Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oprah Today


prinsessa

Recommended Posts

prinsessa Contributor

Oprah did another one of her shows where she talks about poop and stuff with doctors. The one doctor (can't remember his name....is it Dr. Oz?) was talking about food "allergies" and mentioned lactose intolerance and wheat allergies as possible problems for one of the guests. I don't know if he meant gluten intolerance when he mentioned wheat, but he sure didn't say that. I think the guest said she was having diarrhea all the time that started with one of her pregnancies (I was in the kitchen when they first started talking). I kept thinking "say gluten intolerance....say gluten intolerance", but he didn't mention it :(.

With all of these poop shows Oprah does, you would think one of the doctors would mention gluten intolerance ;). Watching one of Oprah's "poop" shows was was first made me think something was wrong with me. The doctor was talking about what a BM should look like and I knew that mine must not be normal.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nic Collaborator
Oprah did another one of her shows where she talks about poop and stuff with doctors. The one doctor (can't remember his name....is it Dr. Oz?) was talking about food "allergies" and mentioned lactose intolerance and wheat allergies as possible problems for one of the guests. I don't know if he meant gluten intolerance when he mentioned wheat, but he sure didn't say that. I think the guest said she was having diarrhea all the time that started with one of her pregnancies (I was in the kitchen when they first started talking). I kept thinking "say gluten intolerance....say gluten intolerance", but he didn't mention it :(.

With all of these poop shows Oprah does, you would think one of the doctors would mention gluten intolerance ;). Watching one of Oprah's "poop" shows was was first made me think something was wrong with me. The doctor was talking about what a BM should look like and I knew that mine must not be normal.

Hi, I was actually just watching it and the woman said every time she ate she got diarrea and that she needs to load up her purse with Imodium just to go out to dinner. I was ready to scream at the TV "GLUTEN INTOLERANCE". But you are right it was not mentioned. He did say that it could be a food allergy and mentioned specifically lactose and wheat. I feel like writing to Oprah and having her tell that girl to get tested :P .

Nicole

beaglemania Rookie

wow, I was just thinking the exact same thing!! If Oprah can do a show on poop, can't she do a show on food allergies, including celiac??

DingoGirl Enthusiast

It's Dr. Mehmet Oz - I bought his book last year, before celiac dx....it makes me SO mad! Dr. Oz is the one to whom we should direct our letter campaigns, I think. Evidently we've all barraged Oprah with emails (I just sent another last week!) and she ignores us....so maybe we should target this doctor, as she listens to him.

:angry:

Jestgar Rising Star
Dr. Oz is the one to whom we should direct our letter campaigns, I think.

I agree, but in a positive, questioning way. In his book (which is really good btw) he talks a lot about constipation, and what to do about it, but not much about what to do if you go the other way. And I was really looking for that info. I had thought about writing and asking "but what if you have to go 4 times in the morning within 1/2 an hour? Is that normal?" And I don't have Celiac tummy issues!

jerseyangel Proficient

I actually have the show on now. When the woman with chronic D, purse full of Immodium, and has to constantly find a bathroom where ever she is said that it started with her last pregnancy--I was SURE he was gonna suggest Celiac or gluten intolerance as a possibility--but no! He mentioned lactose or wheat and that was it. It was the perfect opportunity to at least suggest the possibility and alert people to the symptoms of Celiac. Gr-r-r :angry:

He did say that a pregnancy or viral illness can cause a change in a person's immune system, but didn't do any further with it.

Guest ~jules~
I actually have the show on now. When the woman with chronic D, purse full of Immodium, and has to constantly find a bathroom where ever she is said that it started with her last pregnancy--I was SURE he was gonna suggest Celiac or gluten intolerance as a possibility--but no! He mentioned lactose or wheat and that was it. It was the perfect opportunity to at least suggest the possibility and alert people to the symptoms of Celiac. Gr-r-r :angry:

He did say that a pregnancy or viral illness can cause a change in a person's immune system, but didn't do any further with it.

I know, its soo frustrating when you just know someone has it. Either their on t.v. talking about it, and your pacing the floors, or its a relative who says oh, I don't have diareah though....ugh....how long is it going to take for this crap ( no pun intended ) to be recognized!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



e&j0304 Enthusiast
I actually have the show on now. When the woman with chronic D, purse full of Immodium, and has to constantly find a bathroom where ever she is said that it started with her last pregnancy--I was SURE he was gonna suggest Celiac or gluten intolerance as a possibility--but no! He mentioned lactose or wheat and that was it. It was the perfect opportunity to at least suggest the possibility and alert people to the symptoms of Celiac. Gr-r-r :angry:

He did say that a pregnancy or viral illness can cause a change in a person's immune system, but didn't do any further with it.

