Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Can I Drink?

Canadian Karen

Recommended Posts

Canadian Karen Community Regular
Canadian Karen
Posted

Currently, I am drinking water and Crystal Light.

Are fruit juices okay to drink on a sugar free diet? I know a lot of the juices on the market are filled with sugar. Anyone know any safe ones?

Thanks!

Karen

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


burdee Enthusiast
burdee
Posted

Hi Karen:

Any pure fruit juices (NOT JUICE 'DRINKS') would only have fructose, rather than dextrose, if you are trying to avoid sugar. I prefer to eat the fruit (for fiber, since constipation is one of my recurrent symptoms). So I drink herbal teas (esp. peppermint and chamomile which help with intestinal cramping pains) and diet caffeine free pop (limited to 1-2 daily since acidic stuff still bothers me). I also LOVE wine, but I'm limiting that also while I'm healing, because it also has that 'acidic' effect on me. If decaf doesn't bother you, you could consider decaf coffee. I recall you were limiting dairy (??), but was soy a problem for you? I don't drink decaf anymore because I could find an almond or rice milk (since I can't tolerate soy) which didn't separate in coffee. :o

BURDEE

Canadian Karen Community Regular
Canadian Karen
Posted
  • Author

Hi Burdee,

Thanks for the suggestion about the pure fruit juices.... Apple juice I can handle, I find though that orange juice is too acidic for me.... Also, I believe Welsh's grape juice is gluten-free - I maybe will try those...

I tried the soy milk before months ago when the dr. suggested for the first time that I cut out dairy - YUCK! It tasted horrible to me - I guess nothing will ever replace the pure joy I had when I gulped down a HUGE GLASS of milk without even coming up for air!! I SOOOO enjoyed my milk, I am truly missing it. But I do have to admit, I am finding some very positive results of these new restrictions - my stomach hasn't been this calm for a VERY LONG TIME!!! I am not running to the bathroom five times in the morning anymore, and instead of going probably 15-20 times during a day, I am only going now maybe 2 - 3 times. Also, I have decided to give Immodium another try, thinking maybe with all these new restrictions, maybe the Immodium will now have a chance to work - and I think it is helping.... Whatever the reason, I am definitely seeing an improvement.

Oh, I phoned my GI dr. to inform him that he prescribed Lomotil to me and that in fact that med contains gluten, he said "Oh, sorry"....... Humppphhhh! I guess I just learned a valuable lesson, ALWAYS check myself what I am putting in my mouth, even a GI doesn't know what contains gluten!!!

Have a great day!

Karen

burdee Enthusiast
burdee
Posted

Hey Karen:

The first brand/variety of Soy milk I tried was TERRIBLE. I think it was the plain Silk Wave soy milk. I thought trying the plain would tell me whether I liked soy milk, rather than trying a vanilla flavored variety. BAD IDEA!! :( The next brand/variety I tried was Pacific ULTRA soy original flavor, mainly because it had 10 grams of protein (vs. the usual 7 for soy milk and 8 for regular milk). I can't see putting a high carb/low protein milk on a high carb/low protein cereal, if I want my meal to last more than 30 minutes. :o Anyway that brand/variety was FANTASTIC. I loved it. :D Unfortunately, it didn't love my body and I got recurrent symptoms. The next few times (weeks apart) I tried just a tiny bit of soy and still got those symptoms, so I'm completely off soy. However, if you shop around and try different varieties/brands of soy milk, you might find a more palatable one. :) I really miss not having any milk, cheese, yogurt or margarine. But I'm really getting used to feeling better. Today was a much better day (just gas and a few twinges, no cramping or bloating). YAY! :D

BURDEE

Canadian Karen Community Regular
Canadian Karen
Posted
  • Author

Hi Burdee,

I am a bit afraid to try anything different..... I have been gluten-free (with some contaminations I recently found out about!) for 1 1/2 years, with little success (chronic diarrhea).. But in the one week that I have been dairy/sugar/caffeine free, I have notice more improvement this week than I have over the whole 1 1/2 years!!! Something is working, whether it be cutting out all dairy/sugar/caffeine or taking the Immodium again, or a combination of the both... Something is working, though...

Maybe in a month or so I will attempt soy. I do miss my gluten free cereal....

But if I notice even slight symptoms, I will discontinue right away - I don't want to take any steps backwards.... I am starting to truly believe I have a casein intolerance...

Karen

Canadian Karen Community Regular
Canadian Karen
Posted
  • Author

Also, you and I both had a pretty good day today!! I kept on thinking to myself at work today, "Boy, my stomach is pretty tame today".... "no pain, no gas, no bloating, only went to the bathroom 2 - 3 times instead of 10 - 15 times".... I haven't even had to go into the boardroom after lunch to lay on the floor like I used to have to do.....

Let's keep our fingers crossed!!!!

Karen

burdee Enthusiast
burdee
Posted

Hey Karen:

Maybe I will FINALLY learn to keep it simple when I'm feeling well, rather than taking chances and getting sick again. :blink: I vowed to another celiac friend today that I will avoid ANYTHING that bothers my stomach at all when I eat it--which includes anything on the acidic side like tomatoes, citrus, wine, mustard, caffeine, etc. as well as gluten/soy/dairy which don't bother me until they hit my intestines. I readily forget that I've been damaging my intestines for the past 50 years, so even foods other than gluten/dairy/soy may give me uncomfortable feelings until I have time to totally heal. At first I didn't want to restrict myself any more than I absolutely had to, for fear I would feel deprived and rebel by eating gluten/dairy/soy. Now the fear of recurrent excruciating pain is a HUGE motivator to stick to safe foods. Besides I've already found soooo many SAFE gluten/dairy/soy free foods that I never tried before. I enjoyed fresh figs for the first time in my life tonight. :D

BURDEE

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


crc0622 Apprentice
crc0622
Posted
At first I didn't want to restrict myself any more than I absolutely had to

I feel the same way. I am only gluten-free for a month and I still drink a cup of decaf coffee almost every day, a Coke every now and then (maybe 2 per week) and any food I want as long as it's gluten-free - although we do eat healthy at home, mostly whole food, not much manufactured stuff. I eat a LOT of fruit since it's all in season right now and yummy!

