protect your health. PS - here are some articles on the topic:    
    • Scott Adams
      High Cost of Gluten-Free Foods

      By Scott Adams · Posted

      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and less processed, like rice, potatoes, beans, lentils, corn, eggs, and frozen fruits and vegetables—these are nutritional powerhouses that can form the basis of her meals. For the specialty items like bread and pasta, see if your local stores carry smaller, single-serving packages or allow returns if a product causes a reaction, as some companies understand this challenge. Regarding vitamins, that is an excellent next step; please ask her doctor to prescribe a high-quality gluten-free multivitamin, as insurance will often cover prescribed vitamins, making them much more affordable. Finally, connecting with a local celiac support group online can be a treasure trove of location-specific advice for finding the best and most affordable products in your area, saving you both time and money on the trial-and-error process. 
×
×
  • Create New...