I am watching too and was going to get on here to see if anyone else saw it and you all beat me to it! I thought for sure he was going to mention celiac or gluten intolerance. She sounds classic! That would have really been nice if he would have mentioned it on there. So many people watch her show and especially when he's on.

jerseyangel Proficient

I *know*! It's not like I expect him to diagnose her on the spot :D But, a mention, considering her symptoms would have been nice. One word on that show would go a long way toward awareness! ;)

lindalee Enthusiast

Oprah acted like she didn't know what probiotics are. :blink: She is not up on our digestion process. Perhaps contacting the dr. would be the best bet for a show. He was skipping all over today-not a concentrated segement.

floridanative Community Regular

I also watched (or listened rather) to Oprah today while working on a project in the kitchen. I could not believe that poor lady with the *D* after having the baby....um, yeah she needs to get tested for Celiac - STAT! Here is what I'm going to do as mentioned above. I'm going to e-mail the Oprah show, yet again, and I'm not even going to mention her doing a show on Celiac. I'm going to say I'm praying she gets in touch with that woman from today and suggests she get tested for Celiac because there is a high probability she has it (birth being the trigger) and we clearly should not assume Oprah would know this, since as stated above, she's never heard of probiotics. Next, as stated above also, it is Dr. Oz's fault that he didn't bring up Celiac or gluten intolerance. Surely he's more informed than the average US doc about the condition. In any case, if anyone knows how to e-mail him, please post this. This guy has been on Oprah a lot and he may be able to get her to do a show if we appeal to him. He seems to enjoy the media spotlight. So to him, my suggestion is that we be really nice and say how concerned we are about that lady on today's show. Good luck to everyone who takes the time to write Oprah and/or Dr. Oz!

p.s. Dr. Mehmet Oz practices at Columbia (so does Dr. Green) so I find it hard to believe he is uninformed about Celiac but anything is possible. I just e-mailed him at info@columbiasurgery.org and his phone # is 212-305-4434. Maybe we just pester the heck out of him for a while. Unlike Oprah, he probably doesn't have tons of people to read his e-mail for him so maybe he'd at least get back to one of us eventually, even to say to leave him alone. It's worth a try in my opinion.

Green12 Enthusiast

I watched too and couldn't believe the advice that was given, or not given rather. It was basically, having d is normal when dealing with some kinds of foods.

Unrelated to celiac, I was thinking he should have suggested the PE teacher that had so much bacterial sweat be checked out by a doctor to make sure he didnt have something medical going on :unsure: .

Ruth52 Newbie

Being from Australia I haven't seen the Oprah show you are talking about but I wonder if his failure to mention 'Celiac' was intentional.

Often I think some doctors, especially ones who are making a 'public' name for themselves, have their own hidden agenda. I don't know what his would be, but I can't understand a supposedly well informed dr. who is trying to make a name for himself on television, not knowing about Celiac Disease or Gluten Intolerance.

Possibly by not mentioning a specific disease he is protecting himself from making a misdiagnosis on national television. Just a thought.

rez Apprentice

Oprah needs to do a show on Celiac/ Gluten Intolerance. I've emailed her. Everyone email her!! There's power in numbers!!!

Rikki Tikki Explorer
I actually have the show on now. When the woman with chronic D, purse full of Immodium, and has to constantly find a bathroom where ever she is said that it started with her last pregnancy--I was SURE he was gonna suggest Celiac or gluten intolerance as a possibility--but no! He mentioned lactose or wheat and that was it. It was the perfect opportunity to at least suggest the possibility and alert people to the symptoms of Celiac. Gr-r-r :angry: I was rather surprised that he didn't get into the damage constant D can cause, just that your body was getting rid of what wasn't good for it

He did say that a pregnancy or viral illness can cause a change in a person's immune system, but didn't do any further with it.

I agree, I was waiting, waiting, waiting, I wanted to scream at her, get tested it could save her so much grief :angry:

Oprah needs to do a show on Celiac/ Gluten Intolerance. I've emailed her. Everyone email her!! There's power in numbers!!!