Anyway, I hope I am not causing myself an extended delay of my healing because of this. Fortunately, I did not get a lot of bad pain with my symptoms - never did - just the normal frequent diarrhea, constant bloating (which was the most painful thing). And it is drastically better in the last month - almost normal again.

So, do you "experts" think I'm hurting myself?

Celeste

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,659
    • Most Online (within 30 mins)
      7,748
    Amanda chef
    Newest Member
    Amanda chef
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      I am having a very hard time with foods calling themselves "Gluten Free" but in reading ingredients are not safe, cross contamination

      By trents · Posted

      Welcome to the forum, @Mary Miller A! May I ask, you say you are new to this online community but how long ago were you diagnosed as having celiac disease? You seem to have a good awareness of cross contamination issues but have you considered cross reactivity issues? Some of your cross contamination concerns should be addressed by FDA disclosure regulations having been put in place in recent years that require disclosure of the source of ingredients such as "modified food starch" and "natural flavorings" when they are made from any of the nine FDA recognized major allergens, wheat being one of the nine.  
    • Tracey Thomas
      New and Frustrated

      By Tracey Thomas · Posted

      So I’m back. Sorry for delay this has been a very expensive exhausting experience that I feel is still not resolved. So the reason for the B-12 issue is. Doctor tested me for alpha gal my test came back positive but numbers weren’t high enough for doctors. Meaning allergist., family doctor to think I should be having this kind of reaction. So there for the B-12 vitamins I was taking was a gummie form. So st this time thinking it’s the alpha gal I had to stop everything that was gelatin, anything that couldn’t swim or fly. The ingredients in things. So I’ve done this I’ve cleaned my system and things were getting better. I’m still scared from the hives that broke out all over the upper part of my body from trunk up. Scaring is on stomach and back area in some places. So any how I had allergy test done doctor said I wasn’t allergic to wheat that I was fine to eat gluten. So I still avoided gluten just to make sure. Well around Christmas I thought maybe I could try a little dessert so I did and I could tell over time it was making me tired but it was so good. So time went on and I tried natures own butter bread as toast with my eggs. That was ok couldn’t really tell anything so I thought darn I might be ok. So I’m eating regular instant oatmeal packs the cinnamon spice. Soon as I finished it my stomach was killing me. The day before I had the same thing but didn’t notice this like this time I ate it. But I did notice a burning itchy area on my left shoulder like collar bone area. Well it’s still there . So it’s same kind of spot that I broke out in prior at the beginning of all this. Now I’m confused my test for celiac which was blood test was negative. My allergist told me he believed I had a major health problem going on that could either be a form of cancer, rheumatoid arthritis, or my hypothyroidism was messed up. So had blood test done for rheumatoid arthritis that came back negative. My thyroid numbers were good I’m on levothyroxine for that. And nothing else was done so left it at alpha gal. Could this still be celiac. 
    • Mary Miller A
      I am having a very hard time with foods calling themselves "Gluten Free" but in reading ingredients are not safe, cross contamination

      By Mary Miller A · Posted

      I am new here.  I am really totally frustrated by trying to be as gluten free as possible, only to find out that products being called "gluten free" have serious ingredients that need clarification (like Methocellulose) which can be derived from wheat shafts, "yeast extract" which can be grown on wheat, rye or barley, and issues with companies that claim they are making "wheat free bread in a facility that can cross contaminate because they mostly make wheat bread.  I remember about a month ago reading from the Celiac's Foundation a paper regarding how it is virtually impossible to be "gluten free" (https://celiac.org/gluten-impossible-to-avoid-for-most-people-study-shows/).  And here I am again, with a basketball sized stomach (even when laying down), and frustrated beyond belief.  How do we do this? How do we fix this?  Is it even possible, to fix our diet to be without any possible small grain of gluten in our system?  It's hard emotionally, (not to mention physically;  the gassiness, the bloating, and certainly back door incontinence, as well as gastric problems and lack of nutrition, etc.  How do we fare when we don't even have doctors to advice us in small communities where "celiac's doesn't exist."  I am tired.  Anyone else?
    • Jenn D
      Still testing positive after being gluten free for one year ?!!

      By Jenn D · Posted

      Hi. Did your ema levels ever go negative? My son is 2 years in gluten free and they are still positive.  I'm scared he has refractory celiac disease. Please if anyone has any info greatly appreciate it. His ttg is 3 which is considered normal.
    • MomofGF
      Not sure if this is Celiac or just a gluten-free intolerance

      By MomofGF · Posted

      I will have that info soon but it was a laundry list of a test and 9 viles. ok so there were some days she was gluten she barely ate because of the reactions. I told her 3 weeks of atleast 10g’s a day and no gluten-free days. Thanks so much for your help! I didn’t know my suggestion for gluten-free days would have hurt her.    I will come back with the list to make sure the req was proper!! 
×
×
  • Create New...