We can try, we have been sending letters, emails for the past 2 years that I am aware of but she doesn't respond ;););)

katrinamaria Explorer

i would just like to say that, prinsessa, you saying "poop shows" over and over again about made me fall off my chair i was laughing so hard. thanks for a good giggle...i needed one today :)

Adelle Enthusiast

I saw it too. I'm glad he said wheat was a common allergen. Something at least.

I did e-mail him tho. Anyone know how I can write to oprah? I can't see her website as I'm on a sidekick (like a cell phone thing) not a computer (I don't have a computer). Thanks. I feel so bad for that woman, she's out there tonight, still suffering, still undiagnosed. Arg.

prinsessa Contributor
i would just like to say that, prinsessa, you saying "poop shows" over and over again about made me fall off my chair i was laughing so hard. thanks for a good giggle...i needed one today :)

:lol: Well that is what they are! It is kind of strange to hear people talking about poop on national tv. I think it is a good thing they are talking about it though. If people aren't having normal bms then something else is going on. Many people don't know what a normal bm is though.

I agree that we should try to contact Dr. Oz. He will probably listen to us better than Oprah would. It makes me sad that 95% of people with gluten intolerance don't even know it. I couldn't imagine going through my whole life feeling sick and not knowing what is wrong. If it wasn't for doing my own research, I still wouldn't know what was wrong.

GFNC Newbie

I agree with all the comments that have been posted above. I was watching the show and was so hopeful he would mention Celiac. I emailed Oprah's show the next day and asked if there was anyway they could get back in touch with that lady to have her get tested for Celiac. I described all the Celiac symptoms and that I was diagnosed with Celiac after a long time of symptoms just like this lady's symptoms. We can only hope!

  • 2 weeks later...
Debra515 Newbie

Hi,

For anyone with XM radio, Dr. Mehmet Oz has a program on Oprah and Friends. This may be a good start to opening a discussion. They're always looking for callers. Even though Dr. Oz is a cardiologist he'd have access to Dr. Green, who would probably love to promote his new book on his show.

Why don't we all e-mail Dr. Oz at :Open Original Shared Link

and request a show, or several shows about gluten intolerance and hopefully get Dr. Green a show on Oprah in the near future.

Just a thought.

powderprincess Rookie
Hi,

For anyone with XM radio, Dr. Mehmet Oz has a program on Oprah and Friends. This may be a good start to opening a discussion. They're always looking for callers. Even though Dr. Oz is a cardiologist he'd have access to Dr. Green, who would probably love to promote his new book on his show.

Why don't we all e-mail Dr. Oz at :Open Original Shared Link

and request a show, or several shows about gluten intolerance and hopefully get Dr. Green a show on Oprah in the near future.

Just a thought.

Cool, thanks for the link, I just send a message

happygirl Collaborator

not raining on your parade, but there as been a campaign on this board to write to her to get her to do a show....it has been going on for awhile now.....so far nothing. I sure hope she does one day!

Debra515 Newbie
not raining on your parade, but there as been a campaign on this board to write to her to get her to do a show....it has been going on for awhile now.....so far nothing. I sure hope she does one day!

Is there a law here that you can't do both? :unsure: Sorry, I'm new here and don't want to upset the cart.

I'm of the opinion that you need to educate a physican who may have a microphone- no matter how small the audience. I'll bet Dr. Oz has more physicians listening to his show on XM radio than Oprah has watching her show.

Any publicity would be good.

Rikki Tikki Explorer

I think she's just stating that we have been trying to get Oprah to do a show for quite some time. I don't think she was telling you not to do it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - captaincrab55 replied to sillyyak52's topic in Coping with Celiac Disease
      4

      Family education

    2. - trents replied to SaiP's topic in Coping with Celiac Disease
      11

      Dangerously underweight, Perfect gluten free and insomnia

    3. - trents replied to AndiOgris's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      False blood test positive?

    4. - SaiP replied to SaiP's topic in Coping with Celiac Disease
      11

      Dangerously underweight, Perfect gluten free and insomnia

    5. - AndiOgris posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      False blood test positive?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,172
    • Most Online (within 30 mins)
      7,748

    Melissa27
    Newest Member
    Melissa27
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • captaincrab55
      Welcome sillyyak52,  I'm not sure of your age or if you live with your parents.  Is there a nurse in your family or friend of the family that may be able to explain your diagnoses?  You can get a second opinion by taking your lab results to another GI Doctor.   Good Luck!
    • trents
      So, you have three symptoms of a gluten-related disorder: weight loss, brain fog and lose stools. Of the three, the lose stools that firm up when you cut back on gluten is the only symptom for which you have reasonable cause to assume is connected to gluten consumption since the other two persist when you cut back on gluten. But since you do not have any formal test results that prove celiac disease, you could just as easily have NCGS (Non Celiac Gluten Sensitivity). In fact, what testing you have had done indicates you do not have celiac disease. NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it. A diagnosis for NCGS depends on first ruling out celiac disease. It is 10x more common than celiac disease. Some experts feel it can be a precursor to the development of celiac disease. Eliminating gluten is the antidote for both. What muddies this whole question are two things: 1. Lack of official diagnostic data that indicates celiac disease. 2. Your persistence in consuming gluten, even though in smaller amounts. Your anxiety over the insomnia seems to outweigh your anxiety over the weight loss which prevents you from truly testing out the gluten free diet. What other medical testing have you had done recently? I think something else is going on besides a gluten disorder. Have you had a recent CBC (Complete Blood Count) and a recent CMP (Complete Metabolic Panel)? You say you don't believe you have any vitamin and mineral deficiencies but have you actually been tested for any. I certainly would be concerned with that if I was losing weight like you are despite consuming the high amount of calories you are.
    • trents
      Welcome to the forum, @AndiOgris! Recently upgraded guidelines for the "gluten challenge" recommend the daily consumption of at least 10g of gluten for at least 2 weeks to the day of testing to ensure valid testing, either for the antibody testing or the endoscopy/biopsy. 10g of gluten is roughly the amount found in 4-6 slices of wheat bread. So, there is a question in my mind as to whether or not your gluten consumption was intense enough to ensure valid testing the second time around. And was the tTG-IGA the only antibody test that was run? That is far from a comprehensive celiac panel. Concerning your negative biopsy, there is the possibility of patchy damage that was missed due to inadequate sampling as you alluded to. There is also the possibility that the onset of your celiac disease (if you have it) was so new that there had not yet been time to accumulate damage to the small bowel lining. Your total lack of symptoms at the time of diagnosis would seem to support this idea. Having said all that, and this is my informal observation from reading many, many posts like yours over the years, I wonder if you are on the cusp of celiac disease, crossing back and forth across that line for the time being. My suggestion would be to keep a close eye on this for the time being. Watch for the development of symptoms and request a more complete celiac panel a year from now. Here is an article that discusses the various antibody tests that can be run for celiac disease. Note: The EMA test is kind of outdated and expensive. It has been replaced by the tTG-IGA which measures the same thing and is less expensive to run.  
    • SaiP
      Hi, yes. Much more solid and firm, as opposite to diarrhea like when on gluten.
    • AndiOgris
      Hi all I have had a very confusing year with celiac disease (or perhaps not as it turns out) and wondered if anyone can help me make sense of it? My mother was diagnosed with celiac disease (in her 70s) a couple of years ago. I am in my early 40s and did not have any symptoms, but I took a blood test in November 2023 and it came back positive (TTG IGA 23.4 U/ml - normal range is below 7 U/ml). I was referred for a gastroscopy to confirm, which was scheduled for October 2024 (I use the UK health service, things move slowly!). The gastroscopy found no evidence of celiac disease.  My gastroenterologist has asked me to retake the blood test, and it just came back negative (TTG IGA 1.6 U/ml - normal range is below 7 U/ml). Given the long wait between my initial positive blood test and my gastroscopy, I reduced my gluten intake but never avoided it fully. In the 6 weeks before the gastroscopy and the second blood test, I made sure to eat at least two slices of bread a day as recommended, and often I had significantly more.  So what's going on? I understand that false positives are very rare for celiac blood tests, and usually associated with other serious diseases which I am fairly sure I don't have (my health is generally very good). After the negative biopsy, I thought that (i) either they did not take enough samples, or (ii) I have "potential celiac disease". But now that the second blood test has come back negative, I'm running out of plausible explanations...  Can anyone make sense of this? I have not spoken to my gastroenterologist yet - I wanted to get a better sense of where I am beforehand so that I can ask the right questions. Under the UK system, specialist doctors can be very hard to get hold of, so I need to make the most of my time with him! Thanks!        
×
×
  • Create